Patient Comments: Hypersomnia - Experience


Please describe your experience with hypersomnia. Submit Your Comment

Comment from: Aditi a, 19-24 Female (Caregiver) Published: May 07

I am a student preparing for MBBS, so I have to read a lot. At night time I sleep at 10 pm and I get up at 6 am. At that time I am fresh, but again at 10 am I feel sleepy and I cannot control my hypersomnia and again I sleep for 2 hours up to 1 pm. In the evening also I sleep from 5 to 7. This is my daily routine. I just want to change my sleeping habit as it is the main obstacle in my study.

Comment from: Azangel31946000, 35-44 Female (Patient) Published: June 20

I was diagnosed with hypersomnia during sleep study. It showed poor sleep efficiency, and majority was spent in non REM sleep with slow wave sleep recorded. It reflected 344 minutes of recorded sleep during an 8 hour sleep study. Intermittent arousal occurred associated with respiratory events, but not enough for CPAP. I was told there was nothing they could do for me, and that I just never really fully go to sleep. They sent me on my way with a good luck with that.

Comment from: Gillette, 45-54 Female (Patient) Published: July 19

I have struggled with major chronic depression for most of my life. Now I am in a remission of sorts. I will always have to take medication. While very depressed, all I wanted and did do was sleep. I was so tired that I would fall asleep driving, the minute I turned on the TV, and at my kids' performances/school events. I could literally sleep anywhere. The floor of my office. The main help for my hypersomnia was obviously treating my depression first; because when depressed your brain talks itself into hiding. Makes you tired just to escape. In addition exercise saved me. So, so hard at first. I would go for 10 minutes and just lift the lightest of weights. Hated it. After a month, I started noticing a change. If this describes you at all out there, please get help for your depression (different than being depressed 'about' something), and ask for help from family and friends to get you to exercise. My husband actually had to put my shoes on for me and take me to the gym.

Comment from: bugbarb, 55-64 Female (Patient) Published: January 03

I got Lyme disease several years ago. While being treated for it, I slept a lot and was sleepy when waking up. After successful treatment for the Lyme disease, I had problems at work. I often had to take naps or go home early. My clients thought they were boring me because I yawned so much. I had a sleep study done, diagnosed with hypersomnia, and was started on Provigil (modafinil). That medication worked wonders for several years. Recently, despite taking it, I seem to be sleepy all the time. I had a car accident and it is possible that I had fallen asleep driving. I have an appointment with my neurologist to see if she can prescribe another medication to help me better stay alert. Living with hypersomnia means sleeping ten hours a night and waking up in the morning feeling like I hadn't slept at all. It is really hard to explain to friends and family that my tiredness is nothing like what they experience. Right now, it is a really big stressor in my life. Spending all my day time wanting to sleep but trying to stay awake and all my night time trying to sleep. It is a never ending nightmare that I can't seem to wake up from.

Comment from: Helen, 35-44 Female (Patient) Published: November 30

I have been feeling very drowsy when I drive for over, maybe 20 minutes. Recently, I was driving in traffic on the highway and fell asleep very suddenly. I crashed into the car in front and luckily no one was injured. I was taken to the hospital. I had a scan and blood tests, very expensive, nothing abnormal found. But, I am worried that there is something wrong with me.

Comment from: Hari, 35-44 Female (Patient) Published: October 31

I had fever and headache and then started to have antibiotic for three days as the doctor recommended. After three days I have another problem; pain in backbone, arms and legs. I had the same problem one month ago and I had to have the same medicine. I got fit too but now I am weak. I am wondering if it is meningitis.

Comment from: Deb_5, 35-44 Female (Patient) Published: January 21

For the past two years I have been tired during the day. I have no energy and have fallen asleep while at work. I have also fallen asleep while driving. I finally went to my primary doctor and he sent me to a sleep specialist doctor, who ordered me to take a sleep study test. That came back fine, I don't have a sleep apnea, but he noticed that I have restless leg syndrome. I have been on medicine for RLS but I have still been tired. My legs have not been bothering me while I sleep at night yet I am very tired during the day. So the doctor sent me for another sleep study test that lapsed into the nap study. Today I get the call that from the nurse and she tells me that I have hypersomnia. I am shocked that there is a diagnosis for this and you can actually treat it. So I am hoping in the next week or so, after taking the medicine they prescribed me I will start to feel better.

Comment from: Kathy, 55-64 (Patient) Published: November 08

I have always needed more sleep than other people. Even after sleeping 10 or 11 hours I would have trouble waking up and hardly anything wakes me up. I've slept through many loud thunderstorms. Now retired, my hypersomnia is slightly lessened. I am from a large family and everyone except for my mother slept real soundly and slept for long hours.


Why do we sleep? See Answer
Comment from: Rosie, 25-34 Female (Patient) Published: June 12

I don't fall asleep during the day since I'm active, but if I stay still for a few minutes, I will. I've fallen asleep after 9 during conversations, while playing games, and watching TV. I have a lot of trouble waking up no matter how much sleep I get. Reading this article, I might ask my doctor about hypersomnia.


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