Patient Comments: Diabetic Neuropathy - Symptoms and Signs

Question:

What symptoms and signs did you experience with your diabetic neuropathy? Submit Your Comment

Comment from: Ttg, 55-64 Male (Patient) Published: October 09

I have severe burning bilaterally in my feet. I have type 2 diabetes with fibromyalgia. As a retired medical practitioner, I research constantly for ways to help my medical issues. My primary care physician had not used Lyrica for diabetic neuropathy until I brought it to his attention. It works wonders. I could not go without it. Thanks.

Comment from: Jane, 45-54 Female (Patient) Published: June 07

I injured my little finger in January 2016 and was diagnosed with a mallet finger. My finger was immobilized in a Stax splint. Then after a few weeks the hand therapist gave me another splint. It is now June and my finger is still bent by 20 degrees and I am having problems typing. I wonder if I should have an operation to fix my finger.

Comment from: Jheart, 65-74 Male (Patient) Published: March 22

I have type 2 diabetes. I have several types of neuropathy. My left leg burns and aches constantly and is weak when walking. My clothes and bedclothes cause a lot of pain much like someone is holding a blow torch to my legs. I am not a whiner. I have been told the only cure is to control the blood sugar levels. I have taken many different medicines to alleviate the pain. And to add insult to injury I have erectile dysfunction. I am going to defeat this if it is the last thing I do. Don't give up!

Comment from: 35-44 Female (Caregiver) Published: February 08

My daughter is suffering very badly at night with sweating and her sugar levels have always been high. The doctor says it is night sweat and is caused by her diabetic neuropathy. She is in pain all day too.

Comment from: robin55, 65-74 Female (Patient) Published: July 17

I was told I have diabetic neuropathy at age 46. I do not always have numbness but also have a hard time walking on any surface such as rugs or anything, on bare floors, and socks hurt my toes and soles of my feet. This means I am in pain shortly after I get out of bed. I also get stabbing pain in my middle toes.

Comment from: Pine, 55-64 Female (Patient) Published: June 18

I recently had surgery for carpal tunnel in my right hand. During recovery I had a bout of neuropathy. Now both hand’s fingers are involved. The pain in worse in the left hand. I can barely stand to type this. It feels very much like frostbite, but treating it as such had not helped. I tried massage therapy to no avail. My blood sugar is very much under control. However my triglycerides are way out of line. And it seems that nothing I try to get that under control works. The doctors say it is hereditary. Wonderful excuse, but that gives no relief!

Comment from: a concerned citizen, 55-64 Male (Patient) Published: July 07

My friend did a chemotherapy it cured her leukemia. It started in 2014 and it took a year and 3 months. Then in 2016 it came back stronger and the doctors told her to do another chemotherapy for blood cancer but only this time it had a possibility if it works it might shorten her life of kill her. She chose not to do the chemotherapy because she had been through much pain and suffered a lot later. This year during 2016 July she died because of blood cancer.

Comment from: mdside71, 35-44 Male (Patient) Published: June 24

I have had severe neuropathy for 2 years plus now. This neuropathy was brought on by chemotherapy drugs when I was battling cancer. My pain management doctor has tried everything there is, all the anti-depressants, etc. Right now I am on 15 mg of morphine 4 times a day, and 10 mg Vicodin kickers just to function enough to get out of bed. There is a new test of using ketamine infusions as ketamine changes nerve receptor signals. I am going to be starting that trial hopefully in mid-July. We tried spinal stimulation which failed. She did not want to put me on a spinal pain pump as ideally she and I want me to be off all opioid pain meds forever.

Comment from: ladybug, 55-64 Female (Patient) Published: December 02

I have had diabetes for about 6 years now the doctor states I'm uncontrolled, I feel good at 600 to 700 but when I get down to the 100s I tend not to feel well. Within the last 2 years I have developed what is called reflex sympathetic dystrophy or RSD. It is nerve damage which can spread throughout the body. Well, I also have what they call restless leg syndrome so I thought that was the pins and needles in my feet; they hurt all the time. I'm on Oxycontin for nerve damage and I have grown immune to it. It hurts when I go to bed even when I keep my feet out from under the blankets. It seems to be spreading up my legs and my diabetes doctor calls me an enigma, so now I don’t know what is left.

SLIDESHOW

Diabetic Peripheral Neuropathy: Improve Diabetes Nerve Pain See Slideshow
Comment from: OINKJOHNSON2, 75 or over Male (Patient) Published: December 09

I have had peripheral neuropathy for about a year now. At first, my doctor simply told me to take ibuprofen for the pain. Then, we escalated to gabapentin (600 mg x 3 times daily). Then, we tried a sample of Lyrica. When my pain did not ease, we are now on oxycodone/acetaminophen twice daily. As I am simultaneously taking tamsulosin for enlarged prostate, I am in a bad way, 24 hours a day pain. I have an appointment with a neurologist for mid-January, but from my reading, I see little to cheer me up. I am going to bring up amputation! Existing with my current situation seems untenable.

