Patient Comments: Klippel-Trènaunay-Weber syndrome - Symptoms


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Comment from: Rosmarie, 75 or over Female (Patient) Published: July 18

I was born with Klippel-Trenaunay-Weber syndrome and it has been a nasty disease to be born with. I have been embarrassed with this condition all my life. I have had many treatments for the veins on which I had to have an operation before starting a teaching career. My vein surgeon had only seen a few cases. I am now 80 and the leg looks so horrid, I never expose it (except when going in the swimming pool for aqua classes). I know of no one else with this condition. My right leg and buttock only are affected. My right foot is now is painful and partly numb. I have paid for treatments on the surface veins but they quickly return so I have given up hope of getting anything to improve them at my age. At least I am still alive!


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