Patient Comments: Gastroparesis - Symptoms

Question:

What symptoms do you experience with your gastroparesis? Submit Your Comment

Comment from: rapingpeterpan, 45-54 Female (Patient) Published: July 12

I had a viral infection and was sick for a week. After the sickness went away I had a stomach ache which led to vomiting; lots of vomiting. I threw up or gagged every 30 seconds for four months. Every 30 seconds! I could not eat, sleep, watch TV, leave my house, or anything. I lived with my head in a bucket 24 hours a day, seven days a week for four long months. I hoped for death often. I was in and out of hospital, hooked up to IVs. My red blood cell count was through the roof and I really thought I was dying. Then I finally got the correct diagnosis of gastroparesis (they insisted it was acid reflux despite my protests to the contrary). I was on metoclopramide but it made me so groggy the symptom was worse than the disease. Then came domperidone and the horrendous headaches. The vomiting has calmed down but the bloating is such I can't fit into any clothes and have no money to buy a new wardrobe. I cannot work or play and have zero quality of life. Research says I might have this forever. If that happens, suicide is a viable option for me as this is existing, not living.

Comment from: MedicalIssues2, 55-64 Female (Patient) Published: June 29

I belched what seemed like all of the time for the first month, now that's lessened to after I eat or drink. I can feel bloated and have no appetite if I've eaten too much earlier in the day. I haven't vomited since my diagnosis of gastroparesis, and rarely feel nauseous.

Comment from: Dan, 35-44 Male (Patient) Published: December 22

My worst symptom of gastroparesis is nausea, crushing, debilitating nausea. It wakes me up every single morning without fail. I do get abdominal pain, but the nausea is maddening, I wish I could vomit at times in hopes that it will relieve the nausea.

Comment from: shelli458, (Patient) Published: August 13

My symptoms of gastroparesis were a 28 lb. weight gain, gas, constipation, and fatigue! I am just diagnosed and hopeful.

Comment from: Gurl8000, 35-44 Female (Patient) Published: February 10

I was diagnosed with gastroparesis about 3 years ago. I have episodes of excessive burping. It is so annoying and embarrassing. I can't eat or drink anything without burping excessively and nothing helps. I am taking Protonix, Reglan, and erythromycin. I only eat every 8 to 10 hours and can only drink fluids at night. They removed my gallbladder but still I have no relief from the burping.

Comment from: Diane, 55-64 Female (Patient) Published: June 28

I was getting serious cramps, worse than labor, vomiting and diarrhea, all at the same time. I had to go to the emergency. They had to put a hose in my mouth and they took out a lot of toxic waste which stayed in my stomach because of gastroparesis. If they couldn't I would have ended up in the operation room.

Comment from: Mamie, 65-74 Female (Patient) Published: May 03

Gastroparesis is a critical disorder. Every part of your heath is affected by this disorder. I have lived with it for years having lost part of my stomach and part of both upper and lower intestines. Proper nutrition is critical to protect the remaining parts of your gastrointestinal (GI) tract. Because of this disorder, absorption is poor so while you miss much of the nutrition from the foods you eat you also do not get the benefits from many medicines you take. As an example, if you are on pain medicine, be aware that to control pain, higher doses will be needed. I wanted to share this because I was very depressed when not understanding why I needed more medicines for whatever came along from infections, colds or injury. It is easier to carefully monitor your healthy diets than live with this disorder so my advice is to protect your GI tract while you can. I am a diabetic so it was the cause or my problem but had I paid attention to a healthier diet, perhaps my stomach would not have died off causing such a major surgery. Talk to your doctor and learn how you can increase the nutrients for your body. Some supplements are a great source but should be carefully chosen. With this disorder you must eat several small meals day so choose them wisely. Follow the advice of your gastroenterologist and live a happy healthy life.

Comment from: jamiescoffee, 55-64 Female (Patient) Published: March 20

I have had excessive belching now for two years and it has only gotten worse. I have had endoscopies and just had a tube inserted down nose into esophagus to measure the waves. The doctor said it was normal. I stopped taking all medicines and it seemed to help, but then the gastroparesis returned. I called the doctor again and they said to try taking peppermint pills, so I tried that and again it helped for about two to three days then it returned. The belching goes on for hours (15 or more hours a day) and by that time my stomach is so upset, I can"t even eat anything. I am at my wits end.

Comment from: psusanb, 55-64 Female (Patient) Published: January 03

I have been told that I have gastroparesis. I have had this problem for three years, and they have just found out what is wrong. I do not throw up or have thin bowel movements. I stay constipated and bloated all the time, and have gained weight. My left side looks like I'm four months pregnant and I hurt all the time. I don't really know what to do!

QUESTION

Bowel regularity means a bowel movement every day. See Answer
Comment from: simple man, 25-34 Male (Patient) Published: August 29

I am 38 years old. I have bad smell and gas problem in my stomach. I have meet many doctors but any medicine did not help me.

Comment from: 55-64 Male (Patient) Published: June 04

I have read about gastroparesis and my symptoms sound a lot like it. My stomach is usually nauseous and I don"t want to eat and sometimes have diarrhea with it.

Comment from: SONDRA.FADER, 65-74 (Patient) Published: May 13

I have pain in chest down the arm, I have a hiatal hernia, acid reflux, and slow motor disorder. I was checked out by my cardiac doctor. He said I should see a gastroenterologist.

Comment from: 45-54 Male (Patient) Published: October 31

I was diagnosed with gastroparesis 11 months ago; actually the diagnosis was a relief, after not understanding what was causing my stomach problems for approximately 3 years. I take 60 mg of Dexilant for acid reflux and erythromycin to aid with motility. I stay as close to the gastroparesis diet as possible but when I stray I feel the results. Since the diet does not include vegetables or fruits I also take Juice Plus, a very good nutritional supplement and this also aids with motility to some degree.

Comment from: WhoKnew?, 65-74 Female (Patient) Published: May 10

I've had one bout of constant nausea, which led to testing and diagnosis. I am tired by 4 p.m. after getting up at 8:30 a.m. A constant feeling of fullness is my main symptom. I've been living on tiny meals of soft foods and nutritional drinks. Any deviation results in fullness bordering on nausea all day. Contrary to information about gastroparesis, I can eat better later in the day rather than in the morning.

Comment from: Shadow, 45-54 Female (Patient) Published: May 01

I am diabetic and recently my gastroparesis has gotten much worse. After eating, food remains in my stomach, bloating is extreme and so bad that, 12 hours after eating, I still am enormously distended. My appetite is shut down, bowel movements ceased, and my blood sugar stays too low even without insulin. I am not nauseated, nor am I vomiting, but physically, I'm weak, jittery, dehydrated, feel nine- months pregnant, and miserable. I may be reduced to drinking only liquids, but even then, it is unpleasant.

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