Patient Comments: Castleman Disease - Experience


Please share your experience with Castleman disease. Submit Your Comment

Comment from: Katy , 65-74 Female (Caregiver) Published: July 17

My Mom has Sjogren’s syndrome, followed by lymphoma and chemotherapy, then pneumonia, and fluid volume overload. After spending 1 year searching for diagnosis, biopsies, exploratory procedures, and splenectomy, she was diagnosed with multicentric Castleman disease, negative for HIV and herpes 8. She had 1 siltuximab treatment, then developed pneumonia, more fluid, and passed away exactly 1 year to the date of her 1st hospital stay.


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