Patient Comments: Histoplasmosis - Diagnosis


How was your histoplasmosis diagnosed? Submit Your Comment

Comment from: Donna, 65-74 Female (Patient) Published: April 24

I had been sick for several months and diagnosed with sarcoidosis. I got a lesion in my tongue. I had a biopsy done and it was positive for histoplasmosis. I took itraconazole and it went away. It came back now for the third time. It is systemic.

Comment from: mar, 75 or over Female (Patient) Published: April 01

My histoplasmosis was diagnosed with a chest x-ray.

Comment from: AliMarie3, 35-44 Female (Patient) Published: July 10

I have been sick for two years with swollen lymph nodes all over and tested for multiple things with tons of doctors. I finally switched my primary care physician and he ordered a biopsy of a lymph node in my groin. It is now five days after surgery, I was diagnosed just 2 weeks ago with histoplasmosis.

Comment from: jerter, 75 or over Female (Patient) Published: September 07

I was diagnosed with histoplasmosis in January 2017. I was coughing blood uncontrollably and had 5 bronchoscopies in one month. I was diagnosed with calcified nodes in bronchial tubes. There was nothing they could do for me. They tried to cauterize the nodes but that didn't work. I still occasionally bleed. I have dry cough, aches and pains and shortness of breath. I was also diagnosed with atrial fibrillation several years ago. I was on Coumadin until bleeding started so I couldn't take anything to thin blood. I try to get along best I can. I am on oxygen at night and if I get very short of breath during the day. I keep on doing want needs to be done around the house so life goes on. Thank you for letting me vent!

Comment from: tina, 55-64 Female (Patient) Published: May 11

I went for a routine chest x-ray and a spot showed up in upper right lung. I had upper right lobe removed and then they determined it was histoplasmosis and not cancer.

Comment from: Victom, 55-64 Male (Caregiver) Published: September 04

This histoplasmosis disease also carries an array of skin, especially to the facial areas, forehead, nose, eyebrows, lashes, mustache and all other characteristic portions of the face. When dislodged from the face, they re-enter the body as pin pricks through clothing.

Comment from: Brenda, 45-54 Female (Patient) Published: February 10

I was diagnosed with histoplasmosis after being treated for 4 months for bacterial pneumonia. I was hospitalized twice in that time, once in septic shock. I was finally given a bronchoscopy which determined pneumonia was fungal, not bacterial.

Comment from: Neanie, 45-54 Female (Patient) Published: November 17

I was diagnosed with histoplasmosis when I went into emergency surgery at 21 when I had a torn aorta from an auto accident. They noticed my lung while doing it and the doctors weren't sure what it was and suspected cancer, so they took half of the left lung out to biopsy.

Comment from: CADDGUY, 65-74 Male (Patient) Published: May 14

I was diagnosed with histoplasmosis as an early teenager. A routine chest x-ray showed a shadow outside a lung, along the spine, I think. When I joined the Marine Corps in 1966, another chest x-ray showed the same shadow and I was almost discharged before finishing boot camp, before a doctor said that the histoplasmosis would not harm my health as I grew older. Now, many years later, I have shortness of breath and wheezing issues. My Veterans’ Affairs pulmonary physician wants another x-ray and a CT scan to test if the calcification is causing some of my health problems.

Comment from: tracy, 45-54 Female (Patient) Published: November 25

I was diagnosed with histoplasmosis by an optometrist while having an eye exam. As she looked into my eyes she saw scar tissue that is indicative of a past infection with histoplasmosis. Thinking back on my childhood, I had a severe case of pneumonia when I was 12 years old. I wonder if that is when I was initially infected.

Comment from: teresa, 45-54 Female (Patient) Published: June 10

I was diagnosed with histoplasmosis when I was 16 years of age, due to a chronic cough and fatigue. I was sent to a specialist, admitted to the hospital and had some tests. The first thing done was a skin test, with positive results. The next thing done was a light run into my lungs, a bronchoscopy. I am now 54 years old and have been having problems breathing for the past few months. My doctor has given me Sporanox to take, after sending me to have lab tests to check for any fungus. The lab tests came back positive for histoplasmosis. I also have been diagnosed with ocular histoplasmosis.


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Comment from: Pitts07, 55-64 Female (Patient) Published: September 15

I had both a chest x-ray and a CT scan with contrast when my histoplasmosis was diagnosed.

Comment from: Stormy, 35-44 Female (Patient) Published: March 11

I have ocular histoplasmosis, but also have had asthma for a lot of my life and now notice that I have possible sleep apnea. I had many surgeries on my eyes (both, sadly) and have lost a lot of vision but haven't had any symptoms for 10 years. Unless this very rare asthma and sleep apnea could mean that this histoplasmosis is in my lungs. I am now wondering if I should get a chest x-ray. I was under the impression that after the initial flare up it was dead and gone, I wonder if it is chronic.


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