Patient Comments: Branchial Cyst - Treatment


Did you have surgery for your branchial cyst? If so, please share your experience. Submit Your Comment

Comment from: LadyMarie, 55-64 Female (Patient) Published: March 14

In my early 50s I noticed a swelling on the right side of my neck. It was diagnosed by an ENT as branchial cyst. It was removed and found to contain cancer cells. The cyst itself was not cancerous but my tonsils had small cancerous tumors.

Comment from: Cindyt79, 19-24 Female (Patient) Published: January 15

I was 17 when I had surgery for my branchial cyst. The doctors initially thought I had a swollen lymph node but after a biopsy and CT scan they figured out it was a branchial cleft cyst and removed it in December of 2016. My recovery went okay. A nerve was damaged and I lost feeling on the side of my neck where the cyst was removed. I regained feeling, but now, I feel pain and discomfort on my neck/trapezius muscle. I’ve gotten used to it but it’s an annoying pain.

Comment from: beevel, 3-6 Female (Caregiver) Published: January 15

My daughter, now 28 years old, had a branchial cleft fistula at birth which was totally ignored by the pediatrician. We were told it would go away, which of course, it did not. When she would have a cold it would have some drainage but never get infected. At age 4, a new pediatrician asked why it was never addressed at birth, advised surgical removal, which was scheduled. Complicated surgery due to location, muscles and nerves involved. But she came through fine, and has no further issues.

Comment from: ONB, 65-74 Female (Patient) Published: January 09

During my first surgery the surgeon saw that I had a branchial cleft cyst and it was filled with MRSA. The surgeon removed the MRSA. Several years later I started to notice a lump again and returned to the surgeon who then removed the cyst all together. That has been about 8 years and I haven't had any more problems.

Comment from: J, 45-54 Male (Patient) Published: December 11

I had surgery to remove a branchial cleft cyst 1 week ago. The procedure took about 2 hours and I was hospitalized overnight. I had a very sore throat and some mild pain at the site of the incision (about 2 inches long). I managed pain with Tylenol. I did not need the oxycodone that was prescribed. Sore throat lasted for 4 days. The area around the incision is painful to the touch, but otherwise there is not much discomfort now. I can return to work in another week (off work for a total of two weeks).

Comment from: Denise, 45-54 Female (Patient) Published: April 25

My lymph node broke in my neck area right where the branchial cyst was located. So both burst creating a mass that was hardened like cement. I had to have two major surgeries to get it out. I haven't had any problems since then.

Comment from: Lindsey22, 25-34 Female (Patient) Published: August 19

I found out I had a branchial cleft cyst when I was 17 years old. The doctors thought for months that it was a swollen lymph node. I got a PET scan and that determined that it was a branchial cleft cyst. I had surgery a few weeks after diagnosis. The surgery went smoothly and the scar is barely noticeable. My neck was sore for a few days after surgery but overall was a very easy recovery.

Comment from: Will, 55-64 Male (Patient) Published: December 19

I had what turned out to be a branchial cleft cyst after having biopsy and CT scan. The fine needle aspiration (biopsy) greatly irritated and hardened the cyst causing pain and alarm, and I nearly opted for what would have been unnecessary major neck surgery, under urgent pressure from all medical people to do so quickly. The cyst is entirely gone now (4 months later) and the treatment was a traditional Chinese herbal tea prescribed and made by a Chinese doctor. Amazing result, saving me upwards of USD 50K.

Comment from: maddie11, 19-24 Female (Patient) Published: February 09

I recently found out I had a branchial cleft cyst. I found a lump in my neck almost 8 month before seeing a doctor because I thought it was a swollen lymph node and that it would go away. Finally, I went to a doctor and for months they thought it was lymphoma. The lump didn't start growing until after my biopsy and then it starting growing rapidly over night. It wasn't until after my biopsy came back inconclusive that they ordered a CT. It was after the CT that they figured out it was a cyst and not a swollen lymph node. I have surgery next week to have it removed, wish me luck!

Comment from: Wishing1, 65-74 Female (Patient) Published: January 16

I was in my 30s, felt fine but noticed a lump in my neck that didn't go down but kept growing. I went to my doctor who thought it could be lymphoma and surgery was done shortly afterward. Easy surgery even though the branchial cyst was golf ball size. Couple of years later, they found I had an AVM (arteriovenous malformation) which is also a congenital defect. Surgery was a success in that too but I wonder why all the birth defects.


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Comment from: Erin, 45-54 Female (Patient) Published: June 06

It drastically reduces inflammation if you put a cloth with castor oil over the affected area. You need to do this 3 times a week over the course of 3 months in order for the branchial cyst to reduce in size.

Comment from: Lee, 45-54 Male (Caregiver) Published: February 01

My daughter had a swollen lump on her right neck. The lump swelled within hours without her notice. Doctors suspected it was a swollen lymph node. The mystery was only solved after the MRI scan. It was a branchial cyst. Doctor drew the fluid for biopsy and also suggested to go for surgery to remove the cyst.

Comment from: Girl, 13-18 Female (Patient) Published: September 25

I have a bronchial cleft cyst. A couple years back I thought it was just nodes. We got it checked again a couple months ago. Turns out, it was a birth defect. I have gotten biopsies, tests, scans. I will be getting surgery soon. Wish me luck!


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