Patient Comments: Iliotibial Band Syndrome - Symptoms


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Comment from: Georgia, 65-74 Female (Patient) Published: September 21

Nov 8, 2020, I woke up with knee pain on my right side. I had CT scan, x-rays, etc., and physical therapy with the orthopedic clinic. Nothing has worked for my iliotibial band syndrome. I can't sleep at night. The only thing that seems to help a little is walking.

Comment from: Hawkes, 75 or over Female (Patient) Published: August 27

Disabling, excruciating pain and burning started on the outside of my right leg below the knee to the shin. It radiated to outside thigh above knee, then sharp pain in one area of lower right buttock. I've seen orthopedic specialist, neurosurgeon, neurologist, and pain management. I've had MRIs and x-rays. I'm told it’s not my leg, not my knee, not my hip, and not my back. The only one who suggested iliotibial band (ITB) syndrome was a physiotherapist (PT). From what I've read I think so too, but I can't get a doctor to confirm or try to pursue the problem, it’s not their specialty.

Comment from: Tommy, 55-64 Male (Caregiver) Published: May 20

I was behind a computer for an extended period of time, several hours actually, and couldn't get out of my chair. I had shooting pain from my hip side to my knee that got worse overnight, and I couldn't get out of bed without wincing. I found stretching exercises for iliotibial band syndrome here on this site, thank you.

Comment from: I’m back, 75 or over Male (Patient) Published: November 26

I have strong to overwhelming pain from hip all the way down to top of left foot due to iliotibial band syndrome. Pain still persists after 7 plus years.

Comment from: Donna, 45-54 (Patient) Published: August 21

My symptoms of iliotibial band syndrome were sharp pain in lateral hip extending down to lateral knee. Also a sore, painful area on my hip and knee. I have preexisting knee problems and didn't associate the hip and knee. I am disabled and do not walk long distances. No running or cycling.

Comment from: Painful in Texas, 55-64 Female (Patient) Published: November 26

I had a hip replacement two years ago. I started feeling pain in the hip area, buttocks and outer side of the knee. Now the pain has gone to the bottom of my feet. I can’t sit straight down. I have to tilt to the other side, because pressure on that area is unbelievable painful. I am wondering if this is because of iliotibial band syndrome.

Comment from: Patricia, 55-64 Female (Patient) Published: January 09

My symptoms of iliotibial band syndrome are aching and pain on the outside of the thigh down to my knee and shin, painful walking up and down inclines, but much worse in bed, waking me throughout the night. I tried many different medications which don't help. I do regular physiotherapy exercises daily, but nothing seems to help.

Comment from: eileen, 55-64 Female (Patient) Published: October 02

Sharp pain on right lateral side of knee gradually becoming worse over three weeks is my symptom of iliotibial band syndrome. I have excessive pain at night or on standing for more than 30 minutes. Pain radiates down the calf muscle and lateral side of leg to the ankle. On the verbal pain rating score intensity is from 5 to 10 depending on activity.

Comment from: AnnaBannana, 45-54 Female (Patient) Published: June 26

I have pain on the outside of my right leg that radiates down, across my thigh, ending excruciatingly at my knee. With iliotibial band syndrome finding a comfortable sleeping position is most difficult.

Comment from: Darcey, 55-64 Female (Patient) Published: May 30

I'm not quite sure if iliotibial band syndrome is what I have. I'm in pain management and have been for the last 2 years due to pain in my hips that is a terrible burning sensation on both left and right side. They have not been able to figure out where my pain is radiating from due to the fact I have a stimulator in my back therefore they cannot conduct an MRI. The pain is debilitating and I'm not able to function because I can't sleep.

