Patient Comments: CA 125 - Testing Experience

Question:

What was the outcome of your CA 125 blood test? Submit Your Comment

Comment from: AShelton, 35-44 Female (Patient) Published: September 22

I had cysts on both ovaries in ultrascan (US), and MRI showed cysts were smaller. I had follow-up with a gynecologist a few months later. He did transvaginal US and saw nothing but some tissue in my uterus. He ran CA125 test and it was 135. Did another test 5 weeks later and it was 170. PET scan showed no active cancer but he still wants to scope and take my fallopian tubes. I’m unsure what else could be causing this number to rise. HCG (human chorionic gonadotropin) levels are normal and low risk for ovarian cancer.

Comment from: Kat, 55-64 Female (Patient) Published: April 28

The outcome of my CA 125 blood test is ovarian cancer. I asked my primary care physician (PCP) 3 times to have a CA 125 test and finally they ordered it. It was 8068. I see a gynecological oncologist in 2 days.

Comment from: B, 25-34 Female (Patient) Published: February 25

Four months ago my CA 125 level was 45. I was told not to worry and just to retest. My level is now 56. I have never had children and I am terrified.

Comment from: Josie, 45-54 Female (Patient) Published: November 11

My CA 125 was over 2000. I had 2 tumors on my ovaries, one the size of an apple and the other a grapefruit, and I also had small tumors on my omentum. I had surgery and now have the blood tests done every 6 months to keep a close eye on me.

Comment from: Julie, 45-54 Female (Patient) Published: September 06

My CA 125 in my blood test came back at 78. I have to go for hysteroscopy and endometrial biopsy.

Comment from: Karie, 65-74 Female (Patient) Published: July 22

I’m having the CA blood 125 test soon along with an ultrasound for a small ovarian cyst. I am post-menopausal and asymptomatic. I already had negative CT and biopsy of uterus. I’m afraid each time I have another test. The anxiety over each test is torture. I know they are looking for ovarian cancer and I’m scared they will find it.

Comment from: Magicpam , 65-74 Female (Patient) Published: August 19

My CA 125 was only 17 when my biopsy came back positive for MMMT (malignant mixed mesodermal tumor) uterine cancer. The tumor was a carcinosarcoma at 6.8 cm. After the total hysterectomy, it went down to 15, then 13, and after 4 rounds of chemotherapy it dropped to 12, and a PET scan was clear. I am now on my 6th and last chemotherapy treatment and the CA 125 was 15 this morning. I am worried it has come back, not sure if that is possible at this time.

Comment from: Tenajeel, 65-74 (Patient) Published: August 06

My CA 125 after 5 rounds of chemotherapy went from 41 to 57. Trying to stay positive.

Comment from: RealMrsO, 45-54 Female (Patient) Published: April 15

My CA 125 is 217. I am awaiting urgent CT after seeing my doctor with abdominal bloating, constipation and pain. Nervous!

Comment from: Marlaynuh, 55-64 Female (Patient) Published: April 04

My CA 125 is 500. I have two solid mass cysts on my ovary, but I also have glomerulonephritis and pelvic congestion syndrome. Surgery on hold until my kidney lab test results improve.

Comment from: Sarah, 55-64 Female (Patient) Published: February 14

My oncologist told me today that my CA 125 was 35,000! He said it was very high. I have a large left ovarian mass. The doctor removed 2 gallons of fluid 2 weeks ago when he did the laparoscopic procedure. I will take 4 rounds of chemotherapy and then have debulking surgery. Cancer is on the colon also.

Comment from: Helen, 45-54 Female (Patient) Published: January 25

I am still worried. I got a pelvic ultrasound and a vaginal one as well 3 weeks ago. I was sent for a CA 125 test and it has come back clear. I got a letter from the hospital to get another pelvic and vaginal scan done. In the meantime I have to wait until Tuesday before I can get a phone consultation from a doctor.

SLIDESHOW

Ovarian Cancer Symptoms, Signs, Stages See Slideshow
Comment from: Jenna, 45-54 Female (Patient) Published: January 03

My CA 125 was 90. The test was done due to a mass on my right ovary. I was devastated thinking I had cancer, after talking to my doctor. It was a 50/50 chance it was cancer or endometriosis but I had to have surgery in order to find out for sure. Two weeks went by waiting on surgery and it was endometriosis! Ladies, I know your stress of the results of an elevated CA 125 test but just know that some medical conditions like endometriosis can elevate this test. Mine ended up not being cancer!

Comment from: ally, 45-54 Female (Patient) Published: November 19

My CA 125 came out 177, the doctor said it was high and she asked to repeat the test. The test was taken last April 2018 and he asked me about my history. I just said my dad died of colon cancer and my mother died of breast cancer. I am confused and worried.

