Patient Comments: Burning Mouth Syndrome - Treatment

Question:

What types of treatment did you receive for burning mouth syndrome? Submit Your Comment

Comment from: Lee, 65-74 Male (Patient) Published: October 06

This is how I got rid of burning mouth syndrome (BMS). I stopped eating prunes, drinking coffee and eating spicy food. I mixed baking soda in a bottle of water, when the burning would flare up, I would swish it around in my mouth. Mixed 2 drops of oregano oil in a bottle of water and six times a day I would gargle with it. Once a day I would swallow a mouthful. I swished coconut oil in my mouth for 20 minutes a day twice a day. I’m on day 4 and my mouth feels almost totally normal. I am enjoying eating again. Hope this works for you.

Comment from: Julie, 45-54 Female (Patient) Published: May 12

I thought I was crazy. I’ve had burning mouth syndrome for about two or three months now, I’ve lost count, because it’s coronavirus time and shelter in place. I am miserable because of my burning mouth syndrome, I’m so glad to see I’m not crazy and I’m not alone. My doctor said he has seen this before and treated it. As I’m 53 and female, he gave me the equivalent of Prempro, 100 MCG B12 and carbamazepine 200 mg. Also an oral rinse that is something with Maalox and lidocaine; it burns but ends up numbing my mouth.

Comment from: Jackie L, 65-74 Female (Patient) Published: April 07

I've had burning mouth syndrome (BMS) for several years. I went to a specialty dentist and he wrote a prescription mouthwash that contains, among other things, prednisone, lidocaine, Mylanta and about 5 other things. It definitely helps. I read an article recently that said they are using red raspberry leaf (a supplement) for people who get frequent canker sores and for cancer patients when they get sores in their mouth from chemotherapy. I thought it might work for BMS. I tried it and it helps me a lot. It's worth a try.

Comment from: Coco, 45-54 Female (Patient) Published: January 09

I have burning mouth syndrome (BMS) on just one side due to a dental procedure. I live in Canada so I have been fortunate in the past 16 years to see many specialists; oral surgeon, internalist, ENT, neuro surgeon, neurologist‚Ķ and the only outcome: I have BMS. Really! I went to the pain clinic, and nothing new that I haven’t tried. Then I had hope! A surgery. But it was not for my type. Those suffering with burning or tingling on lips or cheeks, you need to see a neurosurgeon. There is a surgery that works. Good luck!

Comment from: weezie, 65-74 Female (Patient) Published: September 10

Every time my tongue would touch the roof of my mouth my tongue would burn. I went to the dentist. He made me a light duty retainer that covered my top teeth and the roof of my mouth. It has helped with the burning. Also, I chew double mint gum. I also form the gum into a flat piece in my mouth and put that on the roof of my mouth. Sounds silly but it does help. Hope this information helps someone else with burning mouth syndrome.

Comment from: Cornylitegirl, 45-54 Female (Patient) Published: October 26

I've had burning mouth syndrome for 1 year with a red tipped tongue. Found out I am sensitive to corn, which is in all mouth products as xylitol, sorbitol and glycerin. I stopped all of these products and within 24 hours it was almost gone. Elimination diets might help someone with food or chemical sensitivity.

Comment from: zam, 45-54 Female (Patient) Published: October 15

After a year of going insane with burning mouth syndrome I found what caused mine and it's gone! I took a vitamin D tablet, a weekly one I've been on for a year and after a few hours started to vomit. I knew it had to be the vitamin D tablet as all I had eaten was a banana and some toast. Both are unlikely to cause me to feel so sick. I stopped taking vitamin D and my burning mouth and geographic tongue have 100 percent gone. Just like that! I hope this helps someone else.

Comment from: Dee, 45-54 Female (Patient) Published: September 25

I have had this burning mouth syndrome for 6 months now and it is terrible. I only found one doctor that knows what it is. I am in a lot of pain all day every day and it gets worse at night. I use Vaseline to line the inner walls of my mouth and use Anbesol for the gums; it helps for a minute or two. Today is a real bad day and nothing seems to work.

Comment from: SheyZ, 65-74 Female (Patient) Published: September 05

One product that helps the dry mouth and the burning mouth syndrome is a lozenge called XyliMelts. You put the small tablet between your gum line and cheek where it stays for about 4 hours and produces saliva which helps especially at night.

Comment from: TRP Pain, 55-64 Female (Patient) Published: August 29

I found help in eliminating all spices, all foods from the brassica family (look up which vegetables, but the most common are cabbage, broccoli, Brussels sprouts, arugula (often in spring mix salads), etc. Also bananas and pears contain an acid called amyl acetate which trigger burning mouth syndrome. No carbonation. No artificial vanilla. Yes, eliminating spices is hard, but after burning 8 1/2 years, I understand what activates these pain channels. You will learn to manage with salt and butter for seasoning.

