Patient Comments: Cluster Headache - Symptoms

Question:

What symptoms do you get with your cluster headaches? Submit Your Comment

Comment from: Coop, 65-74 Male (Patient) Published: March 26

My cluster headaches start with pain in my right temple which builds rapidly, my eye orbit, upper jaw and right ear join in. Eyelid droop, stuffy nose, tearing, and neck pain are regular symptoms. Occasionally I have sharp pain at my hairline on the center line of my forehead. They started in 2003 as chronic and now are just cyclic. I use lidocaine nasal spray and Imitrex injections. Ask your doctor about Solu-Medrol 24 hour drip.

Comment from: Sally, 75 or over Female (Patient) Published: September 05

I was diagnosed 6 years ago with cluster headaches. My beginning symptom is a yawn followed by many more for up to 2 minutes. During that time my eyes water, nose runs, and I have pain in ears, forehead, jaw, etc. A definite cause is my ears getting cold. I keep a scarf over my ears at all times when I step outside. Air-conditioning, cold wind, etc., all start the yawning, pain and watering seemingly within moments of each other. I cannot lie down during this time and find myself rocking or pacing till the pain slows down. Also I have them just after I am peacefully asleep. After they subside I feel exhausted and heavy laden in the head. No one else seems to have these symptoms and I wonder why mine are different.

Comment from: Dannystormborn, 25-34 Female (Patient) Published: August 28

I've been diagnosed with cluster headaches and have dealt with them for the past 10 years. I get them predominantly on my right side (though I have had a small handful on the left side over the years). It's an unbearable pain that radiates from my temple and around my eye, and my jaw. My right eye drops and the pupil is noticeably smaller. I've also checked my heart rate during an attack and have found that it actually drops, I'd be interested to know if anyone has noticed the same.

Comment from: LKD, 55-64 Female (Patient) Published: April 02

I am a long time sufferer of cluster headaches (CH) for about 40 years now, so I have tried all the drugs and treatments. The closest pain description of my CH is like having a brain freeze for 4 to 6 hours at a time, along with the droopy eye, stuffy nose and burning sensation when breathing, and nausea/or vomiting. The seasons and durations have changed throughout the years. My season usually starts February through May for about 6 to 8 weeks with a minimum of 30 plus attacks I couldn't stop. Nowadays, an attack will wake me up just before the deep sleep and re-occur 2 to 3 times a night or early morning if I can stop an attack. I hated the side effects of all the preventative medicines so I stopped using them, not to mention the cost, and by the time they start to work, my season was about over. Alcohol intensifies the pain, but does not cause the attacks, so I don't drink during my season.

Comment from: aml, 45-54 Female (Patient) Published: April 11

I have had cluster headaches for about 7 years now. The pain behind the eye, temple and neck is a pain that I would not wish on anyone. My right eye waters (sometimes droops), along with my right nostril always dripping. I bought a body massager and use that on my temple and any very sore and sensitive area on my scalp. I have taken medications but nothing ever seemed to work. Some nights my cries are a little scary, if you didn"t know me. The pain will make you say some things that you normally would not think to say.

Comment from: Ladylove, 55-64 Female (Patient) Published: November 27

I'm not sure what kind of headache I have, if it is cluster headaches, but it's been there every day.

Comment from: Scott, 45-54 Male (Patient) Published: July 10

My cluster headaches started in October 2013, one or 2 rounds per year from 3 weeks to over 2 months duration. Simply breathing steam from hot black coffee or breathing deep while hot showering in the dark helps me. Steam. Go figure. Beats pacing in agony wanting to die.

Comment from: roxy40, 35-44 Female (Patient) Published: March 28

I have had cluster headaches since the beginning of January. The pain is on the left side of my face. It feels like a stabbing pain. I have pain in the jaw, cheek and neck. The pain is so bad that even touching my hair on my left side hurts, my left sinus cavity is always blocked and I feel all stuffed up. Mine start in the morning and continue what feels like all day long. Left eye tears up and there are times I can"t take the pain. OTC pain medications don"t help, finally started on Imitrex, but the pain is so bad.

Comment from: Katrina, 35-44 Female (Patient) Published: March 25

It seems like almost like clockwork. The cluster headaches could happen at any time of the month it lasts as long as two days. I don"t know why that is, but I wake up with my left side and temple throbbing. Also my left eye droops with a burning pain in my ear going down my neck. I put a heating pad on that side and try to nap, helping it somewhat.

SLIDESHOW

Migraine or Tension Headache? Symptoms, Triggers, Treatments See Slideshow
Comment from: Kevin, 55-64 Male (Patient) Published: March 07

I have severe pain in and around the right eye when I have cluster headaches. The eye is pink and the eye lid is droopy. The attacks are anywhere from a few minutes after I go to bed to several hours later and last for 1 to 4 hours. This particular time is 11 nights straight and counting. I have had these two other times, in 2011 for two weeks and in 2005 that lasted 3 months. I have had all the scans, MRIs, eye tests, etc., and nothing else seems wrong. It feels like my eyeball is in a vise and I have noticed some tautness in the base of my right neck muscles.

Comment from: Grace, 65-74 Female (Patient) Published: February 28

I have been diagnosed by a doctor. My cluster headache is in and around my right eye, the pain is also in my right forehead and radiates somewhat deeper into my head at time, my right eye also waters sometimes and the right side of my nose is involved as well. Sometimes, like now, I am nauseated.

Comment from: Herley, 65-74 Male (Patient) Published: January 27

I have been diagnosed with cluster headaches. The symptoms I have is watery eyes, severe pain around my forehead just above the left eye, the white of the eye is pink in color, point just above the eye is sore to touch, severe headache lasting four days, feeling that my sinus track above my left eye blocked and solid with mucus. This has happened every three or four years in period and has the same effect. The acute pain disappears after around four days then a dull pain slowly disappears, no set time of the year when it gets triggered.

Comment from: wwimmer, 35-44 Male (Patient) Published: November 01

I have severe pain behind my eye, in my forehead, temple and my ear. I get very sick to my stomach. These headaches last 2 to 4 hours.

Comment from: Sally, 45-54 Female (Patient) Published: January 22

I am a severe migraine/cluster headache person who suffers and has been suffering for over 4 years. I have found a temporary fix. I am going to a chiropractor, and this has helped me tremendously. I haven't had a severe headache in over 5 months. I went for an adjustment 3 times a week and now I'm down to once every other week. I am very lucky that this has helped, because I was having a headache every second of the day.

Comment from: 65-74 Male (Patient) Published: August 22

My cluster headaches (CH) started 1966 regular as clockwork every 13 months and same time each day. This pattern changed over the years, currently every 2-1/2 years and random throughout day. I was prescribed medications to block CH but lost effectiveness after a few years. Finally I was prescribed injectable Imitrex. Works like a charm, knocks off CH at outset of symptoms. Can't speak highly enough of this treatment, removes fear of another episode.

Comment from: Noclusters, 45-54 Female (Patient) Published: February 26

I was just diagnosed with cluster headaches. I have severe electric shock/stabbing pain in corner of head. It is on one side only, face does get droopy and OTC medications don"t work. Eye and Jaw are not affected. I just started medications. I have had a quite a few head injuries, I wonder if cluster headaches would just start up for no reason. Well, I"ll see if medication works next time I get an episode.

Comment from: trayloks, 35-44 Male (Patient) Published: August 15

This is a very helpful article as I have been dealing with these headaches for 15 years.

Comment from: PVT01, 55-64 Male (Patient) Published: January 27

My cluster headache lasts from 15 minutes to a maximum duration of about 3 hours.

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