Comment from: TB PAIN, 55-64 Female (Patient) Published: October 08

I was diagnosed with diabetes type 2 in 2007 and I started on insulin in 2008. I was in denial for several years and my sugars have been 300-400 for past 5 years. The pain in my feet is unbearable. I have been on Neurontin since February for sciatica nerve pain in my left leg. For the past several months I began feeling symptoms such as burning, stinging and just severe pain in my feet. I am now on 900 mg of Neurontin a day and my feet are not much better; in fact they are much worse past 3 weeks. I can’t sleep at night for the burning and pain. I’ve tried the ice on my feet but when you take them off the burning is worse.

Comment from: Smcminn, 45-54 Female (Caregiver) Published: March 16

My husband has severe cold chills, while in the midst of a very pronounced sweating episode. There is not a morning that goes by that he doesn't have to stand under a warm shower for at least an hour to get going. He takes insulin and metformin and still cannot keep blood sugars under control. There are times he stars slurring his words and stuttering like he is intoxicated but that is not a sure sign of a high or low count it could be either or. It is so hard watching him go thru this, and knowing he would have to go totally blind or lose a limb to get help or be able to file for disability.

Comment from: directroy, 65-74 Male (Patient) Published: August 30

As a UK sufferer in constant pain which is only partly controlled with morphine twice a day plus a variety of other drugs I am 73 and had diabetes for 18 years plus I am considered to be in control but the pain is severe and can catch me in mid stride and I am unable to move until spasm reduces. As a country with a national health service I am so grateful especially when I hear you guys being unable to get help when here it is all free from cradle to grave. This is a most dreadful disease and I just hope that one day a cure will be found for all of us.

Comment from: loneranger, 65-74 Male (Patient) Published: March 22

I have diabetic neuropathy in both feet and I have started taking coconut oil every day. I am building up to 4 tablespoons a day, one in the morning, one at noon, one at supper, and one before bed. My pain has lessened considerably. I take no other medications at all. It works for me.

Comment from: Badhabitsau, 55-64 Male (Patient) Published: June 28

My ailment is (diabetic lumbosacral radiculoplexus neuropathy ) and it's a bitch ! I have only been battling with this for 4 weeks and already I am on Lyrica 75 mg twice daily , Sifrol .125 mg daily for the restless leg. Endone 10 mg. Twice daily And New just yesterday Targin 20/Mg. Twice daily. With the result that I can just bare it until the next "unwanted and unplanned for attack can strike, and the whole tablet thing starts all over again. “ For me using medical marijuana assists greatly. Because both the Endone and Targin are slow release it can seem like an eternity before they start to work and the pain is mind numbing, spreading from my thy to my back and sides, again this is only my experience. The window of pain varying between 1 to 3 hours. This is where I take the medical marijuana..because it is ingested and for me anyway "WORKS FASTER " THAN THE LEGAL DRUGS. it starts to lower the effect of the pain by about 30% say in the first couple of minutes , then within ten and sitting down etc, TAKING IT EASY FOR A WHILE I can stay "reasonably pain "REDUCED" enough to survive before the big guns like the Endone and Targin can be felt working. It aids in dampening the (lets call it "THE PAINLAG TIME" again for me ! Hope you're "strategy " works for you. This just works for me !

Comment from: HOMEKATT, 55-64 Female (Patient) Published: January 09

I have major numbness in feet, I cannot feel them after standing for 5 minutes in one place. Sometimes at night my toes and feet cramp and hurt really bad like a really hard Charlie horse. I also have a burning sensation in my lower legs that feel like a hot poker is being shoved on them. I have bruises appearing for no reason.

Comment from: Brewton Granny, 65-74 Female (Patient) Published: December 10

I am a type 2 diabetic. I suffer from ataxia, parethesis, degenerative disk disease, thyroid, dry skin, etc. Two drugs help me: trazodone for sleep, and Metanx for all those leg and feet pains. I was in couple minor car wrecks in my 20s, and when I was 35 all my problems began: arthritis. I have two bad disks in my neck which took 5 orthos, 3 neurologists, and my diligence to get diagnosed. Not all doctors know their business, for over 30 years I have been seeking diagnosis of a syndrome that occurs when I stand up after sitting upright for over 10 to 30 minutes: I get tremors on one side both arm and leg. No doctor can explain this. And for every one out there, reduce most of your pain, swelling, etc by just eliminating SALT and everything WHITE in your diet. I went from A1C back in 2005 of 7.4 down to 5.3 by doing this. Small lean meals--kids meals, and stop eating white bread, any food with added sugar over 1-3 mgs and nothing fried. Most conditions will be reduced or less painful. I take one metformin 500 a day, one generic Aleve a day, and my Levoxyl, plus my dear trazodone. Also works on pain and not at bad for me at Cymbalta, or Lyrica. Can't do anything related to epinephrine...which by the way a lot of symptoms are similar to fibromyalgia. Ever want to just get undressed when you go home from work -- like being unbound by clothing? Check out Fibro for symptoms.