IMAGES

Burning Mouth Syndrome (BMS) See pictures of dental procedures and oral health conditions See Images
Comment from: Sad, 55-64 Female (Patient) Published: August 28

Ok, this is sad again but I was in so much pain from burning mouth syndrome I cried all the time. I finally went to Prompt Care, they gave me lorazepam and lidocaine for my tongue and lips, and it worked. I finally got some relief, I just have to put it on often. I hope this helps someone! So sorry for your suffering.

Comment from: Sad, 55-64 Female (Patient) Published: August 21

I’ve had burning mouth syndrome (BMS) for 6 years, and lately very bad. I used to be able to take lorazepam, anxiety medicine, and that helped, but one of my doctors won’t let me have it, now I’m burning like crazy. I got my burning lips after major back surgery, I’m in pain all the time, sorry for all you who suffer with this! I’ve tried honey on my tongue but doesn’t help, tastes good though! I am taking extra B vitamins, next I’ll try alpha lipoic acid. Hope it helps. Miserable!

Comment from: uffdaostr, 75 or over Female (Patient) Published: August 01

I thought I was allergic to my new dentures since I had never had burning mouth syndrome until I got these new ones. It has gotten so bad I take out my teeth when I am home. The dentist gave me nystatin to use and I do not see any results. I can feel pain down my throat and I have a horrible cough. I go to the doctor today and will see what she says and also back to the dentist and get his opinion. I never had this problem before and the dentist wants me to have an endoscopy done soon.

Comment from: LuAnn, 55-64 Female (Patient) Published: August 01

I have had reoccurrences of burning mouth syndrome (BMS) for about 4 years, this last bout lasted 6 months. I read through all the comments here and decided to try alpha-lipoic acid 200 mg three times a day for a month and then once a day for maintenance. I also started taking a Stress B vitamin, avoided hot fluids, salty foods, and chocolate. After a month, my symptoms disappeared gradually. Also, put the tip of your tongue right behind your upper teeth, it relaxes your jaw and is a good time to take good deep breaths.

Comment from: Castlegal, 65-74 Female (Patient) Published: June 19

Wow, what an eye opener. I thought no one was going through what I am. My burning mouth syndrome (BMS) happened 11 years ago after a tooth was pulled. Dentists, doctors and specialist didn’t help; they seem unconcerned and most didn’t know what BMS was. I thought I made up that name; just had someone say that to me 2 months ago. I have tried so many medicines, and none so far has taken it away. Someone on here wrote try zinc, so trying that now and I will post if works. I am also trying B-12. Thanks to all who posted, it was a blessing to hear there are things that have helped but don’t like that others have what I have.

Comment from: ps2os2, 65-74 Male (Patient) Published: May 30

Doctors have given me a dose of baby Benadryl and Kaopectate for burning mouth syndrome. This does not help at all.

Comment from: Annenz, 65-74 Female (Patient) Published: May 22

I have been suffering from burning mouth syndrome (BMS) for a few weeks, and after reading comments here, I realize it was caused by Colgate sensitive toothpaste which contains sodium laurel sulphate (SLS). Dumb of me not to read the label, as I can’t use shampoos containing SLS. Solution, I made my own toothpaste from 2 teaspoons of coconut oil, 1 teaspoon of baking soda and 5 drops of peppermint oil. Since using this my burning mouth has settled down, however I still have dry mouth, but am hopeful that after a few more days it will improve.

Comment from: XIX, 35-44 Female (Patient) Published: May 01

I don’t know exactly what causes the burning dry mouth syndrome, but I know this helps: get vitamin C via quality tasty mandarins/oranges. Drink some cut fresh ginger plus boiled hot water or add slices of real ginger to organic green tea. In New Zealand we have some candy (lollies) made by Pascal’s called 'curiously strong mints'; yes they are peppermints. Try to avoid processed food, stay hydrated with water, and exercise to keep your mind busy from dwelling on the burning dryness. Not sure if it is the peppermint oil but it does work.

Comment from: BMS is BS!! , 45-54 Female (Patient) Published: April 25

I am 50 years old and a female. I have read many comments and am discouraged with doctors that have no rhythm or reason for this condition. I have been suffering from burning mouth syndrome (BMS) for a short time only, but am so sorry for those who have had this a long time. For me, this condition started with only minor burning on and off for about two weeks. Then, it ramped up and I had so much pain, I couldn't sleep. I got 3 doctors’ opinions with no help. They had no idea. My wife remembered in a health class about what zinc deficiency does to a tongue. It can cause BMS and weight loss. It also can cause problems with sores on the scalp. I had so much pain the night she remembered and I didn't have any zinc pills, but we had smoked oysters, which are very high in zinc. I ate the oysters, which are yummy, and by the next day, my pain and the burning went from a pain level of 10 to about a 4. I continued to eat these oysters every day and so far, my pain level is a consistent 1 to 2. I hope this helps some people. There is really no test to see if you are deficient in zinc, just try it and see if it helps. Good luck.

