Patient Comments: Fibromyalgia - Symptoms


What were your initial fibromyalgia symptoms? Submit Your Comment

Comment from: anon, 45-54 Female (Patient) Published: August 15

I developed pre-eclampsia with my 3rd child and had a C-section to deliver him at 28 weeks. Fibromyalgia pain began in my bladder that day and then spread to my eyes, ears and jaw where I was crying with pain. After 3 months or so it began in the knees, elbows and ankles and then sharp stabbing pains all over. including the soles of my feet. Insomnia for the first time in my life joined it exactly the same time it began. I was diagnosed with fibromyalgia fairly quickly.

Comment from: Dawn610 , 45-54 Female (Patient) Published: August 09

I started with body pain and daily migraines at 14 after a traumatic incident. By age 21, I stopped sleeping on my own and started sleeping pills. I'm 52 now and have great doctors who have tried everything from medicines to deadening my nerves in the brain to stop the pain from fibromyalgia. All treatments had failed. My migraines are called suicide migraines for a reason, and last year I made 3 attempts to overdose. I literally woke up each time within 30 minutes to 2 hours because I have a genetic disorder that medicines don't affect me.

Comment from: Dml331, 25-34 Female (Patient) Published: December 23

I was diagnosed with fibromyalgia and complex regional pain syndrome about 5 years ago. My flare ups in the beginning were flu-like aches once or twice a month. Now it’s not uncommon to have 2-3 flare ups a week. My flare ups usually start with a headache that won’t go away, then the side of my legs get extremely painful to the touch. Then it hits me full on. I somehow manage to work my full time schedule, but it’s getting to the point where I feel I may need to reduce my hours.

Comment from: Memaw, 55-64 Female (Patient) Published: April 30

I’ve had fibromyalgia for 25 years. I’m 56 now and on disability. My first symptom was stiffness in my neck and not being able to turn my head. In 1994 when this began, my doctors told me I was fine and needed a psychiatrist. Finally, I was referred to a rheumatologist who diagnosed me with fibromyalgia. It started with flu-like pain maybe once a month, and now it’s daily. Severe pain, depression and anxiety are my daily companions. Stand up for yourself. It’s not all in your head.

Comment from: TheMama, 45-54 Female (Patient) Published: November 05

I ached all over, as if I had done a major workout in the gym, but without the actual benefit of exercise. I remember feeling extremely stiff after sitting or standing still for any significant period of time, and having to move around in order to loosen up. I felt sensitive to even clothes touching me, let alone any person. I tried Neurontin, but eventually found that a steady pattern of exercise via physiotherapy exercises and rest helped to control my symptoms without the need for medication.

Comment from: malu, 25-34 Female (Patient) Published: May 26

My fibromyalgia symptoms are swelling in both sides of my neck, with pain radiating to my right hand when doing some acts. The swelling is not getting cured even after taking steam for long period. I also have upper back pain.

Comment from: Cobra4, 65-74 Female (Patient) Published: May 23

I have fibromyalgia, and it is very painful on some days. I take methocarbamol to relieve the pain. Sometimes it helps and other days it doesn't. I have had it now going on 16 years, there is no cure. So I try to live with it the best that I can. And it isn't easy.

Comment from: Mary, 65-74 Female (Patient) Published: December 08

I have just been diagnosed with fibromyalgia on December 5, 2016. I had the symptoms for a long time and it became unbearable. I am a Head Start preschool teacher and my attitude has changed, short tempered. It is time for me to retire. I am tired all the time and all I want to do is sleep. I don't sleep well at night. I have stopped taking naps because I am able to sleep the whole night. I know that I have to take one day at a time. This is not a mind over matter in this situation. I have support from my doctors, family and friends. I hope for patience with myself and healing. So I am in the same boat that all of you. I would like to thank each one of your for sharing your information.

Comment from: jthoen, 55-64 Female (Patient) Published: November 15

I think I've had fibromyalgia for many years but was diagnosed approximately 10 years ago. I was working at Walmart and was just exhausted. Not the tiredness that sleep helps. I mean totally exhausted, with muscle pain. My primary doctor diagnosed fibromyalgia. He referred me to a rheumatologist. I was also diagnosed with rheumatoid arthritis.

