Patient Comments: Endocarditis - Symptoms


What were the symptoms associated with endocarditis for you or someone you know? Submit Your Comment

Comment from: haileykarin, 19-24 Female (Patient) Published: November 21

I had gotten sick beginning of March 2016, started with shortness of breath, and then slowly started progressing, mind you at this time I was smoking meth (never injected). My symptoms from March up until I was admitted into the hospital in July 2016 was as follows but not in that exact order: fever up and down, hypothermic levels, shivering, severe hot and cold flashes, headaches, body spasms, pass out spells, tachycardia, intense intermittent chest pain, also dull, intermittent chest pain, heaviness in my chest like I drank gallons of water, enlarged spleen pushing my ribs out (it looked like my body was literally turning around). My left side of my body literally sank into the bone, you could just see the outline of my bone. I had nasty, dull and severe left calf cramping, sometimes not so bad and other times excruciating charley horse pain to where I couldn’t stand, severe and noticeable leg swelling (was in one and both legs), and redness of skin on my left side. Weird bubbles came up in random muscle spots (it looked like a huge bulge coming from my muscles at random times), and when they disappeared there was like a fluid buildup afterwards. I had mottling skin (starting to happen again), I had nasty numbness in my arm and leg (left side), dizzy spells, I lost a ton of weight, barely ate, sweating was on and off, extreme fatigue, nausea, and a few more issues that I can’t remember at this given moment. Well, I was going to the doctors on and off for months, doctors and the emergency room (ER). I’d hit the floor continuously. I have had anxiety and depression for years so that didn’t really help at all. I ended up getting MRSA with nasty lesions all over my body, so that made it worse, I was on 5 different medications, lotions, and body washes and nothing helped. I went to the ER, I had pustules coming out of my skin, nasty ones. They tested positive for MRSA, strep A and staph. So I was admitted quite quickly. The doctors started doing tests and really didn’t find anything until they did an echo and a CT scan with contrast. They found I had endocarditis, 2 infected valves, 2 calcified valves, a septic nodule, satellite nodules in my liver, and a septic pulmonary embolism in my left lung with septic satellite nodules. The bacteria started eating my spine. Messed up my hypothalamus, and almost killed me. I also had systemic invasive strep A. I stayed a week in the hospital and was put on a PICC line for a month on heavy duty antibiotics. I was healthy for months after that. It has been a full year since my PICC line, and I have started to become sick again, I can feel and see it happening all over again. I had subacute bacterial endocarditis.

Comment from: Ratchet102, 55-64 Female (Patient) Published: December 23

I recently had endocarditis caused by strep viridans. I had mechanical heart valve replacement. My symptoms were fatigue, chills, joint pain, decreased urinary output, and eventually two strokes.

Comment from: John, 55-64 Male (Patient) Published: December 03

I had periodic episodes of night sweats and chills, swollen feet, and almost constant fatigue. I was misdiagnosed twice and put on prednisone, which did little or nothing to help the endocarditis symptoms I was having. But it was after I developed severe low back pain that landed me in the hospital where they finally did a blood culture and found the bacterial infection.

Comment from: BarbaKay, 55-64 Female (Patient) Published: May 02

My symptoms of endocarditis were loss of appetite and weight loss; extreme fatigue; fevers every evening of 101 - 102; super soaker night sweats; majorly swollen ankles; 3-4 night trips to the restroom (water retention); shortness of breath - when I would "laugh" it came out as coughing. I went to the doctor. She took blood and found my blood count to be in the 7-8 range, where 15 is normal. Found my iron in the "normal" range. Found my sedimentation rate in the 90s, where 30 is normal. She said I had anemia of chronic disease and now we have to figure out which chronic disease it is! The infectious disease doctor figured it out. Endocarditis! Boom - to the hospital I went for 24/7 antibiotics. I had open heart surgery to repair the mitral valve. Moral of the story – if you've ever had to take premedication antibiotics prior to a dentist appointment, and now don't because the Heart Association removed the mandate – take them anyway and save yourself from open heart surgery - or death!

Comment from: Beverley, 55-64 Female (Caregiver) Published: March 14

My husband died of endocarditis last November. It came on quickly and he had no symptoms of this until the week before he died. It"s hard to diagnose and is very much like any other disease. If you start getting tired and coughing see a doctor.

Comment from: pauldub, 55-64 Male (Patient) Published: December 18

I was first diagnosed with mitral valve prolapse (MVP) 30 years ago and always took antibiotics prior to dental work. Then that was changed and I had dental work done without antibiotics. I began to lose weight and get extremely tired over a period of two months. Breathing became more difficult. I had night sweats and frequent headaches. I was told that this was because I smoked and should stop. Then one morning I got a severe pain in my chest and fell over. When the ambulance came I fainted and fainted several more times in the emergency room (ER). An echocardiogram stress test showed a growth on my mitral valve. I was given intravenous antibiotics for 5 days in the hospital and then through a PICC line for 8 weeks.

Comment from: zipper chest, 45-54 Male (Patient) Published: January 08

My endocarditis started with classic fever symptoms: chills, followed by fever, headaches and body aches. The first onset of symptoms lasted for 2 days and almost subsided by the 3rd day. But for the following several days, particularly beginning in the late afternoons and continuing through the nights, I experienced continued fevers (102 degrees+), severe headaches and night sweats. The 7th day after the onset of the original symptoms I saw my doctor, who thought it might be a viral infection. The 10th day after the onset of the original symptoms I was no better and my doctor checked me into the emergency room.


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Comment from: zippy, 55-64 Male (Patient) Published: December 16

My first symptom was a loss of appetite, I was losing 4 pounds per week. I had night sweats, tired all of the time. My physician was convinced it was an upper gastro intestinal issue and I went through testing for that. I then had a sharp pain in my right arm on the inner arm at the elbow bend. I later found out it was an infection from the vegetation that had broken off from my aortic valve. It took about 6 weeks until my physician ordered a blood culture that showed the blood infection and led to a 7 week hospital stay, a valve and root replacement/repair. I also had to have the ulnar blood vessel replaced by a vein from my leg due to the infection in the arm. My heart stopped in ICU after the first operation but I was revived by CPR (Cardiopulmonary resuscitation). Even though my physician missed the diagnosis and put my life in jeopardy I feel fortunate the surgeons were on top of it and saved my life. I will look for second opinions in the future.

Comment from: Xxxx, 45-54 Male (Patient) Published: January 27

The endocarditis symptoms began as flu-like symptoms with chills, low grade fever, slight dizziness, fatigue, and minor headache. I had major night sweats and weight loss after that. I also had a cough which may or may not have been related.

Comment from: tami, 19-24 Female (Patient) Published: December 17

My symptom was, I was totally exhausted. I had a new born and a 1 1/2 year old and I could not stay awake and I had horrible night sweats. I would sleep with the window wide open in winter and wake up soaking wet.

Comment from: Waudene, 75 or over Female (Patient) Published: March 20

I have a mitral valve prolapse and osteoarthritis with bone thinning. My family doctor suggested I take Prolia. I asked if it had any bad side effects, and he had said "no". After two injections I read in a magazine, all the side effects. Some of these I have experienced. My concern is endocarditis, so no more Prolia for me. My cardiologist will probably not be happy that I was given the Prolia. I am on medications for the valve prolapse. Hopefully it will be out of by body soon.

Comment from: patricia, 55-64 Female (Caregiver) Published: December 16

My mum had a very high fever, cough and felt very weak and tired.


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