Patient Comments: Fibromyalgia - Treatment


Please describe treatments that have been effective for your fibromyalgia. Submit Your Comment

Comment from: REALLY SMART GIRL , 45-54 Female (Patient) Published: September 23

No physician should ever diagnose fibromyalgia without first checking parathyroid hormone level (PTH) and serum calcium. Hundred percent of fibromyalgia symptoms can be accounted for by hyperparathyroidism causing elevated serum calcium levels. I could have checked off every single one of the vague symptoms of fibromyalgia, including brain fog, fatigue, chronic pain, poor sleep, depression/anxiety, constipation, GERD, etc. After a parathyroidectomy at age 47, I feel absolutely fantastic!

Comment from: Trish, 45-54 Female (Patient) Published: January 18

It took me 15 years to get diagnosed with fibromyalgia. Finally, when I did I was prescribed diclofenac (Voltaren) 75 mg 2 times a day. I had degenerated to the point I couldn’t walk. The pain was from head to toe, even my hair hurt. After the first day it was like a blessing. The pain was going away fast, and by the 3rd day I was running after my 5 year old. It was a miracle. I will be on it forever and that’s ok!

Comment from: Bipolar69, 65-74 Male (Patient) Published: September 11

I also have bipolar affective disorder and this may be connected to fibromyalgia. I have noticed that when I travel to a Caribbean country in the winter I immediately become hypomanic and for 2 or 3 months after I experience no pain. I attribute this to the strength of sun, maybe due to increase of vitamin D (which I cannot take orally).

Comment from: Vicky Vale, 35-44 Female (Patient) Published: December 22

I use acupressure spike mat for my fibromyalgia. This is a life saver for me in the mornings when I can’t get out of bed due to back pain. Ten minutes on the mat, and I'm ready to go. I am not saying the mat is a miracle cure and that all pains just disappear, but at least it helps me when the pains are at its worst, and I can function in everyday life. The mat also gets your blood flowing, so it is kind of 'exercise light'.

Comment from: Sallie, 45-54 Male (Patient) Published: November 03

I was diagnosed with costochondritis three years ago by two different doctors in two different states. Both doctors said they knew how to treat it and both prescribed Meloxicam. One doctor gave me a prescription that orders the 7.5 mg and the other doctor gave me a prescription for 15 mg tablets. My symptoms go away for several months but eventually return.

Comment from: David wakhu, 25-34 Male (Caregiver) Published: December 24

I have the same symptoms for more than 3 months and wonder if it is advisable to take fibromyalgia medicine. I can hardly do nothing pain free and I'm tired all the time. I can't sleep, my hips, neck, back, hands and legs pain with sharp tingling needle pains.

Comment from: Meemee, 55-64 Female (Patient) Published: June 20

I have had fibromyalgia for over 35 years. I take Cymbalta for depression but also recommended for fibromyalgia. Unfortunately the medicines that I have come to find work (and this many years I have tried a lot) are drugs doctors prefer not to prescribe anymore; Soma and Valium as muscle relaxers. They are all that help and doctors won’t prescribe them. Hydrocodone is good for pain relief. Unfortunately people with chronic pain are sometimes denied this pain relief medicine because of drug addiction issues. Chronic pain sufferers have to suffer due to something that has nothing to do with them. Yes, addiction can become a problem but most people with actual pain do fine. When did making people suffer become ok! I am 59. I need to work or I have no place to live and also no place to go. My doctor took me off it and is trying codeine, etc. I had pain relief but again because of something that has nothing to do with me. I now get no relief and am close to not being able to work anymore. It’s terribly scary knowing you are going to lose everything and have no place to go because of something like this.

Comment from: Ann, 35-44 Female (Patient) Published: January 21

I have found that taking from 400 to 800 mg of ibuprofen on my worst days, really helps. I also want to suggest to others that I have been juicing along with my strict nutrient based meals. Also, I have found that a low paced exercise regimen has been extremely helpful. I walk every day and jog when I can. I also do low weight training. Keeping a positive outlook in life is very important. Assisting me with this important factor is meditation, I try and meditate every morning. Good luck to all.

Comment from: nikki, 35-44 Female (Patient) Published: January 21

I was diagnosed with fibromyalgia at age 11 and I am 35 now. During the time of the diagnosis I was in extreme pain and was hospitalized because I was in too much pain to walk. My body had seized and tightened up and I couldn't straighten it out. I was on crutches and then did physical therapy and learned to stretch and walk again. Through the years I have been on so many medications off and on. Different muscle relaxers, anti-depressants even prednisone. For about the last 2 years I have chosen one pain medication and that's tramadol. I have 50 mg and the bottle says take every 6 hours as needed for pain. I do not take that much. The medicine only helps mask the pain for a little while but it never goes away and never has. One doctor wanted me on muscle relaxers 3 times a day which would have led to kidney damage I'm sure, not to mention walking around like a zombie. At this point the pain is natural, I literally cannot remember life before it. Stiff neck, back pain, fatigue, chronic headaches and recently eye problems (pars planitis) that require me to see a retina specialist maybe even steroid eye shots. Anyway, I try to stay positive, fight the fatigue by walking every day. I used to have severe depression but throughout the years I have also learned to recognize the symptoms early on and fight them with positivity and patience remembering these feelings aren't forever. I use heating pads for the neck and back, icy hot for knees and muscles, ibuprofen for headaches and tramadol for the really painful days. This disease is confusing and difficult to live with, but it could always be worse. Hang in there don't give up!


