Patient Comments: Hepatitis C - Treatment Side Effects Experience


Describe the side effects associated with your treatment for hepatitis C. Submit Your Comment

Comment from: lisam77711, 35-44 Female (Patient) Published: February 13

I took Harvoni for hepatitis C, about 5 years ago and am wondering about the aftermath of this medicine because since I've taken it, I am nowhere near myself anymore! I have no energy and stay drained. I was fine before but now am not.

Comment from: Margaret, 65-74 Female (Patient) Published: April 05

I was diagnosed with hepatitis C when I was 72. After months of testing, the doctor and I decided the treatment would be worth it. The drugs used were ribavirin, Incivek and interferon. After the 6 month treatment my viral load was negligible. I go back for an update on lab, etc. in June. I am now almost 76. Should we find that the hepatitis C is active, I would never submit to treatment again. I was so sick, hated the food that goes along with one of the drugs, was nauseated constantly, was anemic, and had absolutely no energy. Sometimes ignorance is bliss. The doctor explained what to expect. I assured him I was a fighter and could deal with it. After I started the treatment, I was determined to finish it, and I did. Now that I know how awful it is, I definitely would not do it again. I hope the new drugs will be a blessing to folks who are diagnosed now. I understand that the new drugs can't be used after being treated the old way. I don't know if this is correct information or not. Good luck to all of you who are dealing with this.

Comment from: krystalblue, 55-64 Female (Patient) Published: December 12

It has been 11 years of recovery for me. I did the yearlong treatment which also most killed me. I lost over 50 lb., plus loss of hair which is so normal. I was stage 4 liver failure. Today I test as if I never suffered hepatitis C. Thanks modern science. My main concern is the memory loss and long term lack of concentration. My doctor told us of the memory loss but you always figure it would return, but still is deeply affected.

Comment from: a friend, 45-54 Female (Patient) Published: October 31

I found out I had hepatitis C 20 years ago but in the last couple of years my levels were elevated and I ended up on interferon and developed cirrhosis of the liver, stage 4. It was the hardest year of my life being on that treatment and it did a lot of damage to my teeth, you lose your hair (which of course grows back) and I got a lot of scarring from itching. The treatment has a lot of side effects and I will say causes major depression and suicidal thoughts. You need to have a lot of support which I didn't. I ended early (some people do the 6 month treatment and others have to do the yearlong treatment). I would say one needs to take good care of oneself while on the treatment. It did work for me but I’m just now, 13 months later, getting over the trauma of being on the treatment. Well, you have to do it or die from liver problems. I get checked every 3 months to see how I’m doing.

Comment from: Why not me, 35-44 Female (Patient) Published: October 15

For me the Interferon and Ribavirin mostly caused major fatigue; I was tired all the time. My appetite was barely affected and I gained about 10 pounds. I did lose a fair amount of hair and it also affected my eyes as any bright light was painful, so I found myself wearing sunglasses even at night. However there was one other thing. In the first month I did experience some major depression and mood swings. Unfortunately the treatment did not work as my body began to build up a tolerance to the treatment so it was discontinued after 3 months.

Comment from: Titon, 25-34 Female (Patient) Published: December 03

Thankfully I don’t need any treatment. I was reading my hepatitis C results and was curious why I had antibodies. I was never told that maybe I was exposed to virus at one point. I checked my hepatitis C antibodies in 2016, it was 0.01 and now 0.09. My antibodies are non-reactive. I will go to my clinic this week to get some clarification. I’ve been overwhelmed stressed, anxious, and depressed. Can you believe that after all this time I was never told anything!

Comment from: Peter T, 45-54 Male (Patient) Published: July 20

In the end I started having problems with bowel and urine movements. I got pains on my left lower abdominal area, especially when I slept on my side. I live in New Zealand where my treatment and drugs are paid for. Having type 1a, I was perfect for the new range of drugs with a 97 percent success rate! I am on a 12 week course of drugs called a Viekira Pak. Also while on methadone my dose was not as effective during a hepatitis C bout. After the new drugs everything got better. Don't wait! Get on it if you can!

Comment from: Mickeyfin, 65-74 Female (Patient) Published: August 02

I probably contacted hepatitis C at age 19, but was not diagnosed until age 55, due to elevated liver enzymes. I am type 1A. At age 69 I had a liver biopsy that showed no cirrhosis. I took 12 weeks of Harvoni. I had no side effects to the Harvoni and no symptoms of hepatitis. I am waiting for my first viral detection test, no fingers are crossed. I selected not to receive interferon due to its lack of efficacy and bad side effects. I am happy with how easy Harvoni has been.


Hepatitis C (Hep C): Symptoms, Treatments, Antivirals See Slideshow
Comment from: Michelle, 25-34 Female (Patient) Published: May 27

I'm 29 years old and have had hepatitis C since 2008. I was, until 7 weeks ago, an alcoholic, meaning I couldn't receive treatment. I have been re-referred for treatment, but in a world of pain. I'm very scared, I now know I am not on my own.

Comment from: Ellie, Female (Patient) Published: May 27

I am in the 18th week on ribavirin and Sovaldi for treatment of hepatitis C and I suffer of sleeping disorder, depression, nausea, etc. I am patient and caregiver.

Comment from: disappointed 😞, 55-64 Male (Patient) Published: March 09

Six years ago I went on the treatment program for hepatitis C, and 2 weeks ago I went for my once a year physical examination. The hepatitis C has come back, I'm so disappointed.

Comment from: dd 24, 55-64 Male (Patient) Published: May 28

I am into the 17th week of 24 weeks of treatment for type 2 hepatitis C. I have been testing clear on both blood tests so far. I have had the usual nausea, headaches, shortness of breath, and irritability. I have found that brushing every nook and cranny around my gumline, tongue, floor, and roof of my mouth with a soft bristle brush seems to decrease the effects of that salty metallic aftertaste that always seems to be present.


Hepatitis C virus causes an infection of the ______________. See Answer