Patient Comments: Coccydynia - Symptoms

Question:

What symptoms did you experience with your coccydynia? Submit Your Comment

Comment from: Sam'l, 65-74 Male (Patient) Published: August 16

I have pain in my tailbone (coccydynia). I am 73 years old and I received an injury horseback riding, I was 17 then. When riding briskly, the horse kept coming up while I was going down and I got a broken and dislocated coccyx. I was bleeding when I got home and never told my folks. If I had spoken up I could have had the break reset and I could have avoided many problems such as having a cyst removed from my lower back at age 20, it was full of bone chips and hair. It curves out instead of under.

Comment from: Andi, 25-34 Female (Patient) Published: September 11

I've had chronic coccydynia for nearly 7 years now. When I had my son somehow a piece of bone was chipped off my coccyx and it was dislocated. I have had many surgeries and treatments, and radio frequency facet joint injections made it worse. I have given up with any further treatment and have accepted I have this for the rest of my life.

Comment from: Mooney, 25-34 Female (Patient) Published: July 11

I fell down while ice skating back in November. I felt like a pulled muscle in my left buttock so I just rested for a month and it went away. In January I started feeling pain in my tailbone. The orthopedist said I developed coccydynia/cracked tailbone and told me to rest when I can, use a pillow when sitting, and do wall squats and planks. Pain subsided 4 months later for a solid month, more so after seeing the chiropractor for my unrelated neck pain and scoliosis. Then the pain came back in June. Ugh.

Comment from: Altaf Khan, 25-34 Female (Caregiver) Published: March 19

My wife is suffering very seriously from coccydynia since one year and the pain of coccydynia travels up to her knees. The physician has recommended surgery for treating her coccydynia. I am worried if there is 100 percent chance to recover from coccydynia and patient will be normal as before coccydynia, or if there is a chance of her getting paralyzed if she goes for surgery.

Comment from: Godisbig, 45-54 Female (Patient) Published: November 13

My oldest son was a big baby and was born posteriorly. After his birth, my tailbone pain was excruciating. I did not have an epidural during labor and am usually pretty tough. The coccydynia was confusing and scary. My chiropractor diagnosed the fracture of my coccyx when my son was 2 weeks old. He manipulated me 2 times each week (always external) and suggested exercise. I thought he was crazy when he told me to move more. My instinct was to guard and rest. I hated to admit he was right.

Comment from: Vishal , 25-34 Male (Patient) Published: April 02

I have undergone surgery in 2010 for coccydynia. Now I'm literally getting some serious pain in my rectum, there is an open hole and pain continues for 2 hours, and later it reduces.

Comment from: Suzie, 55-64 Female (Patient) Published: July 17

I have tailbone pain, it came on about 4 months ago out of the blue. The main problem I have is when I sit down. Sitting for more than 15 minutes is just too much. I don't know what to do. I am so fearful that coccydynia is going to become a lifelong problem for me. I'm going to be seeing the doctor in a couple of weeks, but at this point after reading everything I have, it doesn't look like there's a whole lot that can be done that really helps.

Comment from: taylor, 35-44 Female (Patient) Published: July 12

In March 2014 my breast became quite painful and very hot. The nipple was enlarged and my breast resembled an overripe tomato. A needle biopsy and a mammogram were done. I was then scheduled for outpatient surgery and the breast, containing a large amount of pus, was drained. The incision was left open to heal naturally. By September I had contracted pneumonia and the breast had filled again. After spending 2 weeks in hospital being treated for pneumonia, my breast was again drained and incision was stitched, leaving just a small ¼ inch tube near nipple. The day I left hospital the tube was removed and the area stitched. That incision has never healed and I often find my night clothes and sheets speckled with blood. I have also spent the past 12 months on oral antibiotics. I experience incredible pain that radiates from the breast, under my arm or down my arm and occasionally pain spreads to other breast. I had an ultrasound done last week and fortunately it did not show any masses. The doctor has offered me two choices; admit me to hospital for a series of intramuscular antibiotics or remove the breast. One side effect to all the antibiotics was the fact that numerous teeth crumbled and I was admitted to hospital, put under general anesthesia and 5 teeth removed. As I suffer from COPD general anesthesia is not the best option but we shall see what my doctor says next week.

