Patient Comments: Colitis - Describe Your Experience

Question:

Please describe your experience with colitis. Submit Your Comment

Comment from: Cathy colitis , 55-64 Female (Patient) Published: February 10

I have just been told I have colitis after CT scan in the emergency room, tests, etc. I was having a lot of rectal bleeding and diarrhea; also weird feeling in my middle like someone punched me over and over there. I'm home 2 days later, waiting to see the gastroenterologist in 4 days, the earliest appointment they had. I spent 2 weeks nauseated. I haven’t been able to eat a meal in those 2 weeks.

Comment from: Willathey1989, 25-34 Male (Patient) Published: March 26

I’ve been to multiple emergency room facilities with my colitis. I’ve had several CT scans, and done 6 in the past month alone. I can’t eat anything or keep any fluids down. My stomach feels like it’s literally tearing apart and as if there is leakage. My left arm constantly goes numb. My fingers and hands are constantly cramping up. My vision is getting more blurry. It all starts when my abdominal pain starts and then I’m curled up in a ball not wanting to move.

Comment from: Robinl, 55-64 Female (Patient) Published: February 14

I woke up with incredible bloating, nausea, severe pain and pressure, and had very bad diarrhea until it was blood. I was in hospital for treatment of colitis with antibiotics. I felt better pretty quickly after antibiotic treatment. After 2 days I was discharged. Hope it never returns.

Comment from: sean, 45-54 Male (Patient) Published: December 18

I was diagnosed with ulcerative colitis and hospitalized for 3 weeks. Prior to my hospitalization I had lower back pain and blood in stool which was misdiagnosed as hemorrhoids as colonoscopy was only done to 25 cm. Had they of gone further they would have seen the ulcerative colitis sores in the top end of my colon. Because this was misdiagnosed my colon got so impacted that my 2 meter colon was blocked. A last ditch effort to treat was the biologic Remicade. I have been in remission for 8 years and on Humira.

Comment from: Chris, 55-64 Female (Patient) Published: December 12

I wonder if anyone else has experienced colitis after having chemotherapy. I think it is a contributing factor to mine. I ended up in the emergency room on Saturday with severe bloating, gas pain and one episode of diarrhea. I had an x-ray and CT scan done along with blood work. Possible infectious colitis. I am on antibiotics and Zofran. It still hurts after 2 days and I am on a liquid diet too. Hope this is resolved soon.

Comment from: dean, 75 or over Female (Patient) Published: December 10

I get diarrhea from colitis and sometimes rumbling in my stomach, but none of the other symptoms. I wonder if I still have colitis.

Comment from: Lulu, 55-64 (Caregiver) Published: May 22

I am going to the bathroom as soon I am done eating. I have a lot of gas and black color stool. I wonder if this is colitis.

Comment from: Beverly, 55-64 Female (Patient) Published: November 06

I have read some of the comments, but noticed that, although I too have been diagnosed with colitis, I have not seen any symptoms that relate to me. Almost 2 weeks ago, I just started experiencing really sickening nausea. No diarrhea, no fever, no stomach cramping, no stomach pain. Just nausea that would not seem to go away. I was put on antibiotic (Cipro) and prescription nausea pills. As long as I was taking these two meds, I felt better. I am out. Now nausea is back.

Comment from: [email protected], 25-34 Female (Patient) Published: October 22

My doctor says my CT scan reveals colitis in my upper left colon but for almost 2 years I do not have any pain or frequent diarrhea or any symptoms I read about colitis. What I have felt is more like a discomfort, like a bit of pressure. I am 34 and did have a colon surgery 1 day after I was born with something called duodenal atresia, so I feel like it could be scar tissue, and I am about 30 lb. overweight. I am reluctant to have an invasive procedure like a colonoscopy, and thinking why not just treat the colitis.

Comment from: BToston, 35-44 Female (Patient) Published: August 08

I was having what I thought was gas due to the pressure I felt in my abdomen. However, it began to get very painful and my stomach felt as if it were expanding and about to burst so I drove myself to the emergency room and was told I had viral colitis. I was treated with antibiotics and pain medicines for two days, then sent home. However, I am still having pain in my lower abdomen and back.

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Comment from: Bluarc1, 65-74 Male (Patient) Published: June 21

I haven't read of anyone taking the pink stuff Pepto-Bismol for colitis. I take one to two shot glasses depending how bad I have the diarrhea. It works in about two hours to where I can function. I usually have bowel movements about three times before I can leave my home in the mornings. When I use the Pepto-Bismol I am good for one to several weeks. It has always worked for me. Can't hurt if you try using a larger dose than recommended. Three to four tablets also will work regular dose is not enough.

Comment from: memaw, 65-74 Female (Patient) Published: May 10

I thought I had a bug for 2 months and decided to go to the doctor. Three stool samples were negative so had a biopsy done and found out I had colitis in January 2018. I would not go anywhere because I had to be close to a bathroom. I was on a prescription for 2 months to calm it down. I did not want to stay on a prescription with all the side effects (and the cost) so decided to try natural oils with my daughter’s instructions. So far it has helped. By no means is it gone but instead of cramping all day and in the bathroom I am usually good by lunch time. I am 68 years old and from I have read this normally starts at a younger age. I feel for anyone that has to go through this for many years.

