Patient Comments: Burning Mouth Syndrome - Helpful Tips

Question:

Please share self-care tips for dealing with burning mouth syndrome. Submit Your Comment

Comment from: Papiconch65, 45-54 Male (Patient) Published: August 04

I found a simple 2 vitamin regimen that cured burning mouth syndrome for me! I was suffering with the symptoms one week when I started taking 1000 mg of L-lysine and 400 mg of alpha-lipoic acid per day and within 3 days the symptoms were almost completely gone! Five days later it was completely gone. I have been following this regimen for 3 years now and have had zero episodes. Also zero dietary or medication changes. All other treatments were only temporary and for those asking, THC and CBD did not help at all.

Comment from: Julie , 45-54 Female (Patient) Published: May 12

I’m miserable, 2 to 3 months of misery, hard to talk, and my cheeks are hurting now. I don’t know if it’s my eczema or part of the burning mouth syndrome, it’s like I have a sunburn on my face. It’s horrible and I don’t know what to do thank you guys for putting all your remedies on the blog here. I will learn and I will do things to try to help myself. Thank you. I am miserable, right there with you.

Comment from: Finn, 45-54 Female (Patient) Published: February 27

Thank you everyone, for I now don’t feel as crazy as I did yesterday at work when telling my colleagues about my burning mouth syndrome. I have had a burning tongue for about a week now and am ready to pull my hair out. I have googled to find that basically there is no treatment or cure. So, I bought B12 tablets 5000 mcg and already have DoTerra On Guard oil and have used both tonight. Thank you all for your suggestions and treatment, I am so grateful! Good luck everyone. I’m also 49 and perimenopausal.

Comment from: Coco, 45-54 Female (Patient) Published: January 09

Since May 2003, right after a tooth extraction I started living with constant burning on the right side of my tongue and palate. The more I speak, these two parts rub together so the pain from burning mouth syndrome becomes unbearable. So I chew mint gum all day long. I also spread the gum on my palate on the area that burns the most. When chewing gum or eating, the brain concentrates on the flavor, and thus focusses less on the pain. I am having a mouth guard made by my dentist to separate these two parts. I hope it helps some.

Comment from: RA in Florida, 55-64 Female (Patient) Published: November 11

I have had burning mouth syndrome (BMS) for almost a year. I tried taking alpha-lipoic acid, 600 mg for 2 months, with no relief. I went to an oral health clinic where they treat patients with BMS. I am currently taking clonazepam disintegrating tablets twice a day that helps a little. The clinic made a mouth guard that has the palate also and it has helped me more than anything. I would advise anyone to speak to their dentist to have this made to help relieve symptoms.

Comment from: Racehorse, 75 or over Male (Patient) Published: April 23

About two months ago, my first bout with burning mouth syndrome became so painful I resorted to the internet and found this blog. By far, more women suffer. However, a number of men found relief in taking B12. I started taking dissolvable B12 tablets and got a B12 shot. Immediate relief. Last week the burning returned and I started taking the tablets again. Marked relief, but I intend to get another shot this week. This website is vitally helpful. No substitute for actual first person cases.

Comment from: Silent Sufferer, 45-54 Female (Patient) Published: April 17

I started with the burning mouth syndrome about a year ago and it has now spread to my nose and eyes. I was told by both my doctor and dentist that it is from going through menopause, there is no cure, and it goes away as fast as it comes. I am truly struggling with this, it burns from the minute I wake up, to right before I fall asleep, and I have not found anything to help yet. As many of you have stated, I chew a lot of gum, I rinse with different products and I suck on a lot of ice chips.

Comment from: CC, 65-74 Female (Patient) Published: January 29

No help for my burning mouth syndrome from the doctors although they did tests. Acupuncturist can tell the heat is coming from my stomach and is trying to get my body to treat heat correctly. She can make pain in mouth leave with her needles but so far it comes back. This week she gave me some kind of heat pack with minerals in it. It has helped tremendously. Burning mouth is miserable. I tell my friends I can’t talk because it hurts. I am now trying B12, raw honey, zinc, alpha lipoic acid that have helped some. Hopeful.

Comment from: Diana, 65-74 Female (Patient) Published: August 22

I am a 68-year-old female and have had burning mouth syndrome for over 15 years. I have talked to so many doctors and dentists with no success in solving the problem. I also have had a cough for the last five years. I chew a lot of gum. It helps a cough but not the burning now. I am desperate to find a solution as this is really horrible some days.

