Patient Comments: Diverticulitis - Experience

Question:

Please share your experience with diverticulitis. Submit Your Comment

Comment from: DrMema, 65-74 Female (Patient) Published: November 16

I found a change of diet helped with my diverticulitis tremendously. It’s simple. No sugar. No grains (wheat, corn, rice, wheat). Take chlorophyll, probiotics, and if you have reflux, take digestive enzymes after meals. If you have an attack, lie on your back and do deep massage of your abdomen trying to find any sore spots. When you find one, massage the it out. Check for more than one spot. This really helps. I personally found anything from a pepper plant causes an attack, even paprika, but not black/white pepper.

Comment from: Pkrs4me, 65-74 Female (Patient) Published: September 17

I was diagnosed with diverticulitis last year, 12/31/2020. It has been quite a year so far and this flares up every 2-3 days. It usually lasts most of the day. I didn't quite understand the diet effect but reading all the comments of others suffering with it will help. Very miserable situations. Thank you all for your input. I was taking Imodium and I see that it is not the best thing to do. Basically suffer with it is what everyone is doing.

Comment from: Swiss Gill, 65-74 Female (Patient) Published: October 24

I‘m a fit 68 year old and I eat healthy fresh foods. I’ve had a few diverticulitis flare-ups over the last 5 years. One doctor wanted to operate and another specialist said my case wasn‘t dramatic enough. It always starts the same: a strange feeling in my tummy, urine smells stronger, followed by intense stomach pains, cramps, and back ache (kidney infection). Even walking sends nasty vibrations up through my body. I have never been hospitalized but always have to take two different antibiotics. Horrible.

Comment from: HoustonTX, 25-34 Female (Patient) Published: May 02

I am 34 years old. I don't have any medical condition. Never been hospitalized except for delivering babies but here I am 2 days in hospital diagnosed with diverticulitis. The pain is on my right side instead of the usual left. Today is the 3rd of intravenous antibiotics. My pain was not as severe to start with; it has been a 4 to 5 from beginning till now. But I do have diarrhea. I have been off of food and just have IVs. They tried giving me some broth and apple juice and it gave me cramps and even frequent loose stool. This forum has really scared me. I didn't know/think of it as anything severe but it looks like it doesn't really cure for good. So I wonder if that means I cannot have any nuts, and fruits with seeds at all.

Comment from: DavedDinNYS, 55-64 Male (Patient) Published: April 26

I’ve had diverticulitis flare ups over the last ten years, maybe eight in total. I eat high fiber, take probiotics and aloe vera. I just had a colonoscopy and the doctor could not complete it due to my colon narrowing. The scope was being done due to a flare up last November and the pain was in a different area, the bottom of my abdomen. I am seeing the doctor next week to discuss surgery. Good luck to all! Doctors tell me it doesn’t matter what you eat, the ratio of flare ups is the same whether you follow strict diet or not.

Comment from: droffats, 45-54 Male (Patient) Published: September 06

I have been having diverticulitis for 9 years. I am now 49. At first, it was once a year but now it is every few months. I just finished Flagyl and Cipro and a week later another flare up. I can't figure out what causes them but I think stress plays a big part. I'm trying some new things and will see if it works. Some of the things include bone broth with turmeric, peppermint oil, ginger tea, smoothie (coconut water, 1/2 banana, 1 kiwi, handful of spinach, lemon juice and ice), drink lots of water, pickled ginger or pickled vegetables like pickles, avoid grains such as wheat, barley and rye, eat gluten free, avoid potatoes, beans, and most dairy (cheese seems okay). I avoid beer! I'm also taking probiotic and trying to follow the FODMAP diet foods. Hopefully, this stuff will help. Good luck to everyone.

Comment from: Cindy, 55-64 Female (Patient) Published: July 19

Nothing you do or don't do will fix diverticulitis. I had it for years (25 plus). People that you know will tell you to do this or that. Nothing works! People mean well but only we know. Stay strong and don't panic. I love it when the emergency room asks me what my pain level is on a one to 10 scale. And there I am rolling and writhing on the table. No narcotics because they make you worse. If you don't eat you won't pass motion, if you eat it hurts worse!

Comment from: rayvon, 55-64 Male (Patient) Published: June 23

I have suffered with diverticulitis for 3 years, constant stomach pains. I have changed my diet, and it has eased it down. But when it fires up, boy, do I suffer badly! I end up waking up at night in hot sweats, it's horrible. Today I went to see my doctor about if there was a chance it could be operated on to remove the polyps or pockets in the bowel. She said nope. I also get a burning around my bottom, and I get a buzzing in my head. When I get this I know it is going to be bad. Mine will last for days before it decides to go. I just hope I can find a cure to get my life back on track.

