Patient Comments: Hypersensitivity Pneumonitis - Treatment

Question:

What kinds of treatment did you receive for hypersensitivity pneumonitis? Submit Your Comment

Comment from: dd, 55-64 (Patient) Published: October 06

I was misdiagnosed with asthma caused by acid reflux until my lung function finally fell in the dumper and I could no longer breathe worth a darn. After about 50 blood tests, several CT scans, x-rays, endoscopy and an open lung biopsy, I was diagnosed with hypersensitivity pneumonitis (HP). After the biopsy which gave a different diagnosis of NSIP (non-specific interstitial pneumonia), which is incurable and progressive, I was referred to another pulmonologist who diagnosed the HP and did one last simple blood test to find the irritant. Most doctors don't know of this particular blood test. In my case, feathers and down were the culprits and we had to get rid of all of our bedding and furniture containing feathers and clean the ductwork in the HVAC (heating, ventilation, and air conditioning) system. I was treated with prednisone and an anti-rejection drug prescribed for kidney transplant patients, for about a year until I said enough to the side effects (weight gain and leg pain) and went off all medicines. Although I have suffered some lung damage (fibrosis), my lung function is improved and I did not relapse when I quit the medicines. I only notice the problem when I exercise or do any heavy lifting.

Comment from: 65-74 Female (Patient) Published: November 26

My story began on New Year's Eve 2013. My doctor sent me for an x-ray and I was diagnosed with pneumonia. I was prescribed prednisone and an antibiotic. Two weeks later, more of the same. At this point 11/22/14 I have had 5 to 8 x-rays, 10 to 12 blood tests, 2 CT scans, 2 echo-cardiograms and a biopsy that showed hypersensitivity pneumonitis. After the first 6 to 8 appointments with my family doctor, he sent me to a pulmonary specialist where I went through a series of tests in a phone booth size room. I have been on oxygen 24/7 since the middle of January. I even went to an allergist to see what I am allergic to. It was mold. I am scheduled to go to the hospital in January 2015. This has not been a fun year.

Comment from: Dee, 55-64 Female (Caregiver) Published: August 28

In December 2017, my dad bought a beautiful flat for himself after separating from mum. He refurbished the whole flat with his bare hands, from walls to carpet. By January, my dad got very ill and was rushed to the hospital and it was confirmed he has hypersensitivity pneumonitis. He was rushed to the hospital again but after spending just 2 hours in the hospital, he seemed to get better (still bed bound but not dying) that's when I realized that something must be in his flat. His goose feather pillows were the cause.

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