SLIDESHOW

Mouth Problems: TMJ, Canker Sores, Painful Gums and More See Slideshow
Comment from: Karol, 55-64 Female (Patient) Published: March 13

Unfortunately I have had burning tongue for 7 1/2 years. It has improved since onset (or maybe I adjusted). I went to 7 different doctors. Recently I saw a pain anesthesiologist for another issue. She recommended doxepin hydrochloride oral solution for burning mouth syndrome. It really helped and how I wish I had been offered this as a solution earlier.

Comment from: GirlonFire, 35-44 Female (Patient) Published: December 12

My mouth has been burning for well over a month now. My tongue feels so sore, swollen, and cracked. It feels dry, although sometimes it's not. I try to describe burning mouth syndrome to people, because I'm not sure if it's a burning so sometimes I describe it differently. Tonight it's been absolutely horrible. It's like I'm taking in breaths of Vicks VapoRub. Sometimes it's in my nose, and it feels as if there are actually fumes going up into my eyes. Sounds insane, I know. Sometimes it feels like heartburn that's so bad it's up in my mouth. Tonight I wondered if it could be acid reflux, but I don't have anything coming up into my mouth. It seems like a first swallow of coffee can make it happen instantly. Tea seems to do that too. Taking 2 Advil Liqui-Gels works to make it go almost completely away. Usually I can't feel it if I'm eating or drinking, but I can when it's bad like today. I bought tons of mild gums to chew because that seem to help. I wonder if anyone else has this Vicks experience!

Comment from: Marti, 65-74 Female (Patient) Published: October 24

I suffered with burning mouth syndrome for about a month. While reading a lot about it, someone mentioned her doctor thought it was a viral infection and somewhere I read that honey was anti-viral. I coated my mouth with raw honey a few times a day and my burning mouth syndrome was gone in 3 days. It's been over a year and it hasn't returned.

Comment from: Girlsirish, 45-54 Female (Patient) Published: September 13

I can't even believe that I found this! I have suffered from burning mouth syndrome (BMS) for over 7 years now, with no real information. My biggest question has been if anyone gets horrible breath when they are having an outbreak. When this first started I went to dentists and doctors. No one knew anything, nor could they figure out what it was. Then my son’s ENT said to go home and google burning mouth syndrome. I was shocked! There it was! So my doctor put me on Zoloft and omeprazole. After several weeks I saw a great improvement and eventually it dissipated. However, every now and again, more now that I think I'm closing in on menopause, it comes back with a vengeance. And the first thing I notice is my breath. I do have GERD, so I'm sure that plays a factor, but it's awful, and sends my anxiety through the roof. Any suggestions would be much appreciated. I've also seen lots of amazing advice on here.

Comment from: zazz, 45-54 Female (Patient) Published: June 13

I tried lidocaine for burning mouth syndrome; useless. Cause for me is vitamin deficiency; B vitamins and iron. Protein is low and electrolytes are out of balance. I discovered there are windows of opportunity to eat. Shovel food down as fast as possible. Window closes, burning returns. Easiest foods to eat are cheesy potatoes (add powdered milk for extra protein and calcium) and ice cream. Multivitamin, B complex, and iron help. Exercise caution, difficulty swallowing may happen. Don't go out to eat, people stare.

Comment from: jg, 55-64 Female (Patient) Published: May 16

I am so excited to share what has reduced my burning mouth syndrome symptoms by 95 percent! My doctor told me to stop all alcohol and caffeine, to switch to old-fashioned tooth paste that is not teeth-whitening, and to take 1/4 teaspoon coconut oil, rubbing it around on the burning areas with the tongue, until it melts. Take nothing by mouth to prevent washing it away. I do this before going to sleep at night.

Comment from: Lily, 65-74 Female (Patient) Published: May 08

I have suffered with burning mouth syndrome for over 2 1/2 years. It started out of the blue and had not let up significantly. I went to an ENT over a year ago and he increased my Neurontin that I already took for sciatic nerve pain. I had some slight improvement for a while but now it is back with a vengeance. My tongue gets a yellowish cream colored coating when it is really burning bad. I use the Miracle mouth wash sometimes several times a day. My taste has been severely altered, I cannot eat citrus, highly salted foods, cinnamon gums or candies or carbonated beverages unless they have been diluted by ice. My medications have been excluded by process of elimination. I do have a dry mouth and drink tea all the time which is diluted. I just don't know what else to do. I saw someone on this forum that had had this for 12 years and this terrifies me. Some days it is so painful. Looking for help.