Comment from: Mcjames, 45-54 Female (Patient) Published: May 09

I had gallbladder removal 10 days ago with no complications. Then 1 week after surgery, I had severe pain and nausea, made a trip to the hospital, and was diagnosed with colitis. I was given IV Flagyl and Cipro in the hospital, now taking them for another 2 weeks orally.

Comment from: Platypus, 65-74 Male (Patient) Published: August 22

I had colitis. There was onset of febrile-type symptoms, and 6 hours later, large soft stool patched with blood. Then frequent watery or mucus stools, about every hour. At 24 hours they were green and watery. At 6 hours, the worst symptom was very severe generalized muscle pain, with weakness, increasing over hours till I could not get off the floor. I went to Accident and Emergency, subsequently cultured and found campylobacter. CRP was 127; no myoglobinuria, and no muscle enzyme rise. Fluid and antibiotics were given. It got resolved in day 2 or 3.

Comment from: Joyce, 75 or over Female (Patient) Published: August 10

I have had lower abdomen pain for three months. I had a C scan and it revealed colitis Inflammation. My doctor put me on Flagyl and Cipro. I have real loose bowels that are dark in color. The pain so far is still there. I never know when I am going to have a bowel movement. I have lots of gas with a bowel movement. I hope that I can get better. I am 81 years old and this is terrible pain.

Comment from: Anita, 45-54 Female (Patient) Published: March 08

I have suffered with colitis for over 2 years now. I am not on any medication because I did not want to risk the side effects, especially when my doctor said they may not even work. I have tried probiotics, diet changes, etc. I also have acid reflux. I never knew a natural body function could be so painful. I have sat in a tub of warm water and cried on many occasions. One of the main things I don't understand is I don't lose any weight at all. It seems I have to go to the bathroom 10 minutes after a meal so it's like food goes right through, but no weight loss.

Comment from: pawpawdoug, 55-64 Male (Patient) Published: January 20

I have been battling colitis for 8 years. I have been on Entocort from the start, started with 3 a day and then after several months 2 a day. I was on that for a year and a half then 1 a day. I still got flare ups with no rhyme or reason, though I have watched what I would eat. When I have flare ups 2 weeks or longer I will not leave the house. I had at first lost a lot of weight. I was still working so I would eat nothing going in at the top end that didn't run out of the bottom end. I went from 185 to 164 lb. I feel run down all the time and lower back is a killer. I went a year and a half lately with no flare up. The doctor during this time worked me down to skipping two days and taking 1 capsule. I have retired and in this last good stretch been eating anything and topped the 208 lb. mark but have not had a flare up now for 4 weeks, yippee!

Comment from: Jamivers, 55-64 Female (Patient) Published: October 01

I have had 2 colitis attacks, both with similar symptoms. I would get a sudden urge to make a bowel movement. But both times I wasn't home and as the minutes passed, I got light headed, dizzy, sweaty, and hot, with labored breathing, eventually passing out. Then I would bleed every time I felt like I had to make a bowel movement, after the initial diarrhea. I had gas pains in the stomach. A very frightening experience. I wish I knew what to do to avoid these episodes!

Comment from: babsy998, 55-64 Female (Patient) Published: June 30

I was diagnosed with infectious colitis in 1998 and then microscopic (both types). I have times where I do feel better but then I go backwards and have abdominal pain with bloody mucus, loose stools that fill the entire bowl. It is something I hope you never have to experience. I was hospitalized a few times as my body was exhausted. I was going to the bathroom 40 times a day at one point! Medicines don't seem to do much and I am just so tired of it all!

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Ulcerative Colitis: Symptoms, Diet, Treatment, Causes See Slideshow
Comment from: Frustrated, 65-74 Female (Patient) Published: June 16

I have had ischemic colitis quite a few times and have been hospitalized with it a few times. My symptoms are weird. It begins with severe cramping and the whites of my eyes turn blood red and my head feels like it is going to explode. Then I have diarrhea and that turns into nothing but blood. Then I go to the emergency room and end up being hospitalized for a few days. I have had no medication to stop this from happening and have no idea why it happens. I have been getting some form of colitis about every 2 months. I need help for this and don't know what to do about it.

Comment from: Badsushi, 25-34 Female (Patient) Published: May 20

I bought some sushi while shopping, and 24 hours later I had the worst cramps in my stomach, and extreme diarrhea. I went to a hospital, they thought it was my appendix bursting, did keyhole surgery and saw how inflamed my colon was. Five days in hospital and antibiotics, they found out the cause of my colitis was salmonella poisoning from the sushi. I had shared that sushi with my 2 year old son who was admitted to hospital at the same time with diarrhea, lethargy and stomach pains. Not a fun experience and need a fair bit of follow up treatment. Be careful of what you buy!