QUESTION

What is diabetic peripheral neuropathy? See Answer
Comment from: 40 and hurting, 35-44 Male (Patient) Published: September 29

I have been a diabetic for several years, mostly unknown, I now have tingling and burning in my legs including surface numbness. This last weekend the pain got so bad it was overwhelmingly painful, I had to force myself to walk. It was the first real attack I've had and it started at work; I had to leave early taking me 3 minutes to descend 6 steps. My diabeties is getting under control with 4000mg of Metformin daily, I also have calcified tendons in the arches of both feet...

Comment from: 55-64 Female (Patient) Published: January 27

The symptoms I experience with my diabetic neuropathy include burning, tingling and pain.

Comment from: 45-54 Female (Patient) Published: October 31

I have had Type 2 diabetes for eight years. My blood sugar levels are under control, but for the past year I have suffered terrible shooting pains through the bottoms of my feet, and stiffness in my legs, my right leg more than my left. If I sit for any length of time, getting up to walk is difficult. I am taking Amitriptyline for the Neuropathy pain which has helped me sleep at night and helped the pain temporarily. Now I've noticed in the past couple of weeks the shooting pains and weakness in my legs and feet are returning. Back to the doctor, I hope I can find some relief. I'm 47 years old, I really worry about my later years, if I'm already having these problems before I even turn 50.

Comment from: freeportken, 55-64 Male (Patient) Published: January 12

Sharp pain in my back and both buttocks when I walk, now right foot has numbness and loss of motorskills. Have been doing therapy in water has helped foot but still have pain in back and buttocks only when walking with walker now.

Comment from: Martin, 65-74 Male (Caregiver) Published: July 18

My husband's neuropathy does not seem to give him any pain. He is a type 2 diabetic and it is related to Agent Orange. His legs just give out on him and he is unable to walk. Sometimes he falls. It usually goes away after a period of time but he does not know when it is going to happen.

Comment from: hjminpain, 55-64 Female (Patient) Published: April 27

I have neuropathy so bad in my hands that they are hardly usable. It worsens at night so I hardly sleep. My diabetes is not under control. Ii takes 80-90 units of insulin per day and it is still not under control. I have changes my eating habits and still can't get control.

Comment from: Dee, 75 or over Female (Caregiver) Published: March 10

My thighs ache to the point of stopping me walking. Standing still for a few moments enables me to continue. I can stand to do home duties for only a few minutes before having to rest - then I can continue. I sit around a lot and my eyes do not want to stay open. Needing help badly. I am an 84 year old diabetic on insulin for the past eight months. Good control of sugar levels. Perhaps it is just old age!!!

Comment from: sister, 45-54 Male (Caregiver) Published: March 08

My brother is a type one diabetic with severe symptoms. His neuropathy is severe and he takes many different medications. He also has kidney failure and is on a waiting list for a double transplant. He is very weak. Right now what is getting him down is severe cold sweats. Especially after eating. I was wondering if anyone out there has this symptom and if they have any solutions.

Comment from: darlene501, 55-64 Female (Patient) Published: January 25

I am 62 years old and I hate Diabetic Neuropathy. I have suffered for many years and had to retire from my job. I am now on a drug that is Tegretol (200mg 4 times a day) I also take Amitripyline (100mg once a day). These two drugs work and they work well. It will make you groggy but I can't deal with the pain, so I take them. These drugs are not habit forming; I have been taking them for over 10 years. Often they don't work and I suffer through the night. My blood sugars are good, but once the damage is done nothing I can do. This is the worst pain I have ever felt and would not wish this on my worst enemy. Good luck to all who suffer with neuropathy.

Comment from: lovely, 55-64 Female (Patient) Published: January 25

I have severe burning, severe pain and numbness of the hands every morning especially if my hands are elevated. My diabetes type II is not well controlled and I'm taking 2 glipizides in AM and 2 Metforming bid both on maxed doses and recently 4 units of regular Insulin tid and NPH 10 units bid.

Comment from: vickie, 55-64 Female (Patient) Published: January 14

Feet go numb and tingle mostly evenings. Sometimes pain is so bad I cry have to put feet on something cold like ice packs or a cold floor. I can’t wear shoes for more than a couple of hours before they start burning. Sometimes pain and burning is so bad I would love to cut feet off, that couldn’t hurt any worse. I’m on lyrica 100mg 2 times a day but it doesn’t seem to help. I’m tired of this pain. My blood sugars are high I can’t seem to get them down much. I have tried controlling it for years, they go high and sometimes they are low and I do the same thing. Someone said it’s all in my head but I don’t think so.

Comment from: Mitchell, 55-64 Male (Patient) Published: January 25

The symptoms that occur for me is the sensation of my socks being bunched up on the arch of my feet. Also I have a burning sensation in the distal tibia which is substantial during night hours.

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