Patient Comments: Eosinophilic Esophagitis - Symptoms and Signs

Question:

What symptoms and signs did you experience with eosinophilic esophagitis? Submit Your Comment

Comment from: Grover, 35-44 Male (Patient) Published: March 21

I was diagnosed with eosinophilic esophagitis two weeks before turning 40, about 3 months ago. I'd choked on food about 3 times in six months, and after the last incident ended up in the emergency room due to feeling of food being stuck in throat for 24 hours which then led to panic attack. That triggered endoscopy which provided the diagnosis. I am taking Flovent and trying elimination diet (avoiding milk and wheat/gluten for now) on my own. Allergy testing showed nothing, and doctors have provided little help after initial diagnosis. I now have a constant sore throat, feeling of throat clenching up multiple times a week which also results in sensation of difficulty breathing. Very frustrated! The annoying cough which I've had for years did disappear after starting the Flovent.

Comment from: EmilyS, 19-24 Male (Caregiver) Published: December 13

My son, 22 years, is autistic and has severe epilepsy as well. He was diagnosed with eosinophilic esophagitis (EE) when he was younger. He had to have a feeding tube into the stomach inserted 3 years ago after a severe duodenal bleed and a long spell in hospital. With rehabilitation, he resumed feeding orally, however since May 2016 he has slowly been refusing eating orally and has been vomiting almost daily. We have reverted back to feeding via tube but he will still vomit. I believe vomiting is one of the side effects of EE, but I am surprised this could still affect him when we feed via tube straight into the stomach.

Comment from: Tootsieinoakland, 65-74 Female (Patient) Published: December 03

I have eosinophilic esophagitis and the worst part of it is the chest pain. I've found that drinking any liquid stops the horrible pain sensation within seconds. My son also has this and is the one that told me how to stop the pain. I was certain I was having a heart attack and now I go nowhere without having a liquid nearby; bedside, car, shopping, everywhere. It does not happen but maybe once a month but I guess that I am one of those people that is very susceptible to pain so I am very careful.

Comment from: Dee, 13-18 Male (Caregiver) Published: July 28

My son, now 16, was diagnosed with eosinophilic esophagitis (EOE) 3 years ago. He had been a slow eater for several years, but began having trouble swallowing, began throwing up during soccer games (even when in very good shape), and began having stomach cramps. He was diagnosed with EOE and a small stomach ulcer after an endoscopy. He has a very small appetite for a 16 year old. Standard allergy test is clear. He is being treated with swallowed Flovent and Prilosec OTC (3 years now). Eosinophils are down to 11. He is better, but the nausea can be horrid during athletics. We have found acupuncture to be a huge help to return appetite and keep the nausea down. The nausea is definitely worse during the heat.

Comment from: zinny, 55-64 Female (Patient) Published: July 15

I am a 62 year old female. As long as I can remember I have had an issue with food getting stuck, but not very often, maybe once a year. Several years ago it began to happen more frequently and with soft foods. At a regularly scheduled colonoscopy, my gastroenterologist also performed an EGD and found a stricture (which he stretched) and eosinophilic esophagitis. Treatment included Prilosec (every day for the rest of my life) and some thick sticky medicine that I was supposed to fill a syringe with and inject into the back of my throat. I did that 2 or 3 times. Each time it would send me into a coughing, choking fit, so I stopped it. It has been 2 years since my scope and I have not had a problem since. However, reading others' experiences with this disease makes me wonder if I have a gluten allergy. I have experienced diarrhea, gas, stomach cramps, eczema, and severe hay fever all my life. If eliminating gluten would help even a little bit, I am willing to try! Good luck to all.

Comment from: dj, 65-74 Female (Patient) Published: July 10

Trying to get rice down is very hard on my chest cavity, like rocks trying to pass through. It is hurting my chest a lot on the first or 2nd swallow, wonder if it is from eosinophilic esophagitis.

