Patient Comments: Cryptosporidiosis - Experience


Please describe your experience with cryptosporidiosis. Submit Your Comment

Comment from: Beverly, 45-54 Female (Patient) Published: September 07

I had cancer. I had chemotherapy and radiation treatment. Diarrhea is a side effect of radiation. Months later I still had diarrhea. I was getting worse, with dehydration and heart palpitations. I was in and out of emergency room. They never did a stool test. I was constantly told it was probably from radiation. I thought I had heart problems, saw cardiologist and was cleared. I tried to stay hydrated with water and Pedialyte. I was in and out of the emergency room and was referred to a gastroenterologist. They did a stool test. I have cryptosporidiosis. I have battled it for 8 months. Alinia didn't work and I need cure!

Comment from: Dre, 35-44 Male (Patient) Published: July 06

Day 1 of cryptosporidiosis I had body aches and fever. Day 2 to 13 I had abdominal cramps and diarrhea. It is still ongoing!

Comment from: Sherryn, 45-54 Female (Patient) Published: January 19

I'm on day 9. I was hospitalized day 4 of cryptosporidiosis. I thought it was almost over yesterday but today symptoms seemed to worsen. I have very low abdominal cramps and lower back pain but the most concerning symptom is rectal shooting pain or pain when bearing down. Each morning the pain is excruciating just to release the muscles that begin the urine flow.

Comment from: EK123, 35-44 Female (Patient) Published: January 04

Cryptosporidiosis was the worst experience I ever had. When the abdominal cramping started it came on so fast and hard I broke into sweats and almost passed out. Twenty four hours later the diarrhea began nonstop. Likely 20 to 30 times in a 24 hour period for 8 or 9 days. I was dying of thirst but every time I ingested anything, it would start violent bouts of it. I went to the emergency room (ER) and was told I had colitis. I was prescribed Flagyl and Cipro and noticed almost no relief. Six days later I went back and they did a stool sample. Oddly enough ER sent me home saying results were normal and I must have a stomach flu. About a week later my local Health Department called me to survey me about my symptoms because the hospital is required to submit positive cryptosporidiosis results to them. I am not sure why ER said my stool test was normal, but I am not happy about their lack of follow through, or mishandling information. The health department explained everything to me and asked me about 50 questions about where I may have contracted it. What a nightmare! I wouldn't wish that on my worst enemy. I lost 14 lb, needed potassium and 3 IV bags, and had lots of pain and misery, not to mention exhaustion. I should mention I suffer from kidney stones, and the dehydrated state caused some problems in that area also.

Comment from: cruzroja, 65-74 Female (Patient) Published: June 02

I was having bouts of diarrhea and abdominal cramping. It was thought it was my IBS (irritable bowel syndrome). But one day it was so bad and usual IBS medicines were not working. I brought stool specimen to lab to check for parasites (I live in Mexico). It was positive for cryptosporidiosis. I tried homeopathic substance and it got worse. I went to traditional doctor and now on nitazoxanide. I hope this works. My symptoms are low energy, daytime sleepiness, abdominal soreness, diarrhea, and low appetite.

Comment from: queenie88, 19-24 Female (Patient) Published: April 15

Cryptosporidiosis was horrid. The first day I had diarrhea about 30 times, no exaggeration. I could keep nothing down, I was dizzy, nauseated and extremely lethargic. This continued for 9 days, with the rate of diarrhea decreasing steadily till it evened out at around 7 to 10 times per day. I had no strength. Day 7 or so I had lost 12 pounds and was so dehydrated. My doctor gave me two bags of fluids IV. And my body took them in about 30 to 40 minutes. My potassium levels were low, 2.9, I believe. I had a prescription for potassium and anti-nausea. Today is the 13th day, and I'm feeling better. I still have bad stomach and abdominal cramps, but the diarrhea has just about ended.


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