Comment from: Jen, 55-64 Female (Patient) Published: May 02

I had burning mouth syndrome for several weeks and finally realized it was due to GERD! I was diagnosed with silent GERD 3 years ago due to chronic laryngitis. I only took omeprazole when I noticed laryngitis coming on. When my mouth began burning I was at my wit’s end. After suffering for over a month it dawned on me that maybe it was caused by my silent GERD. I pulled out my omeprazole and within 3 days my burning mouth was gone! I hope this helps you!

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Comment from: Alex, 75 or over Female (Patient) Published: April 14

I was recently diagnosed with burning mouth syndrome after an especially long session of allergies (6 weeks or more). After consulting with my ENT he prescribed dexamethasone, an oral rinse 3 times a day. I also started taking Vitamin B 12. A small dose, no more than 500 mcg as that is way more than the body needs anyway. By the second day my mouth burning was almost gone. I'm continuing the treatment until the bottle he prescribed is gone because I don't want it back. Good luck everyone!

Comment from: Suzy photography, 55-64 Female (Patient) Published: July 06

Back in October 2015 I had my lower impacted wisdom teeth removed. I also had 2 molars and 2 benign tumors removed that had eaten away a decent amount of my jaw. I had surgery in hospital and my jaw wired shut for 2 weeks. Everything seemed to be going smoothly until about a month after the surgery I began to get a burning scalded feeling in my mouth. The only relief I seemed to get was from eating cough drops. As the weeks went by I started trying all sorts of remedies. Nystatin for thrush no go, all sorts of rinses, Biotene, oregano oil and I was eating about 40 to 50 cough drops every day. Basically I had to have one in my mouth to function. I have a high pressure outside sales job and needed to function. I went to neurologist and she confirmed burning mouth syndrome. Intense facial jaw massage worked for temporary relief. I was put on Lyrica and clonazepam which helped a little. I had acupuncture 4 times a week and Botox injection in my jaw. I was just trying to get by each day. Until you have experience this there is no way to describe the feeling. The bottom line is acute chronic pain. I was buying these basic mouth guards you make yourself and they seem to help a little. This went on for 7 months. I went one day to buy a new mouth guard and the one that was on sale was a very thick heavy guard with a blue or purple line running through it. When I heated the guard up in the microwave and put it into my mouth it was so thick that it spread over the roof of my mouth causing it to be like a bite guard retainer. This kept my tongue from touching the roof of my mouth. It was a miracle. Within minutes all burning sensation was gone. For some reason in my case my tongue brushing the roof of my mouth activated the nerves to create the burning syndrome. I went to my dentist and had a special mouth guard retainer made and I am 95 percent better. I have not had a cough drop since. I just wanted to share this experience in case someone else might have a similar reaction. I wish you the best of luck with this horrible syndrome. I got my life back now. When I remove the retainer the pain returns within minutes although for some reason I do not have to sleep with it. Trigeminal nerve damage is brutal.

Comment from: Feel the burn, 55-64 Female (Patient) Published: May 24

I have had burning mouth syndrome in the worst way for more than 6 months. A week ago my doctor told me to try biotin supplement (OTC). I also am using Biotene mouthwash. It actually is working! Try it.

Comment from: Cedaw, 45-54 Male (Patient) Published: April 27

B12 is the cure for burning mouth syndrome. Then find out why you are not absorbing B12 naturally. Get a shot or take a sublingual pill or oil form B12 vitamin 3000 units a day. It is very safe and doesn't react with other drugs. I had the same experience as many of you, went to every doctor, dentist, oral surgeon, dermatologist, etc. It was treated as a bacteria, then fungus, and then a virus; with no success. B12 it is the answer. Good luck. Educate yourself.

Comment from: Soremouth, 55-64 Female (Patient) Published: March 31

As my second year with burning mouth syndrome (BMS) draws to a close, the symptoms are intense. My first 6 months and first 6 doctors, I was told thrush was the culprit. I did alter my diet for 6 weeks with meat and vegetables only. No sugar, alcohol, or starch. This helped my figure more than my mouth but did seem to help my mouth smallest amount toward the end. Then I was told it was not thrush. The doctor prescribed a steroid rinse. Many of you have mentioned this is depressing and it is. I finally went to a more natural practice of medicine. I started BioTE hormones (yes, menopause had jumped on me which appears to be typical time for BMS to rear its ugly head) and it helped tremendously. In fact, it helped my BMS and all symptoms associated with menopause. As the time approaches for me to get my BioTE pellets implanted, I can feel it in my mouth first. Then after the new hormones were put in, my mouth would vastly improve (never normal). Unfortunately, my last time was early March and there is no relief three weeks later. I will try some of the other things mentioned on this website.