Comment from: Ch32809, 45-54 Female (Patient) Published: November 06

The result of my CA 125 test is 14, and I had an ovarian mass that was, I believe, 5 mm. I am relieved.

Comment from: Bhuvneshwari devi , 45-54 Female (Patient) Published: September 19

I am 52 years old. Three years ago I had an operation to remove my ovary and at that time my CA 125 was around 20. After 7 months after the operation it went up to 5000 and after doing 6 chemotherapy sessions it went down to 32. My doctor said to do checkup after every 3 months. I had nothing at that time, after 1 year my CA 125 jumped to 3300, and again he did chemotherapy. After 6 cycles it went to 254 and he stopped that process and told me to do PET and CT scan. I did that but nothing was found in it. After 3 month of PET and CT, my CA 125 increased to 343. I don’t know what to do.

Comment from: Gregory , 45-54 Female (Patient) Published: September 13

I had the CA 125 test done a couple of weeks ago and my reading came back as 99! I’ve just been for an ultra sound and they couldn’t really see anything other than a couple of fibroids! I’m still really worried, waiting to see the consultant and wondered if I could insist on having further more detailed scans.

Comment from: mb10207, 65-74 Female (Patient) Published: September 04

My CA 125 on diagnosis was 199. I am BRCA2 positive and lost a grandmother and mother from the disease. I am a 25 year survivor as it was caught at stage 2C. I had high dose chemotherapy as the subtype was too poorly differentiated to tell what it was.

Comment from: Karo, 45-54 Female (Patient) Published: August 27

I was diagnosed with ovarian cancer in December 17, stage 4. I had CA 125 at 7000 or more. I was operated and it went down to 3000. After 6 rounds of chemotherapy it went to 700. Now three months without chemotherapy they are going up (the doctor didn't want to give me the number as she said it is more important that I feel good). They will do another test in 3 weeks, but I am worried. I wonder if the elevation could mean that the cancer is in the blood because it is actually stirred up by treatment. I take lots of natural remedies.

Comment from: MF, 35-44 Female (Patient) Published: August 21

I have/had 2 uterine polyps removed 2 years ago, both endometriosis and endometrioma in my left ovary (extensive), a larger uterine fibroid, and also have 2 smaller cysts in my right ovary. All hormone levels are perfect. I have no children yet, but would love to have. My CA 125 test came back with 49. My obstetrician/gynecologist says it is most probably due to everything listed above. Waiting for further exams.

Comment from: Sscott51, 45-54 Female (Patient) Published: August 20

My CA 125 levels are 69.3. A pelvic mass was found by my gynecologic oncologist and I had a CT with contrast done 3 days ago, but I haven't heard from my doctor yet. I only have tubes and ovaries left and had a partial hysterectomy in 2002. Curious what my levels are considered.

Comment from: Honey verma, 35-44 Female (Patient) Published: August 15

I had CA 125 level 380 and then 415 within a month’s gap. I was diagnosed with adenomyosis. I got CT scan and MRI done. All suggested endometriosis and fibroid in the uterus. I got hysterectomy and oophorectomy done at 38 years of age. My fallopian tubes too were badly infected and they too were removed. Right ovary is healthy and has been retained. One year post surgery my CA 125 level is 4. Right interpretation of the test is most important else the patient turns so anxious and goes through agony.

QUESTION

Cancer is the result of the uncontrolled growth of abnormal cells anywhere in the body. See Answer
Comment from: El, 35-44 Female (Patient) Published: August 15

I am 43 years old with a CA 125 score of 46.3, slightly elevated. I have uterine cysts and fibroids, and life-long heavy and difficult periods. I will seek further medical treatment/advice/consultation. I am relieved that my levels are not in 100s or 1000s, like some cases I read about. Best to keep eye on things.

Comment from: Westrada86, 25-34 Female (Patient) Published: August 03

My CA 125 is 110. I am 32 years old. I have a cyst on my right ovary my doctor said it is the size of a baseball. I have no news yet on my results for ovarian cancer yet.

Comment from: PsychRN90, 25-34 Female (Patient) Published: August 01

My CA 125 is 42. Currently I have a 5 cm endometrioma of the left ovary and persistent gastrointestinal symptoms such as bloating. Surgery consultation and follow-up pelvic ultrasound scheduled for the end of this month.

Comment from: KimW, 45-54 Female (Patient) Published: July 31

At 34 my CA 125 was 160ish and I was diagnosed with stage 4 ovarian cancer. Ten years later (3 prior rounds of chemotherapy) CA 125 is 99. For a newly diagnosed person that would be treated by chemotherapy I was told, but not in my case. Maybe next year, 6 plus months. I was also told by my previous doctor that some people’s markers were in the 10s of thousands so as different as each of us are, so are our markers! Keep fighting.

