Patient Comments: Burning Mouth Syndrome - Signs and Symptoms

Question:

Describe the signs and symptoms associated with your burning mouth syndrome. Submit Your Comment

Comment from: Coco, 45-54 Female (Patient) Published: January 08

I am a 52 year old school teacher suffering with burning mouth syndrome (BMS) on my right side only (tongue and palate). Wondering if I am the only one! It all began 17 years ago after a tooth extraction. I am 100 percent sure that my lingual nerve was touched by the needle. I woke up the next day after the freezing left, and felt this constant burning pain that worsens the more I talk. I have seen every type of doctor, tried many medicines to no avail. Clonazepam is the only one that reduces the pain slightly. Every day is a challenge.

Comment from: Needtoknow27, 45-54 Female (Patient) Published: October 24

I had a spinal tap done for a C-section 3 months ago. When I came out of surgery I was throwing up like crazy with dizziness. I sat up and felt the whole room spinning so fast I thought I was literally moving in circles but I wasn’t. My husband said I was shaking so bad he thought I was having a seizure. I still don’t know what happened but it took me till the next day before I came back around. I was passing out and I didn’t even know anyone had come to see me.

Comment from: Cash, 55-64 Female (Patient) Published: August 20

My burning mouth syndrome (BMS) started a couple of years ago. No doctor could say why. Trial basis started with foods. I had been consuming large amounts of cilantro while making Pico De Gallo. I read about possible allergy that could develop. I stopped eating it and the burning slowed to a crawl. I cut out tomatoes, and slowed down on acidic things, and started taking my Zantac, best results ever. Still I was getting some burn at night, but if I chew a piece of gum it stops the burning. There is no hard cure. I use an all-natural tooth cleaning oil called Dental Pro 7.

Comment from: Terty, 55-64 Female (Patient) Published: August 02

I've had burning mouth syndrome almost 3 years and the pain is so bad, I don't how much longer I can take this. My tongue looks like a topographic map by night time. Concentrating is extremely hard. I suffered with a bad back for 15 years, had a major surgery, had a rod, cage, piece of cadaver bone, and this is by far the worst pain. I've tried the children's Benadryl with Maalox, a little relief, and salty things help while I am eating it. Nuerontin/gabapentin helps somewhat. My dentist and primary care doctor are stumped!

Comment from: Stephanie , 45-54 Female (Patient) Published: July 16

This is my second year having burning mouth syndrome (BMS). It went away temporarily but came back again after having my teeth cleaned. The dentist never heard of it but my doctor told me about it. Nothing helps except the ear, nose and throat doctor prescribed amoxicillin and it actually helped for about a month. I don’t have dry mouth. I have the opposite problem; too much saliva. I’m due for another cleaning in a couple weeks so I’m going to take amoxicillin a couple days before. They also have to numb my gums to clean.

Comment from: Alice, 65-74 Female (Patient) Published: January 07

My lips burn. I thought was the cold weather but now I think this is something else, maybe burning mouth syndrome. My mouth is fine, actually the worst is the bottom lip, especially when I eat or drink. Otherwise I'm healthy.

Comment from: Jj, 55-64 Female (Patient) Published: August 20

I have all the listed symptom of burning mouth syndrome in my mouth. But my lab test results came back off. Alkaline phosphate, lymphatic, white count, all way off. Still trying to figure it out. I see an ENT next.

Comment from: ????, 65-74 Female (Patient) Published: July 16

I have had burning mouth syndrome (BMS) for a year. I have not gone to a doctor yet. I have fibromyalgia and TMJ (temporomandibular joint disorder). I have researched this and using home remedies. Mix 1 tsp of baking soda with a small glass of warm water and rinse 3 times daily. Also do this when you first awaken, to get rid of the acid in your mouth. Wait a while before brushing your teeth. Buy organic pure aloe juice 99 percent, warm the juice for a few seconds, and then rinse even 4 times a day or more if needed; swish and keep in your mouth for a while, it really works! Good luck to you.

Comment from: PR, 45-54 Female (Patient) Published: October 30

I have had burning mouth syndrome (BMS) for approximately 10 years. It gets worse when I go to bed but probably because I’m not distracted so I am more aware of it. As I text this my tongue is so sore! Nothing helps! Sometimes it affects my bottom lip and throat too. I have to take zopiclone every night so I can sleep. My general physician said BMS is notoriously hard to treat!

