Patient Comments: Labyrinthitis - Experience


Please share your experience with labyrinthitis. It may help others. Submit Your Comment

Comment from: Julie, 55-64 Female (Patient) Published: May 12

Back in July 1999, I woke up and experienced terrifying vertigo when I tried to get out of bed. I was diagnosed with labyrinthitis. It came out of the blue and the next 2 months were horrendous. Then, after improving for a while, it returned with a vengeance in September and I was tested in the hospital. Long story short, it lasted for 11 months in all, but it did go! I still occasionally have days when it returns but attacks are brief and mild.

Comment from: Workingmom, 35-44 Female (Patient) Published: August 12

Having seasonal allergies I never thought it could lead to such inflammation of the middle and inner ear. After having such bad dizziness that had me bedridden for 2 days I got the labyrinthitis diagnosis. I feel so debilitated. I'm very active at home and work, so I'm relearning how to function with the dizziness. This is starting week 2. I can't drive or work yet. Just waiting to feel better.

Comment from: Idahogal, 65-74 Female (Patient) Published: July 09

I had 2 weeks of purring in my left ear, followed by 2 weeks of dizzy spells with hearing shutting down in the left ear. Then I had a major vertigo attack after being on hands and knees in the garden. So sick I thought I would die. CT scan and blood work led doctor to labyrinthitis diagnosis. For a week I had no energy and severe vertigo which has gotten much better over the month since. Still deaf in my left ear. I did a round of 60 mg prednisone. Meclizine has helped. ENT is treating me for Meniere’s disease with water pill.

Comment from: Vicki , 35-44 Female (Patient) Published: May 13

I woke on January 7th, 2019 with dizziness and spinning to the right. I had to hold the rails and walls, couldn't walk upstairs, and would stop completely when going from indoors to outdoors. I am nearly walking into the road, can't drive straight and on and on! It's been 4 months now, I've seen general physicians, private doctor, had blood and urine tests, and MRI brain scans. I have no answers, just that it is labyrinthitis!

Comment from: Debbie, 55-64 Female (Patient) Published: January 22

After two week Christmas work break I returned to work with severe sleep deprivation the first week. On the fifth day I awoke in the night with severe vertigo causing me to fall holding the wall to walk. Room was spinning wildly with severe nausea. The acute phase lasted about 3 days, with light headed disoriented feeling 7 days later still. I had no known cause, with no cold or flu virus prior. Blood pressure up to extreme initially but normal now. I was diagnosed with labyrinthitis. Chronically sleepy still.

Comment from: Janie, 75 or over Female (Patient) Published: December 06

I was diagnosed with labyrinthitis after the death of my daughter. I traveled to Florida for the funeral with very slight symptoms. After coming home following a horrible airport experience where I missed my flight, the next morning my dizziness was much worse requiring me to hold furniture as I walked to avoid falling. I suppose that was an example of stress making the disease worse.

Comment from: Miniongirl, 45-54 Female (Patient) Published: September 19

I was diagnosed with labyrinthitis after I had a migraine. I kept losing my balance and I’d get so dizzy I’d get nauseous. Doctor only suggested Gravol for motion sickness which helped. I’ve been off work for 5 days now and I don’t have earache or pain.


Balance Disorders: Vertigo, Motion Sickness, Labyrinthitis, and More See Slideshow