Patient Comments: Kidney Cancer - Symptoms


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Comment from: tracey, 45-54 Female (Patient) Published: February 27

I thought I was having a heart attack a few weeks ago, was put in hospital and had CT scan done. It was my gallbladder, and I had it taken out, but the scan showed a 7 cm mass on my right kidney. Yes it is kidney cancer, I am now waiting for the go ahead to have my whole kidney taken out. I am having a lot of pain now as well. If it was not for my gallbladder playing up I would have not known I had cancer at all.

Comment from: Renrow, 55-64 Female (Caregiver) Published: November 30

My mom had kidney cancer in 2008, diagnosed with small cell carcinoma on left kidney that metastasized to her lungs. The little cough was first symptom. I noticed it two years prior. It was a little dry cough, nonproductive and annoying. They looked for months to see what was in her lungs. February 13, 2009 it was renal cell carcinoma stage four, that had spread to lungs. She then fell and broke her neck bones, later it went to her bowels and spine. I noticed her pretty white teeth were yellow. Kidney was removed, bowel reconstructed and partial lung removed. She died August 23, 2009.

Comment from: Pam , 45-54 Female (Patient) Published: August 09

I had a nagging left sided back pain for years, felt like I had a kidney infection all the time, fatigue and chills, and high blood pressure as well. They did a CAT scan and that’s when kidney cancer was discovered, a 4.8 cm left renal mass. I had to wait 2 months but it was finally taken out five days ago and that back pain and fatigue are gone. I am waiting for the pathology report now.

Comment from: Staying Positive , 65-74 Female (Patient) Published: July 20

I had been suffering with incontinence for some months, often desperate to pass urine and at times only able to pass dribbles. My doctor sent me for a CT scan of my kidneys, bladder and lungs. Within 40 minutes of the scan I received a phone call telling me I needed a second scan using a dye which revealed a 5 cm mass on my left kidney which a urologist has informed me is stage 2 cancer in my left kidney. I am currently waiting to have my left kidney and possibly the tube removed.

Comment from: Denise, 55-64 Female (Patient) Published: July 03

I had abdominal bloating for 2 months along with epigastric pain. I went to my primary physician who ordered a CT. That showed a right side renal cell carcinoma. I had an MRI which confirmed the diagnosis. It's 11 mm and is a 4 on the Bosniak scale, and a stage one cancer. We are doing active surveillance at this time and will visit the doctor next week for 3 month follow up. Will decide at that time on course of action. Mentally, one day I want the thing out - partial nephrectomy, and then I want to continue with active surveillance.

Comment from: LINDA1948 , 65-74 Male (Caregiver) Published: April 07

My husband had half of his left kidney removed due to renal cell carcinoma. Now he has benign prostatic hyperplasia (BPH) and urine incontinence. I wonder if kidney cancer and BPH are related; he may need prostate surgery.

Comment from: Ger, 45-54 Female (Caregiver) Published: November 13

My son has had chemotherapy, radiation and esophagectomy surgery for kidney cancer. Now PET scan is clear but there is a small lesion in the liver. They did biopsy which only showed normal cells. I don’t know what to think; waiting 8 weeks to redo CT scan.

Comment from: Dann Ferrin, 75 or over Male (Patient) Published: July 03

I have no symptoms at all of kidney cancer, but my pulmonologist saw something on my kidney in a chest x-ray and sent me to my urologist who told me to wait 6 months and get another CAT scan, which I did. I had a mass on my right kidney of about 3 x 4 cm. I am scheduled for a procedure on the 5th of July to freeze the mass. Hopefully it works, but if not I am 77 years old and it has been one great 77 years.

Comment from: Félix C. , 55-64 Male (Patient) Published: May 22

I had no symptoms of kidney cancer. Routine check-up found a 1.8 cm renal cell carcinoma. I am scheduled for da Vinci robotic surgery on 29 May 2018.

Comment from: magnolia8003, 55-64 Female (Patient) Published: January 04

My renal cell carcinoma (RCC) was found when I went to my surgeon with severe pain in the right lower abdomen and lower back. A CT scan showed a 2.6 cm mass on my left kidney. I am now hardly able to walk due to my back pain and it has extended to my right leg. I am told it is most likely unrelated to my RCC, but I have read many posts on this site with similar symptoms. I also suffer from fatigue, night sweats and swelling in my legs. I am scheduled for partial left nephrectomy next month, but trying to get it done sooner with hopes that my symptoms will subside. At times the pain is unbearable.