Comment from: Jin, 45-54 Female (Patient) Published: March 29

I have been diagnosed with BMS (burning mouth syndrome), 2 years now. It's miserable! I have been prescribed antidepressants, no change, the only other medication is an epilepsy drug! I have it all the time, but now and then it is raging. I don’t even tell anyone any more, when they ask how I am. My next consultant appointment is in May.

Comment from: Mitzih, 65-74 Female (Patient) Published: February 15

For burning mouth syndrome I got prescribed gabapentin, 600 mg 3 times a day and 15 MG morphine extended relief every 12 hours as needed. It hasn't cured it but I get some relief. I still have very painful flare ups. I just have to learn to live with it. Sometimes I can't talk or eat for days.

Comment from: Valerie08, Female (Patient) Published: January 28

I have had burning mouth syndrome (BMS) for about 5 years. I have been seen by my primary doctor, ENT, allergist and my dentist. I have tried the prescription mouth washes, etc. and haven't had any luck. But my dentist researched this heavily for me and found a product called alpha-lipoic acid, it is a supplement. I did not research it, as I was at my wits end, I just tried it and it helped! I was taking between 1200 mg to 2400 mg daily (I also lost weight). My mouth was so much better, it was amazing. My BMS went away. I took this supplement daily for about a month and then occasionally when my BMS would flare up. After taking alpha-lipoic acid for about a year or so, I started feeling sick to my stomach after ingesting it; so I stopped. I only take it on occasion now and never take more than 1200 mg daily. Living with BMS is absolutely horrible! Unless you suffer from it, you just have no idea of how painful it can be. I provide speech therapy, therefore I am talking all the time and when I am having a bad flare up, it takes everything out of me to do my job. I feel your pain with this awful condition. Try the alpha-lipoic acid (Sundown brand, the others did not work) and hopefully you will find some relief. Good luck!

Comment from: shawn, 55-64 Female (Patient) Published: January 20

I don't know if I have burning mouth syndrome. Rheumatologist says neuropathy of the mouth (whatever). It is so frustrating because it is like they don't believe you. If they could walk in my shoes for one day! I am on my 3rd year now, been to every doctor, had all kinds of blood work, and nothing shows up. I have the scalding feeling and I get white lesions on my tongue almost every day which are very painful. What makes it bad for me is I have a lot of chronic diseases as it is. This is not living, it is existing and I don't want to do this anymore. I feel awful for those who have this.

Comment from: Gustalynn, 55-64 Female (Patient) Published: January 12

I was diagnosed with burning mouth syndrome after 3 years of suffering. I was given a numbing mouth rinse that was only temporary. I was also given nystatin. I have lost 40 pounds from not able to eat much. I also have gastroparesis, hypothyroid, depression and anxiety.

Comment from: dale j, 55-64 Male (Patient) Published: December 30

I had burning mouth syndrome for months. I used vitamin B12 in large quantities, not multivitamin. It took me about 1 week, I had significant results, and now I am pain free.

Comment from: Ctdell, 45-54 Female (Patient) Published: August 18

Thanks to everyone who has shared their thoughts and suggestions. The burning in my mouth started a month and a half ago. The pain varies in location and intensity from day to day. I did some research and noticed that a cause could be hormonal. I had stopped birth control pills so I have gone back on them. In the meantime I stopped using a whitening toothpaste and went to my general practitioner who prescribed reflux medication. It hasn't helped. I am awaiting blood test results on my thyroid, vitamin D and magnesium levels. In the meantime, reading through your posts gave me the idea that perhaps this is a side effect of the sleeping pills I am taking. I am now checking into that and will explore the different mouth rinses some of you suggested. I feel like I have something to go on now.

Comment from: AZ, 65-74 Female (Patient) Published: August 05

My burning mouth syndrome (BMS) started following a dental procedure, with blisters and inflammation around the site. Thinking it was canker sores, I waited. And waited. It took weeks for the pain to subside during which the BMS and bright red, painful lips started. I discarded all SPF lip balm I had been using as well as long-wearing lipstick. I used Vaseline on my lips for a few nights, too, but I think it was the lip balm and lipsticks causing much of that problem since the inflammation and lip pain subsided within several days. What really worked for me to reduce the pain was swishing glycerin around in my mouth (and letting it dribble onto my lips) a few times a day, then spitting it out and rinsing with cool water. Honey swished around and on the lips for 15 to 30 seconds also worked to calm the pain and you can swallow it (not so with the glycerin). However, what really got rid of the mouth pain for good was oil of oregano in water. I started with one drop in a glass of water for two days, then two drops for two days, then three drops. Within one week, virtually all mouth pain was gone. Be sure to use the drops and get a good brand, at a health food store, that has a minimum of 50 percent carvacrol (mine has 70 percent). This stuff is very strong, and it is very hot (like jalapeno or chili peppers), so always use in a glass of water and be as careful as possible to not get much on your lips. I also was sure to drink it with a meal. Another helpful hint: keep a glass of icy water handy during every meal. I would often just soak my lips and my mouth with the water in between bites. Note: two weeks prior to my using the oil of oregano, I had been on a very high dose of metronidazole for some gut issues. I doubt that had any effect on the BMS, but if the oil of oregano does not work wonders for you, you might suggest a prescription of metronidazole to your doctor (It caused nausea, dizziness and major problems with balance, so if you take it, be careful). Best wishes and good luck to all of you.

