Patient Comments: Dementia - Experience


Does someone you know have dementia? Please share your experience. Submit Your Comment

Comment from: P. Hensley , 65-74 Female (Caregiver) Published: January 24

I’ve been taking care of my 73 year old mother-in-law who was diagnosed with dementia a year ago. She went from perfectly normal to almost nonfunctioning in months. I have to do everything for her. She’s having some bad bathroom habits, wanting to constantly take her clothes off. I am at my wits’ end. Her children and grandchildren are no help. Yet I always end up doing everything for her. No one realizes how hard this is.

Comment from: DonFay, 65-74 Female (Caregiver) Published: November 09

My mother is 72 and has had dementia for 6 years. After 4 years as caregiver, my sister, who has worked in memory care units, has taken over. My mother has not had a shower in over 6 months, absolutely refuses, and will not allow outside help. She sleeps literally all day and fights us about everything, including taking her medication. No one can be with her 24/7. We are at our wits’ end. I know there are support groups, but who has time! I rely on my church family, but my sister doesn't have that.

Comment from: Kelleyoco, 75 or over Female (Caregiver) Published: August 21

My mom lives with me and has had dementia for about 8 years now. Her body is healthy but she has almost no speech, is pretty much always confused, sleeps most of the day away, is incontinent and requires constant care. The saving grace in all this is that her personality has not changed. She does get frustrated but mostly she has stayed her own sweet self. It is exhausting caring for her and working, and expensive but necessary to have help. I'm trying to keep her at home but I don't know how long this will go on and her needs are increasing almost daily. She will be 90 in a few weeks.

Comment from: Daughter, 75 or over Male (Caregiver) Published: March 06

My father began showing symptoms of dementia 11 months ago. There was a big change in his personality. He always tended to be a very outgoing fun loving guy. He became very mean, looking for arguments, etc. Shortly after we noticed the big change in personality, he suffered a major stroke. Physically he recovered well however mentally we were concerned. He became very paranoid, suffered from hallucinations and stopped sleeping, resulting in a 6 week hospital stay. Dad was prescribed anti-depressants along with psychotic medications. He was diagnosed with vascular dementia. He is home now and things are going well, he just needs prompting to shower, personal hygiene, etc. I have noticed that all of a sudden dad seems to be sleeping a lot.

Comment from: Barb152, 75 or over Female (Caregiver) Published: February 07

My mother has Lewy dementia. She falls asleep a lot. She thinks girls are in her bedroom. She talks about children constantly and is obsessed with one of my sisters. She can talk for hours about her. She will not admit she has that disease. She thinks those people will steal from her if she lets them in her house. She eats very little. She sometimes seems very normal but easily confused other times. She doesn't understand about money, lives alone most of the time. She calls people on phone several times a day. She doesn't bathe enough; I could go on and on. It is so difficult.

Comment from: bonnie, 75 or over Female (Caregiver) Published: August 12

My mother is 88 and experiencing signs of dementia. She was diagnosed by 2 doctors. She is obsessing about little things missing from her room at the assisted living center. She doesn't want to socialize anymore and keeps to herself just reading. I am perturbed and don't know what to do.

Comment from: DavidE, 75 or over Female (Caregiver) Published: February 03

Wife of 40 years aged 92 at death, was placed in assisted living for 18 months where she passed away. She was able to always recognize family and most familiar friends. In attempting to understand her condition (dementia) the primary doctor gave cognitive tests, neurologist took 2 MRI scans which showed some shrinkage of the brain size. In tracking her medical history she had a total of 10 operations over some 60 years, all requiring sedation. I wonder if the sedations contributed to her condition. She also had three falls causing both frontal and posterior head lacerations.

Comment from: tam0071, 65-74 (Caregiver) Published: December 05

My Dad became ill in May this year, since then he has deteriorated drastically. We have been to several doctors and specialists. Initially due to the family history they diagnosed Alzheimer's. He will be sitting, chatting to you and the next minute he will lash out and get extremely aggressive. If he can’t hit you then he will try kick or spit at us and just like that he will go back to being really nice - he doesn't make any sense any more but I just go along with what he is telling. He can go 48 hours without sleep and will lay in his bed and scream for no reason. He swears at everyone and he was never like this. We have tried so many different medications but nothing works.

Comment from: 55-64 Female (Caregiver) Published: March 28

I am a caregiver through an agency. I’m trying to help a friend with his wife, who has dementia. When I enter their home, she is very hostile toward him and will not allow anyone to help her. The patient’s toenails are so long that she can’t wear shoes. She does not get regular baths, or good quality bathing. I am trying to find ways that I can help them and am open to suggestions.


The Stages of Dementia: Alzheimer's Disease and Aging Brains See Slideshow