What Is Fibromyalgia (Fibro)? Symptoms, Causes, Helpful Treatments See Slideshow
Comment from: LovesSFGiants, 55-64 Female (Patient) Published: September 09

I recently had an experience where I drank a substantial amount of water for a 3 day weekend. I urinated at least every hour and my urine was a very pale yellow. After that weekend and continuing for the last 3 weeks, my fibromyalgia is 75 - 80% better. I have been on Cymbalta for a couple years, which definitely has helped make my fibromyalgia more tolerable. But my water drinking binge has helped far more. Regular massages and daily stretching also helps, but hydration is the answer. I'm feeling that the reason this helped so much is that fibromyalgia has something to do with waste products in your muscle cells not being properly removed by your body. When you do a water flush, this removes the waste products and decreases the pain. Please do some research on this idea. I honestly think I'm on to something.

Comment from: lisa, 45-54 Female (Patient) Published: May 30

When I was diagnosed with fibromyalgia my doctor put me on gabapentin and it has worked well and it has also relieved the pain from sciatica. At night I take a low dose of amitriptyline to help relax me so I can sleep, but nothing helps the osteoarthritis in my knees which has put me in wheelchair.

Comment from: DAVID, 55-64 Male (Caregiver) Published: April 11

In approximately 1997 I was diagnosed with fibromyalgia syndrome (FMS) by a rheumatologist mainly as a "diagnosis of exclusion" along with the bilateral sensitive points. The fatigue and pain sometimes sent me "up to the ceiling", and even though I needed to go somewhere and could see the car through the window, it might as well have been 25 miles away! The support group I attended had about 35 sufferers and all were on different drug regimes. I went to see a naturopath and he did various tests that discovered various minor causes but finally he found that my Krebs cycle was deficient in one particular substance and there was a supplement of that available alpha-Ketoglutaric acid. By this and an exercise program (supported by calcium, magnesium, MSM, food grade glycerin and other supplements) tailored by a physical trainer who was educated regarding FMS, my symptoms started to subside. After exiting from the chemical laden USA (the CDC recognizes both multiple chemical sensitivity (MCS) and FMS as bone fide diagnoses, they are often found together in patients who have FMS), I have been free of symptoms 97% percent of the time! This of course does not mean all FMS sufferers will have a deficiency in the Krebs cycle; but if you can convince your primary doctor to do the test, it could be worth it. Best to all of you.

Comment from: Juliz, 55-64 Female (Patient) Published: February 26

Fentanyl and Distalgesic are the only pain relief which work for me for fibromyalgia, I have tried gabapentin, amitriptyline and other similar drugs, but I get unacceptably high levels of side effects, notably headaches and/or vomiting, even at very low dose. They have enabled me to get out of bed most mornings and even function as a human being part of the time, instead of lying in bed with tears of pain and exhaustion rolling down my face.

Comment from: rozak, 55-64 Female (Patient) Published: February 11

I have fibromyalgia since the age of 28 and I am now 59. I have been on morphine for years. Most recently I weaned off my medication and tried Topaz and to my surprise I am in no pain at all. I think it calmed all the nerve impulses in my brain. I have tried so many drugs in my lifetime. I tried this one because it is supposed to be for hypersensitivity to pain. Well it worked on my headache and pain level.

Comment from: lacana, 55-64 Female (Patient) Published: January 09

For my fibromyalgia Savella has worked like a charm. Most of the time I am without pain.

Comment from: bbuny1, 19-24 Female (Caregiver) Published: November 21

I just want to let people know that there is NO SUCH THING as Fibromyalgia! This information came from one of the many doctors that my son saw a couple of years ago that tried to lump him into this category. After a doctor told him that is what was wrong with him. We said ok finally an answer. Boy were we wrong. That was no an answer, because the doctors couldn't find what was wrong with him and because they couldn't see what/where his pain was, they lumped him into that category. Finally an honest doctor told us that is not a REAL diagnosis and there is NO such thing. You get lumped into the "Fibromyalgia category" when either the doctor gives or you do!! He suggested that he have a muscle biopsy. They did it and sent it off to Duke University and they found that my son had a rare form of Muscular Dystrophy! Don't fail yourself; make the doctors do their jobs! There is no unexplained reason why you hurt. Find your reason!

Comment from: dangles, 65-74 Female (Patient) Published: August 12

My doctor gave me prednisone for fibromyalgia. It took the pain away on 2 pills but can’t stay on that dosage so I have it down to 12.5. My shoulders are still sore especially in the mornings but the hips are much better.


What characterizes fibromyalgia? See Answer
Comment from: Mysadie, 65-74 Female (Patient) Published: September 11

I have had fibromyalgia for many years, and I haven't found anything to get rid of the pain. I never have a day without pain. I have taken Cymbalta for quite a while now 60 mg once a day. I take Synthroid daily since I had radioactive iodine. I also take Benicar for high blood pressure. I sweat profusely, have dry mouth and am still in pain. I also take 2000 units of vitamin D3.

Comment from: Bilie, 35-44 Female (Patient) Published: August 28

I am 40 years old. I was diagnosed with fibromyalgia about 4 years ago. Before diagnosis my life was painful and I was driving everyone away because of the pain and depression that was debilitating me. I am currently taking Celexa for pain management and the management of depression. I don't know why this drug works for me but I have tried living without it since starting it and when I'm not taking it I am not functional. My pain and moods are unbearable. It has been helpful. I also take trazodone for restless leg when needed. Eating healthy, getting sleep, and knowing my limits have also helped me greatly. I was in agony physically and emotionally before being diagnosed and accepting that I had fibromyalgia. Now most days are bearable and I look forward to what each day brings. Of course I am always aware of my body and it's needs and am no longer in denial but dealing with being a fibromyalgia sufferer.