Comment from: Wayne, 55-64 Male (Patient) Published: March 11

I've been on narcotics for 29 years now, 17 years of methadone and the rest morphine. I was cut off my methadone once because they thought I was faking my pain. After 6 1/2 months without sleep from drug withdrawal and a near death experience, I was then put on morphine. My coccydynia still prevents me from doing things I enjoy. I've had 9 epidural injections and unknown cortisone injections. This has started making everything hurt. It is hard to urinate, sex is painful, and constipation is a constant problem. I've had my prostate checked, MRIs, CTs and no finding the root of the problem. I'm past ready to give up.

SLIDESHOW

Pain Management: Surprising Causes of Pain See Slideshow
Comment from: lynne, 65-74 Female (Patient) Published: February 12

I've had pain in my coccyx and/or hips and/or lower back for years. The only trauma I can think of was falling down a flight of wooden stairs many years ago. I have had x-rays, scans, etc., and nothing was found. The coccydynia pain will include spasms down my leg. I can't sit for longer than half hour before having to lie on me side, walking is almost impossible and I can't stand for long. It gets me up several time every single night. Doctors are no help, and pain relief medications are no help. Nothing helps as I have never had a clear diagnosis of anything. It is so depressing. I've lived with it for nearly 20 years.

Comment from: arnicareworksforme, 55-64 Female (Patient) Published: January 29

I was trimming trees three years ago and fell backwards/sideways off a 10 ft. ladder. I had full x-rays, no fractures. Now I have off-and-on dull ache limited to tailbone. The bone is actually aching. Suggested by a Whole Foods clerk, I began using Arnicare cream, (or gel, either works well) rubbing into bone whenever it bothers me. I get good relief from coccydynia, it works with your body heat. I was a skeptic, now keep it in my purse, bedside, never without it. It is affordable and no side effects, just relief. You can just keep applying it with no toxicity. I think my fall knocked my tailbone slightly sideways. I am 5'4', 125 lb., but I was heavily bundled, it was December. I stay off ladders now!

Comment from: Madeline, 75 or over Female (Patient) Published: August 27

I have had coccydynia since the 1980s. It never goes away and was excruciating for years. Nothing showed up in MRI or x-rays. It is thought to be nerve damage. I always use cut out cushions or donut pillow. Now I take an anti-depressant that helps lower pain, Lyrica for nerve pain and Norco twice a day. My pain level stays low now. At night I take an ice pack to bed to hold against the coccyx when sleeping on my side. You can see, I treat it at different levels, not just with Norco. Without these multi-disciplinary measures my life would be horrific.

Comment from: female patient, 65-74 (Patient) Published: July 30

After surgery for scoliosis - fusing L 2 thru L 5 - not only did it not at all help the really bad left SI (sacroiliac) joint pain but I now also have extreme coccyx pain. Especially along the left side and very bottom. My left leg is weak and I trip over things easily. I've tried physical therapy, cortisone and RFA (radiofrequency ablation) injections to no avail. My life has gone from being a really active person to virtually no activity at all.

Comment from: twig, 45-54 Female (Patient) Published: October 15

I had a fall in February 2012 and got coccydynia. The pain began within 2 days and has never gone away. I have had lumbar epidural, steroid injections, Norco, Celebrex and Flexeril; I have been to the chiropractor, tried acupuncture, I also had one emergency room visit. It feels as though if I poke a hole in my tailbone, the blood would fly like from a pressure cooker. I have lost my appetite and depression is creeping up on me.