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Comment from: Euni, 75 or over Female (Patient) Published: April 21

I had frequent bladder infection for many years; in 2012 I also had soreness in my fishtail. My doctor ordered a sonogram, and saw a large mass in my right kidney. She sent me to a urologist, who did a CT scan, etc., and scheduled the kidney removal in February. 2013. The tumor was 6.7 cm, contained in the kidney with no cancer cells within 1/2 inch from removal, so no chemotherapy was ordered. They did a CT scan in the fall of 2013. In the fall of 2014, my family doctor ordered a CT scan, found a mass in left kidney, and then referred me to an oncologist. A PET scan was done; I was diagnosed with stage four cancer. I have several questions as to why I wasn't given chemotherapy, why I wasn't referred to the oncologist, and most of all, why I didn't seek second or third opinions! I trusted the urologist too much!

Comment from: Linda, Female (Patient) Published: April 21

When I was 51, I went for a routine colonoscopy. The doctor couldn't perform the test so he scheduled a CT scan with contrast to see if there was a reason why he couldn't get the scope through. Instead, they found a tumor on my right kidney, 8 cm. I had a right nephrectomy 3 weeks later. Once the cancer was found, some symptoms I had been having made sense. My blood pressure was usually low (106/60). I had been to the doctor for routine checkup and it was 120/80. I also went to the gym and easily did 4 miles on the treadmill. Suddenly, I couldn't bear to even move on the treadmill and was wondering why. I also had such fatigue, like early stages of pregnancy, at around 7:00 at night. I also had some vague pain in my lower back when I lay down. The cancer was found 5 months after the symptoms. It would have been a long time before those symptoms brought me to a doctor.

Comment from: Bob, 65-74 Male (Patient) Published: September 22

I had no pain, just one time only bloody urine. It turned out to be cancer in both kidneys. The left one was removed and half of the right was removed. Since then it has metastasized to the right elbow, which was surgically removed. Then it metastasized to the left femur, also reconstructed. I have been in stage 4 for 3.5 years.

Comment from: Sharon, 35-44 Female (Patient) Published: March 17

In 2009 when I was 39 I had pain in my right side so I went for a scan to find out I had a tumor in my left kidney. I baffled the doctors as I didn’t have any symptoms and didn’t fit into the category for kidney cancer. I don’t drink, don’t smoke, don’t take any medication, and am not over weight. I had my operation to remove my whole kidney but got left paralyzed from the operation going wrong. But it doesn’t matter as I am still me and alive to look after my 4 children.

Comment from: cmae, 65-74 Female (Patient) Published: August 01

I am 65 years old. I had night sweats, anemia (which doctors attributed to coincidental gastrointestinal bleed), increasing fatigue (doctors attributed to anemia), loss of appetite, and 50 lb. unintentional weight loss. My gastroenterologist finally decided he wanted CT scans, and after Medicare put up a month long fight about that, I was diagnosed with a 10 cm renal carcinoma. I had my kidney removed. I am gaining weight back quickly (darn it!) but am just happy to be among the living. It's been a year, so far so good.

Comment from: Janeen, 65-74 Female (Patient) Published: June 17

After several months of nausea and bloating and lots of feeling of pulling on my right groin and hip, I went to the doctor and they found a large mass on my right kidney, 12 cm. It had taken over the kidney. I was diagnosed with renal cell carcinoma (RCC) and had radical right nephrectomy and adrenal surgery. Very painful, but after the tumor was sent for testing they decided it wasn't cancer but a benign tumor called oncocytoma. I have been very pleased with my recovery!

Comment from: travlermjw, 65-74 Male (Caregiver) Published: March 18

My husband, age 71, had a partial nephrectomy 5 weeks ago and is doing great. The tumor margins were clear for clear cell carcinoma, but it had invaded the paranephric fat on top of the kidney. That was removed also and that is all the treatment he will get. The doctor said he will have a CT scan in June followed by every three month checkups including chest x-ray, blood work etc. The one thing I wanted to mention which is never mentioned in regard to kidney cancer is the foul odor of the urine. Before it was discovered accidentally that he had blood in his urine, we both noticed a very rancid odor to his urine. We mentioned this to the doctor but was poo-pooed and told that it was nothing without even checking him out. We mentioned this one year before his actual diagnosis of kidney cancer. Guess what, there is no odor since he had the surgery. Good luck everyone!

Comment from: ljfcirc, 45-54 Female (Patient) Published: March 07

In 1998 I injured my shoulder bowling and had to have a body scan. They noticed a mass on my left kidney. It turns out I had renal cell carcinoma. I was in total shock. I had experienced no symptoms whatsoever. I had my left kidney removed. I was 38 years old. I am now 54 and have been cancer free for 16 years. I now see my shoulder injury as divine intervention!