Comment from: pat, 35-44 Female (Patient) Published: July 27

I was diagnosed with fibromyalgia, ever since I have been battling this pain, I don’t take any prescription medications. I tried Cymbalta then Lyrica, no relief. I tried this; I stay away from Canned foods, Foods containing MSG, Gluten and other additives. I try to eat fresh and healthy. I make an effort to eat fresh food at home. The second, is massage, I get a relief from the pain. The third thing is exercise, especially stretching. The last thing is take warm bath and stay warm. There also a pain reliever called biofreeze it’s very helpful. If you have trouble sleeping try to relax take a good bath before going to bed, make sure the bedroom is cozy. Stay away from light just relax.

Published: June 11

I've had fibromyalgia for four years and I have been through the ringer as far as treatments have gone. In addition to fibromyalgia I have permanent pain/damage in the back of my head and jaw from brain surgery and I have a slipped disc in my neck from a very near fatal car accident. But the fibromyalgia pain is just terrible. My joints ache and my muscles twitch and have pain in every spot on my body where muscle meets the bone. My body doesn't react well to antidepressants (I have tried Savella, Elavil Cymbalta, Lexapro, Pristiq, Zoloft, and Prozac). The only antidepressant that helped with the pain is Savella and that made me violently ill to my stomach. I do take Lyrica which helps the pain a little but it doesn't scratch the surface. I have tried a gluten-free diet, acupuncture, massage, light cardio, heating pads, ice packs and physical therapy. The only thing that helps is massage but it only helps while you're getting the massage, once it is finished it doesn't feel good, and massages get expensive. The only thing that's helped has been pain medications and muscle relaxants. I don't get those studies that say narcotics don't help with fibromyalgia symptoms because if not for the pain medications I couldn't get out of bed in the morning. I am currently taking Methadone, Oxycodone, Valium (for muscle spasms), Ambien CR (for sleep obviously), Fioricet (for tension headaches) and of course the Lyrica. These medications are also for my other chronic pain problems. They really need to get better medications on the market that are targeted just for fibromyalgia.

Comment from: 25-34 Female (Patient) Published: May 23

I was finally diagnosed with fibromyalgia when I was 23 years old after living with chronic pain since an injury when I was 9 years old. I had seen every spinal specialist with no diagnosis until I went to a chiropractor who was able to diagnose me right away based on my presenting symptoms. Since then (for 8 years) I have researched anything that could possibly help that didn't involve drugs and have found the following to be helpful for me. I stopped eating potatoes, tomatoes, eggplant, capsicum and chili (all in the nightshades family that deposit acid into your muscles and joints). Now I notice that if I do eat these, the next day I ache all over my back. I have also cut out meat altogether for the last 1.5 years, which has helped greatly with sleep and reduced irritable bowel syndrome. Regular massage reduce the toxins in my joints and muscles and relieves the tension (just be prepared to ache the next day as your body clears out those toxins and drink lots of water to help it). Have a hot bath with Epsom salts in it to draw out the aches and pains. I take magnesium capsules at night to help my muscles recover as I sleep, this also helps you get to sleep and wake up without aches. I also go for a walk outside in the mornings when I can, as it loosens up my muscles and joints and helps me wake up.

Comment from: Annettem26, 55-64 Female (Patient) Published: February 22

I have fibromyalgia. I am on Cymbalta in the morning and at night. My problem is spasms just as I am falling asleep. It is not restless leg, these spams are anywhere. I can have both arms jerk, and then moments later have my entire body jump. These have gotten worse when I am in bed. I have taken up sleeping on the couch or recliner. The spasms don't occur when I am lying anywhere except my bed. I am wondering if the spasms are from spinal alignment.

Comment from: cher, 55-64 Female (Patient) Published: February 13

I am a 58 year old female who was officially diagnosed with Fibro about 2002 but I believe I have had it for over 30 yrs. I suffered through great stress for many years from domestic violence and since leaving my ex husband the symptoms have lessened somewhat. So I know for a fact that stress plays a huge part in causing this condition. My twenty year old daughter has it also, probably from having to endure the abuse from her father. She is able to exercise a lot and that has helped her to reduce her pain. She starts slow and works her way up. She lifts weights, runs, and does a lot of stretching. I am trying o follow her lead but moving at all is very painful. I have flareups when stress levels increase. I am affected by the foods I eat. Gluten, white flours and sugar are all causes for more pain, and IBS. I was able to qualify for SSI/Disability, with a Fibromyalgia diagnosis, so I urge others to try to apply. If denied, there r lawyers who will help with the process. For me it was very easy and in two months I had my money.