IMAGES

Burning Mouth Syndrome (BMS) See pictures of dental procedures and oral health conditions See Images
Comment from: Trendkilla254, 35-44 Male (Patient) Published: October 10

I went to eat hot wings. Next day (Monday) I developed a mild ear ache and had a bad taste in my mouth I could not recognize. Tuesday my ear ache grew worse and I had a ‘lump’ feeling when swallowing and copper taste to everything. Wednesday my pain was 8/10, with burning tongue and roof of mouth, and 10/10 when swallowing. Thursday I went to the doctor, ear infection no clue, but for mouth he gave antibiotics. Monday (8 days after wings) I went to an ENT doctor. He said it was burning tongue syndrome. I took Medrol pack, pain reduced 4 days later, it is now almost a month and a half and it's better.

Comment from: Jo Anson, 55-64 Female (Patient) Published: September 26

My gums, lips, tongue, even the roof of my mouth which also bleeds, and my throat which makes me hoarse, are at this time burning awfully. In fact my burning mouth syndrome is like having pepper on my mouth all the time. I don’t eat spicy food but even a cup of lukewarm tea has me in tears.

Comment from: Gucci, 25-34 Female (Patient) Published: August 20

My mouth burns from spicy food, so does any type of acid food. Oh my goodness, over seasoned food my mouth, lips and tongue will be on fire. My burning mouth syndrome has been the worst, and I have had two years dealing with this. I can’t eat anything comfortably but a salad. I need help.

Comment from: Lucy, 35-44 Female (Patient) Published: August 15

I've experienced burning mouth syndrome ever since a radioactive iodine treatment almost 3 years ago. My tongue tingles, burns, and feels like sandpaper, gritty all throughout the day. I make enough saliva but my mouth is subjectively dry. My symptoms tend to change slightly after about 3 to 6 months, but they've never completely gone away. Drinking fizzy drinks irritates my tongue, but eating tends to eliminate the pain. My dentist suggested that it's acid reflux, so I'm taking Prilosec to try to rule it out.

Comment from: Diwi57, 55-64 Female (Patient) Published: June 05

I have a sore tongue and roof of the mouth and sometimes tingling of the lips. The burning mouth syndrome is driving me batty. The doctor said it can happen after a traumatic experience. I wonder if anyone has experienced broken heart syndrome! I first thought it had to do with the medication I was on but am now only using zopiclone for sleeping.

Comment from: Mary, 65-74 Female (Patient) Published: February 23

I have been dealing with burning mouth syndrome (BMS) for over a year now. I tried alpha lipoic acid 600 for a month with no change. The pain is on the roof of my mouth, the end of my tongue and inside my entire bottom lip. By the end of the day, my lip is actually swollen and it is difficult to talk. I tried Magic mouthwash from an ENT Specialist with no good results. I am at my wit’s end. Most people have never heard of it. I am going to my dermatologist today and I bet he hasn’t heard of it either.

Comment from: DJinTX, 55-64 Female (Patient) Published: February 07

My burning mouth syndrome (BMS) started in April 2017 after having a steroid shot for sciatica. It has progressively gotten worse and the doctors and dentists have all said there is nothing else they can do for me. I've tried everything. They said it is very rare so there is no money being spent on research for it or a cure. They seem to think that it is a neurological condition of which there are over 600! I recently had a bilateral epidural cortisone injection procedure for pinched nerves in my sciatic area, and even that pain blockage procedure has not helped the BMS. I have not been able to pinpoint any particular foods that worsen the burning, it just seems to happen as the day progresses. By 10 pm I'm usually taking about 4 Advil to help a little bit and help me fall asleep. I refuse to take any other pain medicines! I have noticed that when I'm distracted totally with an activity, I tend to forget about it for a while but it's always right there as soon as I stop. Keeping Vaseline on my lips all day has helped a lot on that area, and sometimes I actually rub it inside my mouth to keep it smooth and not let the friction between tongue and inner mouth tissue irritate each other. I wish some research team or pharmaceutical company would jump on our band wagon and pay attention to this debilitating syndrome!

Comment from: Marge RDH, 55-64 Female (Patient) Published: December 18

My entire mouth burns and feels like shingles of the mouth, severe knife like burning. There are no clinical signs of burning mouth syndrome in my mouth. My lips, chins and cheeks feel like prickly pins.

