Patient Comments: Is C. diff Contagious? Experience

Question:

Please share your experience with C. diff (Clostridium difficile) infection. Submit Your Comment

Comment from: Marilyn, 55-64 Female (Patient) Published: May 10

The 1st year I had Dificid 3 times for treating my Clostridium difficile infection at USD 4,500.00 a pop. It helped some, but I never felt much better, and the symptoms returned after a while. The 2nd year I had FMT (fecal microbiota transplant) and it was a godsend. Doctor and colonoscopy cost USD 2,200.00. I felt great for 6 months, I could even enjoy food impossible to tolerate before transplant, energy was up, etc. I did DIY (do-it-yourself) FMT at 6 months, USD 450.00 to test a good friend for nasties. Donor was put on gluten free diet 1 month because I am celiac. Great results so far. I recommend FMT.

Comment from: Harold, 65-74 Male (Patient) Published: April 17

I was diagnosed with diverticulitis and prescribed two rounds strong antibiotics, then diagnosed with Clostridium difficile. I lost 27 pounds in 3 weeks. I improved with taking probiotics, drinking Ensure and eating active yogurt. New setback is worse than the first round. Another round of medicines have been prescribed.

Comment from: Diane, 45-54 Female (Patient) Published: April 02

I suffered for 2 weeks at home with Clostridium difficile infection. It got to the point where I was admitted to hospital, feeling drained. I was severely dehydrated with watery diarrhea, stomach cramps and temperature. I was put in a room by myself in Accident and Emergency. Cannula was put in wrong so had to do in the other arm. I spent 7 days in hospital in isolation with saline drips and iron and phosphate drip. I thought I was going to die. Got out of there after taking vancomycin in liquid. I had to take another week off work as I was still very ill and had problems. I was 1 week clear and now have it again!

Comment from: Mommabear, 65-74 Female (Patient) Published: March 08

I had been in extreme pain, was taking sick days but told by my doctor to go home and eat chicken soup because I was always cold. After finally getting tired of my complaining, he admitted me to the hospital. He had a stool sample taken which was hard to do since I have always had constipation. It showed Clostridium difficile infection. I had lost over 20 lb. and was no longer eating. I was in the hospital for 7 days. The take on this is do not think you have to have diarrhea to have C. diff. Keep pushing your doctor for a test.

Comment from: AAA, 55-64 Female (Caregiver) Published: March 07

My husband has had Clostridium difficile infection 3 times now within 2 months, every time antibiotic ends within 5 days it comes back, and bad. He has been hospitalized twice for several days because his symptoms are severe high fever and low vitals, it hits him fast and hard. My advice is do research, we did, don't depend on the antibiotic. Look up kefir milk, homemade yogurt, Saccharomyces boulardii plus MOS, oil of oregano, Allicidin; and a C. diff diet. Hope this helps.

Comment from: suziee, 65-74 Female (Patient) Published: December 20

I was diagnosed with rectal cancer in July. After 2 rounds of chemotherapy and 27 radiation treatments I developed a severe urinary tract infection and sepsis and was in the hospital for 7 days. I was fine for 2 weeks then C. difficile hit. Flagyl and Zofran were prescribed because the Flagyl made me really sick. Diarrhea stopped after 7 days. Five days after Flagyl ended, I got it again. Started another round of that awful Flagyl and now I've been referred to an infectious disease specialist. So tired of this.

Comment from: xxxxxx, 45-54 Female (Patient) Published: December 14

I am a healthcare worker, mild cramps! Not! I knew I had Clostridium difficile, because this is unlike anything I have ever been through. I started with headaches (severe), fever, and then came the extreme cramping. I had stools about 15 times (painful) to start, then they eased off. It has been a little over a week now, I am back on antibiotics, but still feel terrible. Best advice is wash your hands constantly and bleach all surfaces.

Comment from: Ginger, 55-64 Female (Patient) Published: August 31

I was diagnosed with Clostridium difficile infection on august 25, 2018. The only thing my doctor told me was I had got it from taking antibiotics. And as I had not taken any in over a year, that I probably had it a long time. I had gone to him for abdominal pain and had mentioned I thought it had something to do with my bowels. I had loose stools but every few days I would get diarrhea type moves sometimes three to four a day. I have no idea how I contracted it and am learning about it by reading articles such as this.

Comment from: Sher, 45-54 Female (Patient) Published: February 21

I was diagnosed with Clostridium difficile in September 2017 with no answers as to how I contracted it. I had not been on any antibiotics except for one dose before surgery and had only a 6 hour hospital stay in July 2017 for outpatient surgery. My doctor started me on Flagyl which I took for 7 days with no signs of getting better so she changed it to vancomycin for 10 days and I did feel better after the end of treatment for about 5 months. Now it is February 2018 and I have tested positive for GDH antigen which means I have C. diff again. I'm so confused again; no antibiotic use, and no hospital stay at all in the last 5 months since the last diagnosis. This is a nightmare that I wish on no one.

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Comment from: Simmy , 35-44 Female (Patient) Published: February 07

I was diagnosed with Clostridium difficile infection on January 10, 17 after exhibiting symptoms 2 months after release from hospital. I was hospitalized from May 17 until November 17 for a fistula. Surgery was on October 6, 17. I had multiple infections throughout my stay from my PICC line and also a serious post operation infection. Other complications from my surgery were a partially collapsed left lung as well as a pulmonary embolism. I also tested positive for VRE (vancomycin-resistant enterococci) while in hospital. I have been unable to redo the VRE swab as I have been on antibiotics so much. I started metronidazole, 500 mg every 6 hours for 14 days on January 10, 17. Same day I had an endoscopy to rule out other causes for my symptoms. Symptoms were watery diarrhea, mild abdominal cramping, severe nausea and vomiting. Weight loss was 30 lb. from November 16, 17 to January 4, 18. I was treated with 4 mg of ondansetron, 2 pills every 6 hours and with Gravol OTC, 50 mg every 4 hours. Three days after completion of antibiotics, I was still suffering from the same symptoms, but now it included more localized abdominal pain in left upper and lower quadrants continuing around to back, very urgent need to use washroom, especially after eating or drinking anything including water. I also had low grade fever of 37.9. I have less vomiting but nausea is still there. I also have general feeling of malaise and excessive tiredness. Currently waiting for a new C. diff test result. If it's positive we are trying another antibiotic and hope that works so I don't need to be hospitalized to try IV medication. Living with C. diff has been an absolute nightmare for me and has greatly affected my life overall.

Comment from: CDif Survivor, 55-64 Female (Patient) Published: October 02

I had C. difficile infection for several months from antibiotics, never heard of it before. Horrible. I did a lot of research and found that you have to begin quality probiotics with the antibiotics and stay on them.

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