Patient Comments: Connective Tissue Disease - Signs and Symptoms

Question:

What were the signs or symptoms associated with a connective tissue disease in you or a relative? Submit Your Comment

Comment from: Debra , 55-64 Female (Patient) Published: August 06

I was diagnosed with mixed connective tissue disease (MCTD) in 2008. Since then it has affected my lungs, with fluid on lungs and shortness of breath. I have CKD (chronic kidney disease) stage 3, fibromyalgia on all 18 points, Sjogren's syndrome with dry eyes and mouth, and intracranial hypertension (fluid buildup around my brain) which gives me chronic headaches. I had 4 lumbar punctures, this has given me papilloma and inflamed optic nerves which give me vision distortion and colored light plus lightheadedness. I have cervical spinal stenosis, and fed up.

Comment from: Rocknaway, 35-44 Female (Patient) Published: June 21

I have connective tissue disease. My hands get stiff and feel hot on the inside, my knees hurt and look like horns have grown on them. All of my joints are painful and sometimes swell. I get edema in my legs and feet and have headaches, rashes and fevers. I also have lost a lot of energy and often feel tired.

Comment from: cc, (Patient) Published: February 25

I will start by saying that I am/was a nurse until I fell too ill to work and exhibited many of the symptoms of connective tissue disease you all are discussing here. I began to realize that it was worse when eating specific foods/drinks so I took it upon myself to experiment with my intake and focused on the things I ate the most of. I have seen many doctors and like you all I had little to no relief. I also began developing a number of bone spurs throughout my body and read something about tea disease (also known as fluorosis). So realizing I drank at least a half-gallon of tea a day, I eliminated it from my diet and all my bone spurs resolved themselves with no surgery needed. I still have the joint pain, some days better than others now, but I also have difficulty with foods that are known to be high in sulfur. When I cut all this out I feel 75 percent better. I am not saying this is what you guys are suffering from but it is worth a try to eliminate the suffering. I miss my tea though. Best of luck.

Comment from: Karen, 65-74 Female (Patient) Published: November 22

I have been having a problem with the tendons in my hands locking up during certain movements. My palms hurt and tonight for the first time, when the fingers locked, I was in pain and had a hard time unlocking the "lock up". Doctors don't seem to know what is wrong. I don't know where to go from here. Or even if this is a symptom of connective tissue disorder. Can't seem to find anything related to this problem.

Comment from: ediehawk, 55-64 Female (Patient) Published: February 12

The finger lock up and the pain in your palms could be what they call a trigger finger; I have had 2 of them due to carpel tunnel.

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