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Comment from: howsschool, 55-64 Male (Patient) Published: January 13

I was at work one Friday when at lunchtime I went to the bathroom and passed blood. I thought, “This can't be good.” I went back to my computer to look up what it could be and decided to drive myself to the emergency room. I told the doctors I had passed blood and by then I had a terrible pain on my right side. They gave me a CT scan and said I had a "renal mass." This was all within about three hours of passing blood. My regular doctor came by on Saturday and said he saw the scan and he thought it was kidney cancer. By then, a urologist had been contacted and he scheduled a radical nephrectomy for the following Thursday. It turned out to be kidney cancer - stage 3 - because of the size of the tumor he said. I was in the hospital a total of 11 days. That was about 15 months ago. Thank God for that urologist. I've told him he saved my life. I go for periodic X-rays, and a CT scan is scheduled for next week. I keep praying that none of that cancer ever comes back.

Published: October 31

My kidney cancer was found purely by accident as a lot of times they are. I had an abscess tooth and went into the dentist. Seconds after getting into the dental chair, she found a lump on the inside of my cheek. She sent me directly to an oral surgeon who did a biopsy. It came back cancer of the salivary gland. I was sent to see a top ENT (ear, nose, throat) doctor who did an upper CT scan and performed surgery on my mouth. After that surgery was performed, the CT scan came back with something on my kidney. Well, what it saw was the top of a 10 cm tumor on my kidney. I went in a year ago on Valentine's Day and had my left kidney removed. It was removed laparoscopically by a top transplant surgeon. I was very lucky. Both cancers turned out to be very rare forms, acinic cell carcinoma (which only 3% of the population gets), and chromophobe renal cancer, which only 3% of the population gets. Both have few statistics on them, but my prognosis is very good. Thank goodness I had a good dentist who checked my cheeks!

Comment from: Kat , 45-54 Female (Patient) Published: May 02

I’ve just been called by my consultant telling me I’ve got cysts on my lower left kidney. I’ve had bowel cancer when I was 35. I’ve been getting pains in lower back, my left leg swells, I have pain in my left arm, and also my hands swell. I got pain in the left side of my neck also. I wonder if these symptoms are anything to do with the cysts and worried about kidney cancer. I also have a skin disorder called Birt-Hogg-Dube syndrome which is very rare.

Comment from: mismuffet2002, 55-64 Female (Patient) Published: August 21

I had kidney cancer last year and the left kidney was removed. I follow up with scans every 6 months. My back hurt and I had blood in my urine. I had a car accident where a lady hit my truck from the back. This is when they did a scan at the hospital to find the cancer.

Comment from: krhgk, 55-64 Male (Caregiver) Published: March 13

Six days ago, my husband had a horse accident that sent him to the trauma emergency room. While doing a CT scan with contrast of his chest, abdomen and pelvic area, it was discovered he has a tumor attached to the outside of his left kidney. Wow, no symptoms at all! The trauma doctor told him that he needed to follow up with his primary doctor for referral. The trauma doctor didn't want to talk too much about the tumor however he was adamant that he follow up about this tumor on the kidney right away. Monday he was seen by his primary doctor. He explained what happened over the weekend. His doctor had not called for his records therefore had no record in front of him or the CT results. The primary doctor said let's do an ultra sound tomorrow. I had the worried look I guess. The primary doctor said to us, these things happen all the time. Most of the time with noncancerous results. I'm still very worried! The trauma doctor who saw the tumor on the CT scan was very concerned. Being that he has a bigger belly I don't think the ultra sound is going to give a better reading with much more clarity.

Comment from: Formula4spd455, 45-54 Male (Patient) Published: November 25

I found out I had a mass on my right kidney by my 12 year old son giving me his bear hug, as kids do to try and hurt their daddy. And he did, but the pain never quit. I had it checked, x-ray found nothing CAT scan nothing, and then finally CAT scan with drinking this stuff found the kidney cancer. Thank goodness my son hugged me, I think it really saved my life.

Comment from: overit, 35-44 Female (Patient) Published: July 31

I have had urine test today to check for malignant cancer cells in my kidney as ultrasounds and x-rays and CT scan have showed nothing. I have blood in urine, and protein, pain in right side down low, and lower back pain. Pain is constant and spasms also can be so severe that last week my son had to call ambulance as I could not move or get out of bed. So for the last week I have been having tests and the doctors seem to be baffled as am I. So I await these tests. A few months ago though I had a very high red cell blood count for nearly 6 weeks and that was a mystery also and just got better so to speak. After a little research I am starting to wonder if it is all connected to my kidneys.

