Patient Comments: Cytomegalovirus (CMV) Infection - Symptoms


What symptoms and signs did you experience with CMV?

Comment from: Kevin, 55-64 Female (Patient) Published: May 21

I am a liver transplant recipient. I hit a temperature of above 38 C, which is a trigger to go to the emergency room. It took 5 days to confirm CMV (cytomegalovirus). Viral load could not be read as it was higher than 200000 parts per million. I was put on valganciclovir drip twice a day but still took almost 4 weeks for viral load to be readable. Fatigue, loss of appetite, severe diarrhea and breathing problems were the symptoms for most of this time. Currently I am at home. Hospital at home come twice a day to give a drip. I am still fatigued, and have breathing problems.

Comment from: Daisy65, 45-54 Female (Patient) Published: October 02

Cytomegalovirus (CMV) felt like a typical viral thing at first with a fever of 100.7 and episodes of sweating. Second week fever got up to 103, and I had night sweats, and was exhaustion and muscle and neck pain on the left side. I was pale and weak. I slept a lot and couldn't work. I finally got a diagnosis beginning the 3rd week. I felt the worst at week 3. It is now 6 weeks out and I am better but still too exhausted to go back to work. I have a very busy and physically active job.

Comment from: Frustrating. , 55-64 Female (Patient) Published: August 07

My doctor was right on the button about CMV (cytomegalovirus). At first I thought it was flu, I was very achy for a couple of days, and then had extreme tiredness, dragging myself around. I could barely eat, had weight loss and generally felt terrible. That was June 2016. Three months later I had reoccurrence, and now 2 years on I still easily tire, get very low iron levels which I can’t explain, and can generally feel yuck at times, still.

Comment from: Catalin, 25-34 Male (Patient) Published: January 12

I am a male (29 years old), and recently found out that I have CMV (cytomegalovirus), with IgG antibodies value of 401, IgM was very low (negative value). The exposure could have been 2.5 months past (oral sex unprotected). I did 4 HIV 4th generation tests (in these months) just to be sure that I don't have HIV. My symptoms were as follows: dry coughing, fever for a few days, two night sweats, sore throat only for a few days, and visible oral candidiasis (with geographic tongue changing structures on it from a day to another and with morning whiteness on it – cleaned with tooth brush). I had skin itching on random areas on the body for two weeks continuously (without visible sign on my skin) and this increased my anxiety at that time. I also had muscle aching randomly for one month and tiredness (I’m usually very active and I usually went to the gym daily for the last 6 years but now I feel that I get tired way faster). Nails from the thumbs are a bit curved on the middle (had this in the past but from what I read this is when immunity system drops) and I have numbness, especially on my hands for a few weeks. From all of these, at 5 weeks after the symptoms started, I still have the dry cough and it seems that it's not passing with anything. Also rarely I still experience the itchy skin and the numbness on hands. I still feel worried.

Comment from: PS, 45-54 Female (Patient) Published: January 08

Ten days after what I thought was flu or a bad cold, the stiffness and joint pains started. These are enough in themselves and I cannot walk or get out of bed sometimes and if I don't take the anti-inflammatory drugs properly I am like a cripple. The only other symptom is an upset stomach. It has now been 2 weeks of joint pain and the CMV (cytomegalovirus) positive blood test came back yesterday. No other drugs are advised for now - just the anti-inflammatory medicine and something to protect my stomach.

Comment from: Rovin, 55-64 Female (Patient) Published: October 09

I was diagnosed with cytomegalovirus (CMV) in the 80s and it is now 2018. I have the same symptoms and feel the same way that I did when I had a CMV high titer and wonder if it can return.

Comment from: Shasha, 55-64 Female (Patient) Published: April 10

I started feeling exhausted, no energy, body aches, burning eyes, could not eat, everything tasted terrible, and a swollen gland. At first the doctors were telling me it was a virus and it needed to run its course. But after 3 weeks of still not feeling well, my primary doctor took blood work. I was diagnosed with CMV (cytomegalovirus) and said it takes anywhere from 6 to 8 weeks to even start feeling yourself. Today, April 7, is the first day that I have been able to go to work and not fall asleep at my desk and after losing 8 pounds, I can finally eat again.

Comment from: BeckieC, 55-64 Female (Patient) Published: September 06

I suffer CMV (cytomegalovirus) as a result of military vaccines. Since 1964 all vaccines that are cultured on animal kidney tissue use green African monkey kidney tissue. Before 1964, vaccine manufacturers used varieties of monkeys for culturing vaccines, and wound up with SV40 or 40 different viruses from varieties of monkeys. I just wanted to say that CMV does not present with sore throat. Instead, we suffer enlarged, swollen, salivary glands inside the widest part of the jaw, at the very back of all 4 molars, everything under the tongue. Swelling goes up behind my ears and makes my ear canals tender. Tinnitus is so much worse when CMV reactivates. Salivary glands grow so big, it's difficult to speak. Because salivary glands take up all the space under the tongue, I bite my tongue more frequently. When I put any type of food in my mouth, salivary glands at the widest part of my jaw burn like fire, not like spicy food. Sometimes that CMV burn is so severe that it brings tears to my eyes. It is hard to project my voice because my tongue is higher in my mouth, gets in the way of opening my throat to speak louder if I could.