IMAGES

Burning Mouth Syndrome (BMS) See pictures of dental procedures and oral health conditions See Images
Comment from: lynlee, 65-74 Female (Patient) Published: November 27

I have tried everything for burning mouth syndrome. Last Sunday a lady friend gave me some throat drops that you suck on. They have essential oil in them. I took the drop on Sunday at 8 pm and at 11 pm the burning was almost gone. I have been chewing gum for months. This works. It's called doTerra On Guard Protecting throat drops. I only use 3 a day. So you might want to try this.

Comment from: Helpful, 55-64 Female (Patient) Published: April 04

I have had burning mouth syndrome for almost one year. It affects my eyes, mouth and throat. I have been taking probiotics for another problem I have. I found that the probiotics work very well for me. It has cut down plenty on the burning in my mouth and also my throat feels so much better. There has to be something out there that can help us. I just feel the doctors are missing something. I will continue the probiotics because that is the best for me.

Comment from: Deb, 55-64 Female (Patient) Published: March 21

I have read all the possible helpful hints and vitamin B12 did clear up my burning mouth syndrome. I don't eat meat so not sure if I was lacking B12. It took almost a week but I'm fine now. It's really frustrating and you feel like an idiot telling anyone, but it really can affect your life. Good luck to everyone, I feel for you. I also brushed my teeth a lot and rinsed with water often and used dry mouth rinse.

Comment from: Dakotagramma, 55-64 Female (Patient) Published: June 01

I started having severe scalding mouth pain a year ago, and at the same time I also got a diagnosis of trigeminal neuralgia. I also have multiple sclerosis and fibromyalgia. For the burning mouth pain (and that it is!), I found OraCoat (brand) XyliMelts. They also make a spray but I haven't tried it. The box has 40 discs. Instructions are to put a disc on the outside of a molar but I put mine on the roof of my mouth (one side has a gum adhesive so it sticks well). The xylitol ingredient helps to numb the pain to help make it more bearable. I found these at a drug store but have found them a little cheaper on Amazon, around USD 9.25 per box of 40. I already take gabapentin and clonazepam. Hope you all find some relief.

Comment from: GayleS, 45-54 Female (Patient) Published: July 02

I have had burning mouth syndrome (BMS) for over 3 1/2 years. Doctors tried to say it was caused by acid reflux. I don't think so though. I tried alpha lipoic acid (ALA). I took 200 mg, 3 times a day for 8 weeks. Then I moved to 200 mg once day. It took about a week to start working. I noticed a pattern that it would flare up just before my cycle. Now my cycles are infrequent and so are the flare ups. I'm hoping that once I am menopausal it will stop all together. For now the ALA works!

Comment from: Kathy, 55-64 Female (Patient) Published: May 05

I have also had burning mouth syndrome. I found that if I rinsed my mouth with warm water and hydrogen peroxide at least twice a day, after 3 days it just about cleared up.

Comment from: Dee, 65-74 Female (Patient) Published: March 27

What helps me when my burning mouth syndrome gets bad, is to mix a 50/50 mixture of liquid children's Benadryl and milk of magnesia. Swish the mouth for as long as you can, and then spit out.

Comment from: Sara, Female (Patient) Published: January 02

I am confused about the difference between burning mouth syndrome (BMS) and oral fungal infections. The symptoms are the same. And I have found that rinsing frequently with hydrogen peroxide (just a little bit and do no swallow it), works to relieve the symptoms. I just fill a little into a clean glass or plastic cup; don't dilute the peroxide. Rinse a few seconds. Might burn slightly but the benefits from the relief of using it are really good. The burning only lasts a few seconds. Good Luck with your BMS symptoms and let's hope for a cure soon.

Comment from: Tuscolajan, (Patient) Published: July 05

Burning mouth syndrome (BMS) is the most frustrating syndrome. You are pretty much on your own to figure out a remedy. I have had two painful bouts, and finally cured myself. I brush teeth with Colgate Advanced Total toothpaste. Then swish for one minute with Act mouthwash for dry mouth. After a week BMS was subsiding, and then gone. I do this every day, and been lucky, it has not returned.

Comment from: Caz, 55-64 Female (Patient) Published: June 24

I have suffered from debilitating sensations in my mouth for 6 years - on my tongue, sides of my mouth, throat, roof of my mouth and lips. At times the sensations consume me and I cannot concentrate when speaking. The sensations are painful, intrusive and constant every day. Most days feel like I have a mouth full of tiny razor blades and lumps around my mouth. I eat chewing gum on and off all day, drink water all day and find yogurt helps the burning mouth syndrome. I take daily medication to manage severe migraines. I am healthy, fit and lead an enjoyable lifestyle but my sensation in my mouth is very difficult to live with.

