Patient Comments: Cyclic Vomiting Syndrome (CVS) - Symptoms and Signs

Question:

What symptoms and signs did you experience with cyclic vomiting syndrome? Submit Your Comment

Comment from: keeping, 55-64 Female (Patient) Published: September 03

I get severe immediate onset of abdominal pain, sweating and within a minute or two I would start vomiting; much and frequent. I would feel I was going to aspirate, as if someone was punching my stomach. After an hour or more of this I am gone, passed out, can’t speak, walk, move or anything. I had every single test known. I have been in the hospital many times and the last visit they said there was nothing wrong with me, and I cried. This is the first I ever heard of cyclic vomiting syndrome, I am calling the doctor today.

Comment from: Emsey, 35-44 Female (Patient) Published: April 06

I woke up on my 37th birthday with a sudden onset of vomiting. This attack lasted around 24 hours. About 2-3 months later cyclic vomiting syndrome started again. I vomited uncontrollably, sweated profusely but was freezing cold, and I became even more sensitive to light. No abdominal pains, no diarrhea, and no headache. This happened every 2-3, now it’s approximately every 8 months. It’s been over 3 years now.

Comment from: Shellybeans, 35-44 Female (Patient) Published: December 03

I just found out this year I have cyclic vomiting syndrome (CVS). It starts in the morning when I wake up. I have a massive bowel movement, start to sweat profusely, and then the puking starts. I have to be admitted to the hospital each time this happens, for dehydration and my potassium plummets. It lasts about 3 to 5 days too. I'm miserable and nothing seems to help. This happens to me almost every month too. I'm still not sure what my triggers are but I don’t know what to look for either. Is this what the rest of my life will be like!

Comment from: Lorilo, 25-34 (Caregiver) Published: September 11

I haven't been officially diagnosed with cyclic vomiting syndrome (CVS), but ever since I was a kid, I've been prone to nausea and vomiting. I vomit frequently, 3 to 4 times a year, severely. The most horrible part is that I have thrown up in public, in front of people. Sometimes, I can't make it to the toilet. I started vomiting at work one night and it lasted over an hour and I was heard. I threw up last night.

Comment from: Peach, 55-64 Female (Patient) Published: September 04

My symptoms of cyclic vomiting syndrome were severe abdominal pain, endless vomiting with dehydration. I always ended up in the emergency room for fluids.

Comment from: Jan, 55-64 Female (Patient) Published: March 24

I have lived with cyclic vomiting syndrome (CVS) for 20 years. I would have an episode 4 to 5 times per year and always ended up in the hospital. Four years ago, my gastrointestinal doctor recommended treating it like a migraine. At first symptom I take a combination of Phenergan, Xanax, Zofran, and Benadryl. Then I try to sleep. This cocktail of medications has kept me out of the hospital for 4 years!

Comment from: Judeasfirst5, 7-12 Male (Caregiver) Published: May 01

The symptoms of cyclic vomiting syndrome were repeated projectile vomiting, dry heaving and retching, and extreme emesis. Dehydration results when lost fluid is not replaced by Pedialyte and increased water intake.

Comment from: Emanuela Borri, 13-18 Female (Caregiver) Published: June 22

I would like to know if there is any case of adolescent-age cyclic vomiting syndrome (CVS). The sufferer during the period of symptom free phase has headache with daily frequency, and dizziness, accompanied by excessive sweating. I wonder if there is any medication that can help lower the sensation of dizziness and headache. My daughter suffers CVS every two months, but for 6 months she has been suffering from headaches and dizziness every day, since she has been menstruating for the first time. Thank you for your comments.

Comment from: KR, 65-74 Female (Patient) Published: June 01

I developed systemic lupus erythematosus (SLE) in the last year. Before we knew what was making me so desperately ill, I had repeated bouts of dry heaving (pretty violent). This was usually in the evening and night. I found I could interrupt the process if I grabbed a strong ginger candy. If I could keep it clenched in my teeth (so it didn't end up in the bucket) my symptoms of cyclic vomiting syndrome would vanish in about 30 seconds. It was like magic. Try finding some concentrated source of ginger. Keep it by your bed, in your pocket or purse, in the car, nearby so that you have the ability to grab some. Sometimes it was so severe that I could not get the ginger unless someone got it for me and unwrapped it! My dry heaving was not associated with migraine, I never had those. It may have been the mitochondrial DNA thing. My mom had multiple sclerosis, and auto immune disease can have a genetic component.

SLIDESHOW

How to Get Rid of Nausea and Vomiting See Slideshow
Comment from: Suzzee, 7-12 Female (Caregiver) Published: May 26

My granddaughter has been getting bouts of vomiting every month for 6 straight months. She is 11 and has had other bouts through the years which we assumed were a bug but now realize it also could have been cyclic vomiting syndrome. Each episode is exactly the same. She vomits for 4 or 5 days and feels better the sixth day. She gets pale and tired and spits a lot. She has been seen by pediatric gastroenterologist and neurologist but no real answers on help to lesson these bouts. They have started her on an antihistamine. She has missed 25 days of school.

Comment from: RF, 3-6 Male (Caregiver) Published: March 22

When my now grown son was about 6, he would often wake up vomiting about 10:30. He would return to sleep, wake up with a good appetite and be fine all day only to repeat the nighttime vomiting. Prescribed Dramamine made him hyperactive, not sleepy. From reading a book about childhood nutrition I realized that while he was not eating an overly sweet breakfast, it was lacking in protein. I devised a menu of acceptable protein selections (eggs, cheese, cottage cheese, Canadian bacon) which we followed faithfully. Problem solved!

QUESTION

Bowel regularity means a bowel movement every day. See Answer