QUESTION

Bowel regularity means a bowel movement every day. See Answer
Comment from: Kurt I., 55-64 Male (Patient) Published: May 23

I have had several diverticulitis attacks in my last 15 years, so bad I decided to go in for the surgery at age of 52. All went well and thought I was cured. Within a month I had another attack. I went to the emergency room and it was confirmed; needless to say, I was upset and depressed. I had another attack this week, and oh, the misery back. I am on medication; I hate Flagyl, but it helps. Seeds and ice cream seem to do it along with stress and anxiety. If you have to eat under these conditions, eat light and walk after eating. I know the misery, so good luck.

Comment from: Andrea in SoCal., 55-64 Female (Patient) Published: April 06

I have had 4 episodes of diverticulitis in the last 18 months. I am 5 ft. 5 inches tall and weigh 150. I walk hills as my job, anywhere from 15 miles to 30 miles a week. I eat a high fiber diet mostly home prepared including lots of quinoa, vegetables, legumes and meat, mainly white but occasionally I like a good piece of red meat. I am totally baffled by what I have read. I now am at the point of believing that they don't know what causes flares. My concern is that I will have to have surgery and prefer to make a choice rather than have a radical episode that requires emergency surgery. I have had a dull aching side ache now for about 5 weeks, since my last bout and really am confused about what to do.

Comment from: Dotty, 65-74 Female (Patient) Published: September 22

I have had problems with IBS (irritable bowel syndrome) and diarrhea, as well as three previous diverticulitis attacks. One day I was having explosive diarrhea, so I took some Imodium as directed, until it was under control. The next evening, after dinner, I had an extremely large and long stool, which took me about ten to fifteen minutes to strain to pass it. Almost within minutes, I had a pain in my colon that was really bad, and it continued for about three days. I rested and slept and didn't eat anything, as I had no appetite and no energy whatsoever. I drank lots of water, and the pain in my colon area is subsiding. I realize that taking Imodium for diarrhea can back-fire and cause flare-ups of diverticulitis, so will be drinking much more water and taking fiber tables to keep things moving more smoothly and regularly.

Comment from: tlyons, 45-54 Female (Patient) Published: September 01

I have had diverticulitis for about 8 months and I also have IBS (irritable bowel syndrome). I am taking Longtec 10 mg twice a day and Shortec 5 mg every 4 hours. Some days it helps but mostly I still get severe pain in my left side. I also have GERD, which is gastro esophageal reflux disease which I think is somehow related; when one flares up the other does also.

Comment from: Dog lady, 55-64 Female (Patient) Published: August 11

I am hopefully in the later stages of a bout diverticulitis, I think I had this 3 weeks previously. I left it four days before phoning ambulance, as I very rarely get ill. When they arrived I felt I wanted to die with the pain. They checked me over and thought I would be best of at home being as there would be no one to see me when I got to hospital. It's 11 days now, I am still taking antibiotics, still got squirts, trying to eat, no energy and also suffer with long term back injury. I am in constant pain. My doctor is being very understanding, but as I have never experienced this before, I think they are at a bit of a loss to know what to do with me. How do you cope!

Comment from: Betty, 55-64 Female (Patient) Published: August 04

Over a year ago I was diagnosed with severe diverticulosis in my small bowel and in my duodenum, and now in my esophagus and large bowel. I have had many hospital stays and my diet as of the last 4 months is (and possibly how it will always be now) liquid and pureed only as any solid foods cause me much pain. I'm also finding bedtime and sitting are difficult when I have pain (most of the time, lately) and don't quite understand if it is pressure upon lying down, from the intestines being pushed back perhaps. I am under a great team of doctors but unfortunately no one will touch my duodenum, but after another attack they are now considering resection of my small bowel. I don't know that my life can ever return to normal but really hoping this resection will help me in some small way or even more hopefully in a big way, but I’m realistic and know my case is very rare and very severe.

Comment from: Swarna, 55-64 Female (Patient) Published: May 21

I have been a diverticular patient for 8 years. Now and then I have pain in the abdomen. Severe bleeding happened and then it was over. Doctor advised me to get operated, yet I didn't do it. Now my stomach is bloating and puffing and left and right side of the abdomen pains. I didn't take antibiotics regularly. Doctor asked me to do the colostomy. Colonoscopy shows diverticulosis is in ascending, descending and transverse colon.