Comment from: Jeanbean, 75 or over Female (Patient) Published: November 11

I was on a 7 day cruise when on the third day I had an acute infectious colitis attack. I didn't have the expected cramping or stomach pain. I just felt very week, vomited some blood, and then the diarrhea started which I had no control over. It lasted two days. I was admitted to the ship’s sickbay. My blood pressure was 53/47 and I was severely dehydrated. I was given 21 units of saline in the 3 days I was in sickbay. After arriving home I spent 6 days in the hospital. I received an endoscopy and colonoscopy which showed my stomach and entire intestinal track was infected. I was given 2 units of blood and put on antibiotics. After the hospital stay, I then spent 5 weeks in rehabilitation getting my muscles and strength back. I can once again take care of myself. I never want to go through this ever again.

Comment from: Judy, 65-74 Female (Patient) Published: November 10

I had a perfect colon according to my test 5 years ago at age 62. Six months ago, I was diagnosed with colitis; not ulcerated he said. I didn't know until reading this that there are different names/kinds. I took some red pills 3 times a day, I can't remember the name, for 3 months. They didn't help so I quit. I'm taking a 50 billion probiotic now and drinking tons of water. My symptoms are better. I started with explosive diarrhea which initiated what I call an attack. Rapid diarrhea followed by profuse sweating, dizziness and feeling I was passing out. I used cold cloth and slept for an hour after that. Make sure you are taking the highest bacteria probiotic you can find. That's been my lifesaver. Not suggesting you quit your medications, I'm going back to the doctor and asking him to try something else. My heart goes out to anyone suffering from this life altering disease. By the way, I have a stressful life and trying to calm that down. Stress is not good for so many reasons. It is difficult to eat as well, I have to force myself. I lost 25 lb. in 6 months along with muscle; not good. Be sure to eat and drink well. Good Luck!

Comment from: scooter2, 19-24 Female (Patient) Published: October 21

I have been experiencing symptoms of colitis on and off for 4 years now. My first episode happened at senior year of high school when I had extreme blood in my stool. After seeing a doctor and having a colonoscopy nothing was figured out. I have chronic diarrhea but before the diarrhea I get extreme pain in my lower abdominal area, break into a sweat, and start salivating like I’m going to puke. I usually run to the bathroom and have severe diarrhea after that. Once the episode is done I’m usually okay but for the rest of the day I either don’t eat anything or stick to soup and crackers. This also occurs in the middle of the night sometimes. I am dairy free and try to eat healthy. I have been put on anti-anxiety medication as well as probiotics, and been treated for 2 weeks with a traveler’s diarrhea medicine.

Comment from: Marlene, 65-74 Female (Patient) Published: September 16

I begged my doctor to give me a diet pill because I was due to have a colostomy and I wanted to have a tummy tuck so the bag would lie flat. From the first moment the phentermine pill entered me until now, about 5 months, my ulcerative colitis disappeared; all signs and all symptoms. And all the foods that I could not tolerate then is what I live on now. I was on low roughage low residue diet the FODMAP. I live on fruits and raw vegetables now along with meat, fish and eggs, plus I have lost 40 pounds and can say I feel alive for the first time in a long time. I no longer need a colostomy.

Comment from: AG, 65-74 Female (Patient) Published: September 05

I am 73 years old and this colitis was worse than having my children. It took 2 doctor’s visits and 3 emergency room (ER) visits to find out what I had. First doctor visit went normal; I was prescribed 2 medicines for stomach which did not work. I ended up in ER in one hospital which did not do any testing except blood work. They said I was dehydrated, advised me to drink Gatorade and released me. Needless to say medications did not work and I ended up back at the doctor’s, who called ambulance and sent me for CT scan which showed I had colitis. Now I’m on 2 antibiotics and pain medications. Also restricted diet. In one week I lost 9 pounds. I would not wish this on my worst enemy. Hope it goes away and stays away.

Comment from: kerrie, 45-54 Female (Patient) Published: April 16

My colitis started with severe pains in my stomach, the worst ever...like labor pains. I ran to the loo and was passing blood with diarrhea. I was so very sick at the same time, but the pains were so bad I phoned for an ambulance. I am 43 years old mum of three. I have had the same 12 years ago, exactly the same, so this is my second flare up I guess.

Comment from: statey388, 55-64 Male (Patient) Published: April 14

My first experience with colitis was severe cramping. At first I thought it was my liver shutting down. It was in my descending colon which was right behind my liver. Cramping and pain lasted over 8 hours. Colonoscopy showed the area of the ulceration. I had been passing a mucous-y plug like object in my stools for a few weeks. I had one other incident similar to the first. I was put on Aspira and have done well since till last night. I am now experiencing bleeding diarrhea. I intend to follow up with my doctor on this change.

Comment from: LC, 45-54 Female (Patient) Published: March 19

I just got diagnosed with microscopic/collagenous colitis after my 1st colonoscopy. Now on Entocort which, along with a reduced gluten and dairy diet and use of Tylenol rather than Advil, has helped with the diarrhea and cramping I"ve suffered with for too long. Wondering if anyone else with colitis has experienced severe, debilitating episodes of burning lower back pain with their disease symptoms. My last such episode was now 4 months ago (I had four total last year which last for nearly a week at a time), and I don"t know if colitis could possibly be the cause or if it"s something totally unrelated instead.

