Patient Comments: Cyclic Vomiting Syndrome (CVS) - Causes

Question:

What was the cause of your cyclic vomiting syndrome? Submit Your Comment

Comment from: Nikkbeth, 19-24 Female (Patient) Published: August 24

I was diagnosed with cyclic vomiting syndrome (CVS) a few years ago (currently 23). I remember having small episodes in elementary school but didn’t have a full blown attack until middle school. They start with me waking up around 3-4 in the morning to intense abdominal pain. I have nausea, vomiting, and debilitating abdominal pain that lasts for 8-10 days. For temporary pain relief, I take hot showers with the water directed to my stomach. I currently take nortriptyline as a preventative.

Comment from: Moe, 55-64 Female (Patient) Published: September 22

Every single fall I get sick when we go from hot one day to cold day. This year I googled it. I never knew there was a name for it. I can finally figure out the triggers for my cyclic vomiting syndrome and try to prevent it. I am so happy to know they have a name for it. It is weird that it’s not in the spring where you can go from cold to hot. I only get it in the fall, from hot to cold. It is great to know it has a name.

Comment from: Desperate, 55-64 Female (Patient) Published: February 07

I have had multiple sinus infections and surgeries over the last three years and I am absolutely positive that it is the cause of my cyclic vomiting syndrome (CVS). My ENT doctor does not agree with me. I worked in the medical field all my life, have had 3 bouts of cancer and breezed through it all. But this CVS is killing me slowly and terrifying to my family. I am on prednisone constantly for nasal polyps and when I come off it, it is only a matter of weeks before the CVS comes back with a vengeance.

Comment from: Krissy, 3-6 Male (Caregiver) Published: October 28

I took my son to a pediatric gastroenterologist diagnosed cyclic vomiting syndrome CVS after one negative upper gastrointestinal scope. My son was having vomiting episodes every 30 to 35 days that would last 1 to 3 days. After another year I finally took him to another gastroenterologist who stated that way more tests should be done before making this diagnosis; even a brain tumor should be ruled out. After one simple ultrasound my son was diagnosed with hydronephrosis - a blocked kidney. He had emergency surgery, however, after the 2 years of damage the kidney lost function.

Comment from: Peach, 55-64 Female (Patient) Published: September 04

I had cyclic vomiting syndrome undiagnosed as a child and on and off as an adult. But then it seemed to come back with a vengeance upon my entering into menopause. I would be violently ill every two months or so and land in the emergency room. Once through menopause, it has miraculously disappeared.

Comment from: Kelly, 25-34 Female (Patient) Published: August 20

I have suffered with cyclic vomiting syndrome for as long as I can remember. I am 29, I have a 5 year old and work full time. When having an episode which is every week, life becomes very hard. I can have a great week then out the blue wake up to severe pain in my tummy, then vomiting. I try my very best to get myself together and sort myself out to go to work and to take care of my son but I just become very tired to the point where I don’t have the energy to keep my eyes open.

Comment from: cheryl, 45-54 Female (Patient) Published: August 13

My cyclic vomiting syndrome (CVS) started as early as I can remember. As a child I would always wake up early morning vomiting horribly. My symptoms would last for 24 to 48 hours before I recovered. As I got older, it got worse and the episodes coming at more random times as well. Public episodes are horrible, but I could be doing anything and all of a sudden get this severe nausea, dizziness, sweating, etc. Within seconds to minutes the vomiting starts. I wasn't formally diagnosed until I was over 40.

Comment from: Sammylee482 , 35-44 Female (Patient) Published: August 13

Starting from the age of eight years old, I began developing signs of cyclical vomiting syndrome. I hadn’t realized it at the time, but I truly believe it stemmed from sexual abuse at the age of eight. I am now 37 years old, they say this illness ends after five years, but Let me tell you I suffer from this condition an average of 1 to 2 episodes a month every month and have for the last 30 years. This is taking a huge toll on my life. I am unable to maintain a healthy weight.

Comment from: Lummysgirl , 45-54 Female (Patient) Published: July 23

I haven't officially been diagnosed with cyclic vomiting syndrome, but I've been having these horrible episodes since I was young. At age 8 I was diagnosed with gastritis, and as a teenager after a blurry vision, with migraine. Then different episodes started in my 20s. I would just wake up at 3 am and knew it was going to happen; pain, enlargement of my stomach, sweat pouring all over. I have to throw up, with diarrhea, and lose control of bladder. It happens at all different times, never consistent times.

