Patient Comments: Cleidocranial Dysplasia - Symptoms

Question:

What were your or your child's symptoms associated with cleidocranial dysplasia? Submit Your Comment

Comment from: Dovie 22, 55-64 Female (Patient) Published: July 18

I was born with cleidocranial dysostosis. I have 2 children who were also born with cleidocranial dysplasia. In my golden years I have had scoliosis and osteoporosis which cause problems. My children and I, all have experienced severe problems with our teeth. We have had three sets of teeth, hearing loss, and numerous other health problems. My children educated themselves on our condition, and have decided not to have any children.

Comment from: astresg, 45-54 Male (Patient) Published: June 18

The symptoms that I have are as follows: soft spot on top of head, wide nose, frequent ear infections, extra teeth requiring surgical removal, underbite requiring shortening of lower jaw, shoulders further forward than normal, protruding collarbone and shoulder blades, curvature of the spine, short in height, small bone structure, and thin, long fingers.

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