Comment from: Catherine, 55-64 Female (Patient) Published: July 21

I got burning mouth syndrome (BMS) since February 2015. I had burning sensation on the tip of my tongue. This became stronger with time and speech was a problem. I saw my doctor who did extensive blood work and also gave me fungal medicines but my results showed no underlying illnesses. I then saw my dentist who thought I had geography tongue and send me to an oral surgeon. He confirmed I didn't have geography tongue. Then I was send to a neurologist who eventually confirmed I had BMS and put me on Lyrica which made me sleepy all day. He later changed it to another nerve medication.

Comment from: kathy h., 55-64 Female (Patient) Published: July 21

I have had burning mouth syndrome (BMS) for about 3 months and I have been in so much pain and I had been to 3 doctors before they I found out what I have. I did not know how I was going to live the rest of my life with it. Then I was put on gabapentin 300 mg and I have been 2 days pain free. I feel like yelling from the top of the highest mountain I am pain free! I do have the bumps on my tongue but they don’t hurt. I just hope it continues this way. I hope this helps someone else.

Comment from: maggie, 45-54 Female (Patient) Published: June 12

I really hope I can help someone out there with BMS (burning mouth syndrome). I suffered so badly that I wished I would die so I didn’t have to have this constant fight everyday with pain and then hot flushes as well; it was unbelievable. I ate extra strong mints, hundreds of them, so I couldn’t feel my mouth I tried lipoic acid and a chili powder to rinse my mouth in every day, to try and kill my nerve endings in my mouth and then I tried amitriptyline, Thanks is all I and my family can say, BMS has been gone for about 2 years now and I hope it never returns.

Comment from: Lindylou, 65-74 Female (Patient) Published: March 31

My burning mouth syndrome started with a thrush infection which came from chemotherapy for breast cancer. I have now had continuous pain for 18 months, and pain from burning mouth syndrome for the past 10 months. We tried gabapentin with no success, but another physician prescribed Cymbalta at bedtime 60 mg daily and the pain is greatly diminished as it handles the neuropathic pain quite well.

Comment from: bms, 65-74 Female (Patient) Published: February 26

I took alpha lipoic acid (ALA) 200 mg 3 times a day (can be purchased over the counter at any drug store) for burning mouth syndrome. As the pain subsided I decreased to a maintenance dose of 200 mg. I sipped cool water and chewed gum to relieve the symptoms until the ALA worked. I have been pain free since.

Comment from: Sue, Female (Patient) Published: July 05

I have had burning mouth syndrome (BMS) for 8 years and have tried everything with no relief with the exception of capsicum extract. Capsicum is an extract from peppers and although this may seem counter-intuitive, it provides temporary relief. I purchase it in a bottle with a dropper and take it with me everywhere. The small bottle (I think 2oz) lasts months and is worth the cost of approximately $15.

Comment from: Rachel, 35-44 Female (Patient) Published: June 25

My doctor called the maxillofacial department at my local hospital who suggested gargling with a weak soluble steroid up to 4 times a day. It has really worked for my burning mouth syndrome (BMS) and now every time it flares up I just do this for a few days and it dies down again. The good thing is that you don't have to swallow the steroid just have a good gargle. My BMS is due to stress apparently but certain penicillin based tablets bring it on immediately. I’m hoping this helps somebody.

Comment from: Pain, 45-54 Female (Patient) Published: June 16

I have been dealing with burning mouth syndrome (BMS) since Dec 27 2013. I had a tooth extracted and also a root canal. My doctor did a battery of tests, everything was normal but my loss of weight of 30 lb. I looked as if I was dieting, the only thing that sustained me was drinking Ensure, wearing a mouth guard at all times except while eating, and taking a large dose of Neurontin. The Neurontin helps, but in the time between taking the medicines, the mouth guard works; you can buy these at any drug store. Good luck, pain is not gone but so far manageable.

Comment from: sunshine, 65-74 Female (Patient) Published: April 01

Health care provider suggested using Difflam mouthwash or spray. The mouthwash worked for me however the burning mouth syndrome came back slightly after 6 weeks. I used wild oregano oil 80% carvacrol, 3 drops in glass of water. Take one mouthful swirl around and then swallow; repeat approximately 5 times daily. One glass should last all day. It works for me... good luck.