Comment from: Jo A., 65-74 Female (Patient) Published: July 17

I have had burning mouth syndrome for over 2 years. I have sores in my mouth and my lips burn constantly. I have tried coconut oil, changing toothpaste, dry mouth sprays, and even lozenges from a compound pharmacist. Nothing gives me relief. I suck on ice chips all day and put Vaseline on my lips. However, recently my nurse practitioner suggested using a liquid antacid like Maalox mixed with liquid Benadryl. So I mixed 1 tablespoon of antacid with 1 teaspoon of Benadryl. I squished it in my mouth, let it set for a minute and then swallowed it. It stopped the burning for a good while. It is the only thing that has given me some relief.

SLIDESHOW

Mouth Problems: TMJ, Canker Sores, Painful Gums and More See Slideshow
Comment from: smonfils, 45-54 Female (Patient) Published: June 15

I was diagnosed with burning mouth syndrome at age 47 (I am now 52) and the symptoms just keep getting worse. I can't seem to eat anything without extreme pain in my mouth due to sores on the tongue, the inside of the lips and the roof of the mouth. Lately it has traveled down to the back of my throat. I have tried everything doctors suggested and nothing has worked. I get frustrated and depressed since I have always loved the taste of food. Now, I'm terrified of eating anything.

Comment from: gene128, 65-74 Male (Patient) Published: June 02

I've had burning mouth syndrome from January 1 of this year. I have dry mouth, burning tongue and am getting ulcer on my tongue and lower lip. I am taking two different medicines for it, alprazolam and clonidine, and using Colgate Peroxyl mouthwash. The mouthwash seems to help a lot. I had triple heart surgery in 2006. I am a diabetic under control most of the time. I do take a few different medicines, an awful lot.

Comment from: onfire, 45-54 Male (Patient) Published: March 28

Anything I eat tastes of pepper (which I dislike). My mouth and lips burn constantly with the burning mouth syndrome. I literally am on fire, there is no relief, and the only thing that works is sleep.

Comment from: bre_real, 55-64 Female (Patient) Published: January 03

I have had burning mouth syndrome (BMS) for about 7 years but was only diagnosed about 18 months ago. At its worst, I get sores on my tongue, lips and roof of my mouth. I have constant dry mouth and my lips tingle frequently. I am unable to drink any coffee or tea due to the caffeine and tannins exacerbating the symptoms. For me, the condition is best in the morning and gets worse throughout the day. I also have major depressive disorder and have had to radically adjust my treatment medication. I can take my medication for about 5 to 7 days, then stop for 3 or 4 weeks, and take it again for 5 to 7 days. When will this end!

Comment from: Baxter, 55-64 Female (Patient) Published: December 12

I am a stage three tonsil survivor, had chemotherapy and lots of radiation. I have persistently dry mouth and my tongue burns also. I have consulted a dentist and a doctor about my burning mouth syndrome. I also lost teeth from the radiation.

Comment from: Ziggy, 35-44 Female (Patient) Published: November 16

I have always loved ketchup, spicy foods, etc., but about a year or so ago I had all my top teeth removed and now everything burns my mouth. I can understand spicy foods but Ketchup, potato chips, etc., everything I eat burns.

Comment from: MrsAdams, 45-54 Female (Patient) Published: November 15

I have burning mouth syndrome and have tried just about everything suggested here; B12, steroid rinses, cutting sugar out of my diet. The only thing that gives me any relief is chewing ice. Constantly. It is a terrible source of discussion in my family who thinks chewing ice is a gross and distracting habit. They won't eat with me if I'm chewing ice (although they hardly notice that I can eat only bland foods, and never anything with salt). I am going on my third year of having this condition and everyone thinks I'm making it up for attention. It hurts every minute of every day and it's all I can think about.

Comment from: Sue M, 55-64 Female (Patient) Published: June 09

I have suffered from sore tongue for over a year and am now being treated at a hospital for burning mouth syndrome. They think that a lot of this problem is caused by mental or physical stress. Loss of father, poorly mother, teenage daughter, etc. Anyway, yes I smoke which does not help but what is one to do with this life I now have. I get a product called Gengigel mouthwash and gel. A little bit pricey but definitely helps. Use after meals and last thing at night.

