Patient Comments: Brain Cancer - Symptoms

Question:

What symptoms and signs did you experience with your brain cancer? Submit Your Comment

Comment from: Katie 22, 45-54 (Patient) Published: December 07

I had my first symptom of brain cancer on my left hand. It started getting weaker and at that time I had been playing table tennis and I just realized I couldn't throw up the ball with straight opened palm. Shortly afterwards I had been working as a cashier and the next symptom I couldn't lift up with my left hand fingers pennies from the cash box. When I saw the general physician I was told it was just arthritis, and I had to have a small very common surgery, and everything will be okay with my fingers afterwards. Brain cancer was detected later.

Comment from: martin, 13-18 Female (Patient) Published: January 31

I am 54 year old male and have normal pressure hydrocephalus (NPH). Back in October 2017 I had a VP (ventriculoperitoneal) shunt fitted. My symptoms before this were short term memory loss, urinary problems, and my walk was if I was falling, feet stuck in mud; my brain couldn't tell my feet to move. No one knows how I got this. Operation seems successful at the moment but it is early days. I feel very tired all the time, and my memory still seems poor, but I don't have the walk problem at the moment; fingers crossed.

Comment from: Grimey, 65-74 Male (Patient) Published: October 25

An MRI found a 20 mm metastatic melanoma in my right temporal lobe close to the surface. Surgical removal was straight forward with no neurological deficit. The only symptoms I had was a feeling of pressure in the top of my head when I fell skiing and maybe when bending. I can't really remember. I thought it was a carryover from an unrelated brain (subarachnoid) hemorrhage (8 months earlier) but unfortunately not. My probable primary was a 3.7 mm deep melanoma on my back 19 years ago. I am now approaching my 8th treatment of pembrolizumab 2g/kg 3 weekly. I had no stereotactic radio surgery of the tumor bed. I have PET and MRI 3 monthly. First were clear. I have dull point pains developing in the right side and top of my head. Scans are due now so here's hoping its stress. Similar but not so bad pains were experienced prior to the last scans. They faded after the scans.

Comment from: msarni0303, 75 or over Female (Patient) Published: March 15

My daughter is 20 months and I just discovered she has RSV (respiratory syncytial virus infection). About a week ago I took her to see the doctor for her cough she'd had for almost 2 weeks at that time. He treated her with antibiotics because it had already been that long and her throat showed some redness. Around the 7th day of her 10 day dosing she started to feel worse and now she's throwing up. So I took her back to the doctor and they swabbed her nostril and sure enough she was positive for RSV. The biggest symptom my daughter shows is coughing nonstop while she is sleeping. Sometimes she even gags and ends up throwing up. Her boogers are bright green and she gets this rash on her cheeks and nose. No fever though. I use a humidifier during the day but in the night I use a vaporizer which seems to help her sleep better. I suction her mucus from her nose as well. Hopefully this goes away soon. It is so hard to see your little one not feeling well.

Comment from: Mary, 45-54 Female (Caregiver) Published: November 03

My best friend who is 53 was diagnosed with lung cancer 5 months ago. She went through chemotherapy and radiation. She was waiting to get his lung removed when they found that the cancer had spread to her brain. She has numbness on left side of face, nausea, vomiting and needs a walker due to her inability to keep her balance. It is tearing me up to see this once energetic lady reduced to sitting on the couch not being able to do anything. They have started radiation on her whole brain but she is extremely depressed at the fact she will be like this the rest of her life. As she says it her quality of life is bad, she can't do anything and is a prisoner in her own home because she doesn't want anyone to see her like she is now.

Comment from: lowell ma, 75 or over Female (Caregiver) Published: April 01

I thought my mom was having a stroke, so I brought her to the emergency room and after test, we learned she has stage 4 brain cancer metastasized from lung. We were not pursuing any treatment other than hospice at home. It is difficult because she has no physical signs really now. She is at peace with her decision and I and my brothers will be there every step of the way.

Comment from: Gdawg, 45-54 Male (Patient) Published: September 03

I started having increased wobbly balance and that progressed to convulsions and then actually falling. Finally I went to hospital. I had CT scan, MRI, ultrasound, EEG, x-rays, and blood work, and admitted in the ICU. They found mass on back of my head. Malignant.

Comment from: poilini, 35-44 Female (Patient) Published: November 17

I have CLL (chronic lymphocytic leukemia) and I had a lot of swollen lymph glands on my neck for the last 9 years. Now they have suddenly disappeared. I wonder if it is because I have stopped dyeing my hair!

SLIDESHOW

Brain Cancer Symptoms, Diagnosis, and Treatment See Slideshow
Comment from: John, 55-64 Male (Caregiver) Published: February 04

It was unfortunate that nobody noticed my dad's frequent head ache and less control over his left side, problems with bowel control too. We'd thought it would be something with the abdomen since bowel control problems existed, but then we realized that he had brain cancer and those were the symptoms.

Comment from: DrMark, 55-64 Male (Caregiver) Published: February 08

My husband has a new diagnosis of primary Gliomas and is awaiting surgery as a first treatment. His recent symptoms include a feeling of "Wooziness" at getting up from lying or sitting- this went on for months and for the last 2 weeks before the diagnosis he experienced unstoppable (what we thought was) migraine pain with 4 trips to emerge for pain intervention as his usual migraine med didn't touch the pain. I believe the migraines which he has always experienced were a mask for this developing tumor!

Comment from: Paula, 65-74 Female (Caregiver) Published: January 05

My brother had multiple metastatic brain tumors, he had WBRT (whole brain radiation therapy) 9 months ago and died on 23 December 2014. His death was horrendous and we wish he had never had the horrible treatment.

Comment from: cricket48, 65-74 Female (Caregiver) Published: March 07

My husband was diagnosed with non-Hodgkin's lymphoma of the CNS (tumor on the occipital lobe) which was inoperable. He was given very high doses of chemo and radiation at the time and although he was given less than three months he is very fortunate to have just celebrated 10 years. The problem now being that because of what they refer to as long-term radiation effects he has problem walking, memory loss and he has just starting making up crazy stories and seeing things in our residence that are not there.

Comment from: bridget, 55-64 Female (Caregiver) Published: September 26

My mom has stage 4 brain cancer. Her surgery was a year ago. She had some tumors that were unremovable but she has fought a long hard battle and she is doing wonderful. The doctors say she will be fine and live a long life so for all you people out there, there is hope.

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