Patient Comments: Brain Hemorrhage - Recovery

Question:

Did you, a friend, or relative recover from a brain hemorrhage? Please share your experience. Submit Your Comment

Comment from: Essie, 75 or over Female (Patient) Published: July 16

I had a chronic subdural brain hemorrhage last December 2020. I fell, banged my head, crawled to my vehicle and then drove home. For one month, I did not get any medical intervention. My writing deteriorated badly. On 10th January, 2021, I collapsed physically and was airlifted to a hospital, receiving burr hole surgery, draining the 50 ml brain bleed. Now 15th July, 2021, I am recovering, with aerobic exercise, BCAA (branched-chain amino acids) for brain and muscle strength, ear plugs (healing night sleep), belly breathing, and natural food.

Comment from: malik, 45-54 Male (Patient) Published: May 12

I got brain hemorrhage, and my left arm and leg were not working. After two months I started walking on my feet with the support of a walking stick. I got physiotherapy for two months. It was the most difficult time of my life. I asked my doctor to cut my leg and arm, and he said I will be fine soon. After two months, yesterday I walked with a walking stick. I ask my sons to just walk with me in case I am going to fall down.

Comment from: Ujjawal R, 65-74 Male (Caregiver) Published: January 18

My father had a brain hemorrhage after he went to bed for the night’s sleep. Initially, we thought it was food poisoning, as he started vomiting and went unconscious. Later after CT scan, we came to know that it was brain hemorrhage. He fought for 10 days, 11th day morning, the hospital declared him dead. He never came back to his conscious state after that stroke.

Comment from: Brain hemorrhage , 25-34 Female (Patient) Published: November 05

I had an intracerebral brain hemorrhage on March 30, 2019 at 33. I was in the shower and suddenly had pain in the back of my head where a hair clip would sit. I suddenly didn’t feel right. I was weak and felt panic. I quickly got out of the shower and began uncontrollably vomiting. I told my husband I needed to go to the emergency room. I was flight lifted to the hospital and don’t remember anything until 3 days later when they drilled a hole in my head to drain the blood. I was in the ICU for 10 days and have severe headaches now.

Comment from: Mik, 45-54 (Patient) Published: October 16

I had a subarachnoid brain hemorrhage on October 31st, 2015 and I write this in October 2019. I had endovascular surgery and the first year was tough; lots of tears and emotional problems. The legacy of my hemorrhage is anxiety, and concerns when I feel unwell, other than that I feel good and it was 4 years ago. Fight back, don't give up, and live the life you are lucky enough to have.

Comment from: Denisedm1, 55-64 Female (Patient) Published: November 23

I suffered a severe brain injury, hit my head on the right side by tripping over a parking curb, I was told. I woke at home 16 days later with severe pain, slurred speech, head pain, nausea and confusion. I could not understand people. I got in the car drove around to the hospital and tried to tell the doctor I woke up like this. Tests were fine, but no memory of anything. I was later told what happened, by my boss. I stopped talking at times, and it got worse. He never told anybody, I don’t know why.

Comment from: Mdslocum13, 19-24 Female (Patient) Published: July 07

In 2003, I had four cerebral hemorrhages.

Comment from: Corinnemom, 25-34 Male (Caregiver) Published: September 17

I am going to give a small overview of what happened to my grandson. On July 2 he just passed out and was rushed to the neurologist. He is 31 years old. He had an intracellular brain hemorrhage and also had a posterior fossa hemorrhage. A study with this type of patient could be very helpful as he had very little residual effects. No loss of any limbs, or speech, so far, we will have to see.

Comment from: Steve 247, 55-64 Male (Patient) Published: September 17

I have survived a brain hemorrhage. After being attacked and beaten with a hammer, my bone turned to dust. My memory is rubbish, more short term, headaches never stop, and I am confused about simple things, not complex, simple stuff totally mess my head up. Short road but long walk, still walking today. I'm never going to be the old me. But at least I'm here. Good luck to all those whose lives have been turned upside down.

Comment from: Frankly Speaking, 55-64 Female (Caregiver) Published: August 19

My significant other was sick all day and later in the day I had no idea she had left home in her car. She was reported to be driving erratically and fortunately was pulled over by the police who quickly determined a medical issue was likely. Off via ambulance to the hospital. That was August 4, 2019 and today is August 15, 2019. A brain hemorrhage was diagnosed, a drain placed, and subsequently removed. Untreated high blood pressure (BP) was determined to be the cause. Presently having difficulty keeping BP down. She is ok with limb movements, etc.

