Patient Comments: Crohn's vs. UC - Experience

Question:

Please share your experience with Crohn's disease or ulcerative colitis. Submit Your Comment

Comment from: dmc, 45-54 Female (Patient) Published: May 15

That's the most ill-informed comment I ever saw, that colitis is worse as it may require surgery! The majority of people I know with Crohn's need surgery, myself included. If only removing the large bowel was a cure for Crohn's like it is for colitis! Many of my friends have died from Crohn's after many surgeries for it to reoccur elsewhere in the bowel.

Comment from: Home days, 45-54 Female (Patient) Published: March 04

Having lived with Crohn's for over 30 years, I have been on multiple drugs and experienced various ongoing side effects. I have had multiple operations for Crohn's, which by the way do not cure or help. I now have regular immune suppressant infusions, as well as multiple tablets to take for it each day. Crohn's is systemic and affects multiple parts of the body and causes many other complications and conditions. So how do you believe ulcerative colitis is worse!

Comment from: Crohn's for 43 years, 55-64 Female (Patient) Published: September 12

You have grossly understated the effects of Crohn's disease vs colitis. I don't understand how you can assert that ulcerative colitis (UC) is worse. The fact that surgery is a cure for UC as unpleasant as it is to some, puts it in the lesser of the two evils to me. I have had Crohn's for 43 years. I have had 8 abdominal surgeries. I have had an ileostomy for 24 of those years; two surgeries prior to the ileostomy and five more after it. I have only 250 cm left of the small bowel, and no colon at all.

Comment from: IBD guy, 35-44 Male (Patient) Published: March 05

I'm not sure that “patients with ulcerative colitis (UC) may require surgery” is the best way to put it. How about “patients with UC can have surgery! Many Crohn's patients would love surgery, but it doesn't work on Crohn's. So surgical options does not make a disease worse than a similar disease that can only be treated with drugs (that don't work).

Comment from: Woman, 25-34 Female (Patient) Published: October 30

Not sure why you left out the fact that those with Crohn's are also subject to surgery. Surgeries that may give those with Crohn's an undefined amount of years before the disease comes back. There is also a much more extensive list of side effects for those with Crohn's.

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