Patient Comments: Burning Mouth Syndrome - Causes

Question:

If known, what was the cause of your burning mouth syndrome? Submit Your Comment

Comment from: LISA, 55-64 Female (Patient) Published: March 18

I have been dealing with a burning mouth, tongue and a bitter taste in my mouth for a couple of years now. I mentioned the symptoms to my doctor and he gave me a prescription for nystatin. It gets rid of the bitter taste in my mouth for a few hours and then it comes back. I do take Tylenol and it does take the sting away for most of the day. Menopause can cause a lot of it too. I didn't have any issues for about 8 months and now it came back again. All I can say is hang in there. I feel your pain.

Comment from: Carol, 55-64 Female (Patient) Published: January 08

After months of a white, furry, painful cracked burning tongue, a pharmacist said my burning mouth syndrome might be caused by stomach acid fumes. He recommended Candea (Biokult probiotic) and to take omeprazole. My doctor also said to take a vitamin D tablet. After a week or so the symptoms eased and months later my tongue is pink and only a little burning sensation at times. I do not take omeprazole daily now, but do take an extra one if I have had alcohol or rich/spicy food.

Comment from: someguy, 45-54 Male (Patient) Published: September 07

A couple things I have discovered about myself while dealing with my own burning mouth syndrome issues. Lingual tonsil stones, teeth clenching at night, thrusting my tongue against the roof of my mouth at night (and biting the sides during the day), and high stress and anxiety. Of course these are all related to me. I haven't really found much comfort yet; I had antibiotics for stones from the ENT. I have recently started wearing a mouth guard at night in hopes of alleviating teeth clenching.

Comment from: PegasusXing, 35-44 Female (Patient) Published: July 24

My burning mouth syndrome began over 7 months ago with what I originally believed to be oral thrush caused by a candida overgrowth. Six doctors and a lot of misdiagnosis later, I discovered that I have a nickel allergy. Water, grains, legumes, nuts, anything with a soy derivative, chocolate, salt sometimes, some fruits, and acid can aggravate it. As well as anything consumed in metal, cheap jewelry, cookware, and vitamins. It’s a long list but now that I know, I have had so much improvement! Hope this helps someone.

Comment from: execsec35, 45-54 Female (Patient) Published: July 12

I had burning mouth syndrome, seemed to start after menopause. However no one seemed to know what was causing it. A few months later, I found out I was anemic so I started to take iron and the burning mouth syndrome went away. I'm no medical professional but I think it was low blood count that was causing my problem.

Comment from: XIX, 35-44 Female (Patient) Published: April 27

I have just read most of these rather traumatic stories of people suffering from burning mouth syndrome (BMS). Having had a root canal treatment on tooth to the rear of my mouth, the dentist removed the large amalgam filling that after many years finally cracked the tooth plus the amalgam partially fell away. After the dentist ripped away approximately 1/3 of the cracked tooth he set about a primitive way of rebuilding the tooth, i.e., basically after he did the root canals he squirted some anti-bacterial solution into the root sockets. Having cleaned the root socket, he injected (for want of the correct terminology) some, he said, new formula anti-bacterial cement. Atop the filler; out of a salmon colored cement type product, a very primitive tooth shape was built up. He was very clear, that should the salmon colored cement come away I should immediately get in touch with him as the product injected into the canal sockets was designed to keep the socket dry and kill off possible bacteria. Well, the facade of a 'tooth' i.e. the pink salmon top did break away and that is the 1st exposure I had to a very dry mouth. My point being, if you have had a root canal at all, perhaps beneath the surface the stuff placed into the socket may have bled into your body, thus causing your BMS. I did not return to the dentist/any dentist thus far because my faith in dentists has completely diminished. Recently the initial dryness has returned, this time in the front portion of my tongue and the inside of my upper lip. A few days ago it was both the upper and lower inside lip. I take vitamin C by way of oranges/mandarins, it seems alleviate the heat, and I am trying to eliminate over processed foods. I have started keeping simple breakfast of porridge with a little milk and a dash of sugar. I brush my teeth with a reputable tooth paste which contains fluoride, and floss daily. I am a coffee drinker but I have cut right back to two in a day, I am not a tap water drinker but I do drink bottled water carbonated/sparkling still. Hope this helps. Stay physically and mentally active to help stop focusing on the BMS, try to keep away from processed foods for a while, try swapping coffee for organic green tea with ginger, or occasionally just sliced real ginger and hot water. All the best.