Comment from: Barbara, 45-54 Female (Patient) Published: May 24

I have burning mouth syndrome and my doctor says I am the right age bracket to suffer this condition and offers no help at all! No one seems to understand how awful this is but I have found that if I don't smoke it helps a lot. If I'm stupid enough to have a cigarette I pay for it all day and can only get slight relief by brushing my mouth, gums, tongue, everything with a soft toothbrush and then using dry-mouth wash. Stay away from products like Listerine as they only exacerbate the symptoms. I hope this helps someone, everyone looks at me like I'm crazy because I'm constantly brushing, but it does help a bit. Good luck, fellow sufferers.

Comment from: hershey33, 45-54 Female (Patient) Published: April 12

I have had this problem of burning mouth syndrome for probably 5 years now. It was put off to be from my smoking at the time but when I quit and was off them for months then my doctor got me an appointment after several times of saying how sore my tongue was. It took 10 months to see an ears, nose and throat doctor. That is average wait in Canada now and after seeing that doctor and her not being able to find the drug she wanted me to use I have been put on another wait to see an oral surgeon dentist. I also get sores on my tongue which are extremely sore! And I have nerve damage in half of my face which causes me extreme pain, which was a result of a bad motor bike accident with no helmet. I am really hoping it is one of several drugs I take. I can't even eat salads now because the dressing burns my tongue, which is very disappointing! I sure hope they figure out what is causing this problem really soon because it burns so bad that when I was trying to get a salad into me I had to drink a bottle of water to try and get it into me.

QUESTION

What causes tooth decay? See Answer
Comment from: hereinohio, 45-54 Female (Patient) Published: March 24

I have been dealing with complex regional pain syndrome (reflex sympathetic dystrophy) for almost a year, as a result of having rotator cuff repair surgery. Now I have burning of my tongue and roof of my mouth, and numbness of the right side of my face (the CRPS affects mostly my right arm). We are hoping that the face and burning mouth syndrome symptoms are a side effect of a medicine that was started about the same time as the beginning of the symptoms, but I have been off of the medicine for two weeks now and it doesn't appear to be helping. What I really wanted to share was the diagnosis of CRPS, because so many of the posts that I have just read sound just like it. It is a strange disorder and you really need to get a doctor who is familiar with it! My shoulder surgeon and physical therapists were very open to the diagnosis but many in the medical field do not even acknowledge that the condition exists (although I think that this is because they don't understand it). Treatment for me is pain management and making sure I do my PT at home (some are experts in PT for CRPS, seek them out and they may help; it didn't improve my condition, but some get help). Best wishes, on your journey to relief!

Comment from: Jean, 55-64 (Patient) Published: February 09

I have had burning mouth syndrome for about 5 years now. When I started taking gabapentin for neuropathy it has given me much relief. However, I have lost most of my sense of smell and taste. It affects my tongue and roof of my mouth, burning much like if you had taken a bite of very hot pizza and how your mouth feels afterward. Yes, I also go through bouts of very dry mouth. There was no benefit of using the several mouth washes that are made for it. Try gabapentin if it gets intolerable.

Comment from: Su, 65-74 Female (Patient) Published: August 21

I have had BMS (burning mouth syndrome) for 16 years. Sometimes the pain is overwhelming. It is almost too much to bear that I must wake up every morning to face this awful pain. Doctor has me on cevimeline hydrochloride 4 times daily and doxepin mouthwash. This helps dull the pain but never eliminates it. I have given up on ever being able to be pain free. I get very depressed often. Family does not understand.

Comment from: SHummer515, 55-64 Female (Patient) Published: May 21

I have had the burning sensation in my tongue since January of this year and the burning mouth syndrome has only gotten worse. My doctor has given me medicines, and swish and swallow stuff because he thought I had a yeast infection which caused me to get thrush of the mouth but nothing is working. I am going to a dentist hoping they can figure this out because it is affecting my health in other ways. I am worried I may have some type of cancer but I am not a smoker so not sure what else it could be.

Comment from: Tim, 35-44 Male (Patient) Published: May 21

Recently I had a surgery for mastoiditis after being on 5 different antibiotics over a three month period and the doctor finally finding out it was a staph resistant mastoiditis. It then lead to me having C. difficile. Now I have been suffering from the burning on the tip of my tongue going toward the top middle of my tongue and my lips burning horribly. I haven't been diagnosed with burning mouth syndrome (BMS) but know after reading that this is what it is. I'm wondering if my surgery, C. difficile, or medications could be the reason for this. The burning is horribly painful and intolerable.