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Comment from: Girl, 25-34 Female (Patient) Published: July 01

I was hospitalized for 2 weeks and diagnosed with CMV (cytomegalovirus, herpes 5). I am 25. I have been diagnosed with severe Crohn’s for almost 3 years. I had a 101 to 104 fever for 4 weeks. I was very sick, burnt out brain, naps at work, just trying to break the fever. With my joint and muscle pain and extreme exhaustion, I could not make it up stairs without sitting down. I was taking 100 to 150 mg of Imuran for Crohn’s for about a year when I became very sick. My lab work had shown poor WBC and RBC counts among other things. As I got sicker, my gastroenterologist increased the drug and I declined. I finally after a couple of months saying 'I need to get an opinion from an infectious diseases doctor,' I spiraled downhill and was hospitalized for the CMV infection.

Comment from: Bevj, 65-74 Female (Patient) Published: April 20

I was in my early 40s when I was diagnosed with cytomegalovirus (CMV). A lot was going on in my life. My sister was diagnosed with chronic mononucleosis and hepatitis. I was running back and forth, my son was sick, long hours at work, and then when I got tired at first I ignored it. Then it got where I could not stay awake. I thought I had contracted the mononucleosis. I went to the doctor got tested it was negative. Then he said there is one more test for a virus that acts the same. Titer was off the roof. I was over a year getting better. I still have times where I am so tired I cannot get out of bed for days. I always worry I might give it to someone else. More needs to be done to cure this. If they can cure hepatitis C, why not CMV!

Comment from: Jill, 45-54 Female (Patient) Published: April 12

I started out getting thrush, couldn't eat, and would gag on everything. After I lost 10 lb. the doctor did an EGD and it showed thrush in my esophagus and stomach. They said it was my immune system and gave me antifungal medicines and said I shouldn't get it anymore; that was 5 years ago. Since then I have had thrush at least twice a year and my ulcers were multiplying. I told them about losing a child to cytomegalovirus (CMV) and they tested me for it (which they should have done in 1993 when I lost my son), but they didn't till I asked them to in January of this year and it was positive. So that is why they told me I get thrush. Now I blame CMV on my ulcers also. I get worn down faster now than I did before my CMV kicked in. And it kicks me for a good month when I get sick.

Comment from: Ronni, 65-74 Female (Patient) Published: January 28

When I was 40, I was very yellow, and had absolutely no energy, could hardly even walk, and felt like I was dying. I had blood test run, my CMV (cytomegalovirus) test was extremely high, along with my LFTs (liver function tests). I was diagnosed with autoimmune hepatitis (AH). That was 25 years ago, I don't know which illness came first. I am being treated for AH. I was never treated for CMV.

Comment from: mommaxena, 35-44 Female (Patient) Published: January 20

I had cytomegalovirus (CMV) many years ago. I had raging fever for almost 6 weeks, 101 to 104. Bone and joint pain was off the charts at times. I had extreme fatigue and overall weakness. I lost almost 30 lb. I have later in life been diagnosed with fibromyalgia. My gut says there is some connection.

Comment from: Sickofbeingsick, 45-54 Female (Patient) Published: October 27

I have been sick most of my life. I have been given 10 different diagnosis, but no one ever figured this cytomegalovirus (CMV) out till recently! I am so depressed to know there is no cure! I am fed up with feeling like awful and am frustrated! Good luck to anyone else who suffers from this! I also have Lyme disease, lupus, and discoid sarcoidosis, fibromyalgia, Epstein–Barr virus, chronic fatigue and peripheral neuropathy! I keep trudging along but am extremely depressed!

Comment from: AD, 45-54 Female (Patient) Published: September 01

I experienced body aches like I had the flu. My stomach really hurt too and I had no energy. I took a nap every day with my toddler daughter and woke up still achy and feeling bad. That’s it. No fever and no other symptoms. Doctor treated me for a urinary tract infection, but after the antibiotics were finished I still felt awful. He ordered more bloodwork and determined it was CMV (cytomegalovirus). Today is 3 weeks since the illness started and I started to feel better yesterday. My stomach still feels tender and he said to give that 2 more weeks.