Comment from: Melissa p, 35-44 Female (Patient) Published: July 03

I stopped eating for 6 months, no appetite. I lost 75 to 100 lb. and all a sudden I am having trouble swallowing, then sometimes the food would get stuck, and I almost died. I don't know if what I have is eosinophilic esophagitis. But it's gotten worse since I started eating again. Even without food I try to swallow and can't. I get diarrhea and bad nausea every day, and weight loss. I can't eat and my stomach pains badly. I have to see a doctor but I'm afraid to.

Comment from: Devil, 65-74 Female (Patient) Published: September 13

I was just diagnosed with eosinophilic esophagitis (EoE). I have severe diarrhea, I wonder if this can be from EoE. I also have sore throat yet the lower part of esophagus is where they found it.

Comment from: Tim F, 45-54 Male (Patient) Published: June 16

I was recently (2012) diagnosed with eosinophilic esophagitis. I have had this condition since the early 1980s (before physicians knew what it was). I am now 47 years old. I have had many occasions when the food impact event (I didn't even know that that was what it was) would last hours and put me in the hospital. The pain is extreme. I would vomit and vomit in search of relief. Eventually the pain would dissipate (often after injections of Demerol). However the fear of eating is strong. For the benefit of others I will review food triggers that place my throat in the danger zone. The foods are Coke, Pepsi, root beer, bananas, and alcohol. Steak and other meats often trigger an event if my throat is in a bad place to begin with, but they can also trigger without any warning. Additionally, I will occasionally cough up particles of matter that are white in color and smell real bad (I don't think this is undigested food). I wonder if this is associated with EE and if anyone else has had this symptom. This is a horrible condition and I wish everyone here the best in dealing with it.

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Comment from: taylor, 19-24 Female (Patient) Published: December 06

My eosinophilic esophagitis started when I was having dinner with my family in 2011 and I choked on a piece of steak. Since then, I noticed that I was having trouble swallowing certain foods such as angel hair pasta and tough meat. It would happen only when I ate those certain foods so I thought nothing of it. It was not until February of this year that I noticed that it was starting to get worse. I started to choke on smaller foods such as rice and cheese. It got worse fast from September to November. It wasn't until I choked on water that I decided that it was time to get this checked out. Right away, my doctor knew what I had and he scheduled me for an endoscopy for two days later, November 14. My esophagus was so small that my doctor couldn't get the tube down all the way and had to force it, which alone dilated my esophagus a little. He stopped there so he didn't put me in danger. For the next two days, I ate only pudding and ice cream. I had a lot of pain in my throat and upper gastric area, but that lasted only two days and was normal. I have not choked since. But I still need to get it dilated the rest of the way. I still have a long way to go.

Comment from: Dancer, 45-54 Female (Patient) Published: October 15

I had the first symptoms as a teen. I could not swallow pills and would occasionally choke on solid foods. It progressed to frequent choking on solid foods, especially meat. Then it progressed to even choking on pasta, rice, soft solid foods and I had frequent sore throats. Primary care at that time told me there was no issue, until I could not swallow liquids. Finally at a walk-in visit, I had endoscopy scheduled and was diagnosed with eosinophilic esophagitis and I had a Savary dilation and was put on Flovent for 2 weeks. I was ok until last few months without additional treatment. Now I am starting to get solids stuck again as it used to several years back.

Comment from: lily, 45-54 Female (Patient) Published: August 10

Recently I was diagnosed with exercise induced anaphylaxis, and eosinophilic esophagitis. I also had surgery for gerds. I notice that a lot of foods upset my stomach. I was told since I have exercise induced anaphylaxis,I should not eat certain foods, fruits,vegetable, grains like rice and wheat, and shell fish or sea food 5 hours before I exercise, because I may have a deadly allergic reaction, and I have in the past, so I must carry and epipen. I also have disphagia and food gets stuck in my throat. I wonder if some of us with eosinophilic esopagitis also have undiagnosed gluten intolerance, and some how, all of the above mentioned might not be tied together? I never realized just how much hidden gluten there is in some fruits, vegetables, meats and so on. There should be more research done on this. Funny how I had a lot of these problems as a child, but some of it has only recently been diagnosed in middle age.