SLIDESHOW

Mouth Problems: TMJ, Canker Sores, Painful Gums and More See Slideshow
Comment from: Bino, 45-54 Female (Patient) Published: October 31

Wonder if it is vertigo when you are lying down and then all of a sudden you feel vibration. Your body floats in your head and your eyes won’t open.

Comment from: Hopeful, 65-74 Female (Patient) Published: December 11

I have had this horrible disease for the last three years. I have been to many doctors, dentists, and specialists in different fields. I have tried most of the remedies mentioned here for burning mouth syndrome with no success. My pain is so bad that it keeps me from sleeping even when I take narcotic sleeping pills. It began after a steroid treatment for watering eyes. I have constant pain that is relieved only for seconds by mouth rinses and herbal drops. Keep your suggestions coming, I try to keep hope for relief.

Comment from: Self-observer, 35-44 Female (Patient) Published: May 11

I started to get a mild tingling feeling in my lower lip and gums, then within a week it had spread to my entire mouth and then down my throat, right up to my tummy as if I had swallowed a whole tube of toothpaste. There wasn't pain with my burning mouth syndrome but a little of discomfort as the minty taste in my mouth never left. Eating something reduced that feeling for about five minutes and then it returned again. It started light in the mornings and by night it was unbearable. I researched a lot in the internet and shortlisted the cause for it to be either acid reflux or vitamin deficiency or coffee or chocolate intake. I stopped chocolate and coffee and immediately the minty taste reduced by the next day. I tried chocolates again and it didn't bring back the minty flavor. So yay! I found out coffee was the culprit and I couldn't have it two times a day every day.

Comment from: MJH, 75 or over Female (Patient) Published: December 04

I have had burning mouth syndrome for over 30 years. The thing that helps immediately is Orosol which is over the counter. It is the medication that a dentist uses to numb the area where they are going to inject medication. I get immediate relief. It lasts for quite a while and can be used as needed. Also might try gabapentin, generic for Neurontin.

Comment from: BMS, 35-44 Female (Caregiver) Published: August 15

For burning mouth and tongue sensation, please use anti-allergic tablets such as Avil or cetirizine for continuously for three days which is very effective.

Comment from: Karen, 55-64 Female (Patient) Published: December 31

I have had burning mouth syndrome (BMS) for 10 years (I'm 64). I am quite convinced, that it has to do with the anxiety attacks I had while younger. I somehow make a low pressure in my mouth, when I am worried. If I reduce the low pressure by keeping my mouth a bit open so that the tongue does not get in contact with the rest of the mouth or teeth and keep it that way for a while, the symptoms reduce significantly and sometime disappear.

Comment from: terryttb, 55-64 Female (Patient) Published: July 21

I found wearing a mouth guard all the time helps with burning mouth syndrome.

Comment from: Eve, 55-64 Female (Patient) Published: November 25

I try all kind of things but the one working for burning mouth syndrome is water with fresh mint leaves and fresh ginger that I drink every hour.

Comment from: 65-74 Female (Patient) Published: June 16

Seven months and five doctors and many prescriptions later nothing has worked for burning mouth syndrome. I believe sugar makes it worse and salt is best. I find that salted almonds make the pain much better and usually it goes away for hours. I keep almonds nearby at all times. Since there is no medical help you need to find a way to live with this.

Comment from: indig0, 35-44 Female (Patient) Published: March 21

I have read that alpha lipoic acid helps with burning mouth syndrome. I kept myself up all night annoyed by the sensation. I"m going to buy this supplement today and test it out - at least there is some hope.

Comment from: 75 or over Female (Patient) Published: August 09

I have had burning tongue for 25 years; every day the same burning on back of tongue. No relief, but Lyrica helps. I take 150 mg once daily. I also have terrible stiffness on the same side of mouth so take Ativan 3 times daily. I have been suffering from this pain for 25 years with very little relief. It is hardly bearable, but I must endure. Hope no one else has to suffer.

QUESTION

What causes tooth decay? See Answer
Comment from: cwhita, 45-54 Male (Patient) Published: October 16

Check with an ear, nose and throat doctor. I had this for over a year and no other doctor could tell me what was wrong. It was a simple case of glossitis. Topical rinse cures it.

Comment from: kathy, 65-74 Female Published: July 23

my tounge is sore and coated burns when i drink or eat.what can be done to help

CONTINUE SCROLLING FOR RELATED SLIDESHOW