Comment from: Kathy, 55-64 Female (Patient) Published: March 06

I am 61 years old and was diagnosed with ulcerative colitis (UC) last July. My symptoms were bloody diarrhea and mucus. I had some cramping but not bad, but the blood scared me since my father had colon cancer. The gastroenterologist did colonoscopy and said it was UC, and put me on balsalazide, which didn"t help that much, then Asacol HD, I couldn"t afford it, and then Lialda. I had a bad attack of cramping this past weekend. Don"t know what caused it but I called the doctor and now am on 2 antibiotics plus I"m back on balsalazide. I am so disgusted; about ready to try holistic medicine.

Comment from: Louise, 35-44 Female (Patient) Published: January 29

I was diagnosed with ulcerative colitis in the year 2000. Initially I was put on to medication and suppositories to treat, however when I realized the medication was life-long, I sought assistance from a holistic doctor and dietician. I discovered foods that can definitely trigger an attack, I learnt how to eat to calm the angry internal response to an attack, I also had to try and minimize stress and I went onto a variety of Usana vitamins - these are pharmaceutical grade which is important for healing. I have a checkup in March but I expect a good answer as I rarely flare anymore.

Comment from: no-name, 25-34 Female (Patient) Published: January 29

I am a 25 year old female. About a year and a half ago I was going through a very stressful time and was diagnosed with anxiety and depression. I started having severe bloating and pain in my lower intestines. I tried to ignore it for almost a week because I knew it was related to my bad diet and I had experienced this same feeling on an off for years, but it usually lasted only a few hours plus I didn't have much money for a doctor visit. I live in the U.S. but am near the Mexico border. I finally went to an urgent care in Mexico because it was cheaper. The doctor only had to ask about my symptoms and stress level, feel my abdomen and take a few vitals then he immediately diagnosed me with colitis and gastritis. I was prescribed 1 week worth of antibiotics, a mild pain killer, and a liquid to help regrow the good bacteria in my stomach. I was also told to cut soda, spicy foods, and flour from my diet. I took the pills but didn't cut the items from my diet at first. I felt better after the medications and haven't had severe problems since. I do get the occasional heartburn or upset stomach but only if I overeat which is understandable. I do eat healthier and am on antidepressants which also regulate anxiety so I’m sure that helps. I hope anyone suffering from this feels better and please see a doctor right away so you don’t prolong your suffering.

Comment from: BJ in FL, 65-74 Male (Patient) Published: January 21

I began having diarrhea 7 months ago (no pain at all thankfully) and after having a colonoscopy and endoscope down the throat, my doctor put me on pantoprazole which had no effect at all on the colitis. He then put me on Lialda twice daily. It didn't help so he increased the dosage to 3 times daily. After 2 months I was back to normal with firmer stools, still 4 or 5 times daily though. I stopped the Lialda after the prescription ran out, was clear for over a month, now it has returned so I will see the gastroenterologist again for more or new prescription.

Comment from: MysticJulz, 35-44 Female (Patient) Published: January 08

I just got home from the emergency room about an hour ago where I was told that I have colitis. I had never heard of it before nor do I really know what to expect from it. As I was signing my discharge papers I was told that I will have this problem off and on through the years. Mine started in December 31st and I would have sharp pains in my ribs on my left side all the way to the ribs on my right side to the point of crying. They sent me home with 2 prescriptions for antibiotics and one for pain medication.

Comment from: Srussell, 45-54 Female (Patient) Published: December 05

I had a very healthy digestive system all my life until a trip to Belize last year. It is unknown exactly what I ate or drank but it was a 6 month battle of severe diarrhea, dehydration, awful cramps. After blood tests, colonoscopy, and swallowing a very expensive camera pill, it was finally cured using Flagyl. A shorter treatment of Flagyl earlier had failed but long term use managed it. I was symptom free for several months and thought I had licked it until I had a glass of keg beer! Wow! I was sick all over again. I am looking for an alternative way to treat. After reading the aloe vera blog, I'm trying that! I have just started coconut oil and eating a tablespoonful makes my stomach feel soothed immediately! I don't want to live this way! There has to be natural treatments. I have been back to Belize twice since with no problems. I just ate cooked foods and drank bottled water only.

Comment from: Truckin, 35-44 Male (Patient) Published: October 31

I'm a 42 year old male with severe ulcerative colitis. I'm also a long haul over the road truck driver. I am in the middle of a rather abusive and angry flare up at the moment. Currently I am taking Asacol HD at maximum, prednisone, an iron supplement to help with the anemia and a multivitamin to also help with the anemia. I've had to double bag my garbage can and use it as a toilet more times than I care to count. Keeping clean enough is a problem, and the long walks to the bathroom when I can actually get to one aren't pleasant. I'm in constant pain from the bloating. I'm also not able to take time off to get better. I'm so sick of the sickness and pain I'm about ready to give up.