Comment from: Jeanne, 55-64 Female (Patient) Published: July 03

My CA 125 blood test results were in either the 60s or 80s. The doctor did not believe there was any concern. When I went to have a surgery soon after, I had both ovarian and endometrial cancer. I had to have chemotherapy and radiation. It was a long journey of recovery. Two years later now my test score is 17.

Comment from: Lynnehol, 55-64 Female (Patient) Published: June 14

One year ago my CA 125 level was over 168, but no cancer was found. Two weeks ago my CA 125 level was in the 300s, more tests and scans and thankfully still no cancer found! I don’t understand what’s going on!

Comment from: Amy, 35-44 Female (Patient) Published: June 11

I am 36 years old, and I have a cyst in my right ovary. It is 7 cm and it is either endometriosis or hemorrhagic cyst and I am so sad about that. I got my blood test result on CA 125 and it came back over normal range. I wonder if CA 125 is elevated in ovarian cyst in benign condition!

Comment from: Phillygirl73, 45-54 Female (Patient) Published: June 11

I am 45 years old and was diagnosed with ovarian cancer. The only symptom I had was extreme bloating, and that was actually ascites. I had that drained and the fluid was negative for cancer. I had a total vertical hysterectomy with lymph nodes behind my belly button removed. When all this began on March 9th, my CA 125 was over 1000. After 2 rounds of chemotherapy it’s down to 14. I have 3 more chemotherapy sessions and hoping that the number stays low.

Comment from: Doris, 65-74 Female (Patient) Published: June 11

In March, 2017 my CA 125 was 5.20 U/ml, September, 2017 was 4 U/ml, June, 2018 is 11/ml. Wow, I am confused. I had a granulosa tumor removed three years ago with full hysteroscopy.

Comment from: Gerri, 55-64 Female (Caregiver) Published: June 04

I had the CA 125 blood test done on the advice of my general physician (GP) who thought my symptoms could be related to my ovaries. My blood level was initially 74 and rose to 96 within 3 months. I had 2 ultra sounds and 1 CT scan which found nothing suspicious, to my relief. Now the hospital consultant wants to do a laparoscopy but my GP has advised me to wait and get monthly blood tests done as today my CA 125 has dropped to 79. I am now of the opinion that this test is not reliable to diagnose cancer and that CA 125 levels rise for many reasons other than what the medical profession knows. I went through weeks of torment due to this test and relief at the end that nothing was found. Early detection is vital for ovarian cancer but unfortunately CA 125 cannot do this. Hopefully in the not so distant future we will find a way to do this and rid women of this curse.

Comment from: Sankarivelu, 25-34 Female (Patient) Published: June 04

I am a 26 year married girl I have ovarian cysts found out after pregnancy. I consulted the doctor and he wanted a blood test report. I had CA 125 test and it is 66 ml, but no doctor is not saying if it's normal or I have cancer, and I am worried.

Comment from: Liz, 35-44 Female (Patient) Published: May 18

I am a 41 year old woman. One month ago I had passed large clots which is very unusual for me as I have Mirena coil fitted. Two weeks ago I had severe lower abdomen pain, and scan showed a 5 cm cyst on the right ovary. I spent 4 days in hospital. CA 125 blood test has come back at 66. I am very worried as pain is still ongoing.

Comment from: Mananky, 55-64 Female (Patient) Published: April 25

I'm 55 and was diagnosed with ovarian cancer 2 weeks ago. I start my first round of chemotherapy on Friday. Strangely enough my bloated belly has gone down in the last 2 weeks and I'm no longer nauseous and almost feel normal. I asked after my CA 125 count today and that too has gone down from 10,000 to 8,000. Reading the other comments here mine does seem extraordinarily high and the doctors are unsure why I should be feeling better. So who knows! Onwards and upwards and kicking this cancer.

Comment from: Rann Dee, 45-54 Female (Patient) Published: April 09

I had a CA 125 of 90. I had just had a cyst removed that turned out to be ovarian cancer. I was relieved when I saw people that had 2000 plus levels that were still around to tell about it. I was stage 1A, now I have been cancer free 4 years. My last results was an 8.2.

Comment from: Cathy, 55-64 Female (Patient) Published: February 21

My CA 125 blood test results were 401. I had a hysterectomy and they left one ovary. I am now 64 years old and have been diagnosed with cirrhosis. I wonder if this could cause my CA 125 to be elevated.