Comment from: PurpleForever13, 45-54 Female (Patient) Published: January 21

I had major surgery in 2008 to remove a blood clot between my small intestines and stomach. I had burning mouth syndrome (BMS) prior to my surgery. I have had BMS for 8 years. I take 2 mg of Klonopin at night and rinse with clove, pepper, and cinnamon essential oils rinse, which helps a little instead of the so called Magic mouth wash (made of Maalox, lidocaine, Benadryl), which is expensive if you don't have insurance. I have had every test except a biopsy to see what the cause is. This BMS has been really bad this last week of 2015. I have done so much research, took so many vitamins and so forth, that now I wish I just didn't have a mouth, yes, it gets that bad. The others that suffer with me, I'm sure feel the same. I will be doing really good, then anything that has citric acid, which is mostly everything on the market these days, fires it up and there is no winning, just miserable all the time. I sometimes have to resort to oxycodone, which I dislike with a passion, to relieve pain, only somewhat, but better than nothing at all. I hope very hard every day that it will permanently just disappear and things could be good again. I guess wishful thinking, uh. Very hard to be happy and fun loving when you have BMS. I know there are more people out there with BMS, but at least I share it with others and don't feel like I'm the only one. Thanks for listening, if someone happens to find something to help, please let me know. I take Klonopin 2 mg at night and Candidastat, over the counter vitamin for it if it is fungal.

Comment from: tami, 45-54 Female (Patient) Published: November 25

My lips, tongue and throat burn constantly. I have to chew gum all day, even when I go to bed at night. My mouth is very dry as well, I am always drinking very cold water to help. My dry mouth started when I quit smoking 4 months ago.

Comment from: donna, 45-54 Female (Patient) Published: November 12

Yes, I have been plagued by burning mouth syndrome on and off for a pretty good while, over 3 months. It feels as if my taste buds have been raised and I can feel every bump. When my tongue touches my dental work it feels like foil touching them. Nothing taste right and I am getting sore bumps under my tongue, my lips stay dry and I constantly drink water. I also have developed a sore in my nose that starts to get better then gets worse.

Comment from: Susie, 55-64 Female (Patient) Published: May 09

I woke up after back surgery on October 5, 2012 with back pain relief and horrible burning mouth syndrome (BMS) pain. After one exhausting year traveling all over the country the only conclusion was, BMS and good luck to you. Klonopin for me helps a bit, 0.5 mg in the morning and at bedtime. Tough, exhausting, addictive drug. Just that if I don"t take it I get into real burning horror, blisters, rancid taste, dry mouth, etc. It amazes me that after 12 years of me having it and many more years of millions of people suffering with it there is no cure... or even a little help. Not enough money to be made. Only 5 plus million BMS sufferers worldwide. It"s a real shame. It"s truly changed my life, in a painful, sad way. I have to fight the pain and burning every second of every minute of every day.

Comment from: Grando, 55-64 Female (Patient) Published: May 02

I was just diagnosed with burning mouth syndrome (BMS) and esophageal hypersensitivity. I have been sick for a year and my doctors were not able to diagnose me and sent me to Mayo. I have a very tender face and scalp. It hurts to wash my face and apply makeup, and hurts to wash and brush my hair. I don't know if it is from the BMS or the hypersensitivity. Also my nose (sinuses) hurt all the time. I use saline spray but nothing helps. My eyes are also affected. The doctors told me to take 4 teaspoons of water and add 1 to 2 drops of tabasco sauce and swish it in my mouth and spit out. Do this 3 to 5 times a day. Build up the number of drops of tabasco but never use more than 4 teaspoons of water. It is supposed to desensitize your mouth. It will make your lips swell a little bit. It will burn at first but that goes away. I am up to 4 drops of tabasco. I do think it is helping some, it is worth a try since I have not found much to help. I have really bad pain in my esophagus. I was on a Fentanyl patch up until two weeks ago for the pain, but now they have put me on nortriptyline for the hypersensitivity so I weaned off the patch two weeks ago. Today I have experienced bad pain again which scares me. I don't like being on an opioid. I am not use to taking pain medications. I have also been on Lyrica but the side effects are so bad that I have been weaning off of it. It did help my pain some. There is no cure for either of my illnesses. My doctors here have never seen anybody with it and don't know what to do for me. My life has been turned upside down. My old self is gone. Now I live in chronic pain.