Comment from: Jake, 45-54 Male (Patient) Published: April 28

I've been experiencing constant fatigue, redness and mottling to both arms and extreme red palms. Additionally my upper and lower joints constantly ache. My physician did inform me that my test came back positive for cytomegalovirus (CMV, it's just that I couldn't find any information pointing to my particular signs and symptoms. My platelets have been slightly low as well. I'm a paramedic and wonder how I contracted CMV and if I would be putting patients at risk even though I'm practicing good body substance isolation.


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Comment from: Roberto, 25-34 Male (Patient) Published: April 07

One year back I had unprotected sexual relation and since then I was not the same. It started with sore throat, headache and weakness, just like a flu, but I was not sure I had a sexually transmitted disease, so I got test for that which turned positive for CMV (cytomegalovirus). Doctors just told me it is going to go away and to have protected sexual relations. Since then I have felt fatigues and very depressive, I am not able to take up hard work because it is very exhausting to me. I have occasional headache and joint pain, numb sensation in my hands, arm and legs, and my ears and eyes gets painful sometime. I have noted acne like lesions in my face that I hadn’t before, and finally I have stomach issues too, some times more painful than others. I would like to know if there’s something to get relief from this awful illness. Regards and support to the people which struggle with this too.

Comment from: Tami, 45-54 Female (Patient) Published: January 28

I had extreme fatigue, sore throat, low grade fever and mid-section bloating that lasted nearly 6 weeks to the day. Cytomegalovirus (CMV) infection is very scary.

Comment from: MiniMom, 65-74 Female (Patient) Published: October 27

I am a 65 year old woman, very fit and healthy. In August I started to feel tired while walking on the golf course and pushing my cart. It got to the point where I was quitting after 6 or 7 holes and dragging myself back to my car, not sure if I had the strength to lift my gear back into the trunk. I waited a month before seeing my doctor because I felt it might have been the heat or something else simple to explain. But by mid-September, when I was still feeling exhausted after slight exertion I finally started the medical exploration process. Many blood tests and a lung x-ray later, I found out that I have cytomegalovirus (CMV)! And apparently had it since late July. I am told that I just have to let this virus run its course. Tiredness is my only symptom. I’m wondering how long this may last.

Comment from: mla, 19-24 Female (Patient) Published: March 28

I began experiencing quite serious unexplainable fatigue when I was 16 years old and was tested for many things. The only thing that came up was that I had had cytomegalovirus (CMV). The doctor say this was the only plausible reason for my fatigue and bone aches. I am now 21 with no progression, still struggling to get through one day without having a 2 or so hour nap. Everyday tasks are exhausting and it’s very hard to be motivated. Would love any form of help!

Comment from: CarJo1, 45-54 Female (Patient) Published: February 18

When I was 27 years old, I got really sick and had a very high fever. I didn’t have insurance and didn’t go to the doctor when I first got sick. When I did go, I had had the fever, brain fog, a pasty film in my mouth, severe weakness and deep muscle pain for almost 2 weeks until I could get to a doctor. He said I had the flu and that was about it. A couple of years later, I was working in a reference lab and a friend that did TORCH panels, tested me just to see if I had any antibody levels to anything. My CMV (cytomegalovirus) level was through the roof. I had been suffering with extreme lethargy and brain fog all that time. I am now 52 years old and had to retire with disability because of the damage done to my immune system. I attribute my health problems to adult onset of CMV. I have chronic fibromyalgia, brain fog, joint pain, neuropathy, lymphocytic colitis, etc. I have many more health problems that I could probably attribute to the CMV that may not be linked to it yet.

Comment from: Téaya, 65-74 Female (Patient) Published: January 08

In 1981I had a lower spine fusion. I had a blood transfusion and approximately 1-2 years post the back surgery the hospital called me for me to take a blood test for HIV. I did and was relieved that I did not have HIV but my happiness was short lived because I was positive for cytomegalovirus (CMV). In the 80s I became very sick with severe fatigue, joint pain, memory problems (brain fog), swollen glands and fever. I was then diagnosed with chronic fatigue immune dysfunction syndrome, CFIDS. In 1991 I was also diagnosed with severe fibromyalgia. As of today (January 2014) I still have severe chronic fibromyalgia, I am coping and thankful for every day that I have. I have and will continue to fight this long fight... I am a warrior!

Comment from: SLP, 75 or over Female (Patient) Published: January 12

I had fever as high as 102 and had no strength for many months due to CMV (cytomegalovirus). Even when I returned to work, I had permission to go home if my temperature rose above 100.

Comment from: Mazzy, 55-64 Female (Patient) Published: December 30

I recently contracted CMV colitis virus and was sick for 4 months in total, two months in hospital on intravenous treatment and one month on oral treatment. I have now returned to work but don’t feel well. I have fever and night sweats and I am feeling sick and light headed. My CMV DNA is currently 500.


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