Patient Comments: Idiopathic Pulmonary Fibrosis - Life Change

Question:

What changes have you had to make to your routine since being diagnosed with IPF? Submit Your Comment

Comment from: Pop, 65-74 Male (Patient) Published: January 09

I was diagnosed in 2010 with pulmonary fibrosis and in early 2011 was told it was idiopathic pulmonary fibrosis (IPF). Next thing I found was I would need to carry around oxygen wherever I went and use it at home and while I slept. I was given a couple of years but there was a chance I could receive a lung transplant. The third request was accepted and in 2013 I was told to relocate to within one hour of the hospital to begin the process. I had the transplant in March 2013. My life style has changed since all this began. I consume no alcohol, walk more than I used to and without oxygen, and am able to control my weight much better than before.

Comment from: Lisa Clemson , 55-64 Female (Patient) Published: January 24

I suffered deeply with stage four sarcoidosis which progressed to idiopathic pulmonary fibrosis (IPF). I was hospitalized 18 times in three years, mostly with flare ups and pneumonia. For me, the chronic widespread pain takes my breath away more than the disease itself. At times the pain is so severe I find it difficult to do anything.

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