Patient Comments: Dyslexia - Diagnosis

Question:

How was your dyslexia diagnosed? Submit Your Comment

Comment from: MarthaBT, 3-6 Male (Caregiver) Published: March 20

Way back in 1969, my son was diagnosed with dyslexia. He had a first grade teacher who recognized his problem immediately. She asked me some pertinent questions about my pregnancy, whether he needed oxygen when he was born, if he had high fever as an infant, whether he crawled, etc. We then had him tested and it was confirmed that he had dyslexia. Fortunately, this teacher taught children with learning disabilities.

Comment from: Me, 7-12 Female (Caregiver) Published: October 04

I have emphysema. I use the albuterol inhaler whenever I feel that I need it. I wheeze when I lie down to sleep either for a nap after breakfast in the morning, as well as when I try to sleep at night at bedtime. The wheezing keeps me from falling asleep and it is bothersome. I do admit that my breathing is getting worse over time. I try to run with my dog and I do go to the gym every day to work out because I like doing something but I always take two puffs off my inhaler before I go. I eat most of my meals at home and I prepare nutritious food and I eat full meals so that I don't snack on junk food in-between my three meals. I am keeping my focus on trying to stay positive however I do know that my time on this earth is now limited because I can see the progression of my disease. I am not going to doctors because there is no cure, only treatments. Yes, I do want to live but I know that I only have about five years.

Comment from: 1stTimeMom, 3-6 Female (Caregiver) Published: March 14

My child is 5 and I feel like she has dyslexia. The teachers at her school told me so but as I look at her she spells her words the wrong way, she"s super smart but can"t connect the letter to say the words.

Comment from: matt, 13-18 Male (Patient) Published: July 26

I was diagnosed with dyslexia when I was 6 years old. My teacher said my parents should get me tested because I was really smart, but I couldn't learn to read. My parents took me to an educational psychologist who confirmed that I had dyslexia.

Comment from: 7-12 Male (Caregiver) Published: February 13

My grandson had Dyslexia test in 2nd grade was told that he did not have it. And now he is in the sixth grade and the new test shows that he has dyslexia. I feel like crying and feeling bad for him. We need to get help for him.

Comment from: miss aj, 7-12 Female (Caregiver) Published: May 28

I am adult who was diagnosed with dyslexia when I was 7. My daughter, who is 8 years old, was diagnosed just a few weeks ago. It seems like I was the only one concerned with my daughter and her dyslexia, as her teacher filled out a form that said she had no concerns about dyslexia, even though she was writing her headings in mirror writing. My daughter had some trouble reading and was put in a reading program at school. She didn't know her left from her right. She was never in trouble for her behavior, still nobody but I was concerned. I think if I didn't have it myself it would not have been picked up at all, which really concerns me. How many other poor children are going through school with untreated dyslexia?

Comment from: Debbie, 45-54 Female (Caregiver) Published: March 14

For all of you who want the schools to test your child, just put it in writing that you want your child tested for learning disabilities, sign it and date it. This will start your child's timeline. The schools have a limited time period to test and hold meetings. I believe this is law. You need to keep a copy of everything. You have the right to request a copy of the results and receive them 10 days before the IEP meeting. It is best to request this when you submit your letter for testing. Put everything in writing and keep copies. When you go to the meeting make sure you have your notes on your observations and concerns. Bring samples of your child's work and test to the meeting as well. Bring any notes from the teacher about your child that would back up your concerns. This is important for you to share. It is also a good idea that you find an advocate to help your child get the help he or she needs. I have it, my children have it, and my grandchildren have it. I have been working on my credential for special education. The schools that I have dealt with do not test for dyslexia, nor does my grandchildren's doctor.

Comment from: cc success, 45-54 Female (Patient) Published: November 30

HI, I agree with the person that said that they were glad that they weren't told they had this disability. I had this disability for a long time and didn't know. I just really founding out recently. My parents pushed me and pushed me. Of course I thought how unfair etc. I made me more determined. I have a college degree and my friend reminded me of how important it is to have one. Don't give up and push yourself and whoever you know that has this. I have read up on this subject and knowledge is the best hope for success. Don't give up on yourself or hope. All things are possible to them that believe!!!

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Comment from: jenifer, 7-12 Female (Caregiver) Published: March 01

My name is Jenifer and I'm sure my son has Dyslexia. He is in the fifth grade. He cannot read very well at all, or write very well. He changes numbers and letters around all the time. I can't seem to get any answers anywhere. I have asked the school since he started school and they say we cannot give you a medical diagnosis. He is way behind I feel and he goes to middle school next year. He has an IEP but I feel that the school has really failed him.

Comment from: c90213, 7-12 (Caregiver) Published: February 18

My son has dyslexia. He is in grade 3 but he is not far enough behind that they will get him tested and I cannot afford it. His dyslexia is very mild and I always knew there was something there even though the teachers kept saying he'll grow out of it. He cannot tell the difference between b and d, p and q, and numbers like 3 or 5 or S or Z he often writes them the wrong way. He cannot tell the difference between left and right and does not know his months of the year and still has trouble with knowing what day of the week it is and what the following day is, telling time for him is very hard in terms of the passing days. He had a lot of trouble reading from day one and his school gets extra one on one help for those problem readings. It did help a lot. He is doing pretty good now and works hard to keep up but my problem is because he is not two grades behind I cannot get the help or testing via the school. His behavior and depression are much better now too but I don't want him to fall too far behind again and not sure what to expect as he gets older and school gets harder. What can I do?