Comment from: Mom-Mom, 55-64 Female (Patient) Published: July 31

I had blood in my urine and ended up at the emergency room (ER) where I was diagnosed with my first ever urinary tract infection (UTI). I truly feel that the bloody urine was my body's reaction to the cancer growing inside of me although I wasn't diagnosed with cancer at that time. A few months later I had an abdominal CT scan (to see if I could have flap surgery for a prophylactic mastectomy) and that was when the cancer was discovered. I was scheduled for a partial nephrectomy using a laparoscope, but ended up with a huge incision because of previous abdominal surgeries. I spent two nights in the hospital and for the next 6 months felt very fatigued. The one theme I have read over and over in these posts is to trust your body. If you think something is wrong, check it out.

Comment from: ProudUSVet, 35-44 Female (Patient) Published: July 14

As a veteran, I think that I have some of the greatest healthcare providers in the world. I woke up one Friday morning in pain and bleeding out but wasn't concerned with the pain but the blood had me worried (I've had a hysterectomy so I shouldn't be bleeding). At lunch this was still going on so I went to the VA (Veterans Affairs) to have it checked out. After 11 hours of testing I was sent home with a follow up appointment for a 2nd CT on Monday. This CT and the one done on Friday showed a renal mass on my left kidney. I chose to wait 2 months before having it removed as it wasn't going anywhere and I was on a cruise. On May 21st I had the tumor removed by an amazing surgeon using the laparoscopic Da Vinci method. The next day I went home. The recovery was fairly easy but required loose clothing, no swimming or baths for 5 weeks and no heavy lifting.

Comment from: bobs, 45-54 Female (Patient) Published: March 13

I had back pain with night sweat; the pain became so bad that I went to the emergency room. They thought I was passing a stone, they did CT scan then told me to follow up with my doctor. I did and he had me repeat the scan and did an ultrasound all of which came back positive; that was about a month ago. I just had the kidney removed, very painful.

Comment from: Malik, 25-34 Male (Patient) Published: December 16

I have a damaged spinal cord which has a lesion which makes the side of my body have pins and needles and numbness though I can still walk. I had an MRI scan to check on the lesion when a mass was found on my left kidney and I was referred to a cancer specialist and a biopsy showed renal cell carcinoma. After an agonizing wait I had RFA (radio frequency ablation) which is a fairly new treatment for cancer; it burns the tumor. I'm having routine scans to keep an eye on things but it’s difficult.

Comment from: Susan44, 65-74 Male (Caregiver) Published: November 25

In 2009 my husband, then 68, couldn't hold any food down. He began vomiting. Then he had a slight ache in his left side. I noticed puffiness under and to the side of each eye. My daughter, a nurse, told me to take him to the emergency room. They found a very large tumor on his left kidney, big enough to call it stage 2 plus and he had withheld two liters of urine. He had it removed laparoscopically with no problems but he takes even longer naps since. Today I noticed the puffiness again which he denies. I'm really scared. He has lost some weight but denies this also and eats anything he wants, especially many cans of diet soda daily sweetened with high fructose corn syrup.

Comment from: RCC in my pancreas, 35-44 Female (Patient) Published: October 31

I was 36 with 2 kids when I was first diagnosed. Initially, I had pain (briefly) and blood in my urine, thought maybe I passed a kidney stone. But, within a month I had a right nephrectomy. I later had a part of my left kidney and most of my pancreas removed for RCC (renal cell carcinoma). My follow-up has been frustrating! I feel I should have regular CTs or MRIs. My doctor says it is not necessary to have them done annually.

Comment from: Michael, 55-64 Male (Patient) Published: January 13

I am a 55-year-old male. One day, some 18 months back, I had blood in my urine. I went to a urologist who found nothing. The episodes started up again some six months later with blood in the urine for a day, and then clear for the next several weeks. I did not have any pain, just occasional blood in the urine. I went to another urologist who diagnosed it as kidney cancer and recommended a “radical nephrectomy.” My thoughts were, “No, I don’t have any kidney cancer.” So I obtained a second opinion, then a third, and finally a fourth opinion. After much thought, I had the surgery to remove my left kidney. It was cancer, an invasive papillary urothelial carcinoma, of a high grade. The doctor said that was the bad news, but the good news was it was all in my left kidney, which is now gone. My surgery was eight weeks ago today, and aside from being weak, I’m on the road to recovery.

