Patient Comments: Graft-Versus-Host Disease (GVHD) - Experience

Question:

Please describe your experience with graft-versus-host disease. Submit Your Comment

Comment from: No Retreat, 45-54 Male (Patient) Published: August 28

I am almost 4 years post-transplant. I do not regret the decision, but I do have chronic graft-versus-host disease (GVHD) that has impacted my eyes, mouth, liver and now on my spine which is very rare. The spine has been the most difficult to manage, I have a lot of difficulty controlling my legs and feet. I have to use a walker or crutch and suffer from fatigue so I cannot walk far. To anyone suffering with GVHD, I have found physical therapy (though not fun) and a positive attitude invaluable.

Comment from: Hanginthere1, 55-64 Female (Patient) Published: September 12

I am just recently two years post stem cell transplant. I started having graft-versus-host disease symptoms that I realized were part of that, within the last year or so. I have graft-versus-host in my mouth, eyes, in the vaginal area, and my skin on my lower legs, with swelling and a painful leg ulcer. Plus, my joints are painful, and I have painful bowel movements. It seems very hard to get any help from various doctors, and I think I would not recommend a transplant to others.

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