SLIDESHOW

What Happens After a Stroke? Signs, Symptoms, Types See Slideshow
Comment from: Anna, 65-74 Female (Patient) Published: July 16

I had a subarachnoid hemorrhage in 1996. Due to the quick action of relatives when I collapsed, I was taken to the hospital and the aneurysm was clipped. I would say it took me 4 to 5 years to recover my motivation and concentration. I believe it should be widely known that if you have unusual headaches and feel nauseous always go to the doctor and insist on a thorough exam including shining a light into your eyes to see signs of bleeding. This could save many lives.

Comment from: Shelly, 55-64 Female (Patient) Published: July 15

I unfortunately experienced a TBI (traumatic brain injury) with bleed. The doctor suggested 2000-D omega 3. Week 1, three per day, three times a day; week 2, three per day, twice a day; and beginning from week 3 continue the maintenance, three per day. I started late, but it works. It’s been over a year and I notice substantial improvement. Good luck.

Comment from: wideeyedgirl , 55-64 Female (Caregiver) Published: January 02

My mom had a brain hemorrhage end of 2017, the hospital gave up on her and told us she wouldn't make it. She was in a coma for 6 months, we since brought her home, and she's made some recovery, but I want her to get better. She blinks, eats, moves her mouth and makes noises, but doesn't talk, moves her arms and legs but can't stand or walk. I wish I knew how to get her better and how long it takes to recover.

Comment from: Andrew, 45-54 Male (Patient) Published: November 29

On September 26th, 2016, I had two separate hemorrhagic strokes in the occipital lobe while in my classroom. Our school nurse immediately suspected a brain hemorrhage and called for an ambulance immediately. They had difficulty at the hospital stabilizing me and it was touch and go for the first 48 hours. I spent 6 days in the ICU and an additional 3 days in a regular ward at the hospital. Initially, I had lost vision in both left hemispheres of my eyes, had some left side weakness.

Comment from: Alison, 65-74 Female (Patient) Published: October 30

I had a brain hemorrhage twelve months ago and every day is a challenge. I feel dizzy and nauseous all the time, I wish I knew what medication may help. I will try anything. I take 4 mg of ondansetron twice a day.

Comment from: Blessed, 55-64 Female (Patient) Published: September 25

Four years ago I had gotten up and worked that morning. Later in the day after work I visited my mom who had dementia and had lunch with my daughter and grandchildren. From there I went to finish my shopping but that never happened. My blood pressure went too high causing a serious brain hemorrhage. I was airlifted out to a very good hospital and ended up spending a month at their rehabilitation hospital where I learned to walk. My left arm moves but is weak. I walk without a cane if my pain is easy. I'm fortunate.

Comment from: Kartheek, 25-34 Male (Patient) Published: September 07

I had a hemorrhage on 13 October, 2017. I lost movement in my left side leg and hand. Now I am able to walk partially and for my hand movement I am doing stretches daily. I hope this is the right path to recovery.

Comment from: Jane K, 75 or over Female (Patient) Published: August 15

I'd like to give some hope to others. I had a brain hemorrhage at 39. My heart stopped and was started by emergency medical technicians. I was wonky for only 3 days, and out of hospital in 2 weeks. Fast forward 39 years. I have other health issues, but nothing related to hemorrhage. No loss of memory or physical impairment. Heart valves and lungs are shot now. Quoting my mom, 'if I knew I would live this long, I would have taken better care of myself.’

Comment from: Richard, 65-74 Male (Patient) Published: July 05

I had a brain hemorrhage 2 years ago, whilst on holiday in Spain, the hospital were brilliant, and I was in care within 1 hour of the event. I now find it really difficult to remember the past, and never seem to have any energy. At first my left leg was very painful to any kind of pressure, now the leg is ok, but the discomfort seems to move around within the leg, first one toe very sensitive, then toe ok, but back of foot very sensitive. Really would like my life back, but suppose I am lucky.

Comment from: Ryan, 35-44 Male (Patient) Published: June 21

I survived a brain hemorrhage but I have problems understanding and remembering things and I have totally lost all sense of smell and taste.

QUESTION

What is a stroke? See Answer
Comment from: Gerr, 45-54 Male (Patient) Published: May 30

I had a brain hemorrhage on the stem in 2007, which left me with less power and sometimes a lot more power on my right side. I find it very hard to sleep and then I could sleep for days. And then I am forgetting names or where I’d need to go. My reading and writing are and can be very bad. I was 37 when I had it.