Comment from: cass, 55-64 Female (Patient) Published: November 21

In July 2015 I stopped eating and was suffering regular shooting pains below, plus I needed to urinate every 30 minutes. So after a visit to my doctor she recommended a scan immediately, which revealed two large tumors grade 2 (one on each ovary). Within 2 weeks I had major surgery and six bouts off chemotherapy. My CA 125 dropped from 1998 to 16. I too have regular CA 125 tests and have remained stable for nearly 2 years. It was the most terrifying thing I had ever gone through but thank goodness for the NHS and my wonderful doctor. Keep the faith.

Comment from: Sherry60, 55-64 Female (Patient) Published: October 16

My CA 125 recently skyrocketed to 435. I have been on Doxil and it obviously isn’t working any more. I have stage 4 ovarian cancer without BRCA mutation.

Comment from: Barbara, 45-54 Female (Patient) Published: September 27

I had abdominal pain for 2 weeks which led to a CT scan which showed 6 cm ovarian cyst and multiple omentum masses. CA 125 was 945. The protocol was to remove all of my lower abdomen and treat me with chemotherapy and radiation. I was so scared but having had leukemia at 25 years I knew nutrition was the only way to go for me. It is not easy and requires a complete lifestyle/diet change, but since starting 3 weeks ago my pain has diminished by 75 percent and I feel healthier and empowered.

Comment from: Lolly, 45-54 Female (Caregiver) Published: May 16

My sister’s CA125 was 4000, and six days later is 7000. She has ovarian/peritoneal cancer. She has the BRCA 1 gene mutation and has already had breast cancer, we are hoping for the best.

Comment from: Cystral, 65-74 Female (Patient) Published: December 23

I just had a CA125 marker coming back 11. However pelvic ultrasound shows left ovary 4.5 cm x 2.5 cm with the walls of uterus having abnormal lining. I am going to see the oncologist to have total hysterectomy, am worried they may find cancer. I have no symptoms.

Comment from: kac, 35-44 Female (Caregiver) Published: November 11

My mom had ovarian cancer. She has been in remission but we went back for a checkup and her CA125 has gone up from 7 to 49. Her doctor gave her chemotherapy pills to take but nothing is showing on the CT scans at all.

Comment from: Steffie, 35-44 Female (Patient) Published: October 14

I was diagnosed with inherited breast cancer in 2013 (the mutated chromosome on BRCA 1 was confirmed in 2015) and had a rare tumor. My oncologist has since ordered regular checkups via blood test and full body CTs. They came back clear so far. This week I had the yearly checkup for my ovaries and the gynecologist was concerned to find a 33 mm mass on my right ovary which looked like a cyst. She ordered straight away a CA125 blood test which came back today at 23. Since the value last year was 26, and the oncologist seemed extremely relaxed about it, I'm not really worried. For now my mind is at rest.

Comment from: Anxiety, 45-54 Female (Patient) Published: September 21

Test result showed CA125 as 790 which is very high and ultrasound showed a large cyst on the left ovary. But the doctor found it noncancerous after the surgery. This only shows that high CA125 with confirmed cyst does not necessarily mean cancer!

Comment from: Noona, 55-64 Female (Patient) Published: August 09

I faithfully have gynecological checkups yearly. Six months after my checkup in 2014, I started getting low back ache and frequent urination. I returned to the doctor in July 2015. Ultrasound showed a 7 inch tumor. CA125 test was done immediately. The count was 2216! I had surgery within a week and six rounds of chemotherapy afterward. I have had 2 PET scans and CA125 tests have been done every 3 months. Readings have been 7 and 8. Stay positive, keep the faith!

Comment from: jim, 45-54 Male (Caregiver) Published: August 08

My wife had a CA125 level of 32 in March after last round of chemotherapy, her 2nd bout of ovarian cancer. Recent test shows a level of 122 so we are concerned. She is scheduled for MRI and CT scan but doctors won't speculate until tests are done.

Comment from: Steph, 45-54 Female (Patient) Published: May 06

When I was diagnosed in 2013 stage 1C my CA125 number was 21. I found out my cyst was cancer. Now my number is between 5.1 and 6.1. I don’t even like that it is in the 6's this time. I did 6 rounds of chemotherapy.

Comment from: Carolelynn, 65-74 Female (Patient) Published: April 27

I received my CA125 results today and not thrilled. I had stage 3 ovarian cancer, radial hysterectomy, and 18 rounds chemotherapy. At the time of surgery it was 1,291 and today's test was 9.5. I am upset since last time it was 7, 4.3 and now going up. You know what goes on in your mind. Plays a lot of tricks on you. I am just hopeful.

Comment from: Dee, 45-54 Female (Patient) Published: January 20

I started out thinking I had a bladder infection. It wasn't. The doctor ordered a CT and it showed a 6 cm mass/cyst. I'm having surgery next Wednesday. My gynecologist order the CA-125 and said if it was high another surgeon would be doing the surgery. My CA-125 showed a 32. The doctor doesn't seem to like that number. He likes to see a 10. He consulted with the other surgeon and he was instructed to go ahead with the planned surgery but I'm a little worried that it will be cancer.

