Patient Comments: Cryptococcosis - Risks

Question:

Were you or someone you know at risk for cryptococcosis? Please discuss your experience. Submit Your Comment

Comment from: Calgirl, 65-74 Female (Patient) Published: August 20

I have lived in San Diego my whole life, am healthy, have always had an active lifestyle as a runner and scuba diver, and walking/hiking after a knee injury. However, I contracted cryptococcal pneumonia at 66, following a hike on a coastal dirt trail in La Jolla, where bird dung has been an issue for years. I am being treated with fluconazole, and improving after 3 months. Though I still have some right lung pain, I am walking up to two miles daily, and am told I will recover fully.

Comment from: lakeliving1234, 55-64 Male (Caregiver) Published: November 08

My husband was diagnosed with cryptococcosis pneumonia this year. The physician said that he got the infection while he was sick with pneumonia and inhaled bird droppings while doing landscaping in the yard. We live on a lake and have a lot of geese droppings around. I'm thankful that the doctor diagnosed this. He has to take medicine for a minimum of 6 months.

Comment from: Confused , 45-54 Female (Patient) Published: July 19

I have been sick for 2 years with many symptoms. I have breast implants so I may be sick from these. I did a hair sample and it showed cryptococcosis. I don't feel good; nervous and scared. I have lots of symptoms. I am not an HIV infected person either.

Comment from: karina, 45-54 Male (Caregiver) Published: October 04

My husband has cryptococcosis and has been treated with amphotericin B liposome (this is an intravenous treatment) that he gets 6 days a week for six or more hours a day, plus fluconazole pills. He has been in this treatment for 4 weeks, but now the doctors suggest that they should remove the lung since the antibiotics are not making his lung better. I am very concerned about his situation, because he has also lost more than 30 pounds.

Comment from: Suszanne, 45-54 Female (Patient) Published: February 29

I contracted cryptococcosis without knowing it. I finally ended up in emergency because I couldn't breathe properly. I was in the hospital for a month and was on intravenous amphotericin B for two weeks straight. I had many CT scans, MRIs, and blood work every week until the infection was out of the blood. Now I am dealing with 8 months of muscle atrophy because I was so weak when I came out of the hospital. Now I am working on getting myself better and stronger to return back to work.

Comment from: Chis, 25-34 Female (Caregiver) Published: September 06

My brother has cryptococcosis in the head. He doesn't have HIV or cancer. The doctors did endoscopy in the brain, but the infection is very bad. Now he is losing his mind, and doesn't remember things. It has been 4 months.

Comment from: Dennis, 35-44 Male (Patient) Published: August 13

I contracted this fungus while serving in Afghanistan. I am a healthy person without HIV. I believe I was exposed during a dust storm. Eight months later, I'm still having trouble breathing, but I'm doing a lot better. My lifestyle has changed. I accept life and will work on getting better. I am taking fluconazole 200 mg once a day, but I've been told after I've recovered I will only be at 70%-80%. My lung will be scarred for life, and I will have trouble breathing.

Comment from: Dennis, 35-44 Male (Patient) Published: October 09

I'm doing a lot better 1 year and 6 months after having contracted cryptococcosis. I'm now left with a scarred lung and a feeling of weakness and fatigue.

Comment from: tsimmons, 19-24 Female (Caregiver) Published: September 13

My husband was diagnosed with this back in 2002. We have lived in Alabama all our lives and never been anywhere else. He at first had a bad cough then he started coughing up blood. It took the doctors a year or more to figure this out. They ended up removing part of his lung. He is now doing great and doesn't take any medicines for it.

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