Comment from: Rose, 7-12 Male (Caregiver) Published: October 29

Three weeks into my holiday abroad I have reduced hearing in one ear and a constant whooshing noise but no pain. I am now into my eighth week and after having my ear checked at a hospital, I was told I had an infection and a week on with the prescribed ear drops there's been no change. I use earplugs to cope with my husband's snoring. They are of a soft moldable material, like Plasticine. I am wondering if any has got stuck in my ear canal and if that is what's causing the problem. I am not flying back to UK for another four weeks and worried if I should wait until I get back to the UK to get another medical opinion.

Comment from: D, 45-54 Female (Patient) Published: August 18

I was just diagnosed today with eosinophilic esophagitis (EE) and I believe it has something to do with my latex allergy. I have many food allergies and almost every time I eat out I get symptoms. Some restaurants still use latex gloves in food preparation. I have tried to bring awareness to this and will always ask now. This pain is unbearable at times and people don't understand it, they always say it is just GERD. I am going to do some more research before I decide on a diet plan.

Comment from: frustrated, 3-6 Male (Caregiver) Published: March 07

My son was diagnosed with numerous food allergies and EE (eosinophilic esophagitis) at the age of 1. We got everything under control with an elemental formula diet when we was young and has been on a restricted diet for the past 3 years. Well, he started refusing to eat or very small amounts, and off and on diarrhea, so an upper scope was done showing he is active and probably has been for quite some time. He is stubborn and will just refuse to eat until he is offered junk - chips, cookies etc. I don"t understand this, his doctor is suggesting he go back on formula as a supplement but he won"t drink it. He develops agitators of his EE, so a rotating diet hopefully would work, but how does he just deal with the feeling and not say it hurts! Does he not understand or just unbelievably stubborn? I am having a real difficult time with knowing whether to just leave him alone or push the formula and/or medication.

Comment from: 19-24 Male (Patient) Published: March 08

EE sufferer for 3 years. Food sometimes gets stuck. I try to wash down w/water. If doesn't wash it down, thick mucus that my body produces tries to get it up. Pain it the butt! Embarrassing if in a public place or when at a social gathering. Been Gluten free for 2 years now and seems to be helping greatly. Also staying away from other foods I'm allergic to such as all raw fruit, raw veggies, all tree nuts and of course wheat. Less frequent food gets stuck now! Pollen allergies nearly gone! Being Gluten free has made my digestion better. No more constant upset stomach and gas. From what I know, pollen has very similar proteins to ones in fruit, raw veggies, and TREE nuts. Go figure! Definitely a correlation there.

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Comment from: PSwearin, 25-34 Male (Patient) Published: January 20

I'm a 31 year old male that was diagnosed with EE about 6 years ago. My experience with the disease has been a roller coaster ride. I've experienced some acid reflux, including waking up in the middle of the night choking on it. But thankfully those incidences are few and far between. My personal experience with swallowing issues has been that under most circumstances, I can force the food down that gets stuck by swallowing air. I don't like taking medications so I've dealt with the problem that way until it gets so bad that I have to go on a 2 week regimen of swallowing flovent, which seems to be necessary for me at least once year.

Comment from: Jan, 45-54 Female (Patient) Published: October 11

I am a 52 year old woman and have just been diagnosed with EE. In hindsight I think I have been suffering with this condition for, at least, 15 years. I have been prescribed a steroidal inhaler but with instructions to swallow instead of inhaling. This has brought some relief but I have found the best thing for me is to eat any food in small mouthfuls and to try and eat as slowly as possible. It takes some practice, particularly when you're hungry!! Meat continues to be troublesome.

Comment from: 25-34 Female (Patient) Published: June 20

With my eosinophilic esophagitis, I get a pain that feels as if I have swallowed a basketball. I don't think there is actually something stuck in my chest, but it feels as if there is. I find that it happens most often with raw fruits and veggies, baking soda (that I took for heartburn), eggs (only sometimes), bread-ish food if I don't have a drink, and peanut butter if I don't have a drink. Lately, though, I can't identify what it is that I ate that caused it. I have the pain now with no explanation. It almost feels as if a burp is stuck, but I don't think it is.