Comment from: Rae, 65-74 Female (Patient) Published: December 30

I was having trouble with child's pose in yoga. Ultra sound revealed fluid in my abdominal cavity. CT scan showed stage 3C ovarian cancer. CA 125 was 1350. I had major surgery on May 12, 2014, bowel resection, bladder and everything out. It was fallopian tumor. After first round of 6 chemotherapies every 3 weeks CA 125 was 7.5. In June 2015 CA 125 was 71 and CT scan revealed some small areas in abdomen. I was started on chemotherapy, but levels rose to 500. I was switched to Gemzar and Avastin, CA 125 is now 16 and I will have CT scan tomorrow. My doctor said not to get too involved with CA 125, but rather how I feel and what scan reveals.

Comment from: Kim, 55-64 Female (Patient) Published: December 11

I had a right mastectomy with tram flap reconstruction and left breast reduction 15 years ago. I had sentinel node involvement and removal of 12 clear nodes. I had CA125 tests 6 monthly and no one noticed it creeping up slowly a degree a time. I began having quite severe lower back pain and feeling extremely tired about the same time daily early evening. I had pelvic ultra sound and discovered ovarian mass. It was stage 3, I had pelvic clearance and CA125 only reached low 20s. Everyone is different, but I regularly request tests as it is obviously a very quiet indicator in my case. As a foot note I have just climbed this year from 9 to 10. I am just a tad concerned.

Comment from: Marg, 55-64 Female (Patient) Published: August 11

I had a CA125 reading at the start of my cancer of 8,319. I had an ovarian operation and today finished my 6th cycle of chemotherapy. My CA125 count is now 25. I will still will have ongoing treatment but I feel I now have hope for the future.

Comment from: Nikky, 45-54 Female (Patient) Published: April 14

I have had a CA125 blood test, the first one’s result was 50, and 6 weeks later it was 129. They have fast tracked me to see a gynecologist as it maybe cervical or ovarian cancer. I am stressed to death and alongside this my ferritin is only 8. I am worried if this means I have cancer.

Comment from: Purple913, 65-74 Female (Patient) Published: February 12

I was diagnosed in 2007 with ovarian cancer. My CA125 was 90. I had a hysterectomy and 5 treatments of chemotherapy. I could not do the 6th because of neuropathy. Now my CA125 has gone from 7 to 17. I am having a scan tomorrow; better to be safe than sorry. I check my CA125 at least 3 times a year and I have been free since 2008.

Comment from: Magge, 55-64 Female (Patient) Published: October 10

I was diagnosed with stage 4 ovarian cancer in January this year. I had no signs of cancer except a giant bloated stomach. After numerous attempts at seeking help I went to a big teaching hospital in and after heaps of tests I was given my rather disturbing news. My CA125 test was 580. I did not understand it at the time, but now know how bad that is. I was too ill to have surgery so had chemotherapy first. Then after 7 months I had surgery, with great results. After having another 3 months of chemotherapy my CA 125 is now at 11. I haven't as yet, had a PET scan (keeping fingers crossed), which will give a better picture. This is my amazing story, I am still alive and hope to stay well.

Comment from: HeyJude, 55-64 Female (Patient) Published: September 17

I had the cancer antigen CA125 test in June of 2012 at age 55 due to ovarian cyst that was discovered on CT scan of my intestines (38 year history of Crohn's). My obstetrician/gynecologist said it's unusual for post-menopausal women to have ovarian cyst. I'd had partial hysterectomy (left my ovaries) in my mid 30s during my 3rd small bowel resection for Crohn's. They couldn't get a good look at it on external ultrasound so he had them do it trans-vaginally. He said it appeared to be fluid filled, and didn't look like ovarian cancer, but because of my age he did the blood test and it came back 11.4. He had me going every 3 months for trans-vaginal ultrasound, and did the cancer antigen (ca) 125 test again a year later. He said it dropped a couple of points, didn't give me the number this time, but wanted me to keep getting the ultrasound every 3 months. The last time I went about 9 months ago the technician was very rough, and didn't use enough lubricant. I was in tears, and never went back. Now 9 months later I had another CT (Crohn's) and it's still there! I guess I'll have to have another vaginal ultrasound, and the cancer antigen CA125 again. Oh well, better safe than sorry I suppose. To those of you that have ovarian cancer, or have had it my heart goes out to you, and your loved ones.