Fibromyalgia See a medical illustration of fibromyalgia trigger points plus our entire medical gallery of human anatomy and physiology See Images
Comment from: Lori, 45-54 Female (Patient) Published: February 01

I was diagnosed about 24 years ago. Fortunately, I had a doctor who was very current with latest medical reports and research. Most meds prescribed (flexeril, and others) were not helpful and had side effects that were worse than the FMS. I eventually had to quit working and had a very rough time for years. In 2006 (or 2007?), I was asked by my rheumatologist to participate in the clinical trial for Lyrica. Although, the initial adjustment to the drug was tough, I found that after a couple of weeks, the side effects were manageable & the pain relief was remarkable. It turned out that I was given a high dosage (about 500mg) during the trial. After the trial period ended, I worked with my doc to achieve an optimum dose. I opted to cut back on the morning dose to 50 mg and take 225mg in the evening. I was simply too groggy during the day if I took more than 50mg. As a mother of 3 children, I chose to sacrifice some of the benefits so I could function most days. In addition to Lyrica, I take 800mg of metaxalone (Skelaxin) at night. Occasionally, I need to take metaxalone during the day if I have a "flare". I take ibuprofen throughout the day as needed. I keep stronger pain meds (tramadol & Tylenol 3) on hand to take during really bad times. Overall, these meds keep the flares at bay and allow me to have a relatively normal life most of the time.

Comment from: BSW, 55-64 Female (Patient) Published: January 20

Like so many of you, I believe I have had FMS for many, many years. I am 57 now and was diagnosed 3 years ago. My hometown doctor treated me for this or that for many years. He finally sent to a specialist who diagnosed me. I had to quit working in 2001 because the fatigue was so bad, I couldn’t even speak. I didn't start having really bad pains until 2007. I had a horrible rash over my arms, legs, chest, and neck in 2006. I believe this is also related to FMS. I couldn't get disability because I quit working years before I was diagnosed. Just wanted to talk tonight. Thanks for reading.

Comment from: santabarbarachiro, 55-64 Male (Caregiver) Published: January 20

Health care providers address problems involving the musculoskeletal system particularly the spine and neck. Their aim is to improve the overall spinal health of patients. People suffering from backache and neck pain frequently have an underlying problem with the alignment of the spine or may have muscle damage which prevents the back muscles from providing the correct support. They help realign the spine and relieve muscle tension with the use of various techniques. They can also treat joint problems, muscle spasms and ligament pain. Moreover, they stress the importance of correct posture from sitting, standing, to walking.

Comment from: 25-34 Female (Patient) Published: December 21

I am 28, and was diagnosed with Fibro about 6 years ago. I went in for extreme pain and fatigue, while my pain was all over, my elbows seemed to be the worst, so I became a lab rat for a few months to rule out everything else. I went on Lyrica, which did nothing but make me gain a lot of weight. I finally found a doctor that knows what he is doing. If I push myself too hard, the weather changes, I get to stressed, or a few other "normal" things, I get really bad flares. I feel hopeless some days, but I hold out hope that one day, something that actually works and treats Fibro will be found.

Comment from: gh, 45-54 Male (Patient) Published: October 05

I have had shoulder surgery and two neck surgeries to treat my pain. The surgeries did no good. The several doctors I had seen, finally decided they had no idea what was wrong with me and no suggestions what to do. My family doctor sent me to the clinic where I was diagnosed with Fibromyalgia with just one visit. I have been taking Cymbalta, which has lowered my pain by at least one-third. I still struggle at times, but it has definitely improved my condition. By the way I am a 48 year old male. It is not just limited to women.

Comment from: 45-54 Female (Patient) Published: October 05

I was told I had fibro two years ago, but I believe it started long before that. I always had headaches or was always sick with something symptoms started with my two toes going numb then my knees started to ache swell shoot severe pain at times even actually glowed red in appearance. Sometimes it’s my shoulders I actually pray for days that it’s any body part other than my knees. I have a headache practically every day some mornings I wake up so stiff I literally have to crawl out of bed. Some days not many I have no symptoms at all. Have given up on working to unpredictable side effects of medication often make things worse. I have crying spells my skin crawls my legs jump and sweet a lot. I often wonder if it’s this bad at 49 what is it going to be like when I’m 70.

Comment from: WhininginFL, 75 or over Female (Patient) Published: August 29

No medications, over the counter or prescribed, have been of any benefit. All caused such adverse side effects, I couldn't take them. I do take a low dose of gabapentin which seems to make me a little 'out of it' and masks some of the pain. I've taken supplements supposedly developed for fibromyalgia, no help. I've gone to a chiropractor, had massages, done physical therapy. I would eat dirt if it would give me a good night's sleep an evening and night without pain and enough energy to live a normal life.

Comment from: Anne, 45-54 Female (Patient) Published: August 10

Angela - I hear you about being a mom and active and all of a sudden you can't do ANYTHING because of the pain and fatigue. I have four kids and they are basically on their own. They are raising themselves. It stinks. I am taking Cymbalta 60mg, Fentanyl patch 75mcg and hydromorphone when I need more pain relief. I have gone three and a half years in excruciating pain. Fibromyalgia has been suggested. I don't have the pressure point pain. I have 24 hour head pain and some body pain.

Comment from: Maddray, 45-54 Female (Patient) Published: January 27

I have had fibro for about 16 years. I'm in the medical field. First thought I had flu that wouldn't resolve, abnormal Sed Rate that later, through the years diagnosed as fibro. I think most patients will tell you the antidepressants are worthless for pain. I found Neurontin and Topomax to be of help, somewhat but still have to take Lortab and Soma, prn. Deep tissue massage is crucial. When I look back to teenage years, I had severe muscle spasms then and went to ER. If people get depression, that should be treated but I don't think it’s symptomatic of the disease. All chronic pain patients have to keep their spirits up, no matter the illness.