Comment from: Muush, 55-64 Female (Patient) Published: February 09

I am a 56-year-old female. I have had a persistent cough since 1992. I was (incorrectly) diagnosed with asthma because of the cough. Albuterol really didn't help much. (No wonder!) In 2005, I decided that enough was enough and the cough had worsened. I was put on steroid asthma meds (Asmanex) and felt better, but I was still coughing. Finally, that doctor shipped me off to an asthma doctor who decided that it was not asthma. So, off I went to the GI in 2009 and finally got it diagnosed as eosinophilic esophagitis (EE). I did the Flovent treatment and felt great, but about six months later, all my symptoms returned. I requested allergy testing (the doctor felt it was an allergic reaction and just told me to avoid certain foods without the testing). I was 4+ allergic to several foods (soy, certain nuts) and 2-3+ allergic to many other foods and fruits. After the allergy testing, I repeated the Flovent medications, and I have avoided the foods and feel much better.

Comment from: 65-74 Female (Patient) Published: April 12

I haven't been diagnosed yet, but have symptoms of eosinophilic esophagitis, I'll find out next week.

Comment from: Helen, 55-64 (Patient) Published: June 16

I was diagnosed with eosinophilic esophagitis (EE) seven years ago. After three hospitalizations with stuck meat in my esophagus I now only eat minced meat and have not needed to attend emergency since this diet change. I am now under a new doctor and am awaiting a dilatation. My new doctor has recently given me a course of prednisolone (when my problems were failing to respond to swallowed Flixotide) which has helped. He said that some of the latest thinking is that non-steroidal anti-inflammatories may be able to help with this condition. Good luck to all my fellow sufferers.

Comment from: Connell, 13-18 Male (Caregiver) Published: March 13

My son is 13 years old and has been diagnosed with eosinophilic esophagitis (EE). He has a lot of medication and he suffers with food and he gets very constipated which leaves him very unwell. He is struggling with school. He has had a lot of allergy tests and he is not allergic to anything. And he has been in hospital for a number of clean preps and he has had the camera down and up the back passage. I cannot understand this condition it is heart breaking seeing him suffering.

Comment from: SWEET CHLOE, 3-6 Female (Caregiver) Published: August 20

My sweet 5 year old daughter Chloe suffers w/ EE, asthma, allergies, eczema and autism. I recently took her to the hospital a week ago because she was so lethargic and had a blood sugar of 29.T doctors thought it may be diabetic related, but her EE was preventing her from eating.

Comment from: As1015, 25-34 Female (Patient) Published: May 16

I am 29 years old. I was diagnosed with EE about a year ago. I began to have episodes during my pregnancy and around the same time as spring began. I have had horrible chest and stomach pain on my right side. I could not burp or even breathe. It usually lasted for an entire 12 to 24 hours. This disease is very crippling, especially when you have children at home. I am on Deviant, which has helped quite a bit. Since I started taking it, I've only had two episodes. Occasionally, I get pain, but only when I eat something I am not supposed to (ex: shellfish, chicken, corn, chocolate, wheat, eggs, dairy, apples and bananas). I'd like to know if I'm the only one who suffers from this type of pain.

Comment from: John, 45-54 Male (Patient) Published: April 08

I have had pain and trouble swallowing. Sometimes, I need to throw up the lodged food to get it out. This has gone on for at least eight years. Then a doctor tested and said I have eosinophilic esophagitis. I tried an inhaler and Nexium. These help, but I've discovered on my own that during Lent, when I give up drinking all alcohol, that I have no symptoms during the 46 days of Lent. I believe some of us are allergic to alcohol or something in it.

Comment from: Lisa Gay, 45-54 Female (Patient) Published: February 01

I am a 46 year old college student. I was recently diadnosed with E.E. As soon as my endometriosis eased up I got this. I have always been a slow eater, the last one done. Recently my doctor took blood and noticed the high white blood count after going in for a bleeding ulcer. I will not take flovent as it gave me thrush. Now I have oral lichen planus as well. I was dilated after doing the avoid wheat, dairy, rice(which Im allergic to) and peanuts. The esophagal rings are now three time better. I guess food does play a big part, good luck to you all.