Comment from: Raw, 55-64 Female (Patient) Published: August 29

I was diagnosed in October of 2013. Stage 3 ovarian cancer. I had chemotherapy first and then surgery. I continued chemotherapy and then 4/28/14, no more chemotherapy CA125 was 17. Then on 6/2/14 it was 36 and it has gone up now to 60. So I am doing Avastin 5 cycles tomorrow. I feel good, not sick and never was. I was tired in the beginning and was sick in the hospital for 2 days. Then I was up and going. I was off work 7 weeks and been going ever since. Working is my savior.

Comment from: 25-34 Female (Patient) Published: July 17

I was diagnosed with pancreatitis when I was 14, epilepsy in 2006. 2/28/84 is my birthday. I am now 30, when I went through a very serious condition going to the emergency room (ER) where they tested me about three times for pregnancy because I was so distended, but that wasn’t the case. They pulled 5 liters of fluid from my abdomen which they expected to be yellow from bile but came out like strawberry shortcake looking. I confused the doctors, my CA-125 level was at 251. Well I had two different things going on, my pancreatitis, and the ruptured cyst which was only a cm at the time. Apparently after getting stented 4 times (pancreas) and the cyst stopped bleeding, I was released from the hospital after 28 days. The cyst was small but supposed to be resolved over 1 to 3 months, however now there is new cyst growing within a cyst (the same one) on my ovary, 5 plus cm in size. I took the CA-125 blood test and awaiting results.

Comment from: Pol, 55-64 Female (Patient) Published: July 07

My CA125 Level has gone up from 41 to 59 in 3 months. I've had ultrasound scan and hysteroscopy and nothing has been found. I'm not getting any straight answers so wonder what else can cause raised levels.

Comment from: Judielane, 55-64 Female (Patient) Published: March 03

My first CA125 was a little over 5000 and after 9 chemotherapy treatments, it was down to 200. I had surgery and was down to high 40s and after 15 more chemotherapy treatments, down to 22. Three months after finishing chemotherapy CA 125 was 36. I am alarmed so I am getting a CAT scan and hoping all is clear.

Comment from: Marla from PA, 45-54 Female (Patient) Published: November 06

I was having pain on my left side all the way to my back. The doctor did an internal examination and felt abdominal mass and swelling. Ultra sound showed normal left ovary but a 3mm cyst on right ovary. CA-125 result was 16.0. The doctor said swelling/mass in abdomen was most likely stool due to constipation. A follow up ultra sound will be done in 6 weeks on the right ovary to see if the cyst dissolved and was simply a monthly cyst due to ovulation, also known as corpus luteum. I'm feeling such a relief, thank goodness!

Comment from: Healed in PA, 35-44 Female (Patient) Published: April 30

Please be careful of this blood test only! My CA 125 test was over 600, but read on! I had what I thought was a urinary tract infection. My doctor sent me on the fast track for surgery - with this blood test. The first result was over 600, and he said I had ovarian cancer, Stage 4, and needed a complete hysterectomy within 24 hours. They also wanted to take samples of lymph nodes. An ultrasound showed a cyst on one of my ovaries. I was young, and wanted more children. We requested a second opinion. They told me I didn't have time - it was November, and I'd be dead by Spring. My husband and I insisted. I was sent to a women's hospital in our closest major city. The doctors there confirmed their results and scheduled me for surgery in FEB. I requested the blood test be repeated. They examined me and said they felt the cyst and I definitely needed the hysterectomy. HERE'S THE AMAZING CATCH: The specialists in the city hospital EXAMINED THE WRONG SIDE OF ME (THE WRONG OVARY) - and YET THEY STILL FOUND A CYST! They still insisted I needed surgery. We stuck to our request to have the blood test repeated. The second test dropped from over 600 down to 59. I had it repeated again in four weeks - the third test was down to 40. I NEVER HAD THE SURGERY - I AM HEALTHY, HAPPY - AND I AM STILL WHOLE. IT WAS JUST A URINARY TRACT INFECTION CURED BY ANTIBIOTICS, AND SOME CONSTIPATION CURED BY METAMUCIL. SO DON'T BE FOOLED BY THE FEAR FACTOR - USE YOUR HEAD, GET A SECOND OPINION, AND REMEMBER GOD IS THE GREAT PHYSICIAN! Watch out for that CA-125 Test - you can't count on it to be reliable for a cancer test. Get your tests repeated - it's DEFINITELY worth it!!!

Comment from: Meddowmufn, 65-74 Female (Patient) Published: August 14

My CA 125 6.0. I am going to the gynecologist to see what happens now. I have a 6 inch cyst in my abdomen. Worried if it could still be cancer.

Comment from: Fraz s, 55-64 Female (Caregiver) Published: June 21

My mom’s CA 125 test result is 72.6. I am not sure if it's normal or not.