Comment from: Harry Ice, 65-74 Male (Patient) Published: October 04

I have had fibromyalgia for at least 30 years. My initial symptoms were fatigue and lower back pain which were manageable, and I also became sensitive to hot and cold. I'm a 68 year old male still working but struggling at the moment with all the pain. It really kicked in in 1999 with widespread pain and extreme fatigue. I went on to develop pneumonia and during my stay in hospital had all the tests which came back positive with just minor wear and tear to my lumber region. I was discharged and told to get on with it and fought my way back to some kind of fitness again. I then had a breakdown and was admitted to a psychiatric ward following a botched suicide attempt. Somehow I clawed my way back to normality but as always the underlying issues were always there. Around 2012 I had another flare up with all the usual issues but this time my skin became sensitive around the back of my neck. Lots of tests over a 12 month period and again everything was positive. During this period I managed to work but, and just about hold my job down. I decided to pay privately to see a consultant rheumatologist who confirmed I met all the criteria for fibromyalgia. This was forwarded on to my general physician (GP) but it wasn't acknowledged and I was left once again to get on with it. I recovered again and felt ok until about 2 months ago and now going through a bad flare up and feel suicidal. My GP went through all my notes and dug out my letter confirming I have fibromyalgia and acknowledged the diagnosis. She has put me on Cymbalta 30 mg a day for now and after a week up the dose to 60 mg. I find that I'm sweating a lot and can't sleep, and I also feel anxious and jittery. I don't know how much longer I can carry on, I evaluate my quality of life at the minute and can't see any future. The impact on my wife is hard for me to take and she doesn't believe in fibromyalgia, thinks it's all in the head. Good luck to all people out there fighting this terrible disorder.


What Is Fibromyalgia (Fibro)? Symptoms, Causes, Helpful Treatments See Slideshow
Comment from: RoyalGeek, 25-34 Female (Patient) Published: April 11

After going from doctor to doctor, finally a neurologist suggested that I have fibromyalgia. My numerous blood tests were all good. CAT of my head was fine, MRI of my jaw and neck were fine, and x-ray of my chest was fine. I have chronic headaches and migraines, pain in my knees and elbows, collarbones and neck, hips, thighs, pelvis, jaw, even my underarms and sides of my breasts. I am always so tired and gained a bunch of weight. But according to my family doctor and others, I am fine. It is frustrating. I also have bad anxiety and am afraid I have something bad that the doctors might have missed. I'm tired of being in pain and refuse to take any pain medicines since my family has a history of addiction.

Comment from: Kmac, 35-44 Female (Patient) Published: October 06

I thought I had a reoccurring ear infection, with severe pain in my ear and on the left side of my face. That lasted for a couple of years on and off and while pregnant, I thought that I had been introduced to pregnancy arthritis. After the birth of my baby it did not go away, it seems that it only get worse. And so my initial thought was that I had rheumatoid arthritis, or some type of arthritis. The pain in all of my joints and the skin on the back of my neck, my ear, and in the side of my face was pretty substantial. We saw many doctors, and had many emergency room visits for ear infections, without finding anything. Finally one night in the emergency room the doctor looked at me and said this is not an ear infection, and that I have a small case of fibromyalgia and I had never heard of it before then.

Comment from: willie r., 55-64 Male (Patient) Published: May 27

My initial fibromyalgia symptoms were pains in most joints and back.

Comment from: shirmoy, 75 or over Female (Patient) Published: February 17

I have had trouble with fibromyalgia for a long time. I noticed a pain in my shoulders and upper back after I had my second child. I was 19 years old then. I have been wondering lately if it could have been from me having measles real bad when I was 13 0r 14 years old. The weather is my biggest problem and then stress. I have flu like pain. Sometimes it is bad. I get sore over most of my body and that makes hard to get around.