Comment from: hurting, 65-74 Female (Patient) Published: May 02

I started with this burning mouth syndrome about 8 months ago. Dry mouth, burning tongue and down the throat, which is constantly sore. I feel if something is not done it will destroy my teeth and throat. I went to an ENT and he thought it was acid reflux but after taking the pills I had no relief. I have so much pain from sciatica, neuropathy, fibromyalgia, swollen leg, and now this. I take Vicodin 1-3 a day to cope. I talked to a dentist who didn't know anything about the problem so am discouraged. I use Biotene, nose sprays and saline. I also have sinus problems.

Comment from: claire, 55-64 Female (Patient) Published: April 22

My burning tongue started in 2008 after I was very much stressed. It used to get worse during the day. Chewing gum helped to relieve pain and I often went to sleep chewing gum. Recently I have been diagnosed with GERD reflux disease and I am wondering if chewing the gum produced extra acid in the stomach. My tongue is now constantly on fire and I hope every day for relief. Some days it is unbearable.

Comment from: CharleyN19, 55-64 Female (Patient) Published: April 11

I have not yet been diagnosed with burning mouth syndrome (BMS), this is just one of the possibilities. My problem started about 2 1/2 years ago. But, mine has just been sores in my mouth and on my tongue (top and bottom) and burning when I eat certain things. I can no longer eat anything that has just the least bit of spice. Even mustard and catsup burn. Over time it has gotten worse with more foods. But, acid does not burn. I have not problems with citrus at all. But, the last couple of weeks I have had problems waking up with my mouth burning and tongue feeling twice its size.

Comment from: lanay40, 45-54 Female (Patient) Published: March 13

I have had burning mouth syndrome for 10 years. It hurts constantly, it’s like I have deep lines on my tongue. I can’t eat anything that has acid in it, like steak sauce, ketchup. I read up on it and have seen something called road map tongue I think. I have fibromyalgia chronic pain but this pain is unbearable at times and the doctor just ignores it basically, I’m totally frustrated! Also it looks like I have like raised taste buds, it hurts on the side and my whole tongue.

Comment from: Pfedero, 55-64 Female (Patient) Published: February 14

I first experienced burning tongue 15 years ago. My doctor prescribed an oral rinse for thrush. It didn"t work, so I went to my dentist who diagnosed me with burning tongue. He said it was caused by an allergy probably to summer fruits such as berries. He referred me to an oral surgeon who said I had geographical tongue which is due to stress. I usually feel run down besides having the scalded burning feeling on the top of my tongue. Sometimes the oral antiseptic sprays numb the burn temporarily on my tongue, but time usually heals the burn.

Comment from: BarbS, 55-64 Female (Patient) Published: October 15

My burning tongue syndrome started about a month ago. It started on one side of my tongue and the top of my tongue felt like it had cuts, it was so sore. It would be mild in the morning and raging by bed time with my tongue so swollen I could hardly close my mouth to sleep because it would touch my teeth. I saw my family doctor and an ENT who said I have burning mouth syndrome. I also showed signs of GERD, I am on BP medications and was under a great deal of stress at the onset; the perfect storm.

Comment from: Lrobles, 45-54 Female (Patient) Published: July 22

I have tingling of the tongue from burning mouth syndrome.

Comment from: Ccc, 65-74 Female (Patient) Published: May 22

I've had burning mouth syndrome for about a year. It is so miserable. Doctors, dentist and oral surgeon gave no hope even though we tried many new vitamins. An acupuncturist said she can get rid of it while I was in her office. I do not understand what she does. I go once a week. Sugarless gum is my relief. I just recently heard that lack of estrogen can cause it so I will be starting bioidentical estrogen tomorrow. I am hopeful.

Comment from: Jody, 65-74 Female (Patient) Published: July 09

I had burning mouth syndrome some years ago and a doctor at a walk-in clinic told me he had read an article that it was an ingredient in toothpaste that caused the burning sensation on my tongue. He suggested I use a toothpaste with baking soda, which I did and the problem was solved. I do however still have a very sensitive mouth to hot and spicy foods. Hope this helps someone, it sure helped me.

Comment from: Elaine, 65-74 Female (Patient) Published: May 30

I have had a metallic taste in my mouth several times and it just went away. This time I have had it for a couple of months and now my tongue and the inside of my mouth are sensitive to almost anything I eat. I started several different health helping pills and am wondering if it could be one of those or one of those combined with one of my prescription drugs that caused my burning mouth syndrome. Maybe many of us have what we are taking in common and that could be part or all of the problem. It is a thought. When I research the different things I am taking some can cause a metallic taste in my mouth. That is why I think it is one or a combination of them that is causing it.

