Patient Comments: Chronic Fatigue Syndrome - Diagnosis


Please describe the events that led to a diagnosis of chronic fatigue syndrome. Submit Your Comment

Comment from: Jokaren, 45-54 Female (Patient) Published: January 24

At 37 I was diagnosed with 4th grade lung cancer, and had the upper lobe of my lung, part of 3 ribs, and part of the chest cavity wall removed. I did chemotherapy, then headaches started found brain tumor. I believed from years of doctors telling me the pain in my back was phantom pain, then all nerves were cut, had severe thoracic pain, and then diagnosed with PTPS (post-thoracotomy pain syndrome) from my tumor being 7 x 9, the size of cantaloupe. My nerves misfire. I started getting the leg cramps, then the fog, memory loss, the throat issues, etc. I finally did the CFS (chronic fatigue syndrome) test, and I was 90 percent.

Comment from: Gmama, 55-64 Female (Patient) Published: July 17

I have chronic fatigue syndrome. I am fatigued all day, no energy. After about an hour up I have to lie down. I also have been just told I have chronic insomnia. I only sleep 2 to 3 hours with medicine. I feel I cannot go on. They just put me on steroids. My immune system is not working right.

Comment from: kingofpain, 45-54 Male (Patient) Published: December 30

I had been suffering a lot of sport like injuries for 3 years along with severe pain in many areas, joints and muscle groups. The recovery times from these injuries were increasing or the injuries would never heal. After reporting to my doctor about the exhaustion I was feeling from my job, he ordered lab work once a month for about a period of three months. Each lab work up showed elevated cytokine levels, chronic vitamin D and vitamin B deficiency. Along with a pressure point exam of my joints and muscles the doctor, a colonel in the regular army said, “I'm sorry, you have fibromyalgia, myalgic encephalomyelitis/chronic fatigue syndrome.” I had only a vague understanding of the term but I may as well have been diagnosed with HIV/AIDS, I would have received better treatment.

Comment from: Joyce Dorcy, 75 or over Female (Caregiver) Published: September 11

This is regarding my friend age 79 who seems to have chronic fatigue syndrome. She gets up around 6 or 7 am. Runs out of energy by 2 pm. Drinks about 8 bottles of water each day. Feels drained by 6 pm and must sleep and go to bed.

Comment from: mel, 65-74 Female (Patient) Published: February 02

I was feeling tired a lot all last year after a virus. Never me! I had shortness of breath with any exertion. I was generally not able to really exercise because of the CFS (chronic fatigue syndrome). If I did I'd get sick with headache and IBS (irritable bowel syndrome) the next day, flu symptoms, and cold symptoms as well. Then I went on a cruise in October. I picked up a horrible flu after the sixth day. I was in bed for 10 days of the trip. I came home and went to bed but never really got over the flu. Any exercise rendered me out of breath with major headaches, IBS and congestion. After four and 1/2 months I am barely better. Blood tests say I am normal. I am not! I am desperate to find answers as I am 66 and had enough stress in my life. I thought that now I might live the rest of my life with some joy, riding my horse, walking. Even going to the store renders me sick the next day. I am beyond being frustrated. I am useless when I used to be an athlete, tennis and show jumping, etc. I think I may be dying sometimes. I need help.


Chronic Fatigue Syndrome (CFS or SEID) See a medical illustration of fibromyalgia trigger points plus our entire medical gallery of human anatomy and physiology See Images

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