Comment from: Peggy Sue, 45-54 Female (Patient) Published: January 13

I’m a 50-year-old woman in good physical shape! I had no idea that I had a cancer tumor 6 cm growing directly in the middle of my outer-front right kidney. I became very ill with a stomach virus from one hour to the next, throwing up severely. It made my blood count go up. The ER technician had a CT scan ordered with the intentions of maybe finding something wrong with my pancreas and instead found the tumor! My kidney was removed entirely on Nov. 10, 2008, and I'm cancer-free because of early detection! It had been growing for about five years. I think everyone should have a body CT scan performed once a year so cancer can be detected in time!

Comment from: Coral, 55-64 Female (Patient) Published: January 13

My kidney cancer was found five years ago when I was in the hospital having a major flare-up of lupus. In doing all their tests, it was discovered that there was something on my kidney. I had had no previous signs. I had my left kidney removed with no further treatment needed. I have regular check-ups with CT scans and chest X-rays.

Comment from: betso61, 45-54 Female (Patient) Published: January 13

I am a 46-year-old female and had a dull pain in my lower back that extended to the front pelvic area for a few months, almost like mild muscle spasms. I went to the doctor, and after a few visits, two ultrasounds and two CT scans, it was confirmed I had a small tumor on my left kidney. I had surgery six weeks ago (partial nephrectomy) to remove the tumor. I was very lucky to have found it early, the tumor was only 1.5 cm. The cancer was contained to the kidney, and I only lost about 5% of my kidney. The doctors insist that the back pain had nothing to do with the tumor, but since surgery, the pain is gone. Listen to your body, if something doesn't seem right, it probably isn't.

Comment from: canadian jane, 45-54 Female (Patient) Published: October 13

I am 51 yr old female, had no symptoms. Family doctor sent me for baseline abdominal ultrasound to check the conditions of my kidneys, as I’ve been on blood pressure meds for about 15 yrs, and a routine blood test to check kidney function showed slightly different results when we changed one of my medications. A 15cm mass was found on my left kidney, confirmed as renal cell carcinoma by CAT scan with dye. This was 30 days ago. I've had the kidney, tumor, adrenal gland and 4 lymph nodes removed by radical nephrectomy 19 days ago. Stage 3 with no cancer cells found in the lymph nodes, margins or the adrenal gland, but was in the surrounding fatty tissue. Grade 3 aggressive cells. We now wait 30 days and will do new CAT scans of the chest, abdomen and pelvis to look for any new nodules. As my tumor was so large (it weighed over 4 lbs) I have a lot of pain from the surgery, particularly rib pain from having my ribs 'severely retracted' in order to get the monster out of me. I am working hard to remain optimistic for a good outcome the mental stress and recovery is by far harder than the physical.

Comment from: Sue, 35-44 Female (Patient) Published: October 13

It was just 6 yrs ago for me. I want to give you all the hope you need. Especially those of you who are new to this. I was 35 when I was diagnosed. I had Stage 3B Kidney cancer. I had no symptoms and it was found completely by accident. I was having a miscarriage and the technician who was doing an ultra sound just decided to look at my kidneys. I had a 5 cm tumor. I was told it was a very aggressive cancer and I would have been dead in 6 months. Well here I am. Yes, it was painful to have surgery. What surgery isn't painful? The biggest thing that no one told me about was the way I'd feel with an organ removed. Your body kind of switches around for months after surgery. Like your organs are hanging in that empty spot. I still struggle with the fears that someday it will return. Life is so short.

Comment from: HD-Rider, 65-74 Male (Caregiver) Published: September 30

My husband had his left kidney removed yesterday because of kidney cancer. It had a 12 cm mass that began within the kidney and then moved outside, around, over, and under the kidney. Only two small strips of normal-looking kidney tissue remained. He had absolutely no symptoms until blood appeared in his urine after mowing the lawn. His urologist had him in surgery within hours of examining him. Thankfully, even though the tumor was the size of Kansas, it hadn't invaded surrounding tissues, nodes, veins, or arteries. The outlook is excellent. I do think, however, that urologists should at the minimum, take a peek at the kidneys when they are working with prostrate glands. My husband had two prostate biopsies, but no one ever looked at his kidneys. The cancer had been growing for several years and a quick sonogram session would have revealed it. It took less than five minutes with a sonogram machine to do so this week. I find this disturbing.