Comment from: Julie, 45-54 Male (Caregiver) Published: May 16

My husband suffered an intracerebral hemorrhage 1/16/16. Four hours passed by the time he received treatment. He had 2 drains inserted to relieve the bleeding but they couldn't control it after 2 weeks so they inserted a permanent shunt. He spent 19 days in ICU and another 41 days in in-patient rehabilitation. He was completely right side paralyzed, but through unbelievable hard work, he regained everything but the use of his right leg from the knee down. We've been told he won't ever get mobility back in his leg due to scar tissue from the 2 surgeries. He needs a wheelchair/walker, but we're so thankful his mind is intact, especially with the amount of time lost waiting for treatment. He was 52 at the time of his stroke.

Comment from: JanieK, 75 or over Female (Patient) Published: May 01

I had a brain hemorrhage at 39. I stopped breathing after the emergency medical technicians came. They revived me, got me to the hospital and I was out for 3 days. I woke up and was still a trivia whiz; no weakness, nothing and no side effects, I don’t know why. I am now 77 with many health issues, but still hanging in. Guess I lucked out for a reason. My mom’s quick action saved me and I was healthy to care for her when she was bedridden for 8 years. Anyone with residual affects good luck to you and hope you do better. Sometimes life seems unfair. The trick is to have a good sense of humor and roll with the punches.

Comment from: shannonehr, 45-54 Female (Patient) Published: September 13

I had a brain hemorrhage January 5th, 2017. I was at work with a client and I suddenly felt ill. I felt nausea and my head hurt badly. A co-worker thankfully decided to take me to the hospital that saved my life. I was in ICU for 2 weeks and in the hospital all together for 30 days. This was a difficult process, I struggled with remembering anything. When I got home I ended up going on a walk to get out and got lost. Then July 11th I was bleeding in my brain still and the doctors decided to put a shunt in my head. For me reading other people’s recovery process helped tremendously, I suddenly did not feel alone.

Comment from: karaw, 25-34 Female (Patient) Published: February 03

On the 26th of November 2016 I suffered a subarachnoid hemorrhage of the right, middle cerebral artery. I was gardening, stood up and felt a rush to my head, followed by the most terrible headache anyone can imagine, vomiting, photophobia, and a sore neck. I was rushed to hospital by ambulance, given a CT scan, and operated on the next day. I spent 8 days in ICU and a further day in the ward and was then discharged because of my amazing and fast recovery. The main symptoms I had were music was unrecognizable for a few weeks. If someone told me what the song was I could sing every word but not recognize the tune. Also my left hand would twitch uncontrollably when I got tired. Nearly 10 weeks on I don't need a nap most days. I'm working (administration) 3 hours a day as I can, as I do have bad days. Legally in New Zealand where I live you can't drive for 6 to 12 months after brain surgery, so I struggle a little to get around but have an extremely supportive husband and family. I am so grateful and lucky to be alive.

Comment from: MikeBanks, 35-44 Male (Patient) Published: May 20

April 7, 2016, I woke up and was getting ready for work. I sat down and all of a sudden had the worst head pain in the front skull and the back bottom skull. Not sure what was going on, but I lay down as eye sight was going almost black and brightening again. I was shaking and sweating. My wife woke up and asked if she should call 911, and yes, I said. The ambulance picked me up but didn't think I had anything. I arrived at the hospital and they did a CTI and discovered I had twin aneurysms on my left and right front lobes, of which the left one had my skull filled with blood from left to right and front to back. They put me out and opened my left skull with a large piece of my skull and performed 3 cuts and procedures to stop the bleeding. I was in ICU for 13 days, spent the last night in a regular room and was able to go home. I will have the other aneurysm strengthened with a coil inserted in about 3 more weeks. My recovery has been a blessing for a reason I am not aware of. I am still recovering as my short term memory is not the greatest but gets better every day and the strength of my legs and whole body is getting better. What I am trying to figure out is what exercises I am able to do the best to get myself better and stronger. I currently walk but need more or know if more is better.

Comment from: Chuckie, 45-54 Male (Caregiver) Published: January 29

My brother had a hemorrhagic stroke 3 months ago. He spent 1 week in ICU, could barely move left arm, leg or see out of left eye. After ICU, he started therapy. Now 99 percent vision is back in left eye and he is walking with a walker/cane. He still needs a caregiver. However, therapists say he will be totally or near 100 percent in 6 months to a year.