Comment from: HiddenValleyGirl, 55-64 Female (Patient) Published: December 16

The event that triggered my fibromyalgia was a near-accident while riding the bus. I was in the very back in the middle of the seat, where there is no seat in front of you. When the driver slammed on the brakes, to avoid a car that suddenly pulled into traffic, I had to brace myself to keep from flying down the center aisle. I ended up with whiplash. Then I began having severe headaches when I tried to focus on anything for any length of time; all I could do was lay down. I was also having severe pain and insomnia. My doctor at the time tried to say it was just due to the fact that I was getting older. Mind you, I was in my late 30s at the time! I also have severe osteoarthritis in my back and neck, and spinal stenosis, so my pain is nearly constant and probably magnified by the fibromyalgia. I was finally declared disabled about 9 years later, on the basis of the spinal stenosis diagnosis. I take Flexeril for muscle pain, Elavil for nerve pain and tramadol, a non-narcotic pain medicine. I am still in pain, but it helps to keep my mind busy; I can usually block it out to some degree. I have also learned that one can sometimes release some of the pain through acupressure on the tender points. Try melatonin for insomnia; I take 100 mg when I can't sleep and usually fall asleep in about 20 minutes. Your body uses melatonin to make serotonin, something you may be lacking as a fibromyalgia patient, and which helps with sleep. I also have intermittent tachycardia, due to my pain level which has recently increased. I take Diltiazem to slow my heart down some. My insurance recently denied a new MRI to determine the reason for the pain increase. However, I am grateful for the friends I live with, and for the fact that fibromyalgia is now a recognized disease. When this all started, I had to self-diagnose and only received a positive diagnosis shortly before my disability was approved. It is not easy having an invisible disease!

Comment from: pooterputter, 45-54 Female (Patient) Published: July 25

My initial fibromyalgia symptom was chronic fatigue and depression, I was always sleeping, or trying to. Anyway, it followed with chronic neck pain with no reason to hurt and that then followed with my right elbow hurting, again no reasonable explanation as to why.

Comment from: nanarae, 55-64 Female (Patient) Published: March 31

My fibromyalgia began after a strep infection right after Hurricane Andrew. All my doctors were "blown away" and the only way to check what I thought was a bad cold was waiting in a triage line outside of a hospital- so I didn"t get it checked. A few weeks after my “bad cold", I came down with rheumatic fever and was in intense pain and had incredible fatigue for weeks. My blood lab tests were through the roof. The pain/fatigue never really subsided, and I felt awful and struggled at work all year. My doctor thought I had rheumatoid arthritis. The following summer I was diagnosed with fibromyalgia. That was almost 22 years ago, and my life has been full of pain, fatigue, and tears. I am just barely able to work (teacher) and I hate to give in and quit. My life has been greatly impacted and limited as a result of fibromyalgia.


What characterizes fibromyalgia? See Answer
Comment from: Gail , 65-74 Female (Patient) Published: August 29

I have a lot of pain and severe headaches. I am very much under stress. I have severe fibromyalgia syndrome.

Published: November 07

Fibromyalgia attacked my body more than 10 years ago after knee surgery. I was in a wheelchair for about six months, and I used a cane for another six months. I did not even know how to walk anymore. I fought the fibromyalgia with a lot of pain pills and tears. I was on so many medications that it damaged my stomach lining. Learning to break the cycle wasn’t easy because it was painful. It caused tiredness and depression. To this day, I am no longer on meds, and I live a new life with a new career. I have no more depression. It tries to creep in, but I fight it off through prayer. I have bowel problems, this pain that pain, etc., etc., etc. I find that when I help others and talk about it, it brings hope to others. Learning to stop the cycle is a battle. But there is hope.

Comment from: Prosser girl, 45-54 Female (Patient) Published: June 05

I usually don't talk about my fibromyalgia because it can be depressing. I will tell you this. I have been trying so many different things to get some relief until last week I went to a clinic to get cryotherapy. I was skeptical it would help. Boy, was I wrong. That night I went to work feeling good and my Legs weren't hurting. The next day I forgot how long it has been since I felt normal. The pain was 90 percent gone on my legs and the inflammation was gone. My legs looked so good. Here I am at day 4 and still feel pretty good. My hands are stiff. I will go once a week. The good part is it is only 3 minutes long. The bad side is it is freezing but you put up with that for feeling good.

Comment from: mom, 75 or over Female (Patient) Published: December 15

When I am riding in an automobile all my fibromyalgia symptoms seem to disappear. I feel that I have to live in a moving vehicle to feel really well.

Comment from: Rose, 55-64 Female (Caregiver) Published: March 19

I am a 59-year-old woman who was diagnosed with FMS (fibromyalgia syndrome) by a rheumatologist 25 years ago. My symptoms include chronic flu-like pain and nausea, sharp needle-like pain in strange places, spasms that are extreme on occasion, severe migraines, insomnia, chronic listlessness and malaise, anxiety, depression, brain fog, and weakness in my limbs and eyesight. I have a very savvy doctor who collaborates with me in managing my symptoms with natural methods and the latest info -- very crucial. I use baths, massage pads, walking, a gluten-free, dairy-free vegetarian diet, very little over-the-counter muscle relaxants and Gravol every night, herbal teas, and supplements. If it's a bad day, I use ibuprofen.

