Patient Comments: Dementia - Caretaker


How do you cope with being the caretaker of someone with dementia? Submit Your Comment

Comment from: Sam, 65-74 Male (Caregiver) Published: June 19

I had many different issues to deal with, and 4 siblings that wouldn’t believe that there was any problem, yet they never went to any doctor’s appointments. I was medically liable for my mom and they stopped assisted living 20 plus times. To this day many of them still don’t think anything was wrong. The doctor’s diagnosis was moderate to severe dementia. I would receive 30 calls a day for 9 years.

Comment from: Blue Moon 2018, 75 or over Female (Caregiver) Published: January 30

My husband took his mother, who has dementia, out of the nursing home due to cost. He fears getting her on Medicaid. The lady at the nursing home said the life estate document drawn up over five years ago doesn't matter. Medicare only covered 20 percent of her time in that home which was over 4 K for about 45 days. I need some advice from someone who knows more than us about this type of thing. She is at home with us now and it is a challenge. We fear getting her on Medicaid because they could take her home and land that we wanted to stay in the family. We work days and have an aide coming in while we work but evening and weekends are rough. We believe she is at stage 4 dementia. Considering her advanced stage we may have to think about placing her back in the nursing home but the cost on Medicare only is too high.


One of the first symptoms of Alzheimer's disease is __________________. See Answer