Comment from: donniec, 65-74 Female (Caregiver) Published: March 21

My Mom has been dealing with burning mouth syndrome (BMS) for about 6 months now. It was very disheartening to see her quality of life diminish over the course of time. After several doctor/dentist dead-end visits she visited a dentist who immediately determined that she had contracted a parasite probably during her last tooth filling. He has her on antibiotics and a medication to kill the parasite. It has been about two weeks since the diagnosis and treatment began. She is feeling much better and doing quite well. I hope this gives some of you another avenue to investigate in your search for answers.

Comment from: Lisa JJ., 45-54 Female (Patient) Published: March 14

I have just been diagnosed with BMS (burning mouth syndrome). It started on the tip of tongue, now is all down the sides and back of tongue. The pain at times is very overpowering and depressing. I have no idea how I got it, neither does my doctor, which makes it all the more depressing! My doctor said I was to rinse my mouth out several times a day with a very strong brewed chamomile tea, boiling 3 or 4 tea bags, then allowing them to cool and then rinse. I have not tried this yet as I"m waiting for water to cool beforehand. I will be back later after giving this treatment a couple of goes. For any sufferers out there that have not tried this remedy, please try and see how it works for you. Must be better than taking more drugs. Hope to give a more helpful write up later on today.

Comment from: mgmoocher, 45-54 Female (Patient) Published: March 07

I had burning mouth syndrome (BMS) for about a month. My thyroid medication was too high, so the doctor reduced the strength and I started taking mega B Vitamins, which all helped within a week. I am now about 90% good. Tongue is still a little sensitive but much better.

Comment from: sharon744, 65-74 Male (Patient) Published: October 18

I have had dry mouth and then BMS (burning mouth syndrome) for more than two months. I started rinsing with baking soda (1 and 1/2 teaspoon to about 8oz. water}. I had vast improvement within 2 days and almost 100% improvement within 2 weeks.

Comment from: bluella, 45-54 Female (Patient) Published: September 06

A month ago, my tongue started to hurt so badly. The pain is on the left side of the tongue. I went to the dentist and to an ENT. The dentist didn't know why my tongue hurt; the ENT said that it was BMS. I received gabapentin 600 mg/day. I tried ALA (alpha lipoic acid); it brought the pain down, but it is still there. I took B12 and vitamin C. I used vinegar and gentian violet. I tried Daktar for fungus (oral unguent); it seems to help, but the pain is still there. I tried to avoid chemicals because I am only 48 and I do not think I would live longer if I were bombarding the liver with poisons that do not cure but hide the symptoms. I am depressed, and I do not want to live with this pain forever. If you suffer from this, I am sorry for you. Life is supposed to be a beautiful journey -- mine is a hell.

Comment from: gilly199, 19-24 Female (Patient) Published: October 19

Burning mouth syndrome started for me about 3 months ago out of the blue. At first it was just my tongue feeling a bit off and then it turned into the tip feeling like it was burning and tingly almost every day! Some days are good where it feels like it's gone but it's always still there. I do have bad days with it where it hurts all day and there is nothing to help it. I will say though that once I started taking a multivitamin it lessened the pain. I mentioned it to my doctor but she doesn't seem very concerned about it.

Comment from: Rosanfow , 65-74 Female (Patient) Published: July 17

About 4 weeks ago I started getting the burning tongue sensation, dry lips and mouth, and I just thought it was all the medications I was taking, that I had maybe thrush. My doctor gave me some medicine for the burning mouth syndrome that is not working. I'm slowly eliminating things, I recently changed my probiotic and my toothpaste to see what's going to happen. I thought I was alone with this, I'm so glad I'm not alone. It is very scary.

Comment from: THE HAWK, 45-54 Female (Patient) Published: August 01

I wonder if anyone else out there with burning mouth syndrome suffers from only burning lips and not the entire mouth. For about a month now I've suffered from burning and sometimes itchy and peeling lips. They are a bit swollen, too. I used to get what I found on the internet to be 'burning lip syndrome' (I can't find this term any more) and alpha lipoic acid would knock it out in a couple days. But now, it doesn't seem to be working. I've incorporated vitamin B too today, but nothing yet and it is 5 PM. Eating or talking is horrible and seems to aggravate the discomfort. Any insight would sure be welcome!

Comment from: CAPeggy, 65-74 Female (Patient) Published: October 13

I have been experiencing burning sensation to the tip of my tongue, about 1/4 of the tip, for 6 months. Sometimes it is unbearable and what I found to be helpful is teething gel. It is not 99 percent but it takes the edge off the burning mouth syndrome. I went to my doctor, dentist, neurologist, and psychologist, and had a CT. No answers. Good Luck!

