Patient Comments: Gastroparesis - Possible Causes

Question:

What do you believe was the cause of your gastroparesis? Submit Your Comment

Comment from: Mary, 65-74 Female (Patient) Published: April 09

I've recently been diagnosed with Ehlers-Danlos syndrome (EDS), a genetic disorder. I have been diagnosed with various neuropathies for 2 decades, now known as probably related to EDS. Now I have been diagnosed with autonomic neuropathy, and gastroparesis. I believe the nerve that causes contractions in stomach has been damaged due to neuropathy. I have no diabetes.

Comment from: Jenn, 35-44 Female (Patient) Published: September 11

My gastroparesis was caused by a Nissen fundoplication, aka hiatal hernia surgery. Apparently there are many people that have gotten this by this surgery. The worst part is that when I asked if there was anything that could go wrong during this surgery, besides dying, she said “No” which was a complete lie!

Comment from: MedicalIssues2, 55-64 Female (Patient) Published: June 29

It could've been a virus that set off my gastroparesis symptoms, or it could've been a spike in my fasting blood sugars. I'll never know for certain, my doctors say, but most likely it was my type 2 diabetes, which I was diagnosed with 3 years ago.

Comment from: Lulu, 55-64 Female (Patient) Published: June 22

I suddenly became violently ill, with horrible belching, diarrhea, and vomiting, until I passed out. One hour later, according to my husband, I was in the emergency room. I remember an emergency medical technician slapping my hand in the ambulance saying, “Stay with me, dear. Stay with me!” They pumped saline into me at the hospital, and tested fecal samples. I was told that I had a rare bacterial infection in my intestines. Three other people had been treated for it at that small-city hospital the same weekend, and one, we later learned, was the son of a woman my husband worked with. That is when the troubles started. I wonder if any of the other people got gastroparesis. I had intermittent spells of the vomiting and diarrhea, getting worse and more frequent, until finally, a gastroenterologist had a gastric emptying study done. After a couple of months, he had me taper off the Reglan, and I seemed fine except for a few bouts (which I attributed to food poisoning, of course) for about five years. I was in denial. Now it is back full force and I can't deny it anymore. I lost 20 pounds in 2 months, and I did not need to lose weight. We can't even think about going out to eat, because there is nothing on any menu that I can tolerate. I feel like I have had a slow death sentence given to me. I want to feel good! I want to have some energy! I want my family to understand what I go through, but they don't. They sympathize, but can't empathize. I guess I will be living on what amounts to baby-food-style puree for the rest of my life.

Comment from: My03Tundra, 35-44 Male (Patient) Published: April 23

Stress and bad dietary habits caused my gastroparesis.

Comment from: Eca danca, 25-34 Female (Patient) Published: April 25

Gastroparesis is definitely not idiopathic. I think it is definitely nutrition, environmental, poison and trauma.

Comment from: gpmom, 19-24 Female (Caregiver) Published: April 21

My daughter's gastric problems started with burping several times/day. She was diagnosed with acid reflux and given Prilosec for a month. When that did not help, she was prescribed Dexilant for 4 months. During that time, she gradually developed bloating, distension, stomach pain and nausea, and her reflux remained. She was diagnosed with gastroparesis after passing out. We suspect that the PPIs (proton pump inhibitors) decreased stomach acid to the point that she developed SIBO (small intestinal bacterial overgrowth) as undigested food stayed in her small intestine, and ultimately gastroparesis. A course of rifaximin and neomycin helped with the bloating, but the gastroparesis remains.

Comment from: Barbara, 65-74 Female (Patient) Published: January 12

My gastroparesis cause was due to Nissen surgery procedure where the stomach is wrapped around the bottom of the esophagus. My life would have been better with the acid reflux. It is now ruined and I have no good days; all smiles are gone from my life.

Comment from: Denise, 45-54 Female (Patient) Published: November 12

I had a very traumatic experience when I was 12 and I had a hard time dealing with it. This experience caused me a lot of stress in coping with it and I think that's what led to my gastroparesis.

Comment from: J.T., 65-74 Male (Patient) Published: May 19

I had blood clots in the legs and later to the heart. I believe something from this condition, or medication that I was taking, or I'm on now, is the cause of my gastroparesis. I had no problem before the clots.

Comment from: Ebyn, 35-44 Female (Patient) Published: April 01

My gastroparesis (GP) started a couple of months after having a laparoscopy and hysteroscopy to address endometriosis and other reproductive diseases. I also have a hiatal hernia and GERD. After emergency room visits and poor care at my primary care physician's I went to a naturopath at which time he ordered a bowel sample test and a food elimination diet. We focused on getting the stomach enzymes more balanced, used DGL for heartburn. After several months I was feeling better and found out that I had numerous food sensitivities, including eggs. I am gluten free and vegan and had my GP well controlled. A few weeks ago I had a second abdominal surgery and my GP flared up. I didn"t know I needed to tell the surgeon so they could use different medications and anesthesia. I was told the anesthesia, stress of surgery, trauma to colon and bowel due to removal of endometriosis, and pain medications were the root of the new worsening. I can only eat 3 cups of solid food a day and still have minor symptoms.

Comment from: Cookie Monster, 55-64 Female (Patient) Published: November 22

I only developed gastroparesis after surgery for a hiatus hernia. In fact my stomach had herniated into my chest cavity. I suffer every single day and my life is awful. I wish I had never had the surgery. I was hoping to fix the reflux but at what price. I also suffer fainting spells and being disoriented at times. I have lost nearly 14kg in weight and cannot afford to lose any more weight. I just want my quality of life back for both me and my family's sake.

Comment from: usa, 35-44 Male (Patient) Published: July 29

My gastroparesis was idiopathic, I believe it was due to extreme binge eating. I still have problems with it when I eat the food that bothers me-usually greasy or overly spicy food. I do what my GI doc tells me "If it bothers you, leave it alone." and I am usually fine. The problem arises when I don't know if something bothers me, or if the cook throws a little extra spice in that I don't know about. I take Reglan and Protonix religiously, and it seems to work good for me.

Comment from: Jpro, 65-74 Female (Patient) Published: May 10

My gastroparesis seems to be idiopathic. I've had IBS and stomach problems for many years, such as mild nausea and fullness. The latter two have always been resolved with antacids or, for a long time, Librax. I am currently able to eat better if I take a benzodiazepine an hour before eating.

Comment from: jb, 45-54 Female (Patient) Published: July 25

The doc diagnosed mine as idiopathic. I believe it is directly related to severe stress I was under for over nine years.

SLIDESHOW

Diabetes Tips: Managing and Living With Diabetes See Slideshow

Subscribe to MedicineNet's General Health Newsletter

By clicking Submit, I agree to the MedicineNet's Terms & Conditions & Privacy Policy and understand that I may opt out of MedicineNet's subscriptions at any time.