Comment from: Kathy, 55-64 Female (Patient) Published: April 18

I suddenly developed burning mouth syndrome while going through menopause. I had many tests, all negative, and saw primary care physician, ENT, and a neurologist. It was a physician’s assistant who finally hit upon the fact it may be menopause causing the symptoms. He prescribed Neurontin for the nerve pain and basically instructed me to make the best of it. His reasoning was if it was truly menopause induced the symptoms typically subsided within 2 years. In my case, they did. Other than that miserable 18 to 24 month period I have been symptom free.

IMAGES

Burning Mouth Syndrome (BMS) See pictures of dental procedures and oral health conditions See Images
Comment from: Rose, 55-64 Female (Patient) Published: July 06

I am now, after having this burning mouth syndrome for five years, convinced that this is caused by dental treatments. It always gets triggered whenever I have been to the dentist. I have had a lot of dental treatments in the past five years and realized that even if it was not the original cause, it is now what sets it off. I think the injections, the mouth rinse, the instruments or something in the treatment process simply sets it off. Think about it; this is an invasive oral process that causes trauma in the mouth. I am absolutely sick of the unwillingness of dentists to consider this possibility. I had a complete remission of symptoms that coincided with a stoppage of the dental restoration work I was having. Then they had to redo some crowns and it is back with a vengeance. Every time they go near my mouth it flares up and so I can now see a clear connection, a defined pattern. And I still have to get my teeth finished so it's just horrible.

Comment from: Car0lyn, 65-74 Female (Patient) Published: January 03

I have suffered for years with burning mouth syndrome (BMS). I noticed one morning after drinking some bottled water, the burning started. Why in the world, I wondered. I had had nothing to eat, no coffee, nothing but bottled water. Read the labels, people. Most of this bottled/pure water has additives; sodium being one of them. I immediately switched to a brand that has no additives, and so far, so good. The sodium has a severe effect on my BMS, and, knock on wood, it is so much better now that I've switched brands.

Comment from: Becky45, 45-54 Female (Patient) Published: December 05

About 2 months ago I changed my toothpaste to Crest scope mint whitening, which was the worst mistake of my life. After going to my family doctor twice I was suggested to use Tums. I was told to go to my dentist who said I had burning tongue from my toothpaste. Crest toothpaste should be sued. Now I'm in pain and I can't eat or drink anything acidic. I am in pain and it won't stop hurting.

Comment from: Millie, 55-64 Female (Patient) Published: May 05

I have had burning mouth syndrome (BMS) for several years. I saw an oral surgeon who wasn't able to help other than prescribe lipoic acid which gave me terrible pain like indigestion but worse, so I couldn't take them. I believe it is some kind of nerve damage. I learnt to live with it for many years but just this past month it has flared again, feels like the surface of the left side of tongue is raised. It is a horrible thing to live with and I just wish that it felt like the other side of my tongue. I just don't know what to do and would love any suggestions. It is just so debilitating I wish there was a cure.

Comment from: barlu, 75 or over Female (Patient) Published: January 20

I suffer from myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and also have burning mouth syndrome. These two could be related. I've had it for 40 years with varying degrees of pain. Nothing seems to work.

Comment from: Dee, 55-64 Female (Patient) Published: November 04

I found that it was the toothpaste that I was using. I have proved that SLS (sodium lauryl sulphate) caused my burning mouth syndrome. SLS is in most toothpastes and also in hair shampoo and many other products. It is the ingredient that causes products to froth up and is not necessary most of the time.