Comment from: Valleygirl, 55-64 Female (Patient) Published: October 08

Apparently my CA 125 blood test result is normal - good news, however I’m still at a loss as I have the same symptoms of 2 years ago and they are constant, persistent pains.

Comment from: Telle, 19-24 Female (Patient) Published: September 19

I had CA 125 blood test and my result is 207. I don’t know what that means because the doctor did not explain to me.

Comment from: Poonam, 35-44 Female (Patient) Published: September 19

I am 35 years old. I have a calcification complex cyst size 23 x 23 mm on my left ovary. My CA 125 is 65 ml.

Comment from: Jubly, 25-34 Female (Patient) Published: September 11

My test result of CA 125 is 83. I have breast cancer and I have a cyst in my ovaries. I wonder if this test result is bad for me.

Comment from: Babs, 75 or over Female (Patient) Published: September 05

My CA 125 blood test result is 7.4 u/ml, but I have fluid retention in my abdomen and pelvic area.

Comment from: ranjita, 19-24 Female (Patient) Published: May 29

My CA 125 test result is showing 79.35 u/ml, detected with a hypoechoic cystic sol (5.39 x 4.25 cm) over left adnexa.

Comment from: Sharon, 55-64 Female (Patient) Published: July 03

Before my operation my CA125 was 689.5. I was diagnosed with border line ovarian cyst. Since the operation it is now 36.1 and I am told this is still high.

Comment from: MARCELA, 55-64 Female (Patient) Published: June 21

I just got my immunology tumor markers result. Test name: cancer antigen 125 (CA125), result: 10.98, and reference range: 0.00-35U/ml.

Comment from: Dee, 65-74 Female (Patient) Published: April 25

Having had several CA125 tests, when one was done and I was ovulating the numbers were higher. So I did some research and when the next one was done I scheduled it when I was not ovulating; quite a difference.

Comment from: Caroldee, 75 or over Female (Patient) Published: July 14

I just had a CMA125 test by a gynecologist and my count is 60, double what it should be. I have to see a cancer doctor. I am worried it might mean cancer.

Comment from: louise77, Female (Patient) Published: May 05

I had 30 cm tumor on right ovary grade C1. My last CA 125 blood test said 16u/ml. down from 48. I have been told I don't need chemotherapy, so they are monitoring, and it's been just over a year now. Just want this to be over.

Comment from: Patient, 35-44 Female (Patient) Published: December 10

I have just found out my CA125 is 19 and says normal. And no action by patient required.

Comment from: shagufta, 45-54 Female (Caregiver) Published: June 20

My mother had a tumor, she had surgery 1 year ago. Doctors removed the tumor, she had cancer risk and she had chemotherapy only once. Now after a year she got pain in her left leg and back, loose motions, and sometime constipation. We got ultra sound done, doctors diagnosed the tumor is coming up again in her abdomen. Also they wanted us to do her CA-125 test. The CA-125 test result is (2769.3). Her CT scan report is not come yet.

Comment from: vas, 65-74 Female (Patient) Published: January 23

After surgery and 8 chemotherapy sessions my CA125 is still 15.

Comment from: Frailty13, 55-64 Female (Patient) Published: November 25

I don't understand the C125. It was never a marker the entire time I had ovarian cancer. My CA125 was never over 11.

Comment from: Summer, 45-54 Female (Patient) Published: October 08

I have vulvar cancer. I first did chemotherapy and radiation it came back a year later in the scar tissues from the radiation I had. This time I had surgery and just did my 3rd chemotherapy treatment out of six. My CA125 test last month was 6 and the one I did today was 5. My Chemo nurse was very happy with the results. I have a PET Scan in 2 weeks so I am crossing my fingers.

Comment from: ovarian cancer, 25-34 Female (Patient) Published: April 25

I have cysts on both sides of my ovaries. My left ovary cyst is bigger than the right one. I had CA-125, and it was 35.

Comment from: Dee, 55-64 Female (Patient) Published: March 16

With my first test the CA 125 level was 111; in the second test a few weeks later, it was 122. The third test about a month later was 148. I had been hospitalized for blood clots in both legs and a hematologist was consulted. I know that abnormal levels do not necessarily indicate cancer.

Comment from: Helen M., 65-74 Female (Patient) Published: January 28

I had an ovarian (left adnexal) mass. The CA-125 test reported 14. Medicare refused to pay for this test on the grounds that it is not a good screening test for ovarian cancer; unfortunately I did not know this policy when I had the test administered! Subsequently, the tumor was removed and found to be benign. The physician who had the test done refused to make any representation to Medicare as to why he ordered the test (I assume knowing that Medicare would not pay).

