Patient Comments: Churg-Strauss Syndrome - Symptoms

Question:

What symptoms have you experienced with your Churg-Strauss Syndrome? Submit Your Comment

Comment from: Marie W. , 65-74 Female (Patient) Published: April 20

The main symptom I experience with Churg-Strauss syndrome is severe fatigue. I am prone to sinus infections and bronchitis, because I also have hypogammaglobulinemia. What bothers me most is the fatigue.

Comment from: Frankiejs68, 45-54 Female (Patient) Published: July 16

I have suffered from allergies, and nasal polyps (removed twice) with Churg-Strauss syndrome. Two holes in intestines, which resulted in a colostomy bag for 1 year. Thankfully it was reversed. I suffer with severe pain in hands and feet. I have had almost all the symptoms except heart, kidneys, and brain. I have gone through all 3 stages.

Comment from: DILLCHIP, 65-74 Male (Patient) Published: December 14

Being on prednisone for 1 plus year, starting at 120 mg down to 10 mg has caused me to gain almost 50 lb. I have blood vessels breaking under the skin every day. Some days the blood vessel breaks through the skin. I have numerous rashes/skin disorders all over my body including my face. This Churg-Strauss syndrome will most likely cause other organs to fail and then kill me. My life has changed drastically; and not for the better.

Comment from: julie, 55-64 Female (Patient) Published: June 27

I also have been treated with prednisone for Churg-Strauss Syndrome and put loads of weight on. I feel I’m just surviving not living.

Comment from: Janet40, 45-54 Female (Patient) Published: April 15

I was previously diagnosed with small-vessel vasculitis. Four years ago, I had breast cancer and was treated with radiation, but no chemo. Four months later, I developed asthma, followed by hives. I saw an allergist and they could find nothing that I was allergic to. After many doctor visits, we reviewed lab work and it was noted I had a high eosinophil count. I did not respond to inhalers, but responded well to prednisone. I just had another exacerbation and the doctor said maybe I have Churg-Strauss syndrome. He wants to do a lung biopsy. I’m wondering if I have enough criteria to be diagnosed without having a biopsy.

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