Comment from: fibroninja, 55-64 Female (Patient) Published: January 21

Like many, I was given a plethora of various drugs. One of which almost killed me, but I finally found a pain doctor, who although, despite a horrible bedside manner, prescribed Amitriptyline that finally helped me get more than two hours of sleep a night. I do take a few pain meds and muscle relaxers depending on how my day is. The pain is tolerable mostly, but the fatigue puts me down all day long and I have a husband who doesn't "do" housework. I quit the job I loved and worry about health insurance coverage. Massages are absolutely essential and I have a wonderful therapist.

Comment from: Marguerite, 45-54 Female (Patient) Published: January 21

I take a low dose of Elavil and 50-100mg Trazodone at night to sleep. Was very sensitive to Cymbalta - it actually prevented me from sleeping whether taken in morning or at night. The new pre-gaba and older gabapentin meds caused so much grogginess and cognitive impairment they interfered with my ability to function at work. Therefore I stopped using them. Exercise: 30-60 minutes of walking or cycling followed very quickly by a bath as hot as I can stand followed very quickly by 45 minutes of accessible yoga. The FM has gotten worse since I hit menopause.

Comment from: 45-54 Female (Patient) Published: July 01

Beware of taking Lyrica for fibromyalgia! It caused major and lasting damage to my leg muscles.

Comment from: 45-54 Female (Patient) Published: June 06

Tramadol!!! Only thing that works. W/out it, I would never get off the couch! he pain is excruciating! W/tramadol, I can walk! I am actually only in minimum pain. I used to run, workout, kickbox. Now I'm happy to have a shower!! If you don't have this disease you don't know how painful it is. It's unbelievable!

Comment from: Hopeful, 45-54 Female (Patient) Published: March 29

I’ve had fibromyalgia for about 13 years. It took four doctors and about five years of testing to diagnose. This is a “real” syndrome and I do believe that in my lifetime there will be a cure. Every day is a struggle with pain and fatigue. What I choose to focus on is what I can do. I take 75 mg of tramadol in the morning and I work out 30 minutes a day on an elliptical. This has made all the difference in the world. You must keep moving. Exercise is the key in dealing with fibromyalgia. Yes, there are days I have to drag myself to do it, but I know it is going to help with the pain and fatigue. Hang in there and stay positive.

Comment from: Farrah, 25-34 Female (Patient) Published: March 13

I've been suffering with fibromyalgia for about two years now. In the mornings I'm in the most pain but my pain last all day. I have taken Lyrica, Cymbalta and Gabapentin and nothing seems to help that much. I was on morphine an percocet and those helped for a little relief thoughout the day. i take hot showers which seem to help a little and i also have a tens machine to reduce pain. i suffer with fibromyalgia everyday im in pain all the time but i try to relax and not stress.

Comment from: Mary, 45-54 Female (Patient) Published: January 31

A vegan diet, regular exercise, Tai Chi, meditation, resting as soon as I feel tired if only for a few minutes, and no caffeine.

Comment from: FMS sufferer, 35-44 Female (Patient) Published: January 14

I am 41 now and was diagnosed with fibromyalgia when I was 24 years old. At 37 I was diagnosed with celiac disease and avoid all gluten. I was also diagnosed with chronic lyme disease in 2011. I find I have to avoid most vegetables, fruit, nuts, corn, food preservatives, and medicine preservatives like sodium laural sulpate and metabysulpite. I cook everything at home and only use salt and butter as I am also sensitive to oils. Also, I had to find personal care products that contain no sodium laural suphate. Perfumes and dyes also bother me and I have to stick to "free laundry detergents" and no fabric softener. This in itself has proven to be a nightmare since most hair products without these are sold online and I did a lot of testing before finding the right ones. Also toothpaste contains SLS and mint which I am also allergic to. I used baking soda for 2 years before finding calendula toothpaste that I can use. If I don't avoid these things I get bad cystic acne, cold sores, mouth sores and increased pain. The only pain medication I can take is oxycodone since I am also allergic to Tylenol and can't take NSAIDS due to the celiac disease. I am in the process of adding some foods back into my diet one at a time and gauging my reaction since I was on antibiotics for 2 years due to the lyme disease.

Comment from: Ester J, 45-54 Female (Patient) Published: December 03

I was also diagnosed with fybromyalgia. A friend of mine is a Vet and he said that fybromyalgia is a symptom and not an illness and that I must ask my specialist to search for the cause of the fybromyalgia. More blood tests were done and it was discovered that I was infected with the Riakketzia bacteria virus last year when I had a tick bite fever. Please ask your doctor/specialist to keep on looking for the cause of fybromyalgia as this is not an illness as they led us to believe. This is in fact caused by an illness and unless they treat the illness, you will keep on suffering from fybromyalgia and waste your money, as no one has a cure for this "illness". Never stop looking for the cause of your fybromyalgia.

Comment from: 55-64 Female (Patient) Published: December 03

I've had 10 years of trying to figure this out and am managing quite well without drugs. High doses of vitamin D3 and magnesium citrate along with other antioxidant supplements and I no longer have pain issues.

Comment from: JulieHass, 45-54 Female (Patient) Published: September 12

I take Lyrica, and Ultram. I also take Efexor and Wellbutrin for my depression. Cymbalta caused too many side effects, but it did help the pain, a little. I also take a small amount of Klonopin before bedtime to help me sleep. Advil or Yylenol helps in the short term. I have been having frequent flair ups where all the tender points just ache and ache.