Comment from: SueMPO, 65-74 Female (Patient) Published: April 09

I have had four attacks of diverticulitis. Very painful and only antibiotic treatment could get rid of it. I know that I had been eating badly before each of the attacks. In my case, I know that I need to eat lots of fruit and vegetables. I have had a threatened attack and found that large amounts of Vitamin C (nature's antibiotic), turmeric and hemp oil (both anti-inflammatories) and probiotics have stopped it. It's a lifelong battle, but the key is diet.

SLIDESHOW

Diverticulitis (Diverticulosis) Symptoms, Diet, Treatment See Slideshow
Comment from: RickyB., 45-54 Male (Patient) Published: April 07

I was first diagnosed with diverticulitis 4 years ago. Like most I had pain in my left abdomen area. After a colonoscopy confirmed the disease I was treated with Flagyl and Cipro. The symptoms were gone in 4 or 5 days. Two years later I had another episode and then again 6 weeks ago. Once again Flagyl and Cipro did the trick. However, the nausea and dizziness associated with taking the antibiotics have been very difficult to handle. Now just 2 days ago the pain is back. I have been drinking water for 2 days and eating nothing. I'm feeling better so today I've had yogurt, saltines and white toast. I'm hoping to avoid a return to the doctor and the antibiotics.

Comment from: Linda, 55-64 Female (Patient) Published: March 31

My first bout of diverticulitis was in May, 2014. Colonoscopy was done and I was told it is throughout my whole colon. I was told then to eat lots of fiber and stay away from nuts. I thought I was eating enough fiber and some chewable supplements. The 2nd bout was in March, 2015. Two days prior to the pain, I had eaten a handful of almonds. I do not know for sure that is what set it off. I ended up in the hospital for 2 days on IVs of antibiotics and remained on liquid diet and pill form of the same antibiotics. I have slowly increased to normal food again, am scared to eat. I just started taking Metamucil and am going to try and make sure I get at least 25 grams of fiber a day. I am now told by doctors, no nuts or anything with seeds, such as strawberries. I am very scared of having more bouts. I had noticed my stomach seemed to be really bloated the last year or so, more so than I ever. Now, that has gone down quite a bit. I also started a gluten free diet about 2 months ago to see if that will help with my stomach, weight and joint aches. So far, I have lost about 1 lb. per week and I am liking gluten free.

Comment from: kitty, 55-64 Female (Patient) Published: March 05

After many years I was diagnosed with diverticular disease. My recent attack has lasted six months and is ongoing. I have to visit the bathroom as much as twenty times a day. Therefore I cannot go out far and have had to give notice at my job. The hospital are dragging their feet while I am getting thinner, much sicker and depressed. I am desperate.

Comment from: MRS K, 45-54 Female (Patient) Published: February 23

I was diagnosed with diverticula disease 14 years ago after going in and out of hospital. I ended up having part of my colon removed. Everything was great up until recently now, I am having a bad flare up, severe swelling, constipation and pain. I have taken 5 laxatives today but not working. I have the feeling I shall be going to Accident and Emergency. I look 9 months pregnant, just how I was before.

Comment from: jagruti, 45-54 Female (Patient) Published: February 02

My age is 52 years. I am having 2 to 3 diverticula as per the sonography report. I have to go to the toilet frequently, normally 5 times in a day. When I take outside food I need to go 6 to 7 times but I don’t have any other problem. I have enough hunger and take lunch and dinner daily. I also take 3 glasses of hot water daily.

Comment from: Earthqueen40, 55-64 Female (Patient) Published: June 02

I was first diagnosed with diverticulitis 2 years ago. I had almost constant nausea, some of my food regurgitated after eating. I had lots of indigestion, bloating and gas. I had abdominal pain that came sporadically. I also would break out in sweats after every meal and sometimes between meals, no matter what I ate.

Comment from: kaisersmom, 55-64 Female (Patient) Published: March 20

The pain in my lower left abdomen was very bad. Doctor put me on 2 antibiotics which have helped my diverticulitis symptoms immensely. So far have had no more problems. But, we will see after taking medicines for 2 weeks.

Comment from: marssyhine, 25-34 Female (Patient) Published: March 09

I have burning pains at my left lower abdomen because of diverticulitis.

Comment from: Juan D., 35-44 Male (Patient) Published: April 07

I am here to tell you diverticulitis is nothing to play with, it almost killed me. I was in the hospital for 20 days and lost 30 pounds plus had to have two surgeries so if you do have it, stay far away from corn peanuts and all seedy foods.

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Diverticulitis (Diverticulosis, Diverticular Disease) See a medical illustration of diverticulitis plus our entire medical gallery of human anatomy and physiology See Images