Comment from: 45-54 Male (Patient) Published: July 23

I am a 49 year old male. I developed ulcerative colitis at age 26. Up until 3 years ago I would experience symptoms (cramps, bleeding, mucus, urgency) every few months. I could only achieve temporary remission by using steroids (usually prednisone). However 3 years ago I met a pharmacist who also practiced natural health. She said she could help but I was very skeptical. She prescribed Usana anti-oxidants, multi-vitamins and Proflavanol (grape seed extract) and Acidophilus as well as a drink containing fibre, berries (anti-oxidants) and Flax seed oil (Omega 3). Over the next 6 months the recurrence of disease came about less often until my symptoms stopped altogether. Recently I had a colonoscopy which showed the complete absence of colitis. My health is excellent.

Comment from: case, 35-44 Female (Patient) Published: October 07

I woke up 2 mornings ago with severe vomiting, diarrhea, and the worse abdominal pain i have ever experienced (I've had 2 kids Naturally and this pain doesn't touch natural child birth, I can assure you). I went to er and was admitted. I was given Dilaudid for pain along with Phenergan for nausea. I underwent several blood tests as well as diagnostic testing. My pain level increased and was then given IV morphine, Nexium, and Zofran. My white count was extremely elevated. I stayed in hospital 2 days. I found out it wasn't my appendix, my gall bladder, nor my ovarian cysts causing these symptoms, but was diagnosed with colitis. I was sent home on Flagyl 500 PO TID and was instructed on a very strict diet high in fiber. I am 37 years old with 4 kids ages 11 to 11 months and i promise you this experience (symptoms) was absolutely one of the worst i have ever encountered.

Comment from: mommakay, 55-64 Female (Patient) Published: October 07

Just diagnosed with what the Dr. called mild colitis. Sure glad I don't have severe!! I would hate to find out what that is like. This feels like severe to me!! I can just smell food and the diarrhea begins with repetitive trips to the Bathroom. Sometimes up to 8 times in an hour. Fecal incontinence day and night to the point that I have started using blue pads (like puppy pads) under me at night and in my chair. I have also lined the hall and from my bed to the bathroom with towels. I don't go anywhere except to the Doctor. I had a gastric bypass quite a while ago and had some diarrhea for a while but it resolved,( My mistake). Now I have severe GERD and colitis. After a colonoscopy and EGD I have been prescribed Bentyl and Nexium. So far so good. Dear Ms. 71 year old commenter, as they say "I feel your pain" Good luck to you and to all of you. I was relieved I did not have cancer, but am still depressed by the diagnosis of such a chronic disease and wondering how long it will be til another flare-up.

Comment from: Boomer, 65-74 Female (Patient) Published: May 30

I was diagnosed with colitis and treated with Cipro and Flagyl. Also I have pain in my back which coincides with the stomach pain.

Comment from: Sam 200, Male (Patient) Published: January 24

I was diagnosed with ulcerative colitis in the year 2000 at the age of 38. My symptoms were very severe, but in the years after I was able to control my disease and have it in remission. I had a colonoscopy about 5 years ago and my doctor told me that there is no evidence of an active colitis and my colon had fully healed and looks very health. Yes it is true, I was able to have my disease in a permanent remission by taking this medication and thus have a cure for the severe colitis that I once had.

Comment from: alison, 45-54 Female (Patient) Published: March 11

I am registered disabled and have been diagnosed with schizoaffective disorder. I was working as a cleaner and one day I had a pain go through my legs. As the years went by my legs started going numb and I was still in pain. My legs have gone underneath me and I went for test after test and still not diagnosed. My sister told me that I could have colitis. My bowels go when I walk and I cannot walk very far due to pain and bowel movement.

Comment from: doug, 65-74 Male (Patient) Published: December 03

I have had ulcerative colitis (UC) for 20 years with all levels of flare-ups, lasting for months or a week. I have been ok for the last 2 years, but I never know. I take 2 1.5g Lialda pills each morning. I see the gastroenterologist every year.

Comment from: xmaskid63, 45-54 Female (Caregiver) Published: October 13

There is a connection between colitis and cancer so be informed. My brother has cholangiocarcinoma and suffered off and on from colitis for years. We had no idea.

Comment from: deje, 65-74 Male (Patient) Published: September 14

In May 2014 I was hospitalized with ARDS (acute respiratory distress syndrome). I remained in the hospital for 6 weeks. I am now nearly 100 percent recovered. I had a colonoscopy last week which revealed the colitis. I do not have the typical symptoms diarrhea or abdominal pain, but I am constipated and produced significant gas.

Comment from: Ali, 55-64 Female (Patient) Published: May 07

I had ischemic colitis after back surgery very recently. I had a terrible stomach ache and passed nothing but blood, I was nauseated and admitted back into the hospital 2 days after surgery. A terrible experience. I had to have an endoscopy, and a biopsy. I did have several risk factors, though; extremely low blood pressure, age, surgery and dehydration. One of the worst health scares ever.

