Patient Comments: Gilbert Syndrome - Treatment

Question:

What was the treatment for your Gilbert syndrome? Submit Your Comment

Comment from: Machine 46, 45-54 Male (Patient) Published: November 06

Good diet and regular exercise work for my Gilbert syndrome. Even though I get fatigued I can still run marathons or endurance events by watching my nutrition and keeping fit.

Comment from: Recommendations, 19-24 Female (Patient) Published: August 21

I wouldn't go so far as to say Gilbert syndrome is harmless when I have been hanging over the toilet bowl for days simply because of the food I have eaten. To say there is no need for treatment is ridiculous, sure there is no pill to take but you can self-regulate what you eat. Cut out/decrease intake of fatty foods, gluten and dairy, while being careful what medication you take, and definitely no alcohol! This is what has been recommended to me by all my general physicians and it has done my body and mind wonders!

Comment from: duarte, 35-44 Male (Patient) Published: November 13

As I was growing I used to get liver pain, yellow eyes, and tired every time I had jaundice. My granny used to give me local medicine and keep me on diet, I had jaundice at least 8 times, since I was very fond of fatty foods, chocolates, cakes, and oily food. When I was an adult I fell very sick, for almost a year I did not know what was going wrong. I tried all the best medicines for jaundice, but only later did I discover I had Gilbert syndrome. Best medicine is to follow a healthy diet, eat plenty of fruits, vegetables, juices, and avoid oily products and fatty foods. Exercise regularly and stay fit. Don't lose hope.

Comment from: Yellowmomma, 25-34 Female (Patient) Published: December 28

I was diagnosed with Gilbert syndrome (GS) 8 years ago when I was 25. It seems that my symptoms get progressively more noticeable each year. I have always been somewhat sensitive to the effects of alcohol, but now I can't even have a glass of wine with dinner without upper right side pain the next day or 2, along with the jaundice, and fatigue. The gastrointestinal doctor tells me that GS is completely harmless, and only gives me the base information that is on every website. I wish there was some more studies on this issue!

Comment from: gylbertsyndrome, 55-64 Male (Patient) Published: July 08

I am 61 years. My gastroenterologist told me I have Gilbert syndrome. I am having hepatitis Ag for the last 24 years. The same doctor is in constant touch with me who is renowned in my city. My bilirubin is always high, like 2, sometimes 2.5, recently it went up to 3. My doctor told me not to worry and given supplement tablets for liver. He says not to worry. I trust my doctor.

Comment from: Jazz John, 55-64 Male (Patient) Published: April 30

I was informed that I had Gilbert syndrome around age 27 through routine blood tests. I always seemed to have bad hangovers compared to some of my friends that quickly recovered back in the day. At age 55 now, I became very sensitive to alcohol over a short time. Red wine and draft beer in just small quantities makes the next day rough. Funny thing is that I was diagnosed with ADHD at age 43. Perhaps Gilberts plays a role in my inattention. I have been trying herbal medicines for relief in general.

Comment from: Bell , 45-54 Female (Patient) Published: November 05

I just recently found out I had Gilbert syndrome, after a major surgery. The worst for me was the dizziness and nausea. But now being extra tired.

Comment from: Vera, 55-64 Female (Patient) Published: October 23

I found out in my adult years that I had the Gilbert syndrome after some blood tests. My mother thought she didn't have it. However my maternal grandfather had liver and heart problems. He died of a heart attack at age 68.

Comment from: Baz, 55-64 Male (Patient) Published: June 04

It is utterly ridiculous for doctors to say, that Gilbert syndrome is harmless! I can categorically state, that it has a profound effect on your life, and it"s limitations on your body, and especially on endurance levels! It gets worse as you get older. The best cure is decent sleep, good diet, and lots of liquid (water) - hydration is a problem. I am unable to drink alcohol, period... makes me extremely ill! Oh, stress is another major factor.

Comment from: Skylink, 45-54 (Patient) Published: May 03

I've just been diagnosed with Gilbert syndrome. I'm having pains on my right side. I am wondering what supplement I should take to help treat it.

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Comment from: wareh . , 19-24 Male (Patient) Published: January 12

This may be harmless, but Gilbert syndrome tends to be extremely difficult, especially as it comes in waves. I have changed my whole diet towards it so I can have enough energy throughout the day. I get nausea from it, overly tired, struggle to eat and my eyes are very yellow most of the time. There should be some research devoted into something towards aiding Gilbert syndrome patients; just because it is harmless does not mean it doesn't alter the way you go about living.

Comment from: dennnic, 19-24 Male (Patient) Published: June 15

It is the second year since I spotted the symptoms of Gilbert syndrome. Yes, I have right side abdominal pain (annoying), and sometimes dizziness (very annoying). It appears as stressful situations happen (exams!) or if I'm exhausted (local inn with 2 hours of sleep afterwards). I have no loss of concentration, not really. Memory problems yes, with the things I don't care about. Feeling tired on daily basis I read as laziness. Solution I think is not to blame the syndrome for my life problems or lack of ambition.

Comment from: DroneBee, 45-54 Male (Patient) Published: May 11

I often feel tired and lack concentration because of Gilbert syndrome. The boss says get over it and get back to work. Welcome to the way it is!

Comment from: MEJ, 65-74 Female (Patient) Published: March 20

My doctor told me to avoid acetaminophen and all alcohol and that I probably had Gilbert syndrome, but I don't see anywhere else that this is suggested.

Comment from: Naomi, 25-34 Female (Patient) Published: June 04

I was told by doctors that I should not bother doing anything and was not given any suggestions of treatment. I can"t believe how many others have symptoms like tiredness and problems with concentration, I feel sick after only one standard alcoholic drink. I have been diagnosed with Gilbert syndrome recently when in hospital for a serious kidney infection. My eyes and skin went quite yellow after being in hospital a few days and my bilirubin levels where high on tests, I was eventually diagnosed after a couple of days. I"m wondering if there is anything that can be done besides perhaps taking liver detox vitamins. I have had digestion issues my whole life, I also have many allergies and get eczema if I have oranges or dairy products. I also often have low vitamin B and D levels and feel more fatigued if I have not taken a supplement for a few days. My parents are both Finnish and have high bilirubin levels also. Since I was diagnosed I have been speaking to my other Finnish relatives and I think many of them may also have Gilbert syndrome.

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