Comment from: Shubie, 55-64 Female (Patient) Published: November 14

About a month ago I had severe pain radiating down my right leg. It started at the hip, came around the upper thigh and down to the top of the knee. I did not injure myself and have no idea how this pain came about. The pain is now in my right buttock as well. It is terribly hard to sleep at night, I toss and turn to get comfortable. The severe pain has subsided but it is a constant daily pain in my backside, literally. I was thinking sciatica and then a runner friend mentioned iliotibial band syndrome. I had never heard of it. I have ran for over 40 years and have never been injured. It does not hurt when I run though. I'm going to try the rolling technique.


Pain Management: Knee Pain Dos and Don'ts See Slideshow
Comment from: Messi10, 35-44 Female (Patient) Published: November 02

I have had two back doctors look at me, MRI of lumbar, x-ray of hip and lumbar spine, sacroiliac joint injection, chiropractic treatment, physiotherapy, and we still cannot figure out my pain. I have been doing iliotibial band stretches, foam rolling, piriformis muscle massage, ultrasound, ice, heat; you name it. This pain is in my hip I thought could be bursitis and sciatic type pain. I have numbness in hip/thigh and pain in leg; no one seems to have the answer. At first I couldn't lift my leg up as if to step up a stairs, but that's subsided months ago and now I'm left with this agonizing hip pain. I don't know if it will ever go away. Numbness is now radiating down to my toes when sitting and upon standing. Walking actually helps alleviate this! Miserable! I am going on 9 months of pain. I will be trying acupuncture next. I'm out of options except for pain management. There was no trauma or anything I am aware of that caused this. I literally woke up one morning with the pain.

Comment from: TheRootIssue, 55-64 Male (Patient) Published: October 24

I have been dealing with the iliotibial band syndrome for about 4 months. The pain is so constant at night that it sometimes takes me 1 or 2 hours to get to sleep; I am constantly adjusting my body and knee position so as to find a minimal pain threshold, using a pillow between the knees. Over the past 2 months I have seen a massage therapist 2 times a week. She suggests stretching and rollers on the band, both of which are questionable to say the least. The massage helps, then the pain returns an hour later. Epsom baths do provide temporary relief but I am trying to address the root issue.

Comment from: Horseladytj, 55-64 Female (Patient) Published: September 14

There is nothing that has fixed my iliotibial (IT) band syndrome. I have more pain in my hip when the band snaps over the trochanter. Not as much in the knee area. The snapping feels like a knife pain and happens every time I change position from sitting to standing or standing to sitting. I am now on month 6 of trying various treatments and nothing has worked. Cortisone shot worked for 2 hours until the lidocaine wore off. Physical therapy caused so much pain I was on crutches after 3 sessions. Icing helps for a few hours. TENS unit helps for a few hours. Heating pad is the only way I can fall asleep and then if I move onto my hip, the pain is so great I wake up. I can't take pain relievers due to stomach upset. I had massage, Rolfing, acupuncture from two different doctors, and energy healing, and the only thing that lessens my pain for a few hours is right after the chiropractor. Very debilitating situation.

Comment from: Rod, 65-74 Male (Patient) Published: September 09

Initially, I had bursitis-like pain in my hip. A cortisone injection actually made the pain worse. Soon after, I noticed a stinging pain just above my knee on the outside. This has now spread across the top of my knee, and I have a muscular-type pain in my inner thigh that may or not be related. After sitting/lying on my buttock it begins to ache. I have a drop foot on my other leg, caused by peripheral neuropathy, and I have to wear an orthotic. Therapists believe that this has affected my gait and led to the iliotibial band (IB) syndrome.

Comment from: lacyhmp3, 45-54 Female (Patient) Published: July 08

My iliotibial band syndrome symptoms began at night. I would wake up with severe pain in my hip area. It would be very painful at night and in the mornings. Once I loosened up during the day the pain was not so bad. My chiropractor suggested I use a rolling pin two to three times a day on my thigh muscle to keep it stretched out. It seems to be working.

Comment from: Sivaram, 35-44 Male (Patient) Published: April 10

With iliotibial band syndrome I have sharp pain in buttocks along with hip pain radiating to the thighs. I am suffering from pain in both buttocks, it started with left and later on right also.