Comment from: 45-54 Male (Patient) Published: January 03

I have had eosinophilic esophagitis for several years. My symptoms when an event occurs is that I can't swallow or belch for anywhere from a few minutes to 36 hours. Proton pump inhibitors make me better for a few weeks then I get much worse. I have had dilation and the last time they said my esophagus was too inflamed to dilate. I went on the 6 food elimination diet that has virtually eliminated my issues and have recently started adding back some foods. Try eliminating soy, milk, eggs, wheat, nuts and sea food. This leaves a diet of basically oatmeal and rice with chicken but at least I can eat. I have previously tried to isolate specific foods and that did not seem to work. In my case a flow vent and proton pump inhibitors caused more problems than they solved. Try the diet and at least you can eat.

Comment from: srosea, 19-24 Female (Patient) Published: December 13

I am 22 years old and was diagnosed with EE around 2 years ago. The diagnosis came after years of my mom taking me to doctors throughout my childhood where she was told I had an eating disorder, I was just being fussy or that it was all in my head. I was given Prednisolone and Omeprazol for treatment. My swallowing was so restricted that I had to have soluble versions. The steroids did help somewhat but caused insomnia and chest pains. I have recently had a baby and am breast feeding so can not go back on the steroids right now. I find that I can not eat anything like rice, pasta, raw vegetables, fruit, cheese and more. People do not realize how restrictive this disease is. I now suffer from panic attacks when I eat out, and since takes me so much longer to eat I find myself explaining the disease to anyone who isn't aware of it. I have been told that I will be eating through a tube by the time I am 30 if the steroids don't work. I really hope they do some more studies on this crippling disease.

Comment from: atet0810, 3-6 Male (Caregiver) Published: November 13

My son is 4 years old and has had symptoms of eosinophilic esophagitis since he was 6 weeks old. He was diagnosed with EE in June. He has been taking Flovent, ranitidine and singular. He seemed to be doing well with only about 6 episodes since taking all of the medications. Recently, he has been sick almost every day, and almost every meal. He is afraid to eat. It kills me to see him this way. He is so sad and afraid. We will be going back to the doctor to see what else we can do. If you have a child with symptoms of reflux and it continues, please do not give up. He has undergone allergy tests, with only environmental allergy results. They did blood work, which found he was "possibly" allergic to eggs, wheat and milk.

Comment from: HK, 35-44 Female (Patient) Published: September 12

I am a 39 year old woman and I have had EE for as long as I can remember, though it was just diagnosed about three years ago. I have always had trouble with food getting stuck in my esophagus, especially during stressful times, and the result is that I eat very very slowly with tiny bites and I prefer to eat alone so I don't have to disrupt a social meal by getting up and having to regurgitate my meal. It was such a relief to get the EE diagnosis! For years GI doctors said I had GERD though the symptoms didn't fit and the proton pump inhibitors did nothing. I still have the swallowing problems but at least I know what it is now. It happens a few times a month, more if I'm stressed out. So far no luck in figuring out what the triggers are, despite lots of allergy testing. The best time for me in terms of not having EE episodes has been during my pregnancies. No EE flare-ups for those nine months! I guess it's because your immune system is suppressed during pregnancy. Thank God neither of my children have symptoms of EE. I feel better just knowing that there are other people with this disorder. It's socially embarrassing. I have close friends who thought for years that I have bulimia or an eating disorder because of all the vomiting after eating.

Comment from: OldestCity, 65-74 Male (Patient) Published: September 12

I am a 66 year old male that has had swallowing problems for 12+ years. Food would get stuck. Not a piece of meat, but it could be as little as a lettuce leaf. It seemed to always occur at the beginning of a meal. Usually it would finally go down in ten minutes. The longest it lasted was nearly an hour. I could swallow a little saliva, but that was about all. Then about two weeks ago, a piece of pasta or fish got stuck and wouldn't go down for five hours. I couldn't even swallow saliva. I tried throwing it up, but it wouldn't move. A trip to the ER with an emergency endoscopy and a biopsy revealed EE. Most info indicates that the cause is an allergic reaction to something, probably foods. Six months ago, I had an endoscopy because of upper chest bloating. My esophagus appeared normal. I got off of lactose and that solved that problem, but I started drinking soy milk and eating more fish and shellfish. Now the recent endoscopy showed rings, ulcers and inflammation. So, now I believe that I'm allergic to soy and possibly fish and/or shellfish. I can't get in to see the specialist for three months, so I'm thinking of asking for allergy testing on my own before then.