Comment from: ABBASI, 55-64 Male Published: September 12

I am 64 years old, I was diagnosed with chronic bronchitis nearly three months ago while I had a little pain in my arm joints. I had a treatment with antibiotics for seven days for bronchitis, I got better but my pain in joints got worst. I feel a slight pain again in my left chest. Last week I went to Doctor who checked my blood CBC and found that my hemaglobin was 18%. He said all is okay and not to worry I would be fine without medication. I came back home and started thinking what the reason was for my bronchitis. Then I remembered that six months ago I sprayed insectiside in my home which caused me to have allergies and I guess the allergies lead to bronchitis and fibromyalgia or arthritis. Two days ago I bought ZyRTEC 10 mg and Montiget 4 mg. I took both at night and today is the third day I have no chest pain, no bronchitis and 70% less pain in my joints. Please have look at allergy and if you got try to get medication for allergy. Hope yoou can feel better.

Comment from: hyper to hypo, 45-54 Female (Patient) Published: June 26

At 24 years old I am hyperthyroid. Take a pill every day to suppress thyroid. Blood tests say the pill works, but I feel hyper and I can tell I am not getting deep sleep. For two years I have severe joint pain all the classic symptoms of fibromyalgia. I took the radioactive pill that killed off my thyroid (became hypothyroid) and within 3 days my joint pain and fibromyalgia disappeared. That happened 25 years ago and I am never got fibromyalgia again.

Comment from: butterflygurl, 45-54 Female (Patient) Published: June 21

I am currently on a narcotic medication for other health issues. However, my fibromyalgia is never treated sufficiently without a narcotic. I want to point this out most importantly due to the fact that many studies show that narcotic pain medication is not warranted for those with fibromyalgia pain. Also, a muscle relaxer three times a day is very important due to intense spasms to the point that I form large knots in my muscles (my son use to call them tumors). Finally sleep medication, as it is nearly impossible to make it through the night or day without some amount of sleep and I just can't seem to find it.

Comment from: merlin1, 55-64 Female (Patient) Published: May 09

I was diagnosed with fibromyalgia about 20 years ago. The pain is quite severe at times and chronic fatigue is very hard to live with. The only thing that works for me is cortisone shots. They relieve the pain for short periods of time and are very painful, but, the pain relief I get from them is worth the pain of the shots. I am on medication for depression, which is caused by the pain and fatigue. I do work every day, take care of a disabled husband, and a 4 year old grandson. My best advice is to go to a doctor that knows about fibromyalgia. Until you find someone that knows about fibromyalgia you will not be able to function and don't give up, keep going, live life the best you can. It could always be worse!

Comment from: lindalou, 55-64 Female (Patient) Published: August 04

I was diagnosed with fibromyalgia in 1987, so I have been through a myriad of treatments. I also have RA and OA, so some of my symptoms overlap. Right now I am doing very well on 3300 mg Neurontin and 60 mg Cymbalta.

Comment from: angela, 35-44 Female (Patient) Published: April 19

I am a 38 yr old mother of 2. Last year I was weed eating, playing ball and walking and playing hide and seek with all the kids. This year I am on meds with chronic pain and fatigue. I have been fighting pain for years and years. I feel like life is over for me. I have not had a great day in months. I want my life back. I want to do the things I love again. I can take a lot of pain and have for years but all of this new pain has just brought me to my knees.

Comment from: Coral, 55-64 Female (Patient) Published: March 16

I was diagnosed with fibromyalgia when I was 49. I am now 62 and still suffering. I had amytryptolened and anti-inflammatories, but I didn't like the side effects. Over the years I have tried to cope with the pain without any meds, but it is very difficult. I have a friend who has given me massages, and they really helped. She also makes up oils to massage into painful areas, which I administer myself and they are very helpful. I walk about an hour a day in total. I try to keep going, but it isn’t easy at all and can get me down a lot of the time. It helps to keep smiling and have a positive attitude, but it doesn’t take away the pain.

Comment from: meowth, 55-64 Female Published: March 15

I used the over the counter drug SAM-E...religiously over 3 years for my fibromyalgia. I used the brand that only contains 200mg enteric coated so it doesn't upset the stomach. It took 3 months to feel the effects. I took 2 in the morning and one no later than 2pm in the afternoon. When I started getting my energy back, I cut back to 1 in the a.m. and one in the afternoon. I went into remission and only every so often now does it flare up. I continue to watch my activities so I don't overdo it...that's when I feel it most. I work part time but no more than 6 hours a day or I get achy and fluish the next day.

Comment from: Fe Fe, 25-34 Female Published: February 22

I am 31 and found out I had fibormyalgia just in September 2010. I've been dealing with pain for years everyone I told thought I was making it up when I explained my body pain. I found out I was 2 months pregnant in November. Now I'm 5 months and I hurt like hell, and there is no medication I can take or nothing I can do for my pain. I will take the pain for my baby.

Comment from: 45-54 Female (Patient) Published: January 31

I had a very good doctor who helped me out a lot with my fibromyalgia. I read online a lot and found several new remedies which he would evaluate, seeing which methods we should try or not. One day I came in and asked for a prescription for Medical Marijuana. It's been 7 months now of smoking while taking 2 Ibuprofen and 2 Tylenol 3's for my pain.

Comment from: JEWEL10, 35-44 Female (Patient) Published: October 08

I was recently diagnosed with fibromyalgia and osteoarthritis and none of the medications (tramadol, Lyrica, gabapentin, Flexeril, Celebrex) have helped me. I still have to work 8 hours a day in housekeeping at a local hotel. I love my job but am in constant pain. The only relief I get is from narcotics. It’s like pulling teeth to get a doctor to prescribe them. I have changed my diet to fruits and veggies, daily exercise … nothing works!

