Patient Comments: Hydrocephalus - Signs and Symptoms


What were the signs and symptoms associated with hydrocephalus in someone you know? Submit Your Comment

Comment from:, 65-74 Female (Caregiver) Published: October 03

My mother had a shunt put in her head for hydrocephalus in May of this year, 2018. Ever since then she has gone downhill. She is very confused and can hardly walk, she has no balance at all. She is in a nursing home, I don’t know what could be wrong.

Comment from: Tobby , 35-44 Male (Patient) Published: July 03

They had a car accident, and received a MRI and CT. It showed extra-large ventricles in the brain. He was 22 years old. He had titanium plates screwed in to hold the skull together. His head was always bigger than everyone else because of hydrocephalus. He never had any shunts or anything else to go with it, but always felt better when on Sudafed 60 mg tablets taken for headache and hay fever.

Comment from: Stephanie, 45-54 Female (Patient) Published: April 24

I have hydrocephalus, and it's been eleven years since I've found myself going to the hospital getting my shunt revived every year. My complications consist of severe headaches, loss of balance and my eyes are puffed. I can tell you my experience of dealing with fluid on my brain has gotten worse. I'm fifty-one now maybe if this didn't happen to me at an old age I too will experience a more productive life. Good luck to those that have hydrocephalus.

Comment from: pj ryan69, 45-54 Male (Patient) Published: February 04

I had hydrocephalus since birth in 1961. I have had shunt replace 2 times since. I am doing well but my balance is really poor at times, but do a lot in my spare time. When I was 17 I had a partial paralysis from an angiogram. I got most of my flexibility back, but only about 90 percent.

Comment from: donnysbaby, 25-34 Female (Patient) Published: November 25

I have a shunt for hydrocephalus, but I think it is acting up. My head has hurt for 2 weeks and I can’t stop puking. I am going to my doctor but I am scared. My balance is off so bad I can hardly walk.

Comment from: Carla, 19-24 Female (Caregiver) Published: May 13

I wonder if it is normal for a person to get a headache with fluid on the brain (hydrocephalus) and have 104 heartbeat.

Comment from: bethd, 55-64 Female (Patient) Published: March 18

I first started with gait issues - short, choppy steps that got faster as I continued walking - almost to the point of running. I was also experiencing balance issues, including falling. I had a neurologist who sent me to a neurosurgeon who eventually diagnosed hydrocephalus and placed a shunt in my brain. Though I still have issues with my balance, I at least am no longer falling!

Comment from: doug, 75 or over Male (Patient) Published: September 11

The symptoms of hydrocephalus were falling, memory loss and shuffling walk.

Comment from: worried daughter, 65-74 Female (Caregiver) Published: June 05

My mom lost her baMy mom lost her balance quite often and sometimes fell; she would phone me six times a day and speak to me as if it were her first call, often repeating conversations. Her short-term memory became poor. Then she couldn't walk right. She would end up running until she could stop herself at a wall or a doorway or fall to her knees. A wonderful doctor diagnosed the trouble with a CT scan and inserted a shunt. The problem went away and I had my mother back instantly!


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