Comment from: jmhh, 25-34 Male (Patient) Published: October 26

I have had a terrible swallowing problem that feels as if I cannot breathe and cannot get the food down. While it has been swallowed and I'm not choking, nothing will get by. I either will try to drink something carbonated to get it down or walk around. It can be quite scary because, at times, it will take up to 10 minutes to go away, and I will have to try and force myself to throw up. Some foods I have noticed have been chicken, fish, rice (mainly long grain), quinoa (almost every time I try to eat it), and various other things, including breads. I never had a biopsy done but plan on getting one soon because recently I have had a sore throat almost every morning. I was diagnosed with this eosinophilic esophagitis (EE) 10 years ago after receiving an upper GI endoscopy and swallowing test.

Comment from: karen, 55-64 Female (Patient) Published: March 16

I was 57 when diagnosed with EE. I am a normal weight and very healthy with only seasonal allergies. The scratch test for food allergies and blood test for food allergies revealed nothing. The symptoms consistent with GERD, biopsy confirmed EE. I do have hiatal hernia, never any symptoms related to that (never heartburn! I have no symptoms and no longer fear eating for fear of a random swallowing episode.

Comment from: Lynn Murdock, 45-54 Female (Patient) Published: December 27

I am 53 years old. I have had the issue with food getting stuck for 8-10 yrs. I thought that there was nothing that could be done except have a scope and get dilated. It is awful to go out to eat and have to sit there and not eat b/c it's stuck. Getting up and going to the bathroom and trying to throw up so that you can go back and finish your meal is such an embarrassing thing. I am so relieved to see others here who have the same problem. I went to the specialist today and found out I have EE. I have had many scopes in the past. Now I am scheduled to find out what I am allergic to but the reality is wheat, eggs, milk, soy, seafood are the usual suspects. I want to know so I can eliminate what is causing this. I am glad to know at least there is something I can do.

Comment from: Mario, 25-34 Male (Patient) Published: August 15

I'm a 32 year old man with eosinophilic esophagitis. I don't experience swallowing problems but more so clinching feelings on the left side of my chest irregular heartbeats and fainting feelings at times. I am recently taking Flovent which helps at times and Omeprazole DR 20 MG for acid reflux. Today I experience real bad feelings in my chest while working at an asphalt plant, I thought I was going to pass out. I took off work but now I have been feeling bad all day. Everything always feels like it's in my heart and it scares me at times depending on the severity. Do any one else feel the same way at times? And what's a good remedy?

Comment from: sem, 25-34 Female (Patient) Published: May 03

I have had problems swallowing since high school. I wish there were more known about this back then. It was high school when I first remember not being able to swallow French fries, if I was eating too hurriedly. I was diagnosed with eosinophilic esophagitis and Gastroesophageal reflux disease (GERD) around age 25. Now, 5 years later, both are still there. It still happens most with potatoes, though any solid food (I am a vegetarian) can be a problem. It happens most when I am stressed. I am a lawyer so that's a problem. The dysphagia can last like 10 minutes sometimes and is extremely painful. It's very embarrassing if I am around other people.

Comment from: mayo1972, 35-44 Female (Patient) Published: May 03

I had my eosinophilic esophagitis diagnosed last year. For several months I had been feeling like my food was stuck in my throat and I would get a pain sensation in my chest. If I drank something it seemed to get better. Finally I had an incident so painful that I finally went to the doctor. Based upon the endoscopy and biopsies the diagnosis was made. I was on a steroid inhaler and am still currently taking omeprazole. I am starting to feel the sensation again and I'm scheduled for another endoscopy.