Comment from: Concerned, 55-64 Male (Patient) Published: August 03

Yesterday I had pain in my left knee behind my knee cap. I went to bed and when I woke up my leg wasn't hurting anymore but now my back left shoulder blade is hurting. I could barely walk on my knee the other day and now I can barely move without having a lot of pain in my shoulder. I wonder if this could be a blood clot.

Comment from: Newf, 55-64 Male (Patient) Published: July 30

I had a serious pilonidal cyst removal 40 years ago they took off part of my tailbone. I'm 62 now I took a very hard fall 2 months ago hitting it hard. It is still very painful and doesn't seem like my doctor wants to do anything about my coccydynia, no x-ray, nothing; just pain pills. It doesn't seem there is anything to do about it.

Comment from: bobbi, 55-64 Female (Patient) Published: March 08

My 9 year old has occasional stomach aches with bouts of diarrhea. I wonder if this could be stress related as he has no fever, vomiting, or recent sickness.

Comment from: jp, 45-54 Female (Patient) Published: February 17

I have been to three orthopedics, they all are giving me different diagnoses, I believe what I have is coccydynia. I have been suffering from this for the past year. It is now acute, I have tried physiotherapy, four spinal injections into the SI (sacroiliac) joint, piriformis muscle and facet joints. I also have had physical therapy upon onset of the pain and chiropractic manipulation now 2 times a week, and that is all out of pocket. I was very active, swimming, working out, etc. Now, I basically can't do anything, pain standing, pain sitting and even sleeping. Sometimes I get relief from swimming and stretching and later on there is the pain again. I have two young children ages 14 and 12 and a great husband that needs me. But, I don't want to be a burden for my family, I am supposed to take care of them. I am not optimistic anymore, sorry to say. These doctors give you hope, because they make money off of you and there is no hope for this.

QUESTION

Medically speaking, the term "myalgia" refers to what type of pain? See Answer
Comment from: ToxicChatter, 25-34 (Patient) Published: August 13

I am working for a BPO (business process outsourcing) and have had pains on the tailbone area. I have no pain on the buttocks, only on the tailbone, but it is really giving me a hard time to sit and stand.

Comment from: Monica, 25-34 Female (Patient) Published: July 22

I once experienced pain at my tail bone (coccydynia) after sitting for over 5 hours on the office chair. On getting up, I could not even walk well due too much pain but I went to see my doctor who treated me with tablets of Myospaz and Neurorubine and I got better.

Comment from: Steve, 55-64 Male (Patient) Published: May 14

I had one surgery for coccydynia that resulted in removing the tip of my tailbone after it was discovered during surgery to be fractured. It has been 5 months since surgery and later I had trigger point shots but pain in tailbone still exists. Surgeon discouraged and since tried everything else; trigger point shots, epidermal, physical therapy, etc. Now I am scheduled for another surgery to remove balance of tailbone.

Comment from: Ginny, 75 or over Female (Patient) Published: December 16

I am 83 years old but still am active. I have had serious back pain most of my life due to my severe scoliosis. I have had surgery for three areas of stenosis in 1997 which alleviated the pain for about 18 months and then it recurred. I have had approximately 35 injections in my back over the years and at this point am pretty much resigned to using Celebrex and Ultram, both of which help somewhat. But I am very upset that all of a sudden I have coccydynia on top of everything else. I have had 3 injections that helped for a few days each and am scheduled for another soon. Coincidentally I have also developed severe constipation over about the same time period. I also occasionally have a problem urinating. I am wondering if all these things are related.

Comment from: jennyone, 55-64 Female (Caregiver) Published: January 27

Sitting have gotten painful I'm finding out it's only when I say on my bed, at work when sitting I have not experience an pain when sitting, Lately I have to lay on my side after sitting for periods of time in my bed, the feeling is strange it almost feel like the "cushion" is gone from my buttocks, putting something soft under to sit on helps somewhat but the pain/throbbing is still present. I'm 57 going through menopause.