Comment from: Candy, 35-44 Female (Patient) Published: January 23

I went to see a doctor in July 2013 with persistent abdominal pain on the right side of stomach or under my rib cage. Sometime, I had bloated stomach and light headache; it hurt lying down and sitting up. I had dry mouth, dry eyes, cramping, fatigue and I urinated a lot. I will have my colonoscopy and gastroscopy on 2/20/2014. I'm very nervous about it. It's been 8 months that I had suffer with pain on the right side of my stomach.

Comment from: Jennifer, 25-34 Female (Patient) Published: October 08

I went to the emergency room on vacation after 48 hours of extreme diarrhea eventually with blood and abdominal cramping. I thought it was food poisoning. They gave fluids and morphine for the pain and did a CT scan to find that I had infectious colitis. Nothing was immediately better and I received 10 days of Flagyl and Levaquin antibiotics. The antibiotics packed a punch of their own. I am on day 5 of medications and still have a follow-up with my general practitioner. Worst pain I have ever felt!

Comment from: Jacob, 19-24 Male (Patient) Published: October 08

I was diagnosed with ulcerative colitis (UC) when I was a senior in high school at age 18. By far UC has been the biggest struggle of my whole life. Originally I lost 30 pounds and was submitted into the hospital for 5 blood transfusions. It is off and on constantly but when it’s on it’s one of the worst feelings. I usually don't leave home and when I do I go to places where I know where the bathroom is. Also, ulcerative colitis makes you more prone to blood clots which I also was diagnosed with.

Comment from: yinga, 45-54 Female (Patient) Published: October 08

I was just told I have colitis. I am so thankful that it is not a tumor or cancer. It can be treated with medications. My symptoms were the pain I had at the base of my shoulder blades in my back. Then came the stomach cramping and bloating. Loose stool is something I have had for years never thought anything about it.

Comment from: Bean, 45-54 Female (Patient) Published: October 08

I recently got diagnosed with Collagenous colitis (CC) after having chronic diarrhea with cramping for 4 months. I had a colonoscopy and a biopsy showed protein buildup in the walls of the colon. I was prescribed Asacol 800 mg 3 times a day and took them for 3 weeks. My diarrhea did not stop so I quit taking it because my joints and back were starting to ache and was feeling tired. I have not contacted my doctor again. I want to try some natural things on my own, like keeping track of what does not get digested so not to eat it. But I am a lacto-ovo vegetarian (not many food choices) and find I have trouble with raw vegetables, especially bell peppers and tomatoes, anything with skins and fruit as well. I also love nuts and find they are not digesting. I don't think I am lactose intolerant because cheese does not bother me. I did start drinking a whey protein shake, made with water a year ago and quit 2 months ago. I also had surgery on a long-standing non-union in my arm which involved removing 4 inches of my bone and replacing it with cadaver and bone from my hip and a rod and screw. I was in the hospital for 8 days and received 5 different antibiotics through my IV to prevent infection. I believe this is the culprit. I am 54, work out at the gym 5 days a week and spend a lot of time outdoors. Imodium does not help anymore. Pepto Bismol does but you are not supposed to use it more than 2 days. I do not take any over the counter drugs or prescriptions. Some days I have 12-15 bouts of diarrhea, mostly in the middle of the night and morning and after meals.

Comment from: allardp, 75 or over Female (Patient) Published: August 14

I was diagnosed with colitis after having a c-section with my 4th child a little over a year ago. I have always had trouble using the bathroom, but mostly it was not being able to go. I was experiencing terrible stomach cramps, loose stools and I lost 30 pounds within a month of giving birth to my daughter. I also had major bloating issues. I finally went to my doctor after 2 months of suffering and discovered I had colitis. This was a relief to not be dying! I was given some type of good bacteria to balance me out. I noticed that most times when I experience symptoms it is due to greasy foods, soda, sweets, and coffee. So, I try to stay away from this foods and drinks. I have a few problems during my monthly cycle the cramps are terrible, but with medications I am ok.

Comment from: 65-74 Female (Patient) Published: August 14

I am a 71 year old female. I was diagnosed with celiac sprue and microscopic collagenous colitis. With wheat free diet the diarrhea came under control. However in February all hell broke loose and I am still suffering from severe diarrhea and night time fecal incontinence with no relief in sight. I've tried Entocort, Pepto Bismol and at least two anti-diarrheas. I think stress must play a huge role in all this. I'm pretty much ready to just give up. All of my children live away as well as my dad and sister from me so I like to travel and visit them. I also like to travel with a group of friends and travel to take art workshops. I play a flute in a concert band and I want to keep doing these kinds of things. I keep telling myself hang in there. You'll make it through this as tears are streaming down my face and something brown streams down my legs.

Comment from: louise, 25-34 Female (Patient) Published: August 14

I was diagnosed with ulcerative colitis three years ago when I was 7 months pregnant it started with weight loss and diarrhea then the bloody diarrhea then the pains come and no painkiller would work. I was admitted to hospital for 8 weeks where I underwent several tests and was released on prednisolone and sulphalazine for a year. I was fine then it came back worse than ever I ended up having an ileostomy on my twenty fourth birthday. I felt much better, but hated having a poo bag. After eighteen months I had it reversed and had an ileo anal pouch created. I go to the toilet six times a day, but I feel one hundred percent better.