Comment from: Shelly in Hawaii, 7-12 Female (Caregiver) Published: March 30

My 11 year old son has had EE since he was four. Without medication he would vomit or regurgitate into his mouth up to 20 times per day. He had skin prick allergy testing and the back patch but nothing came up as allergic for him besides dust and mold. He takes Loratadine 10 mg. every night, zantac 150 mg twice and day and does "slurries" with budesonide (pulmicort) liquid and pure maple syrup 30 min. before breakfast and dinner. He used to use .5 mg. but now uses 1 mg. ampules. The slurries are key to my son reducing his otherwise frequent chest pain and vomiting. He was missing 2-4 days per week of school due to his symptoms. We are currently eliminating wheat; dairy and soy to see if that will help him. I hope he doesn't have to take the meds for life as his doctors say. The side effects of steroids - anger, depression, aggression - are not fun. Luckily my son appears to be growing normally with height and weight which is a big relief for me.

Comment from: Larissa, 19-24 Female (Patient) Published: March 28

I took an allergy/sensitivity test. It is different from the IgE test the allergist uses. It's an IgG test called ALCAT. My family doctor suggested I see a chiropractor who does these tests. It's a blood panel test. It found all of my food allergies. I had already made many changes in my diet from seeing two different allergists, but they did not catch everything. Since then, my esophagus has opened back up (I was on a feeding tube and liquid diet for six months) before I took the ALCAT test. My quality of life has gotten much better. I still have a hard time with meat going down my esophagus. Most of the meat will, but some will linger for hours. But at least I don't need antacids anymore or esophagus dilations anymore. And I'm no longer on a liquid diet, either. In the past my gall bladder was hardly functioning, but I felt too weak to get it removed, but as time goes on, my gall bladder seems to be doing much better. Also, my pancreas hasn't been giving me problems anymore, either. I used to suffer from pancreatitis quite a bit, and I had a hard time keeping my electrolytes balanced and ended up in the hospital for a short time with acute kidney failure. But I am doing much better, now. I'm so grateful my family doctor told me about the ALCAT test.

Comment from: clarice, 35-44 Female (Patient) Published: May 18

I am a 36 year old female. I was diagnosed with EE after an endoscopy and biopsy revealed rings and furrows and high levels of eosinophils. I have never been able to swallow pills and have had episodes of food getting stuck. My esophagus has been torn twice during scoping and I am hoping to never have to go through that again. I have yet to see an allergist but have been trying to pin down possible food allergies myself without success. I have anxiety attacks over feeling that my throat is closing up whether I am eating or not. Not sure if it's psychosomatic.

Comment from: chance2, 0-2 Male (Patient) Published: April 13

My son will be 2 years old this month, and he has never been able to eat anything, he cries for food but he can't get any thing down. It is sad that he has never had any kind of food. He just got out of the hospital for the 19th time and now we find out he has this eosinophilic esophagitis. I have been in and out of the doctor's office and hospitals with him since he was born he has been sick since birth.

Comment from: dear mama, 3-6 Female (Caregiver) Published: April 08

My daughter is three and was diagnosed with eosinophilic esophagitis today. This has been a trying and very difficult disease. We knew something was wrong from the time she was an infant. At the age of 6 months she was diagnosed with CVS (cyclic vomiting syndrome) which seemed to match up until last month when she continuely vomitted every three days for 3 1/2 weeks??? It was horrible. Now that we have this new diagnosis maybe we can also find some relief for her. It is not only hard on her but on the entire family. I feel for any sufferers.

Comment from: carolinarocks28, 19-24 Male (Patient) Published: March 29

I was diagnosed last year with eosinophilic esophagitis. I have had trouble swallowing food for a while before that, but thought nothing of it, when the doctor performed the first scope on my throat, he said the camera got stuck and he was afraid that he was going to rip my esophagus. Now my throat is normal size, a year later, but I still have the disease. For those looking for a way to get your throat normal size, tell you doctor to prescribe you 2 different medicines, first one is Flovent Diskus (fluticasone propionate inhalation powder), but spray on your tongue and swallow it, its a steriod that really helped. Next take omeprazole, which helps with acid reflux which is one of the causes of this disease. Hope this helps.