Comment from: 65-74 Female (Patient) Published: July 28

I had a right parietal lobe bleed which also impacted my right occipital lobe 12 months ago. I was sent home 2 days after my arrival at the stroke center. I have an area of enhancement where my brain hemorrhage was so I continue to have MRIs every few months. I have short term memory issues as well as dizziness, slight cognitive decline, and slight weakness with left side but able to do self-care and light housekeeping. Neurosurgeon wants another MRI to rule out a tumor at enhanced area.

Comment from: FLOSS, 55-64 Female (Patient) Published: April 25

I was driving home in the car when I felt as if I had been hit on the back of the head with a hammer. I felt a surging pain in the back of my head and somehow managed to get myself home, and hospital as I live near the hospital. By then I was in pain at the back of my head and fell to the floor, and don’t remember much after that except being sick. I had a subarachnoid hemorrhage and as a result cognitive impairment, but hope this improves. I am not back at work yet and it has been eight weeks since the bleed. Leading up to the bleed I had a burning sensation in my head and body for a few weeks before the bleed, I went to the general physician and they put it down to the menopause. The MRI scan I had revealed I had a previous stroke around the time I was being treated for stress. I ask myself, could the bleed have been prevented had the stroke been discovered earlier.

Comment from: julie, 75 or over Female (Caregiver) Published: September 05

My mother was admitted to hospital 5 days ago with a brain hemorrhage after a fall. Because she has been on blood thinning tablets the doctor said they can’t operate until the tablets are out of her system which would have been yesterday. The hospital she is in does not have a neurological department so have said my mum will have to be taken to another hospital. This should have happened this morning but didn't. She is still at the same hospital and being observed every two hours.

Comment from: Sue , 75 or over Female (Caregiver) Published: March 26

Yes, my dad died of a brain hemorrhage and the hospital said he was fine.

Comment from: Momma T, 55-64 Female (Patient) Published: November 19

I had my stroke from a brain hemorrhage about 6 months ago and have made a full recovery with no paralysis on the left side at all. I am walking, talking, typing, and have no problems.

Comment from: Lovesflowers, 55-64 Male (Caregiver) Published: July 14

My husband was diagnosed with 5-26-15 subarachnoid hemorrhage. He was monitored in ICU for one week and sent home with pain medication. Forty seven days later, he is still in pain, can't work and wondering if there's a light at the end of this tunnel. Doctor says it's a waiting game.

Comment from: Julie, 45-54 Female (Patient) Published: September 25

I have had 3 brain hemorrhages. With my first one, for about a year I went to the doctor over and over again and was told I had migraine or was stressed. I was taken to hospital because I kept passing out, at the time it looked like I had a stroke but that would pass. I went to the hospital 52 times and not one scan did I have. I then developed a pain in my eye still no help. Then I could not see very well, could not stand daylight and was being sick all the time. In the end I went to see an eye specialist who told me I have dandruff in the eye and to wash it with Johnson baby. I did and the pain was even worse. I went to bed for about 10 minutes and the pain was like some had hit me with a hammer at the back of my head. I told my daughter to call the ambulance and I just fell to the floor. They took me to hospital and did a lumber punch. I had meningitis and brain hemorrhage. And they told me and my family the chances of me living would slim. I survived but had to learn to walk and talk and some part of my brain don't function, like my spelling is very poor, but still I got through it. I also ended up having another one years later which seemed just as bad. Of course in between that I had 5 strokes and they told me I might die again but it took me so long to try and function.

Comment from: ghani, 45-54 Male (Caregiver) Published: April 17

I had the experience of seeing my father suffer with brain hemorrhage due to chronic high blood pressure and tension. But after the treatment by medicine and exercise of 2 months, he recovered. Dio Plus 5/160 mg is the tablet for blood pressure control.

Comment from: Ramkuwar, 65-74 (Caregiver) Published: June 12

My grandma suffered a from brain hemorrhage 2 days ago. She is able to move all body parts, but she can't talk.

Comment from: coetzeegisela, 35-44 Female (Patient) Published: December 16

I had surgery after accident for brain hemorrhage/clot. Now I have vestibular impairment.

Comment from: JoJo, 45-54 Female (Caregiver) Published: July 02

Both my sisters had brain Hemorrhages. One died when she was 32. The other survived but now after 8 years it seems she is having problems. She will be going into hospital soon to have tests done. She is experiencing headaches and I know she has serious personality problems which she did not have before. Anyway, that is my story I miss my sister who passed and I am fearful for this one now. JoJo