Comment from: jhnwtn, 45-54 Female (Patient) Published: March 19

My fibromyalgia came from having had Ross River fever and Epstein-Barr virus. It didn't happen immediately but after starting to recover from the virus and CFS (chronic fatigue syndrome), they seemed to happen at the same time. I still have problems with the fibromyalgia. I get pain and stiffness in my muscles, and at the moment, I have intense pain in my left foot like having had someone put a nail into the bone where I stand on. I get fatigue, memory problems, muscle stiffness in my fingers, and stiffness if I've sat in one position for a while. I have problems with certain beds (like I can't sleep on really hard beds now); they need to be soft mattress beds. I have stiffness in my neck, shoulders, etc. I take Osteo Panadol and Mobic when it's really bad. I haven't found I've had too many problems with the Mobic, but then I don't take it all the time only when I absolutely need it.

Comment from: STEVE, 55-64 Male (Patient) Published: April 08

I am a 55-year-old male who was diagnosed with fibromyalgia in 2007. At the time, I was taking more than 32 prescriptions and pills a day. In 2009, I started seeing a neurologist, who took me off the crazy pill-popping treadmill and put me on Lidoderm patches. About eight months later, I was doing extraordinarily well and not using the medications as much. After knee surgery I went from almost good to unable to function. My doctors said that something was very wrong. I went to the best joint specialist in the area and he told me the replacement surgery was perfect, but my pain was from fibromyalgia and would not get better. So now I’m worse off than before. I’m in constant chronic pain, and my knees don’t function for more than a few minutes. I can hardly walk. The hospital where I had the surgery has a policy that, after three months, the surgeon can no longer prescribe narcotic pain medications. After three months, my neurologist picked up the ball to write the prescriptions. But a year and a half later, nobody is willing to prescribe them. Between the pain and fatigue, there are weeks at a time that I don’t get out of bed. I can’t work and I do my best to be a caregiver for my elderly mother and aunt, who are both in their late 80s. Standing up is so painful. If you have fibro and are having surgery please inform your doctor.

Published: July 07

I’ve had fibromyalgia for about 18 years. For the first 5 years I had no idea what was wrong with me. Doctor after doctor, could not find anything wrong with me. I think after a while they thought I was making all this all up, as all of my test came back OK! Finally one DR. gave me the diagnosis. Since that time I have gone through so much. All of the symptoms you have mentioned I have had or still have. Life is not too much fun any more, just no let up. I just keep hoping they will find a medicine or treatment that can really help us all.


Fibromyalgia See a medical illustration of fibromyalgia trigger points plus our entire medical gallery of human anatomy and physiology See Images
Published: July 07

Two months ago, I was diagnosed with fibromyalgia. After years of going to see the doctor, I finally got some answers. The pain I feel seems to never go away-hurting in my lower back, legs, neck, even sometimes radiates to the very tip of my toes. I am 32 years old and I don't know if I want to see how I feel at 40 because the pain is very intense. I'm trying to deal with it without meds-because I'm trying to have a child-don't know if I'll be able to do it!

Published: July 01

I was just diagnosed with fibromyalgia. I am 44 years old and I use to be very active. One day (about 10 years ago), I woke up with every single joint in my body aching. I was also very fatigued. I went to the doctor and was diagnosed with Lyme disease. I was put on an antibiotic for 30 days and had another blood test done. It came back positive again for Lyme disease. My doctor called a specialist and they agreed that my body was reading a false positive. I did nothing after that to find out why I had pain. I just learned to live with it. As time went on I noticed my pain worsening and my knees would hurt going up steps (I blamed that on all the years of high impact aerobics), and I was stiff and sore all the time and I woke up tired all the time. Then about two months ago, I was at the store and I could barely walk. My whole body hurt so bad I just stopped and went home. My doctor referred me to an arthritis doctor who diagnosed Fibromyalgia and I have been taking 30 milligrams of amitriptilin and two Aleve twice a day now for four weeks. I don't feel any better, and all I want to do is sleep. I have to force myself to clean the house, go to work and keep up with the gardening that I love.

Published: July 01

One of my first symptoms was an excruciating pain in my head. The next was I couldn’t move my right arm with out getting a lot of pain. I’m taking Lyrica now , it helps but I still have to be careful not to over do things.