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Comment from: LLChic , 19-24 Female (Caregiver) Published: March 05

My daughter’s cyclic vomiting syndrome (CVS) was caused by many culprits which ended up nonstop. Anxiety, menstrual problems, and migraines started the stomach aches. At 18 she tried cannabis for relief and then CVS went acute. Eighteen months of gastric exploration said she was squeaky clean and was referred to top 5 percent gastroenterologists in the US. Diagnosis was anxiety and she continued with cannabis. She got worse. Emergency room visits concluded CVS was due to chronic marijuana use. She eventually became suicidal. Went to a psychiatric ward and quit marijuana. Full recovery!

Comment from: ocalagal, 45-54 Female (Patient) Published: November 21

I also have type 1 diabetes and Addison’s disease, so it took quite a while to get to the diagnosis of cyclic vomiting syndrome (CVS). I didn’t see in this article that it sometimes takes several years to be diagnosed. I hate the emergency room! But, with the Addison’s disease I’ve learned that when my blood pressure drops, due to a stressor, that I will probably have a CVS attack soon (this is my prodromal phase). Even when I have a few vomits, if I can hold a Zofran and a Xanax down, while resting in a dark room, I can kick it.

Comment from: Finsnpearls, 25-34 Female (Patient) Published: September 25

I just turned 34, and my symptoms started almost a year ago, when my son was 2 years old. My cyclic vomiting syndrome seems to be triggered by hormones; stress and menstrual cycle spikes (both ovulation and menstruation) will have me incapacitated for days. I am waiting to be able to afford insurance and haven’t been able to seek medical treatment. My family and coworkers (and I) all thought I was dying until I stumbled across a case study about a woman with cyclic vomiting syndrome brought on by menses.

Comment from: Victim, 19-24 Female (Caregiver) Published: August 20

My granddaughter has been suffering from cyclic vomiting syndrome for 20 years. She has been in the hospital many times each year. It seems to get worse as she gets older. She always gets dehydrated and has to have IVs. She has had about 5 IVs the last two weeks. She had one yesterday and started back vomiting this morning. She has lost about 15 pounds in two weeks. She is a senior at a University and on the track team. I'm not sure she will finish school. Doctors thinks that stress is the cause.

Comment from: Daughter , 7-12 Female (Caregiver) Published: July 31

My daughter was 9 when she started vomiting. It’s been almost 2 years and her cyclic vomiting syndrome is triggered by motion sickness, overeating and being overly excited and tired. She vomits for a period of 1 to 2 hours per episode. She went from vomiting monthly to weekly and has now slowed down again.

Comment from: Judeasfirst5, 7-12 Male (Caregiver) Published: May 01

My child had an anoxic-hypoxic brain injury at 1 1/2 years old. J-tube insertion, to type 1 diabetes, to cyclic vomiting syndrome (CVS) diagnosis after 8 months of bimonthly hospitalizations. Now with G-J (gastro-jejunal) tube, and CVS cycle has become daily versus every other weekend. Child is now 11 years old, diagnosed with CVS 3 or 4 years ago. Cause is uncertain as child has a G-J port with predigested enzyme formula. Nothing changes in diet. It is triggered by increased body heat and facial flushing. Cooling down body heat with fanning and air condition cooling helps calm the episode.

Comment from: Chris359, 55-64 Female (Patient) Published: January 25

My cyclic vomiting syndrome (CVS) developed shortly after a severe case of food poisoning after eating at a sushi restaurant. This happened during a time of deep emotional distress in my life. Apparently, the two things together altered me forever. Alas.

Comment from: Brittany Jacobs, 19-24 Female (Patient) Published: July 30

There was never anything specific that I can remember. I have always had anxiety but I remember having heartburn and cyclic vomiting syndrome starting around the age of six.

Comment from: Bonita P., 45-54 Female (Patient) Published: June 04

I have no idea what causes my cyclic vomiting syndrome. I turned 50 in August of 2017 and they started in January of 2018. I wanted to know what has caused this to start and up until last night, I had no idea what was wrong with me. I've been to doctors and had multiple tests done but everything came out good. I was in the grocery store looking at what vitamin I could take to not get nauseated and ran across an article about cyclic vomiting syndrome. I cried. I finally found what is wrong. I hate it but I'm thankful that there is something that I can say I have now instead of my family and friends thinking I'm dying.

QUESTION

Bowel regularity means a bowel movement every day. See Answer