Comment from: MICHELE, Female (Patient) Published: August 19

I've had burning mouth syndrome for years. Incense, scented candles, perfumes and disinfectants such as Lysol wipes really set it off. I was allergy tested a couple of weeks ago, and lo and behold, I had severe reactions to colophony, balsam of Peru and perfume mix. These all are connected with perfumes and also cinnamon, cloves and vanilla, which tend to be in everything. My boyfriend brought me a chia tea the other morning, I thought it was a black tea, and after just two sips my burning mouth started up. I have no facts, but in my case, I now have a good idea of what my burning mouth is from.

Comment from: Eljell, 45-54 Female (Patient) Published: February 03

My burning mouth syndrome was caused by Lipitor. It started about a week after I began taking it.

Comment from: anonymous, 45-54 Female (Patient) Published: August 20

My burning mouth syndrome coincided with both menopause and a dental procedure. It took a while to notice it was worse after drinking coffee, but when I gradually tapered my coffee intake, the burning also decreased. When I upped the coffee, the burning also increased. I did the back and forth coffee introduction and withdrawal at least 4 times, and I can safely say that coffee caused my burning mouth. Why it started only at this age (47 years) or after the dental cavity repair, I do not know.

SLIDESHOW

Mouth Problems: TMJ, Canker Sores, Painful Gums and More See Slideshow
Comment from: Tracker, 55-64 Female (Patient) Published: July 25

I was diagnosed with Sjogren's syndrome and fibromyalgia. I have had a lot of problems with my mouth. One problem has been the burning of tongue and the mouth itself. I do not know if both contributed or if it was the Sjogren's itself. I have eaten a lot of ice chips to calm the mouth.

Comment from: Clc, 35-44 Female (Patient) Published: May 30

Just over a month ago I used a strong antibiotic for a stomach issue. A week after was Easter and after eating a fresh made cinnamon scroll I noticed my tongue suddenly felt strange. I realized it was oral thrush and got some nystatin to use. It seemed to be clearing and I stopped using it although it came back and I did the same again. My tongue still seems to have a pale look to it at times and in the last few days I have noticed that my tongue feels strange and by end of day to evening it gets worse till it"s like I have burnt it on hot food. I looked it up, they say the reason in women is onset of menopause and it can be caused by hormonal changes. I"m 37 and don"t think this would be my case, I have an iron deficiency perhaps this could be a cause; not really sure what to do next.

Comment from: Jadiol1953, 55-64 Female (Patient) Published: May 21

My burning mouth syndrome (BMS) started after I had chemotherapy for breast cancer in 2002. I also have multiple sclerosis (MS), a benign type, but my neurologist at the time knew my family problems and gave me Xanax. So for ten years, I didn"t know I had BMS. When my then neurologist resigned, the new one didn"t agree with the Xanax and cut me back to 1 a night. I was and still am miserable after 5 years. Stress doubles the pain and acidic foods make it so much worse. Why can"t they find a cause and a cure!

Comment from: Jo, 65-74 Female (Patient) Published: March 26

I started having severe mouth burning following a regimen of antibiotic that resulted in thrush. With thrush one needs to avoid sugar, yeast and carbs I understand. Yogurt helps me with the burning and thrush. I"m also taking clotrimazole troches for thrush. My allergies have also caused some burning but not nearly as severe as with thrush and I understand thrush happens more often with older individuals and following a course of antibiotics.

Comment from: Cure, 35-44 Male (Patient) Published: February 24

I know how frustrating and depressing it is so here’s what fixed my burning mouth syndrome. I narrowed the cause down to either sleep, vitamin deficiency or coffee. I went and found a Chinese doctor that does herbs, acupuncture etc., he checked my levels and found me deficient and put me on some nano vitamins called: LifePak Nano. Within a week or two it’s all better. I also quit coffee and that may have helped (not from the heat either or burning tongue, just because it’s acidic). I also notice when I would get less sleep it would be more prevalent too, but the vitamins alone seemed to have cured me! Hope this helps you too!