Comment from: Bags90, 45-54 Female (Patient) Published: July 27

I am a 54 year woman. I have had fibromyalgia for about 15 years. The best thing I ever did was to investigate massage for pain relief. I went to a Balinese masseur who specialized in eastern medicine. He used to laugh at me because of the pressure he had to apply to my body for me to feel any relief. Then he started using a technique called ‘chinese cold wind treatment.’ This is when a metal type loop is rubbed over affected areas which immediately produce a red, blood type rash and the pain just as quickly rises from deep within the muscle to the surface. You are left looking like a zebra and the marks fade to yellow-type bruising but for me it was instant pain relief. I simply could not believe it. No drugs, just this treatment, plus gentle exercise have helped me to keep it at bay. Plus diet (limited caffeine and acidic foods).

Comment from: QuriousGeorge, 55-64 Male (Patient) Published: June 26

I am a 60 y/o ADD male. I have had fibromyalgia symptoms for as far back as I can recall, this includes clinical depression, irritable bowel syndrome, etc. My pain tolerance is moderately high, and very high tolerance to drugs of most sorts. Good resistance to insect bites/stings. Two weeks ago I had a couple of vertebra fused using a piece of my hip bone. Last week I was stung on the finger by a wasp. The swelling lasted for three days vice the usual 30-45 minutes. It seemed triggered fibromyalgia attacks for five days several times a day at an unbelievable intensity. I cannot remember ever having that intense pain from any cause n my life. Just wondering how a wasp sting could trigger that.

Comment from: Hiba, 25-34 (Patient) Published: April 23

I am 30 years old, and as engineer I work all time on PC. Having an old neck and hand bad pain, i made MRI to my neck and all Romanticism blood test. Only spasm in the neck muscle appears in the MRI, tests are very clean. My doctor said that I have Fibromyalgia, and he gave me "Cipralex" as treatment for 2 months. I just started it 2 -3 weeks ago, I feel that I am a little better but I am afraid from side effects within the treatment time and after stopping treatment. Would you please advise me. Thanks for reading.

Comment from: Lori, 45-54 Female (Patient) Published: April 19

I was diagnosed with fibromyalgia at 24. I am now 48. Only two things have brought relief: pregnancy and Oligomeric Proanthocyanidins (OPC). I use the Isotonix brand. I take three servings a day and have my life back. No pain. No drugs. Good luck to you all. I hope someday they find a cure.

Comment from: DPAWeston, 45-54 Female (Patient) Published: March 29

I was diagnosed with Fibromyalgia in 1997. My diagnosis coincided with developing pernicious anemia, depression, and hypothyroidism. I have been on many drugs mostly antidepressants like Celexa and Paxil. Two years ago I was put on Cymbalta which did a wonderful job in relieving my muscle spasms, itchiness, and electric shocks that go through my legs and now my arms. This entire time I continued to work and raise my children as a single parent. I really dislike that my doctors lump my symptoms into the Fibromyalgia category. I now have to go off Cymbalta because it has raised my blood pressure, and my symptoms and pain are returning.

Comment from: Dianne, 55-64 Female (Patient) Published: November 22

After 27 years, I have not found an effective "medical treatment" for fibromyalgia, nor have I found an effective "alternative therapy" treatment. I could dose up with drugs if I wished to but I have chosen not to use drugs long term. However I have found that regular treatment by a "Bowen therapist," relieves the constant pain for a time. I am able to relax my body without pain.

Comment from: katykin, 45-54 Female (Patient) Published: November 04

I have had CFS (CFIDS) and Fibromyalgia for 27 years and am on a lot of narcotic pain medications for the pain just to survive because the pain is so debilitating. I have heard that Vit B 12 injections are effective in treating the fatigue and I am wondering if anyone has heard anything about that. At the moment I am having some success with gentle stretching exercises and controlled breathing and relaxation (self-hypnosis) at night to get off to sleep and relax muscle spasms.

Comment from: mary, 45-54 Female (Patient) Published: September 26

I was diagnosed with lupus last September then in December fibromyalgia. I have bad headaches pain all the time the whole body especially in the lower back. I am taking plaquanil for lupus lycria for fibromyalgia both are helping but it seems like the pain has gotten worse hands are swollen. I am missing a lot of work I am afraid of losing my job it is getting harder and harder to get up and go to work.

Comment from: linda o, 45-54 Female (Patient) Published: August 10

I was diagnosed in 1994. It was after a c-section which resulted in a staph infection. Anti-depressants made me depressed and I can't take ibuprofen due to the stomach issues. I've been taking lorazepam and Tylenol for 12 years which seem to help, but I'm approaching menopause and it’s getting worse I'm a waitress so moving around helps a bit, but some days and nights I just could cry. Thinking about trying some different meds.

Comment from: albedo, 55-64 Female (Patient) Published: July 28

I have had fibromyalgia for 20 years and for the last 6 years I have been following a back care programme that has made me well (so far it is not a cure). It includes Feldenkrais treatment, massage, walking and swimming, vegan diet, sleep, peaceful life. Major symptoms have disappeared like noise and light amplification, flu-like symptoms, pain, some muscle stiffness, headaches. The only medication I've taken is Panadol. I am not really well yet but I feel very optimistic.