Comment from: Mr. EE, 25-34 Male (Patient) Published: March 22

I was diagnosed with eosinophilic esophagitis at my 2nd dilatation, 6 years after my 1st one. I have the form with multiple rings all the way down my throat. I've had difficulty swallowing since I was really little, and can remember times when I was between 4 and 6 and choking on a taco (I called it 'choking,' but it was stuck past my airway--It was just the anxiety back then). A couple of times as an adult, I've embarrassed myself by having food get stuck, then regurgitating it all over a food tray due to the anxiety that builds up. Anyway, the biopsy after the 2nd dilitation verified the EE, and I was put on Flovent. 3 times a day, but unlike other people, I take it before meals. Either my wife told me wrong or the doc is trying something new, but I was not told to wait before eating, either. Swallow the Flovent puff, then rinse my mouth out with water and spit the water out. 2 1/2 weeks later, I went to the allergist. After two appointments, I find out I tested positive to approximately 45 different foods out of 100. I cut them out and everything related to them, e.g., I was allergic to soy, so I quit eating soy and soybean oil; with corn, I also quit eating things with corn syrup. 5 weeks after the 2nd dilitation, I had a 3rd one. Doctor says significant improvements are visible, and now I'm on Nexium, too. Avoiding the food allergens is not easy, but I think it is nutritionally better and a little lighter on the wallet. I can't say that I remember having any issues when I lived in a different region of the US (as a child). After moving, I definitely noticed hay fever right away. I don't remember having seasonal allergies at the other location, either, not even when I visited there for a few weeks recently (before the EE diagnosis).

Comment from: Summer_Lovin, 25-34 Female (Patient) Published: March 02

I started vomiting at the age of 14 (1997) after a concussion. I lost 20 pounds in 2 weeks and continued to vomit of and on for 10+ years. I had severe abdominal pain and they finally figured out I needed my gallbladder removed in 2006. I continue to have severe abdominal pain, sensitivity to certain foods and periodic vomiting spells. My throat feels constricted at all times and I am developing asthma.

Comment from: Kerry, 45-54 Female (Patient) Published: February 14

I am a 47 year old woman who was diagnosed with Eosinophilic Esophogitis in October 2010. This diagnosis cam 10 months after my first choking incident while eating. Food would stop about half way down my esophagus and I would start freaking out. Water caused vomiting, but not the movement of the stuck food. My husband dismissed this as taking too large of bite, eating too fast etc... but when it started happening several times a week - I went to the doctor. I was diagnosed with an upper endoscopy and had an immediate diagnosis as my "spots" were very apparent and I was so inflamed, the scope barely fit down my throat. I have been taking Protonix for 4 months and have had good results. I am trying to avoid steroids...Best of luck to everyone...

Comment from: J, 45-54 Female (Patient) Published: January 14

I am 54 and confirmed diagnosis of EE. I have recently started on the Flovent and saw improvement in less than a week. At first, it was hard to spray and swallow, so I am now spraying the Flovent into a half spoonful of honey and swallowing that it goes down easy, and I think that the honey actually helps it stay in my throat a bit longer. Seems to work good for me.

Comment from: Karsert, 3-6 Male (Caregiver) Published: June 19

My 5 year old son has just been diagnosed with eosinophilic esophagitis (EE). He had the same issues with his bottle when he was four months old, vomited after every bottle and lost a lot of weight. This stopped suddenly when he was 7 months old but has still reappeared over the years and has just been diagnosed as EE.

Comment from: Diego, 25-34 Male (Patient) Published: May 08

I'm a 34-yr old male who has suffered for 3 yrs with eosinophilic esophagitis (EE). Wine and Beer are my triggers, which has been tragic, since I like them. The endoscopy seemed to help with the consistent food swallowing issues (5 times a week), but after 18 months the swallowing issues seems to be back. I probably catch food in my throat one time a week. Steroid inhalers and acid reflux medications did not seem to help.

Comment from: nejake, 45-54 Male (Patient) Published: January 25

Just diagnosed with eosinophilic esophagitis after being scoped. I've been suffering for years with this condition. My doctor is going to break the rings I believe. I have a consultation with him next Friday, and I hope all goes well.

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