Comment from: injured and abused, 45-54 Male (Patient) Published: February 25

I suffered severe injury on the job in Saskatchewan, Canada. I developed coccydynia in 2006 two years after suffering trauma to my tailbone.

Comment from: SUECAMPBELL, 65-74 Female (Patient) Published: February 26

I am 70 years young, first problem was I fell skating at 11 years old, I could not sit because when it was time to get up, I could not. Over the years many x-rays and MRIs were no help, last week my daughter took me to emergency room. In one of the best trauma centers they x-rayed and took CT scan, but could find nothing, but 3 days later we went to one of the top spinal doctors. From the same film he saw a cracked vertebrae, could not even see the end of tailbone, took new film of his own, and said my tailbone was enlarged dramatically. He gave me new pain medicine, muscle relaxer and something for arthritis.

Comment from: Lushdon, 45-54 Female (Patient) Published: October 15

I have suffered from coccydynia for two years. The orthopedic surgeon administered three Cortizone shots under anesthesia. I have had physical therapy upon onset of the pain and chiropractic manipulation. I recently went through 6 weeks of physiotherapy. The therapist thinks I have periformis syndrome. The periformis muscle in the hip is pinching my sciatic nerve. I have had relief from the pain but the tailbone is still sore.

Comment from: Aggie PT, 25-34 Male (Caregiver) Published: October 08

A good physical therapist (preferably a pelvic floor therapist) can help with coccydynia symptoms using various manual therapy techniques such as muscle energy techniques, strengthening and stretching the right muscles, joint mobilizations, etc. I have helped several people with a painful/tender coccyx go from 8/10 pain to no pain at all. Physical problem-physical solution. Most of the time surgery is not needed.

Comment from: prowrestler, 45-54 Male (Patient) Published: August 01

I'm 47-year-old former pro wrestler and I just started hurting about 4 months ago. I ride a motorcycle and it hurts going down the road right above the crack of my butt. It also hurts when I sit for a long period of time. I have found some stretching exercise helps the pain, but it doesn’t go away.

Comment from: tee, 45-54 Female (Patient) Published: July 15

I am a 48 year old female, that has been experiencing this PAIN! in my butt. as I sit the pain awful, so I can't sit for long. had all kind of test done with no results as to why I have it. all I can say is Wow I'm not the only one.

Comment from: Mary, 45-54 Female (Patient) Published: January 22

I have had 2 lower back surgeries and now have this coccyx pain. Riding in the car and sitting make it even worse. Getting up after sitting is extremely painful. I am like everyone else posting here. I am sick of this pain all the time.

Comment from: lashall43, 35-44 Female (Patient) Published: December 18

My tailbone pain started in the middle of 2011, I put up with it as long as I could. I finally went to see my doctor in February 2012. Of course I ended up in pain management. I have had three injections, and am getting ready to have a fourth. I'm on pain medicine now. First it was Hydrocodone, now I'm on Oxycodone, a much stronger drug. But the pain will not go away, it just came out of nowhere. I was thinking it came from sitting on hard chairs at my church. But I'm in pain all the time and it will not go away. Not sure what to do next.

Comment from: rykerjem, 55-64 Female (Patient) Published: October 17

I have cocydynia due to levaquin and predisone posioning. The MRI shows extreme inflammation to this area. The pain is horrendous, I cannot walk nor sit. I cannot take steroids or pain meds. I cannot get the inflammation to go away and cannot take anti-inflammatories as this makes the levaquin damage worse. I cannot live like this much longer. It has been 5 months of shearing pain.

