Patient Comments: Celiac Disease - Diagnosis

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How was your case of celiac disease diagnosed? Submit Your Comment

Comment from: Qumail hyder rahoo, 0-2 Male (Caregiver) Published: June 28

My son of age 7 years was complaining of abdominal pain since half a year. Some doctors gave germ killer doses, some said no problem kid is acting so as to not go to school. However it was not so. One week ago we again went to the child doctor for the same abdominal complaint and weakness. He asked for TTGG (tissue transglutaminase) test and it came positive with a value of 30 U/L. We are worried now. I studied on your page all about celiac disease. I myself have stopped wheat bread for him while the doctor allowed use of wheat for three months more. After three months we will again retest TTGG and then biopsy.

Comment from: Vicky, 25-34 Male (Patient) Published: December 22

I have had Hashimoto's thyroiditis for about 10 years, it is not a picnic. My heart is missing beats but strong, eyes are getting worse, and knees are wearing out. I used to weigh 160 lb. and was very active. I now weigh 260 lb., feel awful, and cold; so cold. I try to stay away from sick people as I get sick, really sick. I have flu shot every year. I watch what I eat, calories 1400 a day. I feel so hungry sometimes, I feel like an animal. My hair is falling out all over, I have to tie it up to cook otherwise hair in food. Where I sit I have to vacuum every day. But I have a good doctor.

Comment from: Shannon, 35-44 Female (Patient) Published: December 11

I was experiencing hair loss. I have long hair and doctors initially thought it was due to thyroid condition that I did have...but turned out to reverse itself once I started the gluten free diet. I was diagnosed with an endoscopy for Celiac Disease.

Comment from: boyd1964, 45-54 Male (Patient) Published: December 11

It took two years and many doctors before one finally stumbled on celiac in 2001. Symptoms were sore joints, diarrhea, fatigue, weight loss, memory problems, depression, acid reflux. His first response was heavy metal poisoning, but then he remember he'd had his wife tested, and so tested me. I'm now in refractory phase with lymph problems and chronic fatigue.

Comment from: kc, 45-54 Female (Patient) Published: December 11

I started at age 40 with frequent bouts of bladder pain and inflammation that the doctors explained as interstitial cystitis. A few years later the bloating, abdominal pain, reflux and thin floaty stools started. A small bowel biopsy and bloodwork confirmed I have celiac disease. Two years on a gluten free diet the bladder pain dissapeared as well as the other symptoms!

Comment from: celiac and diabetic, 65-74 Female (Caregiver) Published: September 28

My mom of 74 has been in the hospital three times since May. It started with chronic diarrhea for about two weeks then she was diagnosed with being celiac diabetic and colitic. She is on steroid tablets and insulin once a day. She was never sick in the past and has also lost so much weight, she is now 40 kg. I feel she has changed and is very confused and bothered. I am trying to help her as best as I can but she has told me I am taking over her life. She was a very active woman and very independent but I really do not know what to do for her.

Comment from: Theresa, 45-54 Female (Patient) Published: March 16

My celiac disease was diagnosed by a blood test and a biopsy.

Comment from: Iolanthe4, 45-54 Female (Patient) Published: March 22

After 12 years of feeling sick every day and getting lots of medical tests, my doctor ordered a blood test that revealed I had a low B12 level. Eventually, he referred me to a GE: the rest, thankfully, is history.

Comment from: docsfilly, 65-74 Male (Patient) Published: March 05

My celiac disease was diagnosed via colonoscopy. The doctor said that my intestine did not look right, kind of flat at the bottom, so he ordered blood work, and an upper G.I. He said that I was positive for celiac disease. I also had all the symptoms of COPD, which he said may go away, and also allergies. I've been on the diet for a month, and I already feel less bloated, and I am sleeping better. I am looking forward to better health.

Comment from: SusanC, 45-54 Female (Patient) Published: June 15

I had unexplained iron deficient anemia. My primary care doctor sent me to a Hemotologist - the Hemotologist told my primary care to test me for Celiac. The test showed Celiac disease.

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