Comment from: Restless67, 65-74 Female (Patient) Published: October 16

I have burning mouth syndrome or what is called anesthesia dolorosa from cutting 2 nerves in my face/brain. I had trigeminal neuralgia (TN) on the right side of my face. Surgery didn't help so the neurosurgeon cut 2 of the 3 branches of nerves. The result of this is burning mouth syndrome. It becomes worse with time and is almost as debilitating as TN (not quite, but almost). I am looking for some treatment.

Comment from: Zammer, 55-64 Female (Patient) Published: July 03

I have burning mouth syndrome (BMS) and the doctor ruled out thrush. I tried nystatin. It does help lessen the BMS but, after 4 to 7 weeks, back to being awful. However, the use of prescribed oral rinse nystatin does help. I have improvement after using it for 4 up to 7 days in a row. Ask your doctor to prescribe it and give it a try; might just help you as well.

Comment from: Jen, 55-64 Female (Patient) Published: April 03

I have suffered with burning mouth syndrome twice now. The first time I experienced it, I thought I had burned my mouth by eating something hot. It disappeared by itself after about 2 weeks. This second time, I swear it was due to using Crest Pro-Health Advanced toothpaste. I've had it now for 2 weeks and have added vitamin B12 to my diet. I hope it goes away quickly.

Comment from: Linda, 65-74 Female (Patient) Published: October 05

I have suffered for many years with burning mouth syndrome (BMS). It is getting to be the norm. I have noticed that certain smells will set my mouth on fire. New tire smell and some perfumes and cleaning products. They can make it worse but it is always there. I have tried several medications with no relief.

Comment from: boxer46, 55-64 Female (Patient) Published: April 26

I got a new crown that is gold and silver plus 1 percent palladium. That night the irritation started on my tongue. I had a 27 metal test done by a dermatologist as I knew my dentist wouldn't believe me. It came back negative. I had burning mouth syndrome before, after some dental work. Now the anxiety has set in. I wear my night guard to keep my tongue from the crown. Last time I used alpha-lipoic acid and zinc, and liquid vitamin B under the tongue. I use cayenne pepper on foods to relieve the burning.

Comment from: sandradee29, 45-54 Female (Patient) Published: May 21

I have been to two dentists and I have a metallic and burning taste in my mouth and my back teeth burn so bad!

Comment from: wjk1, 55-64 Female (Patient) Published: March 11

My mouth burns almost all the time. It's miserable. I have had breast cancer with chemotherapy and radiation. Nothing seems to help and I've tried everything; ice chips, phenol, oil pulling, peppermints, gum with xylitol (probably the most helpful), but for the most part no relief.

Comment from: sheryl, 45-54 Female (Patient) Published: March 11

I have read about all the people suffering from burning mouth syndrome (BMS). This is very hard to deal with, as I have not been diagnosed with BMS but dry mouth. I can barely eat, everything taste like cardboard and my mouth is dry all the time. Nothing has worked for me, I am on disability from a car accident and they said possibly I have nerve damage, but I am depressed and alone and trying to fight this. This has ruined eating out eating at all. I am so goofed up that I am eating TV dinners because I cannot seem to cook anything that tastes good. This is awful, it is no way to live. My tongue is sensitive, water doesn't help, Biotin doesn't work, and gum is not working. I have no relief, I just want this over. At least reading these I don't feel alone.

Comment from: noname, 55-64 Female (Patient) Published: February 20

With burning mouth syndrome it is burning on the sides and tip, driving me a little crazy. It gets worse when I eat.

Comment from: Zimbo, 65-74 Male (Patient) Published: May 09

I have been fighting burning mouth syndrome (BMS) for nearly 2 years now and yesterday I went to my pharmacist and asked him to help me. He gave me Degranol tablets 200 mg and they are already helping. Amazing, I take them twice a day, why did I not ask him before now! Try it, they make me a little sleepy, that"s all at the moment.

Comment from: Varan, 45-54 Male (Caregiver) Published: March 13

My burning mouth syndrome started some months ago. Now it is almost frequent. The root part of the tongue and palate have burning sensation. In the beginning I was not able to identify what it was. When it became frequent, I attended and monitored it. No medicine is taken until now.