Published: July 01

I have never been diagnosed as having Fibromyalgia. In my 20's I had a fatigued feeling in my back and legs during and after a night out. I always figured (normal) in my 30's I seemed to get a little worse. Then I had a back injury (a broken tail bone. In my early 40's a very bad lower back attack. The leg pains Muscles got more and more frequent, 50's almost debilitating. Since mid 50's I never knew there was a condition called Fibromyalgia. I was treated for depression, I felt terrible because I had no energy, couldn’t and still can't sleep I had an MRI done and there is a bulge on my sciatic nerve and narrowing of the L4 and L5 lumbar. I just got over a severe lower back attack. I forced myself to do a couple of jobs through Christmas that were urgent. I wound up in bed with heat pads and naproxen; I could not even set on the couch or ride to town without severe pain. You just feel like your life has fallen apart and there is no hope for you and nobody knows how you hurt or feel. I am going to the neurologist for a review of blood tests and possible treatment. I am supposed to get a sleep study done three hours is an average nights sleep without meds.

Published: June 30

I have finally found a doctor who diagnosed me correctly with fibromyalgia. I have spent years and a lot of money on tests for arthritis, sleeping problems, Lyme disease, etc. before this. Now, I just have to experiment to find a fix. My new doctor tried me on lyrica, not good. Could only stay on it 10 days before the side effects (extreme dizziness, sleepiness and couldn't concentrate or even finish a sentence at work) took over. Also, have 2 bulging disks in low back not helping things! Have been on narcotics for back pain for 3 years and it’s the only thing that gets me through the day but the constipation thing is really bad. Have tried several anti-inflammatory meds, pain meds etc. Feel like a test-lab rat! Keep up the new info on this problem! It gives me hope! Thanks.

Published: June 30

Starting with migraines at the age of 16, I suffered with them right through my two pregnancies. I also have IBS. Depression set in around age 35 and the tiredness followed. I could and still can sleep 18 hours a day and still feel tired. A sleep study showed that I had non-REM sleep abnormalities. One day I woke up with the most pain I have ever felt. I could not get out of bed without the help of my husband. It was sudden. I did have swelling of the hands and feet and was quickly misdiagnosed with RA. After a lot of doctors I was diagnosed with fibromyalgia. I suffered a lot and my depression got worse until I was hospitalized. My medication was changed to a serotonin based antidepressant called Lexapro. My mood improved and my pain started to go away. We got a swimming pool and that really helped my pain. The floating in the pool along with the warm water helped with the tenderness. But, I have to say that the most help I got was from the Lexapro. I found this article real beneficial in just reassuring myself that my pain is real but also showing me that the medication I am using is why I am getting a lot better. Here is to a lot of hope for everyone else. I do believe that IBS, Migraines, Non-Sleep and Fibromyalgia have a lot in common.

Published: June 30

I’v had fibromyalgia now for 4 years, it has completely changed my life, I used to be so in charge of myself, self motivated, confident, fun, now I feel so useless and depend on others for loads of everyday things. I get really frustrated because I still feel like the old me but my body can’t keep up. I get really tired and feel nobody really understands what a struggle it is to keep going. I feel like people think I’m faking it a bit as I no longer work. I wish they could feel my pain just for a day I get so depressed really want the old me back.

Published: June 27

Age 34 I became a single mom of 3, my fatigue started then, slowly at first. Age 42 one day I went up the stairs as usual and collapsed at the top the pain in my knees actually knocked me off my feet. Then day by day my fingers started to hurt, I couldn't even hold a potato to peel it. I went to my doctors a week later by which time I couldn't dry my hair or peg washing out. He looked more than a little perturbed at the list of aches and pains I gave him. He told me to come back in 6 weeks. He thought it might be post viral arthritis after about of flu. I went back the pain was just as bad if not worse. He decided it was just arthritis and wanted to give me painkillers and send me on my way. The pain made me stick up for myself for once. I argued that no it wasn't arthritis I showed him the tendon on my knee, I gripped it to show him that the pain was NOT the joint. He then gave in and referred me to rheumatology clinic where I was diagnosed with Fibromyalgia. I now have more of a problem with fatigue than pain, I have found ways to cope with most of the pain. But living in a permanent fog where I can't think straight is affecting my work and life in general. I am so tired that I can't do much and that helps by stopping the pain being more aggravated. My mom age 76 helps me tidy up, it is so depressing to look round and see that I can't do even the basics. On a good day I cook and freeze so that I can eat good food for the rest of the week. There are times I don't eat because I am too tired to bother and I go straight to bed. I am now 49. My mum 76 can remember things better than me, do more, walk more etc etc etc. I now have to send my 14yr old daughter to live with her dad as I just can't cope anymore. That hurts but it’s not good for her to be with me any longer.