Comment from: ms tips, 55-64 Female (Patient) Published: June 07

I have had burning mouth syndrome symptoms since November of 2014 and have recently discovered what has been causing this; anything with high fructose corn syrup or HFCs. Anything that has corn in the ingredients has seemingly been causing this problem for me. I have been eliminating different foods from my diet and this ingredient seems to be it; bingo! Check labels of any food or beverage that you purchase. Also, I no longer use half and half in my coffee; instead, I drink it black.

Comment from: Cedaw, 45-54 Male (Patient) Published: April 27

Try a sublingual B12 supplement for burning mouth syndrome. I had recurring soreness in my mouth, cheeks, and gums for over a year.

Comment from: Alexandra, 55-64 Female (Patient) Published: March 01

I am truly convinced that burning mouth is connected with acid reflux disease, even though some people (like myself) do not suffer from heart burn. Antibiotics, and sleeping pills (including over the counter) seem to play a big role in hot mouth as well. Try Maalox and baby Benadryl (equal parts); swish and swallow as often as you can. Honey helps as well, but not a permanent fix.

Comment from: Stephanie, 45-54 Female (Patient) Published: October 13

I was diagnosed last year with burning mouth syndrome after my tongue split and I had to have 3 stitches after having my tongue cauterized which did not work. When I went to an ears, nose and throat specialist who said 10 years ago they did not know. Thank you for sharing as it is starting up again. I am going to try these things.

Comment from: cheriOK, 55-64 Female (Patient) Published: November 19

I used peppermint tea for burning mouth syndrome, drinking the tea and sometimes putting the cooled tea bag right on my tongue. This brings immediate relief, not a cure though. I also used peppermint chewing gum when symptoms arise.

Comment from: Lily2, 55-64 Female (Patient) Published: June 28

I was given clobetasol gel to put on tongue but it doesn't work. Nystatin rinse also didn't work for burning mouth syndrome.

Comment from: Beth K. Thomas, 55-64 Female (Patient) Published: April 27

About one and a half month back I got this burning mouth syndrome, like I had taken a drink of hot coffee. It is not going away, and the only way I get relief from it is sleep. It is there every morning when I get up till I go to bed and sleep. Water and milk are the only things that I can drink.

Comment from: Jennie-jay, 55-64 Female (Patient) Published: September 22

I just want to offer some real hope! After suffering from burning mouth syndrome for over 6 months, it affected the roof of my mouth, tongue and throat, I woke up one morning and it had gone. That was over a month ago and it hasn't come back. I didn't treat it in any way, it went as suddenly as it came. Good luck to all sufferers, it is so unpleasant.

Comment from: vickiemnis, 45-54 Female (Patient) Published: May 22

I had burning mouth syndrome (BMS). I no longer have BMS. It was due to a lower esophagus sphincter dysmotility issue causing laryngopharyngeal reflux (LPR). It is a type of aerosolized acid reflux. It is triggered by stress and histamine (allergies or sickness) where more acid is produced.

Comment from: Ashwini, 35-44 Female (Caregiver) Published: September 06

For burning mouth and tongue sensation please use anti-allergic tablets continuously for 3 days. That may be very useful.

Comment from: Donna R., 55-64 Female (Patient) Published: June 07

I have suffered from burning mouth syndrome daily for the past 40 years. Sometimes it feels almost unbearable and has caused a lot of anxiety and depression. I am 64 years old and hope I can do something about it. When I talk to any doctor about it, they act like I am a nut case and dismiss it. Each doctor has told me they have never even heard of it so I tell them to google it and am still dismissed.

Comment from: Eve, 55-64 Female (Patient) Published: December 02

I have burning mouth syndrome from a stressful situation. Hot water on pieces of fresh ginger and few drops of glycerin help.

Comment from: Tammy, 45-54 Female (Patient) Published: July 08

I am on my second bout which I believe is burning mouth syndrome (BMS). The first time was much worse than now, although I still have a lot of pain. Both times the corners of my mouth cracked as well. It is very hard for me to eat anything, it just burns and hurts so bad. I have been rinsing with a baking soda, salt mixture. It does not seem to be helping all that much. I do not know if I should call my dentist or not.

Comment from: Balake, 55-64 Male (Patient) Published: October 22

I have a burning tongue which is slightly swollen, with numbness in my cheeks and mouth around my lips. My dentist did a thorough examination which found nothing. For pain relief, he prescribed triamcinolone acetonide. This has provided 90% relief. We are still searching for cause. I am not on any medication, very healthy otherwise.

Comment from: CGray, 55-64 Female (Caregiver) Published: September 17

In March of 2012, I began to notice a tingling/burning spot on the left side of my tongue. Most days it was nothing more than an irritation. Since that time, the burning has spread to cover the majority of the left side. I'm noticing now the texture of my tongue is changing and still burning, and I have now developed dry mouth. All this led me to an ENT who said it was BMS. I read where glycerin helps, and it sure does. Now it is about keeping the burning down to a minimum. I can sympathize with those who share similar symptoms.

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