Patient Comments: Bile Duct Cancer - Stage

Question:

What stage is your bile duct cancer? Submit Your Comment

Comment from: Chloe , 45-54 Female (Patient) Published: April 03

I have been diagnosed with stage 3 bile duct cancer. I have had more than 8 surgeries. I had bad pain in my pancreas, my skin turned yellow, and I lost appetite. I kept losing weight without trying. No appetite for food. I'm feel scared, I don't want to die! I'm a single mom and got 3 kids.

Comment from: Sandig, 45-54 Female (Patient) Published: July 05

I was diagnosed with bile duct and pancreatic cancer in December 2017. I had the Whipple procedure. I've had 3 months of chemotherapy infusion, and I have 4 more months. My oncologist told me my tumors are gone, but that I still have cancerous cells. There is an 85 percent chance of reoccurrence with my cancer. I wonder if my prognosis has changed. I was told I have a 25 percent chance of living 5 years.

Comment from: Ricardo, 55-64 Male (Caregiver) Published: June 26

My father was recently diagnosed with stage 4 bile duct cancer. Beginning in February 2018 to now June, he has gone through 9 different procedures to put plastic stent and then metal one, remove his gallbladder, and doctors tried to do Whipple procedure only to come back to say not possible due to finding lymph nodes in another area being cancerous. He has now started first chemotherapy treatment, but is feeling some tingling in certain parts of body, along with feeling some pain only at night in penis area. I wonder if the cancer could be spreading more, or there is an infection due to stent. My dad is only 61 and doesn't smoke or drink. We need more time with him and I'm getting nervous!

Comment from: Ms. Mikey, 35-44 Male (Caregiver) Published: June 05

My husband was diagnosed 2 years ago with stage 4 bile duct cancer. A week after finding it he began treatment. The only option was chemotherapy. He was on a very strong combo and after 1.5 years they took him off the Gemzar. He still does chemotherapy every week but the growth has stopped on his liver and the bile duct is clear. He then underwent a procedure where they injected radiation directly into the tumors. He still has his bad days but all in all he is doing well. Chemotherapy will forever be in our lives because he will need it forever. Surgery was/is not an option for him because of the scattered masses on his liver. They stopped growing but they are not shrinking as hoped.

Comment from: MaryD, 55-64 Female (Patient) Published: September 10

I believe my bile duct cancer was stage 1, I was lucky, I really never had the usual symptoms.

Comment from: SB, 65-74 Female (Caregiver) Published: March 26

My bile duct cancer is stage IV.

Comment from: livinglarge50 , 75 or over Female (Caregiver) Published: July 19

My mother was diagnosed with bile duct cancer in late February. She has lost so much weight she is down to 99 pounds and she eats very little. She has chills so bad that she cannot get warm or has a feeling of getting so hot on the inside she cannot get cool. She is so weak. I don't know what to do. I and trying to find out what this cancer does and the signs of the last stages of my mom's life.

Comment from: Carole, 45-54 Female (Caregiver) Published: June 11

My daughter has stage 4 bile duct cancer and we are sending her to a cancer hospital. I fear my daughter doesn't have a long time with us. She underwent a mass removal 8 years ago. I am her mother and think that it had something to do with this cancer. She is only 50, she just had her birthday. I am not ready to lose my daughter I hope the cancer society can help us.

Comment from: Deej, 45-54 Male (Caregiver) Published: May 15

My brother was diagnosed with bile duct cancer. He was gone in four weeks, didn't even make it to the oncologist appointment. We didn't even know what cancer it was until after. In July 2016 life support was switched off. We are still in shock about it all and it's May 2018.

Comment from: Em_dreams, 35-44 Male (Caregiver) Published: September 25

My husband was diagnosed with bile duct cancer (at the head of the pancreas) 2 years ago in September of 2013. We visited 3 very reputable hospitals for opinions and all three agreed that it was inoperable. He had a gastrojejunostomy in February because the tumor had grown enough to pinch the duodenum and he was unable to eat. This surgery has greatly improved his quality of life, but in July we decided to do an alternative treatment called IPT (insulin potentiation therapy). We are presently doing this treatment. We have done 4 out of 10 treatments so far; it is low dose chemotherapy administered after an injection of insulin. He seems to be doing ok. He also has a PTC (percutaneous transhepatic cholangiography) tube to help drain the bile, which we get changed every 4 weeks.

Comment from: Mokhtar, 55-64 Male (Caregiver) Published: May 09

My father was just diagnosed with cholangiocarcinoma (bile duct cancer). They went in to operate and remove the growth which is extrahepatic, but then once inside, realized they could not remove it. It is slightly entwined with a large group of arteries. We had scans done 5 months ago, but nothing was visible in this area, but now the doctors are saying it is possible to not be visible during the scans due to the location. Upon my own reading and research, I am thinking it may be a little more promising than most other treatments or treatment plans I have read, to possibly try to reduce the size of the growth, possibly via photodynamic therapy, and hopefully get it small enough to remove. I could be way off but I am nervous and want to learn as much as possible and check any potential options and hope for advice from anyone who has been here before or from doctors who may have seen promising results from specific plans of attack.

Comment from: joekar, 45-54 Female (Caregiver) Published: September 19

My husband passed away with bile duct cancer 10 years ago. We found out on the 17th of November and he passed on the 28th of November. He had some signs mostly pain in his stomach. I didn't know what hit us. Good Luck to everyone.

Comment from: wadih, 55-64 Male (Patient) Published: November 06

I was recently diagnosed with bile duct cancer. At first they thought it was a carcinoid of the liver, where there is a 10 cm tumor, but after biopsy, the diagnosis came back as bile duct cancer and is going to be treated with chemotherapy.

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