Patient Comments: Coats Disease - Signs and Symptoms

Question:

What were the signs and symptoms of Coats disease in someone you know? Submit Your Comment

Comment from: Concerned sister, 45-54 Female (Patient) Published: August 07

My sister just had 25 percent of her lower left lobe of the lung removed due to cancer lymph nodes removal. It is all clear. Margins around tumor are clear. She is home and it is day three. She has gained 10 lb. in water retention and can barely breathe, not sure if this is normal.

Comment from: Leafclover2002, 25-34 Female (Patient) Published: February 10

When I was 15 I was diagnosed with this Coats' disease. At that point there was only 2 sentences that described this condition. I was the 3rd female in the USA diagnosed with this. I have been blind in my right eye since going through radiation and surgery in 2000. To this day it is very hard for me to look at myself in the mirror because I have a lazy eye and nothing can be done with this. I wish there was something more that could be done with this so people don’t have to go through what I am going through.

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