Published: June 20

Does anyone have a clue if former migraine sufferers and fibromyalgia are related? I also was treated for Post Traumatic Stress several years ago which I received extensive therapy for and am now awaiting word from an orthoprdic to my regular MD on further testing since nothing else is showing up MRI and x-ray wise on possible fibromyalgia. I would love to have some feedback.

Published: June 20

I was diagnosed with Fibromyalgia around 6 years ago although I'm certain I have had it much longer than that. I have suffered from sleeplessness and fatigue for nearly 20 years. My first prescription was or an arthritis medicine that has been removed from the market. My neurologist prescribed Cymbalta around 4 years ago. Cymbalta has now been approved for Fibromyalgia treatment. Although it did relieve some of the pain, I still suffered from fatigue. I have been eating "Healthy Chocolate" for a month, and I'm happy to report that I'm off of the Cymbalta, and my pain relief is more pronounced by eating the chocolate than taking the medication. I'm able to get out of bed in the morning and have more energy from consuming the antioxidants. Also, I found that eliminating fizzy diet drinks helps to alleviate the pain.

Published: June 17

I've always had muscle pain and discomfort, even as a child, but I was told it was stress, etc. It wasn't until the fatigue was so debilitating (that life as I knew it ceased entirely) that I was diagnosed. I've always handled pain well, but I didn't get proactive until the fatigue. I thought insomnia and chronic pain was normal, and I can never remember not having them. It wasn't "real" to me until I could not even shower and had to lie in the tub just to be rinsed off.

Published: June 13

I think I had fibromyalgia a long time before I was diagnosed. I was glad to see another RN's explanation, for I too loved my job as a nurse. I still miss it. For about two years before the diagnosis, I would have either bronchitis or pneumonia in Nov, Dec, or Jan during the winter months. At first, I thought I was just stressed as an explanation for why my shoulders and neck ached. The muscles were just very tight. I had headaches. Again, I thought it was due to stress. After one November sickness, I just could not seem to bounce back. My doctor said I had mono, and I had to be off work for six weeks. This happened twice. Finally, I drug myself back to the doctor and told him "something is very wrong with me." My skin felt very "sore," joints, muscles, shoulders, elbows, everything on me hurt. He referred me to a "fibro" doctor. Turns out, I was diagnosed that day. I determined I would get rested and feel better. I was a fighter, not a quitter I told myself. We tried several different treatment modalities and medications. I worked for another two years. I have applied for disability. I was turned down, but I am going for it again. I sure want to work. I still need to contribute to that 401-k....It is not going to be enough!! I wasn't glad to have fibro, but was glad that finally, looking back, I could make the jigsaw puzzle into a picture.

Published: June 13

Woke up in the middle of the night with extreme pain in lower left side. Began passing in and out, vomiting and loss of control of bowel. This was the night after 16 hrs of watching my grandmother die in front of me. It has been 7 yrs and still I still live with chronic pain daily.

Published: June 09

For years I have suffered with extreme fatigue and it was to the point I could barely function, when I am able to stay awake, I suffer with a lot of aches and pains. My legs hurt so bad that it is difficult to walk for long. My shoulders hurt all the time and I have many headaches. I also deal with IBS on a daily basis. If I carry heavy things it will put my neck and shoulders into constant pain and stiffness.

Published: June 09

My symptoms (pain between my shoulder blades) started when I was in my late thirties/early forties ( also dealt with an alcoholic husband and chronic gambler so raised my 3 kid’s alone) and always had VERY stressful nursing jobs, always working overtime whenever I could), over driven and Type A personality didn't help. :) I am 55yo now (unable to work at all since age 47, am a masters level R.N./M.S.N. and I LOVED my job) and fibromyalgia still has me in it's "grip”. After trying everything including pressure point injections (many), acupuncture (helped the pain while the "needles" were in me), physical therapies including traction of my neck and exercise (limited help if any), taking Cymbalta has been helpful with my "depression" (who wouldn't be depressed when you can't even socialize due to widespread pain) yet still leaves me dealing with lack of restorative sleep, irritable bowel (really bad) and bladder). Also tried pain management (this can get really ugly) which failed miserably. Just tried Lyrica 75mg twice daily and am amazed at the results for the past two days. Though expensive this might be part of our "solution" in treating fibromyalgia. I have so much more to share for those who are interested. Believe me, I FEEL YOUR PAIN!