Comment from: me, 45-54 Male (Patient) Published: November 25

Amalgam fillings cause quicksilver steam in your mouth. Should you have or develop intolerance against quicksilver which can happen overnight, it may be the reason behind burning mouth syndrome.

Comment from: Bernie, 65-74 Male (Patient) Published: February 18

I suffered excruciating pain in my lower lip for over a fortnight, imagined all sorts of sinister things being wrong. Eventually a cold sore popped out, tried Dynamiclear and the pain seemed to increase, finally took Panadol for pain relief and after a day the scab appeared and only tenderness remained. Have suffered this pain before but no cold sore appeared, next time sensation appears I will treat for cold sore.

Comment from: Lu, 55-64 Female (Patient) Published: January 03

I have BMS (burning mouth syndrome). It is very painful to even talk. It seems to erupt after I have splurged on foods with sugar and yeast. Advil, oil pulling, candida killing herbs and detoxing are some help. I am eating only protein and green vegetables. It is a battle once out of control.

Comment from: burning up, 65-74 Female (Patient) Published: November 18

I have suffered with burning mouth syndrome for almost 3 years. I have seen my physician, dentist, doctor of internal medicine and have had an MRI with no results. As many say, chewing gum helps a bit to keep the mouth moist. A few weeks ago I used my tongue to flatten the gum on the roof of my mouth starting just behind the front teeth while I sipped on cold water. After having the gum stay on the roof of the mouth for a period of time I found the burning sensation of the gums and tongue lessen, to the point that I am placing the gum on the roof of the mouth daily only removing it for meals, drinking and bedtime. For me it has taken away the feeling of peeling skin from the tongue and gums! Perhaps it keeps the tongue from rubbing on the roof of the mouth and moving to rub on the teeth.

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Comment from: hollysue, 55-64 Female (Patient) Published: October 08

My burning mouth syndrome (BMS) started years ago when they first came out with the plug in air fresheners. I bought and used them and eventually realized what was causing the problem. I have never used them again in my house but many people use them and the problem occurs occasionally now. My problem now is, I work in a store and all the air freshener products and scented dryer sheets and scented candles cause the same problem for me. It's a nightmare that has now gotten worse over the years and causes breathing problems too. I can't use most cleaning products and resort to using vinegar and baking soda for cleaning. I also have a metal taste in my mouth when this happens and it feels very dry.

Comment from: Pleasingtwogod, 55-64 Female (Caregiver) Published: July 23

My husband has rectal cancer..first stages..treatable praise God...but I woke up a few days ago and my tongue was on fire!!! I went to dr and they took blood test...which everything came back normal except they want me to take vitamin d 5000 units a day for 6 months. The dr also gave me a mouthwash that had Benadryl in it that I'm to take with one sip of water....it helped some...but can't take at work...put me to sleep...quick!!!

Comment from: Lucy B, 65-74 Female (Patient) Published: July 16

Ever since I was a child, my mouth would burn if I ate too much sugar, usually candy. It can last for days. Sometimes I also get bumps on my tongue that also hurt. Once it starts to hurt, salt, vinegar, and any acidy foods will also burn until it clears up. I always thought I was just strange until I decided to look it up and saw how many people suffer from this. It never seemed to happen from sugary gum or chocolate candy.

Comment from: Nora, 65-74 Female (Caregiver) Published: June 12

My mother suffered with a burning tongue and mouth , she was eventually diagnosed with pernicious anaemia and primary biliary cirrhosis, not caused by alcohol! Zinc supplements were given plus strong vitamin B probably B12. She had a med called Ursofalk? For the cirrhosis problem but ended up with dementia. Anyway, try fizzy zinc supplement first it did seem to help cure it.

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