Comment from: victoria, 55-64 Female (Patient) Published: August 15

My kidney cancer was found purely by accident. I had been getting facial and leg hives for a few months. Thinking it was a due to my dogs and or foods I was eating. I went to an allergist who took blood tests. She called me that evening to go to emergency right away that my liver toxins are way over their levels. 30 normal 1040 was my levels at this point. So what is making this happen? Well I was test for all, and anything but during my CT test they told me I had a one inch hard mass on my left kidney. Visit to urology and was told it had to come out. No blood on my urine, no aches or pains. It was a shock. I had it taken out one month later. 5 days after I was told it was cancer. So I guess it was a blessing. But now I move on to see if and what damage it caused. I feel for someone who never smoked, drink, and took care of what she ate. It could happen to anyone.

Comment from: CT scan, 55-64 Female (Patient) Published: August 01

I had a recheck on my right kidney as on the ultrasound it showed abnormal complex cyst on my left kidney. Later I found out it was a mass. I have had CT scan and waiting on results to rule out kidney cancer. I had to drink liquid then saline IV and dye; waiting.

Comment from: Jewel, 55-64 Female (Patient) Published: May 30

I've just been diagnosed with renal cell carcinoma and am waiting to find out if there has been any metastasis. I don't feel so fearful after reading some of these comments. Thanks.

Comment from: JRod, 35-44 Female (Patient) Published: May 29

My doctor has informed me of a 15 cm and 13 cm lesion on left kidney. MRI with contrast is tomorrow (5/24). I am trying not to be nervous but the likelihood of losing a kidney seems high, given the size the kidney cancer.

Comment from: Tina , 45-54 Female (Patient) Published: May 01

I don't know if I do have cancer in kidney but I had cancer in my ovaries in 1994. The cancer did something to my kidneys on the outside of it!

Comment from: Natalie Nicole , 45-54 Female (Patient) Published: April 27

I am 46 years old. I have no symptoms of kidney cancer. I had an ultrasound done as a redo to 1 from last year to look into a lump of some kind above my belly button. Short and sweet, it turns out to be a hernia. Ok. Gall stones are still there from last year’s ultrasound with which I haven’t had an issue. Well, after this ultrasound the doctor called me to say that a mass was found, about 2 cm, on my kidney and wants to order blood work and a CT scan. This was a Monday. Tuesday blood work was done; no results yet. Friday, tomorrow is the CT scan with contrast. Only thing wrong with me is overweight. I don’t smoke, nothing. Of course now I’m freaking out. Appetite has changed, not hungry, mind is wondering all over the place with all kinds of thoughts. Obviously my life has changed. Maybe I am overreacting.

Comment from: JTW142, 35-44 Male (Patient) Published: March 25

I was just notified that during a CAT scan of my abdominal cavity, the radiologist noticed several cysts in my right kidney. He further noticed that I have an 8 mm mass that he called a possible tumor by the cysts. Not sure what to do from here.

Comment from: tuppertea, 55-64 Female (Patient) Published: June 24

I have just been diagnosed with a left kidney neoplasm and right kidney angiomyolipoma, so a bit shaken up and waiting for the next round of tests and treatment regimes. Both are totally differing tumors so not sure how it will all go.

Comment from: cardor, 75 or over Male (Patient) Published: July 30

I have renal cancer, I have fatigue.

Comment from: Travelly, 55-64 Male (Caregiver) Published: June 05

My husband was going to donate his kidney to his cousin. During the extensive testing it was discovered that he himself had a tumor on his own kidney. This was successfully removed 6 years ago. We are thankful daily that his offer to donate a kidney saved his own life. A year later his cousin received a cadaver kidney and his life was also saved!

Comment from: Beausgigi, 55-64 Male (Caregiver) Published: April 22

My husband had kidney cancer and his left kidney was removed in December 2012. All checkups have been great. For the last couple of months, he has noticed a very pungent odor in is urine. He has some pain in his back. I wonder if this could this be a urinary tract infection (UTI). He is scheduled on 5/12 for his 6 month checkup with his doctor. He will have a CT scan and x-ray.

Comment from: Kathy, 55-64 Female (Patient) Published: August 01

My ccRCC was discovered when I went to the ER with a GI bleed and a CT scan revealed the large mass. Further studies determined that my cancer had traveled to my lungs. I had a radical nephrectomy and will very soon begin treatment of my cancer in my lungs with votrient. I feel good and hope I remain that way during treatment.