Comment from: Elaine, 55-64 Female (Patient) Published: January 19

I am 67 years old and had no symptoms. I went to GYN doctor for a regular check up and she felt a mass in my abdomen and ordered additional testing of which revealed ovarian cancer. I could not believe it as I had had my ovaries removed 5 years before. However, she explained that ovarian cancer usually attacks the lining of the ovaries and the lining is not removed when your ovaries are removed. She immediately referred me to a GYN/oncologist in Charleston and surgery was performed on Sept 15/2010. I was diagnosed with stage 3 ovarian cancers and have had my 5th chemotherapy and only have one more to go. My original CA125 was 186 but as of this week is 16.5. My HE4 is also with in a normal range and I am praising the Lord because I had several enlarged lymph nodes in my abdomen and my chances of survival were only 30 to 50%. However, as of today, my chances have increased to 50 to 60%. I know it is not over but I am keeping the faith and hope you will pray for me.My chances havd increased to 50 to 60%. I know it is not over but I am keeping the faith and hope you will pray for me.

Comment from: [email protected], 25-34 Female (Patient) Published: August 10

At age 32 in summer of 09 I started having really bad cramps when on my menstrual period. I went the emergency room several times but they always told me nothing life threatening. In October 09 my finance took me to another local emergency room where they did a CT scan of my abdominal where they found a very large cyst on my left ovary. They then referred me to an oncologist OBGYN my CA 125 level only being 24 they did not believe it to be cancer but wanted to remove my ovary and have it tested it tested to be stage 1c cancer did chemo right away and now am in remission with a ca125 of 10 thank god it was only stage 1 and fiancé for forcing me to go to another hospital. Please if you feel something is not right get it checked until they find an answer we know our bodies and don’t just stop at one place if you feel more is wrong than what they tell you.

Comment from: DLB, 45-54 Female (Patient) Published: June 08

It is important to know that you cannot compare your CA 125 blood test results with others’ results. Everyone's count can be different for many reasons. Three years ago, I went through surgery for stage 1A ovarian cancer. My CA 125 was 44 before surgery and now that I am cancer-free, the counts range between 2 and 4! Now I have a baseline of what my count was with cancer and what it should be without cancer. My sister had a CA 125 blood test done as a precautionary measure, and her count was a 78! Even though it was much higher than mine, she does not have cancer, but it caused a great deal of stress for her until the misconception was cleared up. If any doubts, talk to your gynecologist and get regular checkups -- it saved my life!

Comment from: Sundus, 25-34 Female (Patient) Published: May 10

I have been diagnosed with a complex cyst on my left ovary ( size approx 7.8 cm) and my CA 125 level is 65. My doctors have suggested a laparoscopy removal of the cyst but meanwhile my hormonal tests revealed that my thyroid level is elevated as well ( 12.2) . Now I have to wait until my thyroid is normalized then my cyst will be operated. I am scared to wait, because of what many doctors have said about the chances of cyst getting ruptured and twisted. I do feel a little uncomfortable pain in my back and lower abdomen and weight gain as well.

Comment from: Overwhelmed, 45-54 Female (Patient) Published: March 23

Hope your results are good. I am a 49 year old female. June 2009 admitted to the hospital with leg and lung clots on blood thinners for 9 months now. I have very heavy periods and have been to several doctors and had vaginal ultrasounds and pelvic MRI. There is some type of 12mm mass in the uterus and a 16mm mass. They can’t give me any answers. I am also going to a new doctor in April. The anxiety of being on the meds and no answers is very stressful.

Comment from: Debbie, 65-74 Female (Patient) Published: September 27

My CA 125 blood test result is 90.

Comment from: Rishita, 19-24 Female (Patient) Published: August 21

The result of my CA 125 blood test was 40.26.

Comment from: Jaseena, 25-34 Female (Patient) Published: July 31

My CA 125 test result is 7.

Comment from: Mary, 55-64 Female (Patient) Published: July 30

My CA 125 blood test is 2480, I am worried if it is dangerous.

Comment from: Ca-125, 75 or over Male (Patient) Published: June 12

The result of my CA 125 blood test is 14.9.

Comment from: Sherry , 65-74 Female (Patient) Published: March 21

The result of my CA 125 blood test is 39.

Comment from: hemant, 25-34 Male (Caregiver) Published: January 22

My sister’s CA 125 is 8000.

Comment from: Cancer Antigen, 55-64 Female (Patient) Published: January 16

My CA 125 test result is 5.5.

Comment from: Monalisa , 25-34 Female (Patient) Published: November 13

My CA 125 blood test result is 168.

Comment from: Mozna , 35-44 Female (Patient) Published: September 11

My CA 125 blood test result is 93.

Comment from: Gopal, 55-64 Female (Patient) Published: August 23

The result of my CA 125 blood test is 7.4.