Comment from: Judy, 45-54 Female (Patient) Published: September 19

I have been experiencing tailbone, sacral area pain for the past year. Very neurogenic type symptoms. I have a Tarlov cyst on my S3-S4 nerve root and according to doctors that is not causing my symptoms, although information online states it can be symptomatic and all the symptoms mentioned I have. How can you definitely diagnosis coccyx pain? I’ve had no specific diagnosis yet and I have tried every neurogenic pain medicine, 3 epidural injections, anti-inflammatories and nothing helps. For the gentleman who is having intermittent pain when waking up, it could be proctalgia fugax. I am so frustrated I could scream.

Comment from: Tailbone pain lady, 55-64 Female (Patient) Published: September 19

I overdid it. I was traveling by car, lots of sitting, and lots of walking. I came home exhausted with lower back pain, but tolerable. After a week something aggravated it, perhaps some heavy lifting or maybe even sex. My coccyx hurts along with the lower part of my tailbone, and deep in my groin, more while sitting. It feels like I’m sitting on a rock. It also hurts when I’m lying directly on my tailbone. I need to lie on my side which is now sore as it's taking the brunt of the load. The doctor is not very helpful, after 2 months of pain he finally ordered an MRI but not of the coccyx region. He says it is arthritis, but I don't think my symptoms correspond. Although it could be. In the beginning walking helped relieve the pain. Now it gets worse after a short walk. I thought it was my sciatica piriformis muscle, but now I think it is a stress fracture.

Comment from: CrainHouse, 13-18 Female (Patient) Published: November 08

For the past five months, I have been getting pain in my tail bone, and I have seen my doctor about it. She explained it is coccydynia. I was then given medicine and the pain calmed down slightly, although the pain was still there, it was bearable. It has worsened. I am still taking the medicine two times a day, as it explains on the packet, but I still get pain when sitting down on school chairs or benches and when I try to get up after sitting for both long and short periods of time.

Comment from: kimmymo, 35-44 Female (Patient) Published: February 15

My pain started after I was in month long training sessions and driving. It has been going on for about 9 months now. Sitting for long periods is awful, especially in meetings. I must look crazy trying to switch my position constantly. I have had an X-ray, CAT scan and MRI, all show no fracture, no bruising? I swear when I sit in the car I feel like I am sitting on a golf ball. Sitting on a tailbone pillow helps, but this is crazy.

Comment from: Suffering, Female (Patient) Published: December 01

I am a chronic sufferer of coccydynia. I am actually having a bladder suspension done to see if getting pressure off of the pelvic floor will relieve any of the pain. I would like for someone to explain what a "resection of the coccyx" is. Maybe this could help with the pain. I either lie down or stand up and have to stay home most of the time.

Comment from: 35-44 Female (Patient) Published: June 18

Coccydynia feels like a hot, dull knife and is the worst just before, during, and after my menstrual period. I was diagnosed in high school and it's been intermittent ever since. A cortisone injection did nothing, possibly even made it worse. Anti-inflammatories help a little. I get the most relief from a TENS unit.

Comment from: groomer, 45-54 Female Published: March 07

I passed out from tailbone pain, while having a bowel movement, because the pain was so bad. I went to the emergency room and they did an MRI of my head and regular X-rays of my lower back, but saw nothing wrong.

Comment from: michael, 25-34 Male (Patient) Published: February 22

I'm a 28 year old male and generally have very good health. I have been experiencing this incredible acute pain in my tailbone for several years. I have been to my doctor numerous times as the pain is absolutely unbearable, but my doctor does not seemed concerned whatsoever. I consider myself a pretty tough guy, but when this pain hits, I’m in tears it hurts so much! The issue I’m having is that the pain is not caused by anything in particular as others have posted. Many times I’m sleeping and I suddenly wake up with this pain, or I’m simply walking at work, driving in my car, etc. I find the only relief is to lay flat in bed with 2 pillows under my butt and bearing down (putting pressure on it) and wait it out.

Comment from: sam, 25-34 Male (Patient) Published: July 29

if stand, walk and sit for a prolonged time pain starts and it rises upwards and if at that time if I managed to sleep on a very soft surface I feel relived otherwise the pain is intolerable.