Comment from: J9, 55-64 Female (Patient) Published: January 13

I had no symptoms except for more indigestion than normal, so I went for an upper GI, and that's when they found that there was something on my left kidney. I went for an ultrasound, and it came back showing a solid mass. I then went for a CT scan and to see a surgeon. This was Oct. 14, 2008. I was scheduled for surgery to have my kidney removed on November 4, 2008. I was in the hospital for a week. My tumor was 1.5 pounds, and it was 17 by 10 by 8 cm. I've since returned to work. I have a pain on my right side, which the doctor's don't know why. I had another CT scan and ultrasound, which shows something on my right kidney in the collecting cups. The doctor thinks that it is only an adhesive that was used to repair my spleen that was torn when doing the surgery. I will have another CT scan at the end of February this year to make sure that this spot has not gotten bigger. I can only say that you never know what's going on inside of you, and if you just don't think things are right, go and have them checked out. Hopefully, I'll be one of the lucky ones, and this next CT scan will not show anything different.

Comment from: Pedro, 45-54 Male (Patient) Published: January 13

I had my kidney removed in October of 2007 through keyhole surgery. My symptoms included extreme fatigue, fevers, night sweats, aching ankles and knees, and abnormal liver function results. Since surgery, I’ve been much better; the symptoms seem to be gone too!

Comment from: 45-54 Male (Patient) Published: January 13

I'm 47 years old. I’m an athletic type, a non-smoker, and I don’t drink alcohol. I’m a healthy eater. I went to a doctor for a routine check-up and the doctor accidentally found out using ultrasound that I had kidney cancer, 5.5 cm stage 1. Before I had the ultrasound, I had all the laboratory examinations, urine examinations, etc., and nothing had shown any symptoms of cancer. Thank God the tumor was at the beginning stage and stayed inside the capsule of the kidney. On July 9, 2008, I was operated on in Germany by a top surgeon who had removed the whole left kidney. Thank God! Now I'm feeling very well. Just to be extra safe, the professor in Germany prepared a special vaccine for my cancer cells, and he gave it to me three times already to improve my system.

Comment from: marlindarlin, 55-64 Female (Patient) Published: January 13

This is my fifth bout with cancer. The first was a hysterectomy. Then my lymph glands in the left groin were swollen and surgically removed. In 1985, I became very ill. My hair was falling out, my fingernails became very soft, and my skin very sensitive. An exploratory showed that tumors were wrapped around nerves in my abdomen area. The surgeon stitched me back up. A week later I started chemotherapy: Platinol, Bleomyocin, and Velban. I was allergic to the Bleo, and it was causing severe damage to my lungs, so I had to stop it. The other drugs were not working to kill the cancer, so it was decided that I should have radiation. I had treatments for six weeks. That killed all of the cancer. My doctors did not know what kind of cancer I had until three years later. It was named Ki-1 non-Hodgkin’s lymphoma. I was fine until 1994 when a node in my neck became swollen. A needle biopsy was performed, and it was determined that the cancer was back. I received another round of chemo - I cannot remember what kind. I was also prepared for a bone marrow transplant, which I did not need. The doctors harvested my stem cells. I have been fine up until now. I started seeing blood in my urine and went into the hospital. A cancerous tumor has been found in my left kidney. The doctors think that it is contained, and it is stage 1. I am having further tests to determine what kind of cancer it is. They believe that it may stem from my radiation.

Comment from: jarhead3071, 55-64 Male (Patient) Published: November 10

My kidney cancer was found by accident. I'm 58 now. During a routine urine test they found blood in my urine. That was in 2003. I had to have my kidney removed immediately, within two weeks I think. I was only in the hospital for three days! I have just two small scars left. I'm great now, but a little tired sometimes. I’m not sure if that has anything to do with it, but I think so. If your doctor has to remove your kidney and open you up a lot from stem to stern: Find another doctor! A good doctor only needs a couple of small cuts.

Comment from: Linda, 55-64 Female (Patient) Published: September 30

I was diagnosed with renal cancer three years after symptoms first appeared. Three years ago, I went to the emergency room with severe abdominal pain. It was difficult to walk, and the pain was excruciating. The CT scan results showed a small mass in the kidney, but I was told it was nothing to worry about. For the past two years I felt a small lump on my right side, but none of the doctor's I went to could feel anything. The lump kept getting larger and, a week ago, an ultrasound was performed. The results showed "shadowing" in the lower right abdomen. I had a CT scan yesterday and today was told I have renal cancer. The comparison study to the previous CT scan of three years ago reflects a dramatic increase in size.

Comment from: Godisgood, 25-34 Female (Patient) Published: September 30

I am a 29-year-old, slim, non-smoking woman. What really got me concerned was when I had a lot of pain in my right side. I had no idea what it was but knew it wasn't right and went to the emergency room. I had blood in my urine and a bad fever that night and spent the week in the hospital. Tests revealed a large tumor on my kidney. I found out it was cancer two months later when pain started again and doctors decided to take the kidney and tumor out. I hope this helps. I never would have thought it would happen to me, but it did. But I am fine now. I wish I had asked more questions about it when I was first in the hospital.