Comment from: AB, 45-54 Female (Patient) Published: August 14

I was diagnosed with both collagenous and lymphocytic colitis after months of diarrhea, severe pain, fatigue and burning in my abdomen and digestive track. Sometimes I am nauseous and have severe headache. Sometimes I also have a fever and trembling. We thought it was started by a virus, but after the colonoscopy, it was severe microscopic colitis. I'm struggling with depression from the constancy of this disease. I eat and I get sick. No exceptions. I do not digest the food and it is recognizable in the end result. Imodium did not work at all. Now I'm taking Lonox (generic for Lomotil) and it is mildly working. "Mildly" means I still get sick, but the medicine gives me hours between incidents instead of constantly sitting in the restroom. Right now my goal is to systematically try everything from standard medicine to alternative ideas to find a way to manage this for my lifetime. So far, I know I cannot eat spicy food (which I love and I am grieving) because the level of pain is escalated and it causes fever, cramps, burning and trembling. I have also found that eating too much food causes an immediate reaction versus eating tiny meals gives me less cramping. Fatty foods, green/red peppers, deep fried foods are all extreme agitators. Chicken, beef, shrimp seem to be lesser evils as does rice and potato. I'm on a quest to discover a way to live with this but I feel like it has shortened my life. I eat and I'm sick. I don't eat and I starve. There has been no in between. I am making another appointment with my doctor to discuss other options and to find out if there is a support group in my area.

Comment from: catwoman, 65-74 Female (Patient) Published: May 01

I was just diagnosed with colitis today. I will begin with medication. My only symptom has been diarrhea, which I have had my entire life. I thought it was "my normal."

Comment from: daisy, 75 or over Female (Patient) Published: November 17

I think I may have colitis.

Comment from: Juanita, 75 or over Female (Caregiver) Published: June 28

My mother in law is 91. She has had colitis for many years. We recently brought her to live with us. This is all new to me. Sometimes I feel very useless when she is having problems. She is also very sore down there. She is very stubborn about looking after herself.

Comment from: Vijay, 25-34 Male (Patient) Published: March 26

I have pain in the abdomen. After diagnosis by sonography doctor found colitis, thickening of ascending wall of colon.

Comment from: Bellypain, 55-64 Female (Patient) Published: March 13

I am diagnosed with ulcerative colitis and have experienced pain in lower right abdominal area.

Comment from: tink, 25-34 Female (Patient) Published: December 16

I'm trying to find out what I can't eat. I was diagnosed with colitis last year and I've had four kids and there's no pain like what I've been dealing with and it seems some foods make it worse.

Comment from: icfmike, 65-74 Male (Patient) Published: October 15

I have had colitis (ulcerative proctitis) for 32 years. Sulfasalazine allowed me to live, but I still have minor flare ups. Since '07 I have been eating yogurt with live active bacteria and I have more energy and fewer trips to the toilet. A positive attitude helps a bunch too.

Comment from: catshine, 55-64 Female (Patient) Published: August 23

I was told I have ulcerative colitis 5 years ago. However I have always been constipated. My stomach swells and I go days without going. Now when I go there is a heavy white mucus on my stools. The pain is on my left and right side now. I do not have insurance since being forced to retire. Does anyone have any suggestions on how I can get help?

Comment from: 45-54 Female (Patient) Published: October 07

My colitis started with sever shooting pains on my left side right below my ribs and going down my abdomen and to the back of my left side.

Comment from: gts3, 65-74 Male (Patient) Published: October 07

After three years of ongoing gut problems, the symptoms of which are on and off gut pain, mild to severe diarrhea, followed by semi symptom free days, I've managed to go for three weeks with no symptoms. This, following the removal of my sigmoid colon three years ago, and the removal of my gall bladder 4 months ago. I'd begun to suspect parasites, (doc blew it off) due to the cyclical nature of the symptoms and after a blow out 13 times in 12 hour bout of diarrhea and being symptom free for the next week after that followed by a colonoscopy, (and the prep for that) remaining symptom free for another 2 weeks. To make it more confusing I read a book relating what you eat having a great deal to do with your blood type and have been doing very well on the diet suggested for my blood type. There are multiple scams out there with this kind of stuff attached but this makes enough sense to try.

Comment from: Betty Lou, 45-54 Female (Patient) Published: October 07

My problem started 5 yrs ago. I have been to the hospital and to several doctors and emergency rooms. No one could figure out what was wrong until recently. I had abdominal pain and fever and couldn't eat and had nausea. Now I am on treatment with metronidazole 3 times a day, I have taken for one week now and I was doing good but today my fever is back and also the same problems. Thank you for these comments, it helps to know I am not alone and give me some things to try. Just never give up and stay strong.

Comment from: THE GREAT ONE, 45-54 Female (Patient) Published: September 16

I have been experiencing extreme abdominal pain since last year. I have lost over 20 pounds, and I rarely have an appetite. I had a colonoscopy and an endoscopy done a few months ago, and I also had an abdominal CT scan. I was diagnosed with diverticulitis after being treated for a bacterial infection. Ever since the endoscopy, I have had severe abdominal pain, and I am now searching for a specialist who can order further testing because I really would like to know what’s wrong. I am also very bloated and my stomach is inflamed.