Comment from: cnorman, 7-12 Female (Caregiver) Published: February 13

I have a nine year girl that we just found out she is dyslexia I have been telling the school she had problems but they didn't want to listen to me and now that she is in second grade they decided to test her and sure enough she has it. Now I have to get her some help with it

Comment from: emily13, 13-18 Female (Patient) Published: February 13

I wasn't diagnosed with Dyslexia until the 7th grade!! I hated taking the class for it, but it really helped me out, my mom even saw a difference in my English grades. SO don't hold off.

Comment from: ayush, 3-6 Female (Caregiver) Published: December 04

I'm a mother of a boy age 4 and since he started school since age 3. I've been noticing his hand writing and the way he does his spelling. It's really horrible and he is always confused between the letters b and d and numbers 2,3,5,and 9. He can't even write his name properly. It's always up-side down.

Comment from: Lbaylon, 25-34 Female Published: September 26

My son is 7 years old. Since he started school I noticed that he had trouble with his reading and writing. He flips the letters "b" and "d" and the words "on" and "no". I brought this up to his kinder teacher and she said that was normal for his age and that he would grow out of it. Then in first grade I noticed he was still having problems and was almost a whole grade level behind in reading. My poor son and I at this point were very frustrated, so I brought this concern to his first grade teacher who told me once again that he would grow out of it and maybe if he was held back a year it would help him. At this point I took it upon myself to take him to get tested outside of school and the specialist diagnosed my son with dyslexia. Now my son is in the beginning of his second grade year, and I am still having problems getting him in to SPED or any other programs to help him out. He is still struggling and behind. I feel like the school system is failing my son and it has already had an effect on his attitude and self-esteem. And as a parent it hurts me to see my son this way.

Comment from: Kathy, 45-54 Female (Caregiver) Published: July 12

I have 4 children so I knew there was an issue in preschool when my daughter, the youngest, couldn't sort Valentine's presents by matching names on the envelopes to the candy bags like the other children. I called the early childhood coordinator at her school, who did an observation and put her on the watch list. When she started kindergarten, she failed areas of the screening. I made a formal request for an educational evaluation at her fall conference. By December she was on an IEP for reading, math, and speech and language, and they just added writing. She also qualified for a free literacy and math program for 5 weeks this summer. I'm very happy with the help she is getting. It is your right, and the law, to request and receive an evaluation through your public school.

Comment from: Angela, 35-44 Female (Patient) Published: March 30

I was tested when I was in elementary school. We used a picture and I had to make the picture with blocks along with reading and writing. When I was in college I was retested so I could get help with my homework . Over the years I took special classes, then speech therapy in junior high and again in high school.

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Comment from: gigi, 25-34 Female Published: October 19

I was just reading about dyslexia, my son who is six and can read very well and as a matter of fact is among the best students in his class, do well in mathematics but has a big problem with reversal writing (only in numbers, the number 3, 2 and 6) should this be a cause of alarm because I am very worried.

Comment from: Annette, 3-6 Female (Caregiver) Published: June 29

My son was in a private kindergarten and was getting "frustrated" and "upset" during Language Arts. We thought it was because he has some speech issues and maybe he could not say the sounds he was looking at. (I did not think his speech was that bad) It was only because I had SEVERAL people at the private school write letters about his frustration and possible self esteem issues that I was able to get the public school to test him. He tested VERY intelligent but with a LD. He is now at the public school and receives speech, 2 hours per day with a para-pro in the classroom and an hour out of the class for small group instruction. We also send him to specialized tutoring. He seems much happier and is making improvements. We are going to start first grade in the fall.

Comment from: Dyslexic and proud, 13-18 Female (Patient) Published: May 18

Well I actually got diagnosed with dyslexia at the age of 15. I have always wanted to do great in school and it kills me inside that I'm not a straight A student. To finally have my school say I'm dyslexic was a battle for 7 years. Between me and my mom fighting the school. Many of my teachers saw it but they couldn't say anything because I wasn't formally diagnosed." Many teachers called me lazy and said I didn't try hard enough but little did they know I was working harder than anyone else. So anyone else who hasn't been diagnosed please don't give up it is just a hard fight and if anyone says Dyslexia is the inability to read please correct them because that is exactly what my child study team told me and because I had a reading level I couldn't be dyslexic .

Comment from: nana, 7-12 Male (Caregiver) Published: April 08

My grandson started having trouble reading while in kindergarten. He failed the second grade. He is now in the 3rd grade and is still reading like a first grader. His teachers have finally decided that he is dyslexic. They have submitted the application for testing. I don't know why they waited so long to do this. It should have been done while he was in the 2nd grade the first time. Hopefully, he will be able to catch up to where he's supposed to be.

Comment from: p, 55-64 (Patient) Published: March 23

Just found out today I have dyslexia. Took a memory test. It explains why I had so much trouble and had to work so hard in school 40 years ago. But you know, I worked around it and became very successful. Can't read or write well, have trouble looking for words sometimes while speaking but I excell at math. I am glad I wasn't diagnoised back then, because I might have limited myself. Life is full of adventure no matter what doctors or teacher say you have YOU CAN DO IT.

Comment from: lizard, 35-44 Female (Caregiver) Published: January 13

I was in university before my dyslexia was diagnosed. I was performing poorly in my chemistry class and tested me on suspension of dyslexia. The disorder never held me back and I over compensated for it throughout my school years.

Comment from: Flo, 7-12 Female (Caregiver) Published: November 26

It helps some people to capitalize B's and D's, maybe it will help to capitalize P's and Q's. I am just beginning to learn about dyslexia. I am a teacher. I would really like to learn more about this so I can help my students who have this.

Comment from: Aims25, 25-34 Female (Patient) Published: November 19

I read and wrote upside down. At 32 I still can read upside down fairly well. I spelled a lot of words out of order. Who and how still get me, saw and was, are another set. I have a kid that wrote all numbers except 1, 8 and 0 backwards.

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