Patient Comments: Erythropoietin - Definition

Question:

Have you been diagnosed with an erythropoietin imbalance? Please describe your experience Submit Your Comment

Comment from: Velma, 75 or over Female (Patient) Published: September 19

I had a bad reaction from erythropoietin. I had vomiting, felt very weak, nauseous and ill. I was advised never to take it again, by the hospital doctor. I have bone marrow cancer. Disappointed, as it would have helped.

Comment from: Pordy, 65-74 Female (Patient) Published: November 27

I have undergone many blood tests to find the cause of my borderline hemoglobin (10 to 10.8) for quite a long time. A bone marrow and/or lumbar puncture was a possibility. My latest blood tests showed an erythropoietin deficiency. They are keeping an eye on kidney function. I am a type 1 diabetic and have eGFR tests regularly. I also take thyroxine for an under active thyroid, have recently had a parathyroid adenoma removed. I have hypertension and glaucoma.

Comment from: Naum, 75 or over Male (Patient) Published: November 25

I have weakness, lightheadedness, and headache from erythropoietin imbalance.

Comment from: KD923, 45-54 Male (Patient) Published: July 30

I have ESRD (end-stage renal disease) and have been on 4800 units of erythropoietin (EPO) for the last month. Combined with iron it has brought my hemoglobin up to 10.5 from 9. I can certainly see why Lance Armstrong liked it so much, I have a ton more energy and feel great. It’s been a godsend for me.

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