Comment from: lee, 25-34 Male (Patient) Published: September 12

I am a 33yr old man I had very high blood pressure for a year and was being treated by my gp I often felt tired and listless, but put it all down to the blood pressure, it was my wifes birthday and she had been bought a bottle of rum which we opened and I drank a fair amount of it myself. The next day I started passing blood in my urine and went to the doctors, who send me for a scan, that when they found a huge mass in my left kidney. I was taken into hospital and my kidney was removed I am at the moment still getting over the surgery as it was only 2 months ago.

Comment from: Frank, 75 or over Male (Patient) Published: August 12

I had no symptoms with my kidney cancer. I felt great and was quite physically active with swimming and biking. At my annual exam, a urine test showed loss of kidney function. An ultrasound, MRI, and the insertion of a stent and a biopsy followed.

Published: June 25

In March, I went for tests for a sore lower back. During the ultrasound, the tech asked if I bled when I went to the bathroom. He discovered stones in the right kidney. On further investigation, we discovered a 4 cm tumor on my left kidney. Our biggest problem has been the big stone in the right kidney. It took three procedures to get rid of it. Now that it is gone, we can arrange to remove part or all of the left. Since my cancer is contained, I have not felt any concern. I feel very positive that this will come out alright. Now, that being said, I am in the Canadian Medical system and am getting superb care and concern from my urologist.

Published: June 17

My situation literally was “fast and furious.” On a Tuesday, I started with a twinge as if I had pulled a muscle. By Wednesday night, I couldn't move and the pain was constant. When the ambulance came to get me they asked about kidney stones. I had never had them. At the hospital, they took a urine sample by catheter and it came back with blood in the urine. The doctor thought it was probably a kidney infection. They did a CT scan with dye and she came back with, “Your scan was unremarkable.” So, I left the hospital at 3 a.m. still in agony with no answers, and I felt like I had wasted my time. I went to my doctor the next morning. Since I had left the hospital, someone had looked again at my scan and found a 2.7 cm mass on my kidney and called my doctor. The following day on Friday, I had another CT scan done with and without dye and it confirmed the mass. My test for kidney infection came back negative and still had blood in the urine. I also had a low grade fever. This all just started on June 3, 2008. Right now, I am waiting to see a nephrologist. I have great support all around me. Yes, I do break down and cry at times but mostly I am trying to rest, deal with the pain, and be as healthy as possible.

Comment from: retired1SG, 55-64 Male (Patient) Published: October 13

I was having pain in middle of my chest and my GP said it was Cardio. The year before I had this same pain and went for a complete cardio work up and results came back with gallbladder was the problem, so we removed the bladder. So, x-rays showed spots on my kidney this time, was not a cardio problem. My doctor is still looking at all the tests to determine if the kidney is to be removed or to remove the cancer portion. I did not have any pain coming from kidney and it has been about 3-4 weeks and I very slight pain in the kidney area. I am keeping my fingers crossed and praying to God.

Comment from: 35-44 Male (Patient) Published: September 17

I am 41. I had blood in my urine back in May this year and my wife took me to the ER. A urine test was done which showed an infection. We were discouraged from getting a CT by the ER physician. I took my antibiotics and seemed to be cured, then a few weeks ago I had blood in my urine again. We went to a urologist who started running tests. The ultrasound found a 9 cm tumor in my right kidney. My bone scan and CT didn’t show anything, but the tumor is wrapped around the renal vein. I am waiting for the surgeon to call me to schedule surgery. No other symptoms at all.

Comment from: yuvona, 75 or over Female (Patient) Published: September 12

I had very little symptoms other than high blood pressure and extreme fatigue. My cardiologist suggested an ultra sound and found a mass in my right kidney which turned out to be cancerous.

Comment from: Female (Patient) Published: August 15

I went to the doctor after passing quite a bit of blood in my urine. The nurse said, "Oh, you just have an infection," so the doctor didn't look very hard. A few months later, after losing weight, I woke up in terrible pain, went to the hospital, and was treated for kidney stones. My x-ray was so fuzzy, the specialist I consulted said he couldn't even see my kidney! After much testing, I had my right kidney removed by traditional surgery. Lots of pain and a long recovery, but I've been okay for 7 years.

Comment from: 35-44 Male (Patient) Published: August 04

I thought that I might have had a hernia. I felt a “tugging,” or tightness, in the pelvic area when I stretched backward. There were no indications of a hernia, but further tests found a tumor in my left kidney.