Published: June 06

I actually believe I've had a form of this syndrome for most of my life. There were times when I was a youth that I just couldn't stand the feel of putting clothes on and felt often that I didn't have the energy to get out of bed. Mother called me lazy, when I said I didn't feel well. I believe this full-blown version was due to an overly stressful job coupled with some major surgery, internal bleeding, etc. I've read somewhere Vitamine D deficiency is a factor. When diagnosed, I had not been drinking milk, nor did I spend much time in the sun. Now I drink milk daily and try to get out in the sun in the morning when I can. And when I remember I take a D supplement. It seems to help. My Doctor had me on 4 separate meds, that didn't work so I weaned myself off of them and fired the dude. (no one is practicing on me)! Sleep is sometimes an issue for me. I have had spans of time where I get snippets of sleep or absolutely NO sleep for days. That is awful. Over the counter meds works to help sleep if it says "PM" on the label. Excedrin Migraine and PM works the best for me. I have the hardest time with socializing. I never know how I'll feel from day to day, so going out with friends is a problem. To make matters worse, there is no way to make friends when you have this and you've just moved to a new area. Isolation is a huge problem for me. Keeping the mind busy during the most painful times is helpful. The only thing that has kept me sane was taking online classes and learning to play guitar (such as it is). For the most part I am in good spirits. I try to laugh a lot and to stay active around the house.

Published: June 03

3 years ago I started getting this awful dull pain in my back, I was a smoker then, I thought it was a smokers pain so I gave up smoking. That will tell you how bad it was but the pain never went I was 24 years old then and am no better for it now. I was after having a baby as well so maybe the stress of all that triggered this awful syndrome if that’s what you call it. I got pain on a daily basis from that day to this. At the start I made a lot of visits to doctors and hospitals who looked at me as if it was all in my head after doing x/rays and heart tests but they all came back clear, I then started to think it really was me so I agreed to take antidepressants which were no good either. Lately I decided to give up alcohol as well because the pains were just killing me even tough when I did drink the pains were 100 percent gone until early that morning I would wake up with palpations and pain in my head arms, back, legs, neck everywhere only worse if that was possible.

Published: May 30

I have extreme pain in my upper arms and thighs as well as osteoarthritis. I went to the doctor as I had trouble lifting my arms. I was sent to see a consultant who diagnosed fibromyalgia.

Published: May 29

After years and years of suspicious looks by doctors, I was FINALLY diagnosed with fibromyalgia! The relief that I felt at having someone who understood and was able to diagnose my condition, brought me to tears. My symptoms were elevated SED rate, wide-spread pain, depression, and fatigue. And to have a "doctor" tell me that he did not believe in fibromyalgia, was the final blow!!! For years I had shed tears because of the unknown condition, but once I found a physician who was willing to do actual work to find out what my problem was, the tears were sheer relief. NEVER GIVE UP HOPE!! Change doctors until you find one who is willing to do the actual work of finding your problem, and if you find that doctor, hold on to them at all cost.

Published: May 29

I don’t sleep very well, when I sit for a long time, I am stiff in my lower back, but only on one side of my body, feels like its sore in the kidneys. I find it difficult to stretch, once I am on the go, the pain disappears for a while. I have been diagnosed with fibrods in my uterus. What should I do?

Published: July 01

I first had pain and extreme fatigue at the onset of my fibromyalgia.

Published: June 24

I've been having fibromyalgia since the age of 48. No doctor would acknowledge my pain. They said it was stress. I finally had a scan taken because of my back pain. My doctor told me I had two hernias. I was operated on for my hernias at age 61. The doctor signed a certificate of sick leave for six months. I went to physiotherapy, naturopathy, phytotherapy, name them, I tried them all. So one day, I had a frozen shoulder and the specialist of sportive medicine sent me to an orthopedic doctor. Finally there was a guy that names the problem and sent me to a rheumatism doctor who finally diagnosed fibromyalgia. I'm 64 years old now.

Published: June 18

My symptoms included unexplained pain in my hips, legs, shoulder blades and neck, along with severe fatigue.