Comment from: lenny, 55-64 Male (Patient) Published: September 16

Hi. Well, I had a stroke on March 19th 2001, then shortly after that I developed colitis. I was told that it was a mild case, but if that is mild, I am certainly glad that it is not severe. I take Pentasain to slow my frequent trips to the bathroom – and it does seem to help. I also take Imodium in order to prevent diarrhea, and I also take pills for lactose intolerance just in case that might be the cause. What I find most annoying about colitis is that my symptoms seem to fit all the signs for the condition, so I am finding that I take lots of pills to keep from having another flare-up.

Comment from: beastus, 45-54 Female (Patient) Published: September 16

I had bad stomach cramps, pain and diarrhea for thirteen days. My doctor put me on a medication called Flagyl, but it hasn't helped that much. The pain is not as severe, but I’m still experiencing cramps and diarrhea or loose stool.

Comment from: Scrubbs, 45-54 Female (Patient) Published: August 25

I was reading all of the comments, thanks! Now I have a better understanding of Colitis. Mine started after taking an antibiotic. I had it for about 4 months, and 20 lbs later until I had a colonoscopy. I know this will come and go, but now I know what I’m dealing with.

Comment from: baslod, 25-34 Female (Caregiver) Published: August 14

My husband was diagnosed with colitis several years ago and suffered so bad he was to have his bowel removed. We were asked if we had all the family we were looking for as the op would most prob prevent this. Meanwhile he was on a list to be operated and saw a program about Aloe Vera and the soothing calming effects it has. My husband had a few phone calls to tell him the operation had been cancelled and another date given. This happened three times. Meanwhile he felt better and better and decided to stop his medications. The operation was cancelled, but not by the surgeon, but by my husband and he has never looked back. 100% aloe vera has calmed the disease down and saved him from operation.

Comment from: jsc1, 25-34 Female (Patient) Published: May 26

I have had Ulcerative Colitis since I was about 15 years old. I take 1600 mg of Asacol daily. I used to have flair-ups about 3 times a year, and at those times I used varieties of steroids and increased dosages of Asacol. I have learned that for myself some triggers include pregnancy, increased stress, and being on too little Asacol. I have had little problem with chronic diarrhea, but I have always had rectal bleeding during flair-ups. I tend to have small bouts of abdominal pain at times, and at the worst times of my disease I have been in severe pain. I am happy to say that I have been in remission for 3.5 years now!

Comment from: squirt, 65-74 Male (Patient) Published: May 26

I have diarrhea, sometimes after I eat, I will have a bowel movement within a few minutes after I eat. Some liquids like coffee will "squirt" out with my stools. It is very watery diarrhea right after eating. Sometimes my bowel movements smell very bad like almost horse manure. My doctor gave me, I believe Bentyl, but it did no good. Stool samples came back okay, but these pills never helped.

Comment from: caligal55, 45-54 Female (Patient) Published: May 26

I am a 53 year old female who started having chronic diarrhea about 4 months ago. I had no idea what started it and I had tried Imodium AD, Lomotil and Kaopectate nothing was working finally my doctor sent me to a GI doctor and he ran another set of tests convinced they missed something in the 1st round, but nothing showed up. So I had to have the colonoscopy, but that couldn't even go right apparently 99.5% of people have no problem. They are given a sedative and they are in and out and don't remember anything. I was 1 of the .5 who felt everything and remembered everything, so I was not a happy camper and they couldn’t finish my tests, but I guess they found out enough to tell me that I have Lymphocytic Colitis and the 1st med they gave Asacol didn't work, so now I am trying the steroid Entocort and I believe it had better work because it is very expensive my co-pay was $160.00 so here is to hoping it works.

Comment from: tpgirl, 25-34 Female (Patient) Published: May 19

I was diag with colitis 7 years ago. At first I would be in pain from the cramping and felt like I had to go, but I would sit there for an hour and nothing, just bad pain. It got to the point where I was passing blood and feeling like I was going to pass out from the pain. I have learned stress really brings on flare-ups. It is hard when it happens at work as my supervisor is an idiot and disregards it. I finally got FMLA so when this happens I can tell her I am leaving on FMLA and she can’t ask any questions (legally), but she does. Having this sucks, but over the years I have learned to live with it.

Comment from: Pittsburgh Female, 45-54 Female (Patient) Published: May 19

I'm a 54-year-old female, recently diagnosed with collagenous colitis. I experienced symptoms of menstrual-like cramping, a sense of fullness, and cramping after a bowel movement, since I was diagnosed with celiac sprue disease 2 years ago. I thought my symptoms were caused by refractory celiac disease. However, the diagnosis of colitis was confirmed after a colonoscopy and biopsy of tissue. I've been taking Asacol 1600 mg a day for the past 10 weeks. I've had significant relief while on the Asacol, but I always have a flare-up when I'm under stress. Then, I feel weak, tired, my legs and lower back ache, and I have abdominal cramping.