Comment from: Entlover, 65-74 Female (Patient) Published: December 17

My iliotibial band syndrome started gradually, as I had an injury 3 years ago that affected my gait. One foot is turned in and has poor sensation. It began with weakness in the affected leg, progressed to swelling and pain around the knee, and then swelling spread to the whole leg. I saw a doctor, who diagnosed iliotibial band syndrome and prescribed physical therapy. I'm having cramps in my calf now, maybe due to lack of exercise. Pretty painful, but Aleve helps. The doctor says prognosis is good for recovery.

Comment from: Kathy, 75 or over Male (Caregiver) Published: June 20

I had an injury on the job, when one of the patients fell on me. His head hit the side of my knee hard I started having pain in that area, and it got worse and I got iliotibial band syndrome.

Comment from: DM, 25-34 Female (Patient) Published: May 08

I was diagnosed with patellar tendonitis, or patellar tendonitis plus arthritis since 1 year and a half. Lately, I had another doctor’s opinion, who said I actually have the iliotibial (IT) band syndrome. To be fair this seems like the accurate diagnosis, because my pain is located mostly on the outer side of the knees when palpating the area. When walking or climbing stairs the pain also radiates under the knee cap. Also I was running for 2 or 3 years before the injury, and cycling (mountain bike) for a few months.


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Comment from: Claudio, 55-64 Male (Patient) Published: November 02

I have a pain in the outer part of the knee (most often the left one), if try to run after some time (more than a week) not running. More recently I started to feel some pain at the outer part of the hip, but this time not during the run, but at rest. The doctor took a radiography but said the bone is sound, I am wondering if it is iliotibial syndrome. I don't feel pain when running, if I keep doing that almost every day. But the light pain in the hip sometimes changes my natural walk and I can even fall if not paying attention on that otherwise unthinking activity.

Comment from: LJT, 55-64 Female (Patient) Published: December 09

I was never diagnosed with this syndrome, but I have degenerative disc disease. When I went to see a physical therapist, he told me I had iliotibial band syndrome. I've always had trouble with it. But the band started getting hard and very painful. And I was having muscle spasms in my left leg too. Anyway, they have me doing a bicycle workout, and using a total gym for the lower extremities in which I'm trying to build up my calf muscles. And I was reading on here where those are wrong choices for my IT band.

Comment from: Symptoms, 55-64 Female (Patient) Published: February 03

With iliotibial band syndrome pain is waking me at night while lying on both affected and unaffected side.

Comment from: SarahG_OT, 25-34 Female (Patient) Published: August 09

There was a sudden onset of symptoms. I woke up at 5 a.m. and realized the lateral portion of my left knee was very stiff and painful. I thought the pain was more localized at a tibial insertion point, but then I realized the pain was also noted when palpating higher up the leg, which led me to ITBS instead of a lower-leg muscle tendon inflammation. The pain was worse when the knee was extended fully when walking, as well as worse in the morning. The pain lessened with Advil and moderate walking/movement throughout my workday. I hope it subsides soon!

Comment from: Kritter, 45-54 Male (Patient) Published: September 19

I just want to say thank you to whoever penned this article. The stretch indicated in the diagram really helped with my iliotibial band syndrome.

Comment from: TOSCA, 55-64 Female (Patient) Published: February 16

I have been diagnosed with IT (iliotibial) band syndrome. I have had two steroid injections (once it as thought to be bursitis). The first injection did nothing to ease the pain. The second injection was directed to the IT band and was successful in relieving the pain. Unfortunately I am a pusher and after a couple days I walked a mile and also rode for 20 minutes twice on my bike. The walk brought the pain back and it has not left since. I see a physiotherapist soon.

Comment from: jbaker, 19-24 Male (Patient) Published: January 07

I have had iliotibial (IT) band syndrome for 5 months and the doctor tells my IT band will never heal itself ever.