Comment from: Teamd, 45-54 Male (Patient) Published: March 03

I was just diagnosed with BMS (burning mouth syndrome) after treating acid reflux with omeprazole (Prilosec). There is no change in symptoms after over a month on 40mg Prilosec. Burning sensation is in the center of tongue and soft palate, with a tickle in the back of throat which is sore at times. I came off of amoxicillin and Levaquin when trying to treat the sore throat, which is now secondary to the burning areas. Some studies have shown antibiotics have led to symptoms of BMS. The burning has been for a month now, and started after the antibiotic course. Still being treated for minor acid reflux and now switching to baking soda toothpaste to counter the acidity as well as using a product called Gly-Oxide to control the PH in the mouth. Let"s see how it goes. Fortunately, the burning has been mild.

Comment from: JayCee, 45-54 Female (Patient) Published: August 21

I have had burning mouth syndrome for quite a while now, but nothing made sense until I just read the post that said that someone was on migraine medicine and sleeping meds. I believe that is when my burning mouth syndrome started as well. So, maybe it has something to do with either the migraines themselves and/or the medicine we are taking. I am going to bring it up to my doctor or pharmacist to see if one of them could be causing the problem. Good luck! I sure hope it stops soon!

Comment from: carol, 65-74 Female (Patient) Published: August 30

I had painful stinging from burning mouth syndrome for several months. Please try acupuncture and eastern herbal medicine. My practitioner knew immediately where the heat was coming from and is helping my body work it out.

Comment from: Brodie , 25-34 Female (Patient) Published: May 03

I recently developed burning mouth syndrome after dental work; I think that set it off. I went back and forth with the dentist and even to a mouth specialist who also had no idea. I read lots of experiences and tried some for myself. What works for me is the over the counter vitamin L-lysine (Holland and Barrett), green tea and gum. Now my mouth is pretty pain free! Very rarely it gets uncomfortable like it used to. Please try what I recommend.

Comment from: PVA, 65-74 Male (Patient) Published: January 13

I read several years ago about a man that chewed ice constantly for burning mouth syndrome. It turned out that he was iron deficient. By taking an iron supplement, his craving for ice disappeared.

Comment from: Irish R, 55-64 Female (Patient) Published: December 22

Believe it or not, but when my tongue gets really bad from burning mouth syndrome I rinse with milk of magnesia, works every time. Good luck.

Comment from: suzann, 65-74 Female (Patient) Published: March 18

I was diagnosed with burning mouth syndrome (BMS) two months ago after having four teeth filled. I felt so bad, I have been going for pain management and I can cope better but still find it hard to accept. I do not want to be on relaxant tablets for a long time and worried about it getting worse as time goes on.

Comment from: KellyAnn027, 45-54 Female (Patient) Published: September 30

Clonazepam helped my burning mouth syndrome for 10 years and now it is back again. I'm going to increase my clonazepam and see if it helps. But for a long period of time it was a blessing.

Comment from: Chris, 55-64 Female (Patient) Published: May 05

For 2 years now I have suffered with a pulse or current throbbing sensation behind my top teeth and roof of my mouth. It wakes me up and doesn't stop till I fall asleep. I had an infected cyst removed from my sinus last month but the sensation is still there. Both CT and MRI scans were negative for burning mouth syndrome.

Comment from: [email protected], Female (Patient) Published: March 17

I have a burning pain like my mouth is on fire; a cough and sore throat also.

Comment from: digravi, 55-64 Female (Patient) Published: September 23

I have burning mouth syndrome. I have had 2 years ago and it went away but now it’s back; there is no help for this. I’ve have been to the ENT and dentist. I can’t live with this anymore, you don’t know how we suffer.

Comment from: Rose48, 65-74 Female (Patient) Published: October 22

I have had burning mouth syndrome for the last 15 year or so. I have seen many doctors and tried all kind of medications but nothing helped. They gave creams, and now I'm on Apo-amitriptyline. I have only been on it for a few days. I'm a 65 year old mom, aside from the burning mouth I'm pretty healthy. My mouth burns so bad at time I have to drink cold water; it burns more at night.

Comment from: lady in distress, Female Published: July 11

I developed BMS in February 2013, not sure what was wrong. I went to the doctor and had all kinds of test and there was no allergies nor low levels of vitamins. I was put on a sleeping medication and a migraine preventative and then BMS occurred. No med's work, need help!

CONTINUE SCROLLING FOR RELATED SLIDESHOW