Published: July 05

I have had Fibromyalgia for years but have just recently been diagnosed. Years of one doctor after another, this test, that test. So now what? I can't take anti-inflamatories and certain pain killers due to a kidney issue. I've tried cymbalta in addition to my anti-depression medication and sure, my mood has been a little better but I still feel useless.

Comment from: Towanda, 45-54 Female (Patient) Published: June 02

I've had Fibro on and off for 15 years. The onset was timed with the diagnosis of Epstein- Barr/Chronic Fatigue Syndrome. It initially bothered me for about 4 months, and seemed to fade when the EB did. However, going through chemotherapy about 8 months ago brought back the onset of both illnesses (chemo had pushed my tolerance to a new low, allowing them both back in my body). I do take Percocet, which seems to take the edge off the pain, but does not eradicate it. Very shortly I'll begin Gabapentin (Neurontin) as an additional treatment. Taking sleep medication also helps, as I very often would wake up in the middle of the night wracked with pain, unable to sleep. And we all know that not sleeping well only seems to exacerbate symptoms.

Comment from: prayingforyou, 35-44 Female (Patient) Published: May 12

I've been dealing with Fibromyalgia for over 15 years now and am only 40 years old. At first doctors would tell me I had inflammation, chronic back pain, even constipation. I spent years visiting specialists, at times I felt like a ping pong ball, being thrown around from doctor to doctor and not one of them could tell me what I really had or how to get my pain under control. I have been going to physical therapy since I remember without big results, tried chiropractor for several years with no results. It's been a very painful traumatic journey and at times the only thing that has kept me going is my children. I pray for all of us who suffer from this terrible disease and hope that one day someone finds the cure for it so that people don't have to live the way I have lived for so many years.

Comment from: jules7373, 35-44 Female (Patient) Published: March 29

Savella has helped me the most but I still have daily fibromyalgia pain. Lyrica and Cymbalta did very very little.

Comment from: 35-44 Female (Patient) Published: March 09

I was diagnosed about 6 years ago with Fibromyalgia and been off medicine for 4 of those years. It was hard and still is. I find myself battling the pain and trying to find ways to cope. I remember sitting in my doctor’s office, I’m military, just crying because they couldn't find a reason why I hurt all over. Finally, one doctor mentioned it and did a simple pressure point test, poking me in certain areas. I screamed and cried in every nerve area he poked at and it was documented that I indeed had FMS. Now coping with the pain is the real challenge. It seems to get worse as I get older and the more fruit and raw vegetables I tend to eat. I pray for everyone with it and for those who have not yet been diagnosed.

Comment from: Hepburn, Female (Patient) Published: January 28

I think that I can date my fibromyalgia back to when I was a teen. I had a type of viral infection pre-puberty but I never had much energy after that. I have had injuries, surgeries (partial hysterectomy, and spinal fusion), tragedies (widowed at 30), one doctor saying I had fibromyalgia, one not. I'm now 56 and have a confirmed diagnosis. I am beginning on Lyrica and so far, so good.

Comment from: tryme, 35-44 Female (Patient) Published: January 19

I have found that neurontin helps me out a lot. I have tried a lot of meds and this is the only one that seems to touch my pain. It helps but doesn’t stop the pain.

Comment from: pauavns, 45-54 Female (Patient) Published: April 19

My right shoulder started hurting bad about three years ago, then my neck. In December, 2010, I got a diagnosis of degenerative bone disease in my neck. But that didn’t explain the elbows, hips, knees ... everything else that hurts. I was finally diagnosed with fibromyalgia in February, 2012. I have been on Lyrica for years, but had quit taking it. I tried methadone, but it was no help. I have tried several different pain medications also with no relief. Now I take Celebrex for arthritis, Wellbutrin for depression, and Cymbalta for the fibromyalgia. Still no relief. To date I have not found an effective treatment.

Comment from: bigred042410, 35-44 Male (Patient) Published: April 19

I had a right ankle surgery in 1997, and ever since that time, I have had severe pain, with no inflammation of any joints. The doctor I have now has started me on some medications that have had some moderate success with the pain. I started to do some research on my own about the medications, and what they are used for, and each one of them is used to treat fibromyalgia. I do not know if I have it, because of the surgery I had, but I do not sleep well, maybe 5 to 6 hours, but never feel rested, and am moody, depressed, and anxious. I am just wondering if this could be fibromyalgia, I will have to ask my doctor on this, I always thought fibro was with joints, but I found out it is not. I hope I can figure out why I am in so much pain all the time.

Comment from: FIBRO FIGHTER GAL, 35-44 Female (Patient) Published: April 19

I have just been diagnosed with fibromyalgia after 3 years of pain and sleepless nights. I'm 41 and a mother of two girls. The doctor told me to eat low carbs and low sugar. I also started Cymbalta. Still on three Neurontins a day and a muscle relaxer at night to sleep. I also found a diet online for fibromyalgia and it tells you what to eat and not to eat to trigger pain and symptoms.

Comment from: sonny p, 45-54 Male (Patient) Published: April 02

I have been fighting this for 20 years and I am so tired of it! I started trying different things, and what I've found works is to stay away from sugar, and eat a very high fiber diet. This is what helps me the most. If I vary from it at all I get sick.

Comment from: Sangeetha, 35-44 Female (Caregiver) Published: January 25

In my opinion, Fibromyalgia is a curable disease. By using biodynamic craniosacral therapy and Ayurvedic acupressure, I no longer have symptoms of fibromyalgia. After many cranio sessions